I am sending this to the HD on-line groups for Dr. Janet Williams and Elizabeth Penzinger with the University of Iowa HDSA Center of Excellence. It's an...
Am forwarding this message from Robin. What an exciting thing this man will be doing to raise awareness & funding for HD. He writes: "A popular saying ...
I'm Tina. I am 33 years old and I'm at risk. My Dad died 5 years ago with HD and my brother currently is disable with this horrible disease. I would love...
Hi Tina, My name is Melanie, I'm also 33 and also at risk. My Mom recently started displaying symptoms and my Grandmother had it. You are correct when saying...
Hi Tina sorry to hear about the loss of you Dad to this disease and to hear your brother is progressing through it now. I am afraid this group and the HD...
Hi Tina, I'm also at risk, am 41, and my older brother died 2 years ago. My mom died in 1933 after being diagnosed in1975. I relate. Have you been tested? ...
I tried to catch Chat the other night, but missed again..I'm sorry..no time lately..I have been caring for my son and DIL's twins..4 months now..DIL is very...
Since many people might be busy with last minute shopping or will be traveling for the holidays I wanted to send a quick message thanking you for being a part...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Becca & Katies Birthday Saturday December 23, 2006 All Day ...
huntingtonsatrisk@yah...
Dec 22, 2006 6:11 am
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hey tina. i totally understand what you're saying as far as non-HD people not getting it. it's frustrating when i tell a friend about it and they have no...
Hi Greg, I'm Melanie, 33, at-risk, and also live in Arizona. Where in AZ are you? I'm in Mesa. It's always nice to meet people who have an understanding of...
Hi, My name is leyla and I live in Toronto, Ontario Canada. I'm 31 years old and recently found out that I am at risk of HD. My father was just diagnosed...
Thanks Susie- I can tell this is a friendly and welcoming group. I joined this group to learn how others are coping with HD and maybe I could help, someone....
Hey Greg- Thanks for the nice welcome to the group. I just got back from seeing my brother. It's so depressing seeing the people I love deteriorate. Do You...
Hey Anne, I think my dad was diagnosed in 1984 and that had taken a couple years to learn waht exactly was wrong with him. Mainly because we didn't know any...
You have received a new eCard from Sue. As I sit here this Christmas Eve, I count my blessings. As Ruth said in an earlier post, we all know how difficult it...
hey tina, i do have a brother and sister, but, since they are "technically" step-siblings, they are a great deal younger than me and don't totally understand...
May your new year be prosperous, healthy, and inspiring. Just know that what life has handed you in the past has made you the person you are today which give...
Dear Friends and Family, Most of you know that Huntington's Disease, a neuro-degenerative, genetic disease of the brain haunts both Dave's family and my...
Remember the gala celebration will be at the HDSA National Convention scheduled in Oklahoma City June 15-17th 2007! Never too early to start making your plans...
http://pulp1.design215.com/pulpchat/php/launch.php?chat=hdac I WILL be at chat tonight if anyone wants to know. I know it has been a long time but I got a day...
I am new to this particular sight...I am 28 and from Australia. My mum has hd. She has had hd since i was 15, that I know of, and she has spent the last 6...
External email systems may alter the format and punctuation of some emails. If you received a distorted or unformatted version of this HDSA bulletin, please...
This is what I recieved from HDSA this morning in its entireity if anyone is intrested in doing this please just follow the directions HDSA sent. Susie ...
I'm sharing this request on behalf of Helen Brewer, Care Adviser - Juvenile Huntington's Disease for Euro-HD. Any parent of children with JHD, young people...
I know I have not been as active as I should of been but I have kept most of the news alerts I get so if I ever get caught up in life I can at least bring to...
MegaVoteEUREKA.......the times are changing [finally]! 24 states were in favor of this bill. Florida, among others voted against it. Go here to see how they...
IS THERE ANYONE OUT THAT HAS A FAMLIY MEMBER HAVING TROUBLE WITH MUSCUS AND STOP BREATHING, RATTLING IN THE THROUT, BUT THEY SAY HIS LUNGS ARE CLEAR.iF ANYONE...
This news alert is for your information only, before changing or doing anything please consult your doctor. I do not endorse any of this information it is for...
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