Hi everyone...Happy 4th..I think I told you all my DIL is pregnant with twins..[donor eggs..so they are HD free], but she is showing many of the HD symptoms at...
Why now does your son whis to tell her she has the disease? If he told her she could miscarry the twins and after all the time, money and effort they have put...
Hi Toni! What a situation this whole thing has been. My opinion is that she should have been told before she got pregnant. But, hindsight is 20/20 I guess....
Hi Lesley! Sorry that I'm late with this, but..........CONGRATULATIONS!!!!!! I'm so happy for you. And thanks for sharing the great news. We all need to...
Hi Susie..thanx for your response..I think I did not explain myself clear enough..she was tested 4 yrs ago and then got pregnant [after 3 failed invitros] the...
Thanx Steve..and again, sorry I haven't been active in the group lately...got lots going on..but I read the posts every day...Lori knew she had HD 3 yrs...
The link to order the Huntington's Disease Caregiver CD's on the HDSF has been updated to include shipping & handling to Canada! The site has also been changed...
Phase III of the Huntington's Disease Memorial Quilt made it's grand entrance and unveiling at the HDSA National Convention in June, 2006! As most people...
Someone hacked into the HDAC chat rooms and they had to be closed down. I have been informed by Lynn that the chat room is back in business and we have one for...
Just wanted to let everyone know that I have finally got my convention pictures uploaded to my webshot albums. The first link is to the general album, the...
Kudos' to the Indiana Chapter and it won't hurt all of us to join in on this new Campaign-Oprah HD Awareness! Please, pass this along to all your friends and...
This is one of the best ideas I've seen in a LONG TIME. Awesome! This would raise HUGE awareness. I'm definately doing it and I'm sending it to everyone I ...
I am in the HDAC At Risk chat room if anyone wants to join me. I will be there for an hour if no one shows up I will leave, the time now is 7:30 PM Central...
Chat is over and what a wonderful chat we had too 3 and a half hours worth of chatting been a long time since we had that. I was glad to see old and new people...
Reminder from the Calendar of huntingtonsatrisk http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Friday July 7, 2006 All Day (This event...
huntingtonsatrisk@yah...
Jul 6, 2006 5:28 am
5647
(SORRY THIS IS A LONG EMAIL) Hello everyone, I am the mother of two children, (not children anymore but) ages 26 and 29. My son is in the early stages of HD...
Reminder from the Calendar of huntingtonsatrisk http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Friday July 7, 2006 All Day (This event...
huntingtonsatrisk@yah...
Jul 7, 2006 4:25 am
5649
Hello out there! My husband and I are starting a not-for-profit organization to accept and distribute charitable donations for HD. Does anyone know if there...
Alicia, if you're in the United States, I'd suggest you go to www.irs.gov and seek out the directions for filling out a 501C(3) non-profit application in order...
Hey everyone, i post very infrequently on here, but felt the need to say that last week, I went to the genetics clinic, where they took a blood sample to...
Hi Mark! I understand totally. I have been contemplating the test too. My mom and both of her siblings (brothers) have HD. Mom's is the less severe of the...
good luck mark my payers are with you kathy markus4412 <markus4412@...> wrote: Hey everyone, i post very infrequently on here, but felt the need to say...
The following message was posted to Hunt-Dis earlier today. I thought that everyone might be interested. Check your local listings for the "American Roots...
The following is a message Dave sent out to Hunt-Dis. I thought members f the other on line support groups would also be interested in this. Jordan Brown is...
Dont forget to go to www.oprah.com and email her show about Huntington's Disease. This is a concentrated effort by all on-line support groups in the hope that...
Sorry if I'm so far behind in reading everyone's messages. I went to the other coast Saturday with my kid sister for my grandniece's 1st birthday...my sister...
I just e-mailed the oprah show and my father and step mother did aswell as other family members. lets hope it helps. Always and Forever, Karry ... Talk is...
Today's the last day for the Oprah Winfrey HD Awareness email campaign initiated by the Indiana HDSA Chapter! Add your personal message/suggestions for an HD...
Mark you are not morbid in your thoughts and if you are ready to find out once and for all that is your decision, one that no one can take from you. From...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
