For those attending the convention next week in Milwaukee. Don't forget the On-line party on Thursday evening. It will be in the Miller Time Pub on the first...
Your Support is Needed!!!! As most of you know, the 2006 RAAM Bike Race across America has the 2CURE-HD Team participating this year, with all money raised...
I hope the risperdal works for you better, give it time and if it isn't right please keep trying until you are comfortable with the movements. I wish you all...
I just heard tonight that John Wright passed away May 30, 2006 after his battle with HD. John is Sue's husband who is also Moderator of this group, she is from...
Reminder from the Calendar of huntingtonsatrisk http://groups.yahoo.com/group/huntingtonsatrisk/cal Moms birthday Wednesday June 7, 2006 All Day (This event...
huntingtonsatrisk@yah...
Jun 5, 2006 5:05 am
5596
It seems pertty bad when we all cannot find out about information from Yahoo themselves, I have to steal it from other groups (this one from HD Families-thanks...
Reminder from the Calendar of huntingtonsatrisk http://groups.yahoo.com/group/huntingtonsatrisk/cal Moms birthday Wednesday June 7, 2006 All Day (This event...
huntingtonsatrisk@yah...
Jun 6, 2006 5:02 pm
5599
HD trial informationFor anyone whose nearby HDSA Center of Excellence doesn't already have you participating in either one of these studies, and if you won't...
Below is a message from HDSA national. I apologize if this is a duplication for you but if you have any of the requested video footage, please contact Fred...
http://www.hdac.org/chat/index.php3 You have to register but it is FREE so come on in and join me. If no one shows up in an hour or there about I will head off...
Below is copied in the attached Word 97 document for sharing. HDSA's Juvenile Huntington's Disease Primer & Guide to Best Practices June 2006 For the past five...
Brandie, So sorry I'm late responding, but I completely understand where you are coming from. You know being alone with this disease is scarry as hell to me...
YOU ARE VERY SMART WOMAN AND I CAN RELATE SO WELL WITH YOUR FATHER. I HAVE BEEN TAKING CARE MY WIFE FOR 10 YEARS NOW. HUNTINGTON'S HAS CHANGE OUR LIVES FROM...
THE SOURCE IS !!! http://www.cmmt.ubc.ca/news_events/news/index.php?news_id=77 Cure Found for Huntington Disease in Mice Offers Hope for Treatment in Humans ...
Hi All, I have been a member for a few months but saving one message I seem to have read and listened rather than contributed to discussions. Today I went to...
Lesley we all get our support from different avenues and I am glad you got comfort from reading the posts; at least we were here if you ever needed us. I...
Hey guys, I did the Startle study at the University of Iowa today and they need about 8 more participants in the next two weeks to meet the study deadline. If...
CONGRATULATIONS!!!!!!!!!!! I tested negative last year too. It's amazing my dear. :) We're all still here for you because HD will always be a part of your...
Hello Everyone! My family has a VERY LARGE website on myfamily.com (thanks to a lot of time and energy spent by my Aunt) but anyway, there's all kinds of...
Hi Alicia, If you want to email me privately, I will tell you what we have been experiencing with the VA.,My son is under their care, and so far we are very...
Hi Alicia, About your charity stuff... Do you think your long lost relatives would be interested in donating to HDSA for the NYA Retreat? It's a youth retreat...
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