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huntingtonsatrisk · huntington's at risk - A place to talk about being at risk
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Messages 5182 - 5212 of 7007   Oldest  |  < Older  |  Newer >  |  Newest
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5182
Note: forwarded message attached. If you search for a better tomorrow, and you find no beauty today, then you have missed the joy of living, somewhere along...
claudia vanblaricum
claud_48706_...
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Jan 2, 2006
2:31 pm
5183
I normally just read what you all have to say but today I feel like I want to talk. I didn't see my dad in 10 years (I left home at 16 and never came back.)...
sillypants03
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Jan 3, 2006
10:27 pm
5185
Dear all the last 12th of April I tested the baby inside me after being pregnant for 12 weeks.I had no courage to get test myself and to do it earlier. Thanks...
lidia p
lidiab42000
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Jan 4, 2006
7:39 pm
5186
Ohh my god! Thats sounds like me to a T I hadnt seen my dad in 12 years seince i was young and he had never met his dad (the result on a affair) but...
amanda rupert
therosesthor...
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Jan 4, 2006
11:01 pm
5187
Lidia, Just viewed Birgit Juliette's picture. What a beautiful baby. I'm so happy for you and your daughter that she tested negative ! Vada lidia p...
VADA MERCER
vadamercer
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Jan 4, 2006
11:34 pm
5188
hey rod, how r u? i am so glad that valium and prozak helps with HD, its so good to have something that at least makes u feel better... yep. its a b***ch, but...
dancingangelssammy
dancingangel...
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Jan 5, 2006
12:54 am
5189
hi marion, i am so pleased that linda got to go to new york, with all her family around her who loved her. with support like that its no wonder she's feeling...
dancingangelssammy
dancingangel...
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Jan 5, 2006
12:58 am
5190
... i couldn't have said it better myself... cruel, hurtful, mean, ununderstanding, people who don't have a second thought for how it makes the person, or...
dancingangelssammy
dancingangel...
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Jan 5, 2006
1:00 am
5191
she is just the cutest little baby, bless her, thank god she tested negative.... your little miracle. sammy x...
dancingangelssammy
dancingangel...
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Jan 5, 2006
1:02 am
5192
I haven't been on the HD groups in a long time, but back in 2001 I was. At the time I was a 42-year-old at risk for HD and was for the first time in my life...
janiceotown
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Jan 5, 2006
2:57 am
5193
Do any of you participate in studies? amanda...
Amanda
therosesthor...
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Jan 5, 2006
5:53 am
5194
no i don't, but am planning to.... good question. has anyone else? how has everyone found it?? sammy...
sam evans
dancingangel...
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Jan 5, 2006
2:56 pm
5195
https://hddrugworks.org/interactive.cgi?redirect_start=1 This is the one that I am in HD drug works. I like them because they have had some of the first...
Rodney Robinson
Rodney_Robinson
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Jan 5, 2006
3:47 pm
5196
Hi, were not in a study per say BUT our neurologist is an HD researcher and HD brain scan imaging specialist.He has placed my children on what he refers to as...
jane merver
jym092000
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Jan 6, 2006
1:31 pm
5197
This was emailed to me just now, I am posting it as I know Julie and how hard this was for her and her family. Julie, Geri and Charlie are in my thoughts. ...
Sue Adams
susie_que_56
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Jan 6, 2006
3:43 pm
5198
heres the deal five years ago when i suddenly found out about hd......I got tested and the test came back positive. So....my doctor at the time..we talked...
Amanda
therosesthor...
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Jan 6, 2006
4:20 pm
5199
Dear Jane, My Phd husband's sister, Sarah Francis (Mercer) Smith, died of HD in 1990. She was at the NIH for two years in a study for HD back in the mid...
VADA MERCER
vadamercer
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Jan 6, 2006
4:30 pm
5200
did you get your insurance after you found out you had hd?? and didnt put that on the application?? Amanda <therosesthorn2000@...> wrote: heres the deal...
Tara Ward
tara1644
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Jan 6, 2006
4:33 pm
5201
My sincere prayers are with you all (((Julie, Gerri, Charlie))) Love, Vada Thank you, Susie for passing on this message. Sue Adams <angelrose@...>...
VADA MERCER
vadamercer
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Jan 6, 2006
4:35 pm
5202
My question, too. If the insurance co were to find out about the "omission" (if, in fact, you did know about the positive results for HD), any claim...
VADA MERCER
vadamercer
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Jan 6, 2006
4:42 pm
5203
I had insurace before i got tested.......It wasnt shared at the time because i wanted to get a good life insurance policy and all that good stuff before it was...
amanda rupert
therosesthor...
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Jan 6, 2006
11:52 pm
5204
I am fairly new to all this too. So take what I am about to say as my views at this time... No, there is nothing you can take or anything you can do to prevent...
Jennifer Duell
fred_rica
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Jan 7, 2006
1:09 am
5205
Thanks jennifer, i didnt think their was but i was just trying to update myselfon that amanda Jennifer Duell <fred_rica@...> wrote: I am fairly new to...
amanda rupert
therosesthor...
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Jan 7, 2006
1:23 am
5206
hi everyone, in terms of a preventative measure for HD, the research is coming along, at at least there is research being done. i am confident in hopine that...
sam evans
dancingangel...
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Jan 7, 2006
11:20 am
5207
Julie, i am so terribly sorry about the passing away of your mother, it is so very surreal when it happens and there are no words to describe the pain. Rest...
sam evans
dancingangel...
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Jan 7, 2006
11:27 am
5208
we didnt have ANY INSURANCE when ALL 3 of them were diagnosed they were uninsurable or premiums would have been way tooo high already for other med reasons no...
jane merver
jym092000
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Jan 7, 2006
4:38 pm
5209
Vada I just love your name to begin!I admire the courage and strength loved ones such as your sarah show to be able to do something to help sooo many in spite...
jane merver
jym092000
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Jan 7, 2006
5:06 pm
5210
Janice, Thanks for your post. I am a 36 yr single mom of two beautiful children, caregiver for both parents my mom being my pHD as well as many other family...
Rhonda Holscher
sawedoffrunt69
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Jan 9, 2006
4:45 am
5211
i asked because thats very important thing to have... i know you might have some of these sites.. but heres some sites u can go to for more information... ...
Tara Ward
tara1644
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Jan 9, 2006
1:57 pm
5212
Hi Amanda I would not tell anyone excpt your DR that you have the GYN. I have Huntingtons and i have a really fast mortorcycle and a really long car....
rpb22000@...
rpb22000
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Jan 9, 2006
8:19 pm
Messages 5182 - 5212 of 7007   Oldest  |  < Older  |  Newer >  |  Newest
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