Zebrafish and CHIP help untangle protein misfolding in brain disease Keeping the body and mind healthy depends on keeping cells healthy and functioning. This...
Hello everyone, Marie Nemec posted this on Hunt-Dis, and it occurred to me, that there may be folks that belong to the other support lists, that may have...
To all of our new family members who aren't familiar with the Huntington's Disease Memorial Quilts, I thought I'd provide a little background about these...
I received this from the Scottish Huntington's Group just now, and wanted to share this with you in case you didn't know this was happening. Please take time...
i just would like to introduce myself im jo and im 39 years old my father has huntingdons and so i am at risk along with my daughter who is almost 15 and who...
belle.gobble8559 and thecatswhiskersmom welcome to Huntington's At Risk Group. We do our best to support each other through this disease, we each have our own...
Hi Jo nice to meet you I am Susie (49) my husband had HD and has since passed on, I have two sons who are At risk Kevin (26) and Scott (15). Both know of their...
Hi, I recently found out that the disease that my mother had been suffering for the past 10-15 years is called Huntington's. That puts me and my brother at...
Last Thursday David Weinmann was riding his motorcycle from his second job. A deer ran out in front of him, and he tried to miss it. David was taken to Liberty...
Hello Jyoti and welcome to At Risk Group. I am sorry your mother was misdiagnosed and it has taken so long for the doctors to get it right. I am also sad she...
Hi Jo, I'm Michelle. I just tested negative. I'm 19 and part of the NYA - the youth (9-29) HD online support group. I am more than happy to help you with...
Hi Susie, Since the time I have found out about my mother's true condition all I have been doing is to browse through the enormous resources available on the...
Hello, Jo, I can imagine it must be a hard position to be in. Personally, I have known ever since my Mum has known it was in the family, about 6 years ago now...
Hi There everyone. My name is Lauren. I live in Groton, CT, and I'm going to be 20 on Nov 10. I was just tested yesterday (Nov 7) for HD and I will be finding ...
Hi Lauren Welcome to the Group, sorry for your reason to be here. BUT.... U have come to the right place for support! :o) I'm sure there will be plenty of...
Hi Ashlee! Thanks for the support. I remember wanting to get tested when I was 17, but couldn't because my father is in denial. I think it's awesome you are...
The website is http://huntingtondisease.tripod.com/nya/. When the thing pops up and asks for a password just click cancel and it'll let you in. Michelle --...
Hi Lauren, I'm Michelle. I'm 19 and I just tested negative. I know it's super stressful and I'm here if you ever need to talk. Yahoo - mrouthieaux AIM -...
just a reminder that huntingtons radio will be launched on the 28th of this month. we have really been encouraged with an average of 80 listeners per day and...
Thanks, Michelle! I appreciate it. My AIM ID is everwithyou, Yahoo is yourbabydoll_forever. ... super stressful and I'm here if you ever need to talk. Yahoo -...
A friend Brian Ehamm passes away in his sleep. I knew him from my face to face Huntington's group. He is finally at peace the showing is today and the...
Dear Claudia, Sorry to hear of the passing of your sister and your friend. I can only imagine how heavy your heart is. Ruth Life is like a picture,so paint it...
Subject: Virus Alert Fyi........................ Emails with pictures of Osama Bin-Laden hanged are being sent and the moment that you open these emails your...
just looking for support. my mom died of a medicine she was taking october 30 2005 after suffering from hd for a long time. my grandfather and uncle also died...
That's very sad. I'm sorry. My brother died last year aftr having the disease almost 15 years. in addition, my mom, maternal grandmother, and my mom's...