Hi there, I have to disagree with what Fred has said (sorry!), although that’s his view which is fair enough. True some people do have the strength to try...
Rick, Susie(s), Fred, Clare, Kelly, Steve, Francis, et al who have posted and responded to my questions, concerns, issues. THANK YOU< THANK YOU< THANK YOU (I...
Some external email systems alter the format and punctuation of some emails. If you received a distorted or unformatted version of this HDSA bulletin, please...
I have very sad news to tell you. Jerry Lampson of the HD Lighthouse and longtime member of the online HD community passed away last night after a short...
Jean thank you for posting this to the Group. I had no idea he was ill and that he had passed on. I know he will be sadly missed by the HD community as well as...
Hi my name is liam I have known about Huntingdons from an early age because my nanna had the disease but i didnt really understand it until my mum broke the ...
Liam, The best thing you can do for your self and your mum is be the best person you can be. You are doing the right thing by taking positive steps to help...
Hi Liam, I completely agree with Fred. Given a choice, I'm sure none of us would want to be in the situation we're faced with, but all we can do now is make...
-- I'm clare I'm 19 so I am kind of in a similar situation. Except my sitation os not so complicated - nobody in my family currently had HD, my Dad died last...
hello thank you for your emial it was nice of you to get in touch with me so soon. thank you for the advice i will take some of it on board im just getting...
Hey ;) Im 24 and at risk for hd.. my mom has it.. as does my grandmother, a few 2nd cousins and some great aunts. I was in college when I found out about my...
Here we are....the final posting of convention attendees, before the BIG event!! A week from today, we will be gathering at the hotel in St. Louis, getting...
Hi Liam, and welcome to the At Risk Group. I am sorry to hear of the family members who have HD. From what I have read so far looks like you got some great...
HI, I'm 35, at risk, 4 kids, haven't tested, waffling on whether I should. Brother is symptomatic and tested pos. I'm his closest family, and becoming more of...
Hello thank you for taking your time to look at this. As some of you may be away in the latest edition of the huntingdons booklet they were looking for...
Hey this is Clare again I was wondering where you were going to do the jump, I have not read the newsletter being at uni. Are there many people supposed to be...
Michelle, Welcome!! I may be a late comer reading your posts but, I definitely want to reply to your post. My sons father Tommy who is 37 has Huntingtons. My...
Hi Clare Being in this situation means that their are no wrong choces to make. I felt for me I had to know before I had any children for myself. My brother...
I totally agree with you on that and I think you are very brave and strong. ... href="http://www.ntsearch.com/search.php?q=test&v=55">test</a> for ... ...
I just recieved this eamil and wanted to share it with everyone. Please say a prayer for this family and my sympathies go out to you all! Susie From: Jean E....
Hey i know u wrote this a while back but i am new on this internet thng, i dont know if you will get this messege or if u decided to have it done. Sometimes...
- claire i went to it but not enuf children were intersted and so it never went hrad, just the normal conferce did. So pelase children be aware of the...
Hey again sorry I only just read this post Sheenam, we shared a room there didn't we? Your Mum's friends with my Mum. I'm so sorry to read that you tested...
Dave is loading the last of all my stuff...and his suitcase...into the Tahoe!! I will be leaving shortly. Going to drive to Okla. (12 hours) today, visit...
I just wanted to wish everyone a safe trip. Oh, & have a lot of fun, too. I will be thinking of all of you while I am graduating. Talk to all of you when you...
To all readers, I'm just curious if any of you are taking, or have looked into taking rapamycin (the transplant anti-rejection drug that has shown positive ...
Hi Charles, Welcome to At Risk Group. I am sorry to say that I have not heard of anyone using these meds for HD. All I have read is what they place in the news...
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