Hi Kevin. I think this is a great idea. I look forward to seeing this group grow also. HD has so many levels. Being at risk and talking to others that are at ...
Thanks Kevin for creating this new club and for inviting me to join. The friendship and support I've received from these clubs and chat rooms over the last ...
Ok I need to know what time you can chat? I have Sunday and Mondays off. Does Monday sometime sound good? If it isn't then Susie_que_56 will stand in for me. ...
I just wanted to congratulate Kevin on starting this club and wish you all a great future here. I will visit from time to time, mainly to learn from those at ...
Kathie I was looking through the contacts and saw you have lost a child due to HD being in the family. I am so sorry and please except my condolences! Loss is...
When i started this club i didn't think it would amount to much. I figured it would be me talking to myself and i do very well at that. Cure4HD thank you for ...
Kevin,<br>you just don't know how good it is to have a place you can come to , to talk about this diease, before I found these clubs, I had no one to discuss...
i have decided today that it don't matter being at risk,that if you are a caregiver or have hd that you matter to people, but being at risk is nothing, your...
Dear Bbwlady,<br> Yes it does matter, it matters a great deal, tell us what you are upset about, and we will try to help you through it, I'm sure that in one...
BBWLADY, You know what, you do matter! pAR (persons At Risk) matter alot! I have chatted with pAR and I take them just a seriously as I do pHD and caregivers....
((((((((((BBWLADY)))))))))))))<br><br>Yours is a cross that no one should bear. The agony of waiting until you are about the right to start having sympton, ...
BBWLADY,<br><br>What Kathie said is so true! Heck, I thought she was talking to me!!!! <br><br>For years, it was pretty easy to live each day to the fullest...
Kevin,<br><br>This is a great club. There is really now where for those of us at risk to talk about our fears and needs. I think it is wonderful that you set...
Does anyone know anything about Juvenile HD? Is it a different kind of HD or is it just when some one young gets HD? My mother always says that my kids can't...
Lisa, JHD is a form which someone under the age of 20 that has HD. J stands for the younger onset. Your mother could be right and she could be wrong. JHD and...
If you haven't already please take a look at the Links located on your left in the side bar. I asked Susie_que_56 to put some in there to get it started....
bbwlady, as the SPOUSE of an at-risk person I am truly at the bottom of the totem pole, so at least in that respect I can say I know how you feel. I have been...
five days before christmas i tested posative for HD. i had to wait until i turned eighteen before i was allowed to find out wether or not i had the disease....
This is the first time that i have posted here. But I am so glad you started this club. It is wonderful. I would like to link it to my web page because there...
In my last post I entered the address for the caregivers support wrong the right address is <a href=http://clubs.yahoo.com/clubs/caregiverssupportforhd...
Sometimes_Sunday, I am sorry to hear you had to place your Father. I was a caregiver and had to make the same dicision. After seeing him in there I knew he had...
Thanks Mykruk for posting that club address! I know we can all do this together but sometimes we have to go to our own special place. I also added all the ...
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