From: michelle wooley <michwooley@...>
Subject: Re: [huntington's at risk] Re: more questions
To: huntingtonsatrisk@yahoogroups.com
Date: Tuesday, July 28, 2009, 6:39 PM

 

I'm glad I got to talk to you too and I would love to contiue our conversation. I'll be watching for you come on. Michelle --- On Tue, 7/28/09, blondeangel3k6 <blondeangel3k6@ yahoo.com> wrote: From: blondeangel3k6 <blondeangel3k6@ yahoo.com> Subject: [huntington' s at risk] Re: more questions To: huntingtonsatrisk@ yahoogroups. com Date: Tuesday, July 28, 2009, 3:18 PM   --- In huntingtonsatrisk@ yahoogroups. com, michelle wooley <michwooley@ ...> wrote: > > Thank you so much for the tips. Everything your saying about your mom sounds alot like my mom but she hasn't had the rage (or anger) yet. She has gotten very depressed. My dads taking the car away from her. She's not happy about that one but its time. We might need the doctor to step in and tell her that she no longer can drive because she thinks we're crazy and she's fine.   > > > Michelle > > --- On Tue, 7/28/09, brandie.derusha <brandie.derusha@ ...> wrote: > > > From: brandie.derusha <brandie.derusha@ ...> > Subject: [huntington' s at risk] Re: more questions > To: huntingtonsatrisk@ yahoogroups. com > Date: Tuesday, July 28, 2009, 11:53 AM > > >   > > > > My mom experienced alot of mood swings. They call it raging. Where for an hour or so, she just exploded in anger. She said some very hurtful things during those times and I am still trying to work through the mess that it left me in. But you MUST remember that when this happens, it is the Disease working, not your mom. She remembered things that never happened. And made me look like the bad guy because of her fake memories. > > She also slowly began to loose control of her body. She can still walk, talk, eat and use the toilet. But she cannot drive, talk well, or even walk a straight line. We had to have her go to a nursing home when she would get into the car and wreck it a few miles later. > > She also lost alot of weight, so make sure that she is getting what she needs in nutrition. Because the disease effects the motor functions of your body, it becomes difficult to swallow. Protien shakes helped my grandma, and are now helping my mom. > > That's all I really can say of my experience. My mom is now in the advanced stages, so she is being more cooperative with us, finally. > > I am praying that your situation goes well with your mom. :) > --- In huntingtonsatrisk@ yahoogroups. com, "michwooley" <michwooley@ ...> wrote: > > > > ok I know everyone goes through this different but what is some of the most common things I should expect my mom to go through. I've done alot of reading on it but I've never gotten the chance to talk to anyone (let alone a whole group of people) that have actually had a loved one go through this. Since I will be her caretaker, is there any tips anyone could give me. > > > hey michelle it was a pleasure talking to you it was a pleasure hope we can chat soon