Neisha,
I am so sorry that you are going through a hard time. I know how those go. And
yes, sometimes I dont feel like "they" will be able to do anything for me. But
this is our Genetic Code they are trying to fix, so it will take some time, and
maybe not in our lifetime.
What I have found that is helpful is just DECIDING to be happy. Even though
Huntingtons Disease is staring me down in my face. I am not dead yet so there is
so much more of life I can live. Really, it is hard to be positive, but make the
conscious effort to be happy and you will be. My family escaped some horrible
times by just laughing when we thought we couldn't anymore. Another thing that
helps me is to have goals. Exercising and learning are some ways to slow down
the symptoms. So, even though I dont know if I have it or not, I am doing my
best to keep my body and my brain active. And just love your sister and mother
as much as you can. They really need your love especially on the bad days.
I hope this helps. No one deserves to go through all of this, but the ones that
do are the strongest people I have met. Stay strong. :)
Brandie.
--- In huntingtonsatrisk@yahoogroups.com, "neishalyn1" <neishalyn1@...> wrote:
>
> HI Everyone,
> I am writing to see if anyone feels like there will never be a cure. I am so
overwhelmed right now. My sister who is 40, was diagnosed last year and has went
straight down hill. I am so sad and hurt sometimes I just want to run away. My
mom is 60 and has been in the nursing home for 5 years. the last 3 she has been
unable to walk or talk. I guess I am just fed up that there is no cure yet or
something promising. I am getting older and I know in my heart ZI cant live with
it. I just want this to leave all of us alone. I always start to feel this way
when my life is going great. It creeps up behind me and tells me dont think your
life is great because huntingtons is still here.Thanks for listening and any
advice is good.
>