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Reply | Forward Message #6957 of 7035 |
Re: more questions

--- In huntingtonsatrisk@yahoogroups.com, michelle wooley <michwooley@...>
wrote:
>
> Thank you so much for the tips. Everything your saying about your mom sounds
alot like my mom but she hasn't had the rage (or anger) yet. She has gotten very
depressed. My dads taking the car away from her. She's not happy about that one
but its time. We might need the doctor to step in and tell her that she no
longer can drive because she thinks we're crazy and she's fine.  
>
>
> Michelle
>
> --- On Tue, 7/28/09, brandie.derusha <brandie.derusha@...> wrote:
>
>
> From: brandie.derusha <brandie.derusha@...>
> Subject: [huntington's at risk] Re: more questions
> To: huntingtonsatrisk@yahoogroups.com
> Date: Tuesday, July 28, 2009, 11:53 AM
>
>
>  
>
>
>
> My mom experienced alot of mood swings. They call it raging. Where for an hour
or so, she just exploded in anger. She said some very hurtful things during
those times and I am still trying to work through the mess that it left me in.
But you MUST remember that when this happens, it is the Disease working, not
your mom. She remembered things that never happened. And made me look like the
bad guy because of her fake memories.
>
> She also slowly began to loose control of her body. She can still walk, talk,
eat and use the toilet. But she cannot drive, talk well, or even walk a straight
line. We had to have her go to a nursing home when she would get into the car
and wreck it a few miles later.
>
> She also lost alot of weight, so make sure that she is getting what she needs
in nutrition. Because the disease effects the motor functions of your body, it
becomes difficult to swallow. Protien shakes helped my grandma, and are now
helping my mom.
>
> That's all I really can say of my experience. My mom is now in the advanced
stages, so she is being more cooperative with us, finally.
>
> I am praying that your situation goes well with your mom. :)
> --- In huntingtonsatrisk@ yahoogroups. com, "michwooley" <michwooley@ ...>
wrote:
> >
> > ok I know everyone goes through this different but what is some of the most
common things I should expect my mom to go through. I've done alot of reading on
it but I've never gotten the chance to talk to anyone (let alone a whole group
of people) that have actually had a loved one go through this. Since I will be
her caretaker, is there any tips anyone could give me.
> >
>
hey michelle it was a pleasure talking to you it was a pleasure hope we can chat
soon





Tue Jul 28, 2009 7:18 pm

blondeangel3k6
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Message #6957 of 7035 |
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ok I know everyone goes through this different but what is some of the most common things I should expect my mom to go through. I've done alot of reading on it...
michwooley
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Jul 27, 2009
11:37 pm

My mom experienced alot of mood swings. They call it raging. Where for an hour or so, she just exploded in anger. She said some very hurtful things during...
brandie.derusha
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Jul 28, 2009
5:42 pm

Thank you so much for the tips. Everything your saying about your mom sounds alot like my mom but she hasn't had the rage (or anger) yet. She has gotten very...
michelle wooley
michwooley
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Jul 28, 2009
6:18 pm

... hey michelle it was a pleasure talking to you it was a pleasure hope we can chat soon...
blondeangel3k6
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Jul 28, 2009
7:49 pm

I'm glad I got to talk to you too and I would love to contiue our conversation. I'll be watching for you come on. Michelle ... From: blondeangel3k6...
michelle wooley
michwooley
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Jul 29, 2009
11:16 am

hi sorry i missed you i thought you was online but it was your husband he said he would let you know i was on if you guys need any one to talk to i will chat...
christy goings
blondeangel3k6
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Jul 31, 2009
9:39 am

yeap my husband let told me know you were on when I got home. He said you were really nice. I'm going away this weekend but hopfully I'll catch you online when...
michelle wooley
michwooley
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Jul 31, 2009
1:47 pm

hi michelle  hope you have a good weekend look foward to chatting ... From: michelle wooley <michwooley@...> Subject: Re: [huntington's at risk] Re:...
christy goings
blondeangel3k6
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Aug 1, 2009
12:11 am

omg, i really didn't know about the mood swings, guess u learn something new everyday. but i do go to a support group in rockland massachusetts. if anyone is...
toby103ao
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Aug 3, 2009
11:46 pm

Well put brandie. "Wooley": Welcome to the club. I'm @risk, caregiver for my sister, and lost my father to this disease. Ask your quesitons.  this is...
Scott
scott_v1963
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Aug 7, 2009
7:39 pm
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