Mochwooley, I am in the process of finding a counselor to help me cope with the
"impending Doom" maybe you should consider it too. And getting your family
involved with everything would help them cope more too. My husband is in pilot
training right now so he cant do much with the HD group around here, but I am
still young. (24) I think that it is great that you want to help your mom. :)
And like Jan said, reading a ton is a great way to deal with it too. :)
I am so thankful for everyone on this group. You are all so great. I cant
imagine going through this alone.
Hopefully we will have some sort of treatment that actually helps soon. :)
--- In huntingtonsatrisk@yahoogroups.com, "michwooley" <michwooley@...> wrote:
>
> --
> I was just about ready to write a post and tell everyone who I am and my my
fears are, when I came acrossed this post and the other post that responed to
this one and I don't have to write another thing!! These posts have said it all.
I'm scared and I see small signs around every corner. But do I really see the
signs or is it all in my head and the fear is playing tricks on me. My mother
was diagnosed in Jan. and my husband and I have decided that I wouldn't be
tested and take life as it comes but....I can't get it out of my head and I
think about it all the time. My mother (and father) are moving closer to me so I
can help her. I'm 38 and well I'm scared...When will it hit me? Because My mom
is only 16 years older then me, am I going to be in the middle of taking care of
her when it starts to hit me? What do I expect? What should I have prepared for
my husband? I don't know
>
>
>
>
> - In huntingtonsatrisk@yahoogroups.com, "nvcitjan" <JanNVC@> wrote:
> >
> > Hi Brandie,
> > I'm glad you're back. My husband is at risk for HD. He has many symptoms,
but does not think he can have it for some reason (his mom and brother had it).
I'm glad you're searching. There is all kinds of resources available nowadays
that weren't there when our parents and grandparents were young. I've learned a
lot from being involved in groups and reading a lot of books to deal with my
family of origin dysfunctions and have come a long way. I am in a cycle right
now where I have become over-reactive/over-sensitive to the demands of the loved
one in my life, so have turned back to my helpful literature to help me detach
lovingly from his obsessions and look at what it is in me that I react the way I
do. More will be revealed!
> > Jan
> >
> > --- In huntingtonsatrisk@yahoogroups.com, "brandie.derusha"
<brandie.derusha@> wrote:
> > >
> > > Hello Everyone! My name is Brandie... I am at risk for HD, which I why I
came, of course.
> > >
> > > I am not technically a newbie to this group. But my old yahoo account was
closed. So I rejoined. It has been a really long time since I have been here.
> > >
> > > Right now in my life, being "at risk" always seems to follow me. Sometimes
I get tense and twitchy and instantly think that I am starting to show symptoms.
Or if I have had a bad day and I am depressed or moody. Part of me feels guilty
that I dont have the relationship with my mom (the one with HD) that I want. She
was physically and verbally abusive to me and my dad. For a long time I was
emotionally shut off to anything that she said to me. Now that I am married and
my life is staring me in the face my emotions over the whole thing are starting
to hit me pretty hard. It doesnt help that my new husband is in the Air Force
and moved me a thousand miles a way. I want to have some closure with her. To
relieve some of this anger and sorrow that I have toward her and her disease. I
want to know who I am without this thing following me around. Just to have an
identity would be heaven to me.
> > >
> > > Bah...
> > > Thank you for allowing me to vent. Thank you that you are here.
> > >
> >
>