thanks for all of the feedback to answer some of your questions I
will be 40 this year and I have 3 daughters ages 4,3,2. I am familar
witht his diease and have been doing a lot of reading. I do want to
know so I am prepared and at the right time tell my children if I
were to test postive. My mothers family has swept this under the rug
for years and my Aunt has test postive for it. I suspect my mother
will also. (if she will ever get tested) I am scared about having
this becasue I feel like I am just starting to live my life and I am
also scared for my children. Its just frustating that my family has
been in denial for so long and now they can't any longer. I wish we
really knew much earler in life so I could have time to take this in.
I don't regret having children however it sickens me to know that
they could be at risk. I would rather know now than not to know.

Thanks again
Shannon

--- In huntingtonsatrisk@yahoogroups.com, M <rtn4jr8@...> wrote:
>
> Yes, unfortunately you can be denied life insurance and other types
of insurance if you test positive for HD prior to having the
insurance before testing.  There was a law passed recently in the US
making it illegal to be discriminated based on genetic testing
results, but it's rather difficult to prove you were denied coverage
because of the results.
>  
> How old are you?  How familiar are you with HD?  Testing to see if
you carry the gene shouldn't be taken lightly and you need to think
about different things prior to testing.   It took me almost 10 years
to finally decide to get tested, so I understand what it's like
trying to decide to get tested or not. 
>  
> I'm more than willing to talk to you about testing and answer any
questions you might have about the process.  It's an individual
decision whether to get tested or not...but I strongly recommend
thinking about how you'd handle the results if it's positive and if
you are ready to hear those results because once you find out there
is no going back to being "at-risk". 
>
> --- On Fri, 1/2/09, srssmith1969 <srssmith1969@...> wrote:
>
> From: srssmith1969 <srssmith1969@...>
> Subject: [huntington's at risk] Testing
> To: huntingtonsatrisk@yahoogroups.com
> Date: Friday, January 2, 2009, 1:43 PM
>
>
>
>
>
>
> I am at Risk for huntingtons I found out that my Aunt tested posted
for
> it and I am most certain my mother has it. her mother and
grandmother
> both had it. My mother has not been tested yet ( still in denial)
in
> some of my readings they say if you want to get tested that you
should
> pay out of pocket for the test to keep your results private however
I
> don't that kind of money. I want to know either way so I am
prepared is
> it true that insurance companies and life insurance company's look
down
> on this diease? Any suggestions? ? Thanks
>