I had a very good friend tell me something right before I got my results that she had said before. It really helped. She said it's been the same blood flowing through you your whole life. The only thing that's changed is you know something new about it.
Michelle
-- "Heather Dugdale" <i_am_miss_world@...> wrote:
Just get the hope. There are so many breakthoughs now. More trials. More cures. More hope. Think of hope when you see your brother. Mine has it too. He is more adavnced then me too. You also have to accpet that they get sicker. Everyone gets sicker. HD is like that. Accpet and then you can move on.
--- In huntingtonsatrisk@yahoogroups.com, "Ronni" <cvhiggins2@...> wrote: > > Im not at risk, and have 3 small children. i was just curious more than > anything, its always interesting to hear others perspectives. > > My brother is staying, and he has HD. Hes deteriorated quite a lot and is > really hard going, last night I needed a bit of time out, i dont know how > family does this full time. > > Ronni. > > ----- Original Message ----- > From: "I_am_Miss_World" <i_am_miss_world@...> > To: <huntingtonsatrisk@yahoogroups.com> > Sent: Friday, October 19, 2007 4:17 AM > Subject: [huntington's at risk] Re: Testing > > > > Hi Ronni, > > > > I made a website that will help you choose. I have HD myself. I got > > Tested when I turned 19.I put on my site the good and the bad when > > deciding to get tested. I also have on their ways I helped get ready > > for that test result. You have to plan for both good and bad results. > > All of this stuff worked for me. They told me that I was the most > > positive person they have ever got that positive result. > > > > > > http://heatherdugdale.angelfire.com/ > > > > > > > > > > > > > > Yahoo! Groups Links > > > > > > >
Hi Ronni, My decision to not have children was an easy one for me. We had made it before we even knew that the disease in my family was HD. I have never...
Thats great Victoria...I can understand that not everyone wants kids (and I sure have my moments haha). I think society puts a lot of pressure that raising...
Hi Ronni, I made a website that will help you choose. I have HD myself. I got Tested when I turned 19.I put on my site the good and the bad when deciding to...
Im not at risk, and have 3 small children. i was just curious more than anything, its always interesting to hear others perspectives. My brother is staying,...
Just get the hope. There are so many breakthoughs now. More trials. More cures. More hope. Think of hope when you see your brother. Mine has it too. He is more...
I am at Risk for huntingtons I found out that my Aunt tested posted for it and I am most certain my mother has it. her mother and grandmother both had it. My...
Yes, unfortunately you can be denied life insurance and other types of insurance if you test positive for HD prior to having the insurance before testing. ...
thanks for all of the feedback to answer some of your questions I will be 40 this year and I have 3 daughters ages 4,3,2. I am familar witht his diease and...
Hi there. I just wanted to let you know that you are not in the boat alone. My mother's family is riddled with HD and she died before getting tested. We wanted...
Shannon, I know I am probably alone in this thought but there is never a right time to talk to kids about HD, I told both of mine on was 13 and the other was...
Hi Shannon,  Sorry to hear that your family has been in denial for so many years about the disease. My grandmother lived with me when I was growing up, so...
Hey..I am Heather... I have HD. You have to get insurance before you get tested. After the result you can't get it anymore. I run a postive HD site. It has...
Yes, unfortunately paying out of pocket is THE way to go. However, if you test negative, you can go back and have your insurance billed for it. ... From:...
Yes, there is much discrimination in life and health insurance. I tested anonymously. They did just pass legislation making it illegal to discriminate in...
Hey.. There is a way we can have kids that don't get HD. My husband and I are going to. HD Free With PGD! Trevor and I want to do this. Planning an HD-free...
Hi Heather yes PGD has been around for a while now but you also have to keep in mind that it is very expensive and it might not take the first time it can take...
I had a very good friend tell me something right before I got my results that she had said before. It really helped. She said it's been the same blood flowing...
My ex and I had two kids who are now 12 and 15. While I was pregnant with the first, his mother started having neurological symptoms. She was eventually...
DO NOT PRESSURE YOUR GIRLS INTO TESTING!!!! PLEASE! I read your whole email and I understand that you are scared and frustrated and planning, but planning...
I am not going to pressure them. What I write here about my frustration, and what I say to them are two different things. I fully understand that they may...
I'm curious. What does DD stand for? Michelle -- phillymatris <no_reply@yahoogroups.com> wrote: I am not going to pressure them. What I write here about my ...
Sorry - didn't mean to be cryptic. "DD" stands for Darling Daughter. On a lot of online lists, people refer to their family members as DH for Dear Husband,...
I was 15 when I found out about my mother. Back then, the testing involved blood from affected and unaffected family members (before the gene was found). I...
I was 15 when I found out about my mother. Back then, the testing involved blood from affected and unaffected family members (before the gene was found). I...
Hi Shannon, I agree with Susie about there not ever being a "right" time to tell a child. They present many opportunities though. Children ask questions. The...
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