Having problems with message search?
The HDSA has published the below article by Dr. LaVonne Goodman which provides full coverage of the recent Huntington Disease Clinical Research & Symposium meetings that took place in St. Pete Beach, Florida November 12-15, 2008 :
Highlights from the 2008 Huntington Study Group Meetings and Symposium*
http://www.hdsa.org/research/news/hsg-meeting.html
http://www.hdsa.org/research/news/hsg-meeting.html
I'm sure I speak on behalf of a lot of people in saying how much we appreciate HSG inviting people from HD families to this annual Symposium! This year there were almost 100 people from Florida HD families in attendance who also enjoyed a luncheon/networking opportunity, sponsored by Ovation and the HDSA Center of Excellence at USF, afterwards. I heard numerous comments from the family members in attendance how much they thoroughly enjoyed this opportunity to meet and talk to our Huntington's Disease researchers in person.
On the below link, for anyone interested, you'll find the HDCRS 2007 Symposium Program. I've written HSG and asked if the 2008 Symposium Program will be uploaded so that anyone who was unable to attend can have the opportunity to read the posters showing the exciting HD clinical research taking place. If it gets uploaded I'll let you know.
For planning purposes, the 3rd Annual HDCR Symposium is planned for November 21, 2009 at a yet to-be-determined location. Check HSG's website in 2009 for updates: http://www.huntington-study-group.org/NewsEvents/EventsUpcomingMeetings/HuntingtonDiseaseClinicalResearchSymposium/tabid/62/Default.aspx
For HD Support Groups I've copied the article into the attached MSWord97 document for sharing with families who don't have computer access.
* Please note, Dr. Goodman also has the above article on the HDDrugworks website: http://hddrugworks.org/
Offline 
Send Email