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Reply | Forward Message #5134 of 7037 |
Hi I was nearly starting to feel like my family was the only family on
this planet effected by huntingtons so its been very nurturing to read
everyones messages and realize that i am not alone. Which on one hand
is very unfortunate but im glad to see people caring for each other and
that this might be a space for me to come and share some of my story. I
am 26 and my mum has huntingtons and lives in a nursing home she just
turned 50. My brother has been tested and he also has the gene and I am
petrafied at the thought of finding out! So if anyone would like to
talk please let me know jess









Sat Dec 3, 2005 3:36 am

grabaplace
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Message #5134 of 7037 |
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Hi I was nearly starting to feel like my family was the only family on this planet effected by huntingtons so its been very nurturing to read everyones...
grabaplace
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Dec 3, 2005
3:38 am

Hi Jess! Welcome to the group! Let me tell you, if you're looking for support and understanding, you've definitely come to the right place. My name is Lauren,...
Lauren
yourbabydoll...
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Dec 3, 2005
3:12 pm

... family on ... read ... hand ... other and ... story. I ... just ... I am ... to...
thecatswhiskersmom
thecatswhisk...
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Dec 22, 2005
9:44 am

IS THERE ANYONE OUT THAT HAS A FAMLIY MEMBER HAVING TROUBLE WITH MUSCUS AND STOP BREATHING, RATTLING IN THE THROUT, BUT THEY SAY HIS LUNGS ARE CLEAR.iF ANYONE...
iamsquaw302
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Jan 16, 2007
2:17 am

i am lisa in oklahoma i believe i now am showing symptons of huntingtons i have no resources for testing or medical treatmentany suggestons...
lisah4762
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Mar 20, 2007
7:33 am

Hi Lisa welcome to At Risk and I am sorry to hear that you think symptoms have begun. I took the liberty to copy and paste the Center of Excellence (COE) in...
Sue Adams
susie_que_56
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Mar 20, 2007
1:17 pm

Lisa, Contact Dorothy Hearn ASAP! She's the go-to gal in Oklahoma and will do whatever it takes to get you services. She's helped many "Sooners" and is a...
SpikeTDog@...
spketdog
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Mar 20, 2007
2:31 pm

Thanks Dave! I just did all the COE around OK cause I didn't know where Lisa lived exactly. Lisa if you call Dorothy Hearn or who ever they will be able to...
Sue Adams
susie_que_56
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Mar 20, 2007
2:43 pm
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