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holoprosencephaly · Holoprosencephaly Support Group

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Activity within 7 days:

5 New Members - 77 New Messages

Description

Welcome to our support group for parents and famlies of children with Holoprosencephaly. HPE is a rare birth disorder caused by the failure of prosencephalon (the forebrain of the embryo) to properly divide, causing defects in the development of the face and in brain structure and function. Come join other parents, grandparents and caregivers who love children with this diagnosis. We're here for support, education and HoPE!

Our gorgeous cover model is Leanna, age 14, shown swimming with her big brother Joe.

Also check out the following links:

http://www.stanford.edu/group/hpe/ (Carter Centers for Holoprosencephaly)

http://www.holoprosencephaly.net/ (Informational site designed by parents)

http://www.familiesforhope.com/pages/1/index.htm (HPE parent organization)

http://health.groups.yahoo.com/group/HPE-kidpics/ (Photo site-members only)

http://health.groups.yahoo.com/group/HPE-kidpics2/ (Photo site-members only)

http://health.groups.yahoo.com/group/whenachilddies/?yguid=122354319 (loss support group)

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 493 374 392 325 487 398 139
2008 768 676 607 744 530 506 870 676 591 384 393 383
2007 695 814 746 945 809 678 582 690 703 844 514 549
2006 904 665 983 1271 907 838 1028 876 682 587 543 447
2005 516 683 997 707 535 790 708 809 878 861 835 682
2004 929 751 806 818 668 426 674 538 555 713 603 431
2003 380 311 150 240 342 275 389 339 282 427 376 600
2002 1 500 295 189 204 185 209 188 244 224 197
2001 9 3 8 7 1 1
2000 16 12 9 8 3 1 21 25 3
1999 2 4 5 43 10

Group Email Addresses


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