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holoprosencephaly · Holoprosencephaly Support Group

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Activity within 7 days:

1 New Member - 9 New Messages

Description

Welcome to our support group for parents and famlies of children with Holoprosencephaly. HPE is a rare birth disorder caused by the failure of prosencephalon (the forebrain of the embryo) to properly divide, causing defects in the development of the face and in brain structure and function. Come join other parents, grandparents and caregivers who love children with this diagnosis. We're here for support, education and HoPE!

Also check out the following links:

http://familiesforhope.org/home.html (HPE parent organization)

http://www.stanford.edu/group/hpe/ (Carter Centers for Holoprosencephaly)

http://health.groups.yahoo.com/group/HPE-kidpics/ (Photo site-members only)

http://health.groups.yahoo.com/group/HPE-kidpics2/ (Photo site-members only)

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 141 132 224 112 59
2012 267 178 146 226 142 264 134 153 102 116 128 142
2011 563 390 320 223 374 176 264 164 224 124 119 110
2010 899 595 632 484 450 296 331 303 294 217 256 278
2009 493 374 392 325 487 398 324 245 567 579 613 564
2008 768 676 607 744 530 506 870 676 591 384 393 383
2007 695 814 746 945 809 678 582 690 703 844 514 549
2006 904 665 983 1271 907 838 1028 876 682 587 543 447
2005 516 683 997 707 535 790 708 809 878 861 835 682
2004 929 751 806 818 668 426 674 538 555 713 603 431
2003 380 311 150 240 342 275 389 339 282 427 376 600
2002 1 500 295 189 204 185 209 188 244 224 197
2001 9 3 8 7 1 1
2000 16 12 9 8 3 1 21 25 3
1999 2 4 5 43 10

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