December 3, 2006
"the overriding problem may be a loss of the sense of urgency and a
reluctance by most governments to commit the huge resources needed to
provide universal access to treatment, prevention, care and support."
HOUSING WORKS POSITION ON RYAN WHITE REAUTHORIZATION:
FIX IT, FUND IT, AND PASS IT!
You've seen diverse statements, sign-on letters and position papers on Ryan White reauthorization in the last few days.Housing Works has declined to join a number of public statements, and we wanted to let you know where we stand today.
To save lives and fight HIV/AIDS effectively, we need a fair Ryan White reauthorization and enough funding to provide access to care everywhere in the U.S.
While lawmakers and staff have made some improvements to proposed reauthorization legislation in recent days, we can and must do better.
As soon as tomorrow, the Senate may consider a 3-year reauthorization proposal that includes a few improvements on the House-passed bill that may help some states.
And starting in early 2006, Senator Kennedy plans to conduct oversight hearings and community consultations towards a top-to-bottom restructuring of public HIV/AIDS care programs and the Ryan White CARE Act.
We're excited about this new initiative. And we're in agreement that a shorter-term reauthorization would set up consideration of better, bigger, stronger HIV/AIDS care program that can get us to universal access.
As we've said before, Housing Works supports Ryan White reauthorization that's fair and adequately funded. Any legislative proposal must include the following improvements over the House bill and recent Senate drafts:
EXPAND FUNDING BY $641.9M TO ENSURE ACCESS TO CARE NATIONWIDE
Congressional staffers from both parties agree that at least $600 million in additional funding is needed to eliminate ADAP waiting lists, support areas with emerging epidemics, and protect access and quality in high-prevalence areas. This includes a $70 million increase for Title II base and an additional $197 million for ADAP - the amount identified by treatment experts as needed to allow all states to provide a minimum level of service to those in need.
We call for "full funding" of the Ryan White CARE Act with an additional $641.9 million in new funding for this year's budget as outlined by the AIDS Budget & Appropriations Coalition, for a total of $2.69 billion
REVISE "CORE MEDICAL SERVICES" REQUIREMENT TO ALLOW SERVICES THAT SUPPORT TREATMENT ADHERENCE AND GOOD HEALTH
Housing, food, transportation and legal services are lifesavers - it's hard to stick to your meds if you're homeless, hungry, can't get to the doctor or are in danger of losing your home or kids. We must modify the arbitrary 75% set-aside of "core medical services" spending requirements to allow funding of supportive services that save lives.
ALLOW INCLUSION OF CODE-BASED HIV DATA IN FUNDING FORMULA
Many agree that HIV cases must eventually be used nationwide to determine formula grant awards for Title I and Title II. But states that use unique identifiers for case reporting ("code-based states") that are in the process of de-duplicating their HIV case data should not be punished simply because they have not completely transitioned to name-based reporting.
It makes even less sense to hurt name-based HIV reporting states that have robust HIV reporting systems in place already. The short-term solution is to count code-based data, until those states have completely moved to CDC-validated HIV names-based data and to protect states with established HIV name-reporting systems from severe cuts.
KEEP THE FOCUS ON TREATMENT AND CARE - STRIP TESTING LANGUAGE OUT
We must reject attempts to use Ryan White to redirect CDC prevention funding and cement controversial HIV testing policies. Congress should eliminate the $30 million "Early Diagnosis Grant Program" section in current drafts of reauthorization legislation.
Once again, Housing Works calls on Congress to build support for a consensus reauthorization plan that will ensure lifesaving, quality HIV care to everyone in our nation living with HIV.
When this reauthorization is done, then we can all work towards a plan for universal access to prevention, treatment, care and support by 2010.
Adjust your calendars, everyone, and plan to be at the State Assembly committee hearings on AIDS rent hikes on Thursday, December 21.
The Assembly Social Services Committee will hold hearings to review the proposed rent hikes for AIDS housing tenants recently blocked by a federal court judge and opposed by dozens of AIDS groups.
Clients, housing providers, City officials, advocates and researchers will testify to the impact of the increases and how they might be avoided. Social Services ChairDeborah Glick will grill officials from the state Office of Temporary and Disability Assistance (OTDA)who've tried to implement the increase.
Thursday, December 21: Proposed Rent Increases for AIDS Supportive Housing
Assembly Hearing Room
250 Broadway, 19th Floor
New York City, NY
For full hearing details contact Elaine Fernandez atfernane@... or call 518-455-4377.
The Housing Works AIDS Issues Update is reported, written and edited by Vanessa Brocato, Phil Fox Rose, Michael Kink, Robert Cordero, terri smith-caronia and Housing Works staff. Send your feedback, leads and story ideas to vbrocato@....
You can reach us by phone at 518-449-4207, by fax at 518-449-4219, and by email atupdate@.... Housing Works provides housing, advocacy and services to homeless people living with AIDS and HIV. Housing Works is the nation's largest community-based AIDS organization and the nation's largest minority-controlled AIDS organization.
A new tool on Medicare's Web site, called a cost estimator, offers monthly and annual spending estimates based on the drugs seniors take and the pharmacy they use. Because it includes both the costs to seniors and to their plans -- the two factors that determine when the doughnut hole kicks in -- seniors can get at least a rough idea of when during the year they will reach the gap under each plan in their area.
Study Shows Value Of HIV Screening In Virtually All Health Settings
05 Dec 2006
Voluntary screening for HIV should be a routine part of the medical care of all adults, not just those at high risk, according to a study by researchers at the Yale School of Medicine.
The team reports in the December 5 Annals of Internal Medicine that routine HIV screening is cost-effective, even in communities where as few as two in 1,000 people have undiagnosed HIV infection.
The study provides strong support for U.S. Centers for Disease Control and Prevention guidelines issued in September 2006 that recommend routine HIV screening of all persons age 13 to 64 in all health care settings. The guidelines were based in part on findings of the study team led by A. David Paltiel, professor in the Department of Epidemiology and Public Health at the Yale School of Medicine, and the Yale School of Management.
"HIV screening delivers better value than many other diagnostic tests and treatments that physicians use routinely in daily practice, including screening for breast cancer, colorectal cancer, diabetes and hypertension," said Paltiel, who cites the roughly 300,000 Americans who do not know they are infected with HIV as the reason to make HIV screening as routine as measuring cholesterol. "Early identification of HIV saves lives."
Paltiel and his colleagues developed a mathematical model to simulate the events that occur in an HIV-infected person, including detection, treatment, medical expenses, transmitting the disease to others, and death. The model calculated the additional costs due to screening and the additional survival attributable to earlier detection. It also calculated how much life was shortened by HIV infection. The model then estimated the cost per extra year of life gained (cost-effectiveness) from HIV screening.
"The HIV epidemic is no longer confined to a handful of identifiable risk groups, yet current approaches to HIV testing still focus on the old target populations," said study co-author Kenneth Freedberg, M.D., director of HIV Outcomes Research at the Harvard Medical School, who is also affiliated with the Partners AIDS Research Center at Massachusetts General Hospital.
The authors caution that the study's findings hinge on the assumption that persons identified with HIV will be linked to state-of-the art, life-saving care. "There is no point searching for needles in haystacks if you merely plan to throw them back in," said Paltiel. "The CDC's commitment to expanded HIV screening must be accompanied by an equally bold financial commitment from the state and federal agencies that provide and pay for HIV care."
The study was supported by grants from the National Institutes of Mental Health, the National Institute of Allergy and Infectious Diseases, the National Institute on Drug Abuse, the Doris Duke Charitable Foundation and the Centers for Disease Control and Prevention.
Other authors on the study include Rochelle P. Walensky and Lauren M. Mercincavage of Massachusetts General Hospital; Bruce R. Schackman of Weill Medical College of Cornell University; and George R. Seage III and Milton C. Weinstein of Harvard School of Public Health.
Citation: Ann Intern Med. 145, 797-806 (December 5, 2006)
AIDS Day honors the living, dead
By CHARLES KING
First published: Tuesday, December 5, 2006
Last Friday, I stood with clients, staff and volunteers from Housing Works
to complete our annual 24-hour World AIDS Day vigil in New York City.
For the 11th year, we spent the day with thousands of people living with
HIV/AIDS, elected officials and community leaders from all over the state.
Surrounded by loudspeakers outside City Hall in lower Manhattan, we stood in
the rain and wind, and read from five podiums the names of more than 80,000
New Yorkers who have died from HIV/AIDS since 1981.
We read their names to honor their memory, to remind ourselves of their
worth as individuals and of the sheer numbers of people we have lost. And we
read their names to tell elected officials that people with AIDS are still
dying, that we are still in need of real leadership that can bring once and
for all this epidemic to an end in our state.
Today, between 180,000 and 250,000 New Yorkers are living with HIV/AIDS,
according to state health officials. Eight out of 10 of us are Black or
Latino, and a majority will endure homelessness or extreme poverty during
Our state does do a better job at dealing with HIV/AIDS than most:
New York's Medicaid program offers lifesaving medications and health care to
those of us who are very poor, and the federal-state AIDS Drug Assistance
Program gets care to most of us who can work but lack health insurance.
We've reduced HIV infection rates among injection drug users by increasing
access to sterile syringes.
New voluntary HIV testing initiatives at public hospitals in New York City
dramatically increase the number of people who know their HIV status while
maintaining informed consent and privacy protections.
Public health officials say universal access to prevention, treatment, care
and support can actually end AIDS as a killer epidemic -- in South Africa,
the South Bronx and the South End of Albany.
Gov.-elect Eliot Spitzer should work with the Legislature to make universal
access the guiding principle of his administration's fight against AIDS.
We must provide universal access to:
Proven-effective HIV prevention programs to every corner of the state --
including in our prisons and jails.
Health care coordination, nutrition, transportation and case management that
help patients stay connected to care and prevent high-cost hospital and
nursing home stays.
AIDS housing programs that offer a cost-effective alternative to homeless
shelters while improving health status and reducing high-risk behaviors.
Age-appropriate, medically accurate facts on sex and HIV prevention.
New York could pay for all of these initiatives by serious negotiations with
major drug companies for cost breaks on AIDS drugs; a 10 percent reduction
in our billion-dollar-a-year AIDS drug bill would pay for the whole package.
If our state can achieve these steps, we will lead the nation forward toward
the end of AIDS -- a day when there are no new names to read on World AIDS
The Rev. Charles King is president and CEO of Housing Works, New York's
largest community-based AIDS service and advocacy organization.
Michael Kink, Esq.
Housing Works, Inc.
Albany | New York | Washington | Jackson, MS
247 Lark Street 1st Floor | Albany, NY 12210
57 Willoughby Street 2nd Floor | Brooklyn, NY 11201
925 15th Street NW 2nd Floor | Washington, DC 20005
931 Highway 80 W Suite 2A-5 | Jackson, MS 39204
Begin forwarded message:
> From: Dennis deLeon <ddeleon@...>
> Date: December 5, 2006 6:22:58 PM EST
> To: "elc9016@..." <elc9016@...>
> Subject: SUPPORT FOR DECEMBER 4 DRAFT BAI06B97 OF RYAN WHITE
> MODERNIZATION ACT
> Reply-To: gchacon@...
> PRESS RELEASE
> December 5th, 2006
> Contact Person:
> Guillermo Chacon
> (212) 920-1611
> LATINO COMMISSION ON AIDS ANNOUNCES SUPPORT FOR DECEMBER 4 DRAFT
> BAI06B97 OF RYAN WHITE MODERNIZATION ACT
> (HR 6143)
> The Latino Commission on AIDS announced its support for the three-
> year authorization substitute of the pending Ryan White Treatment
> Modernization Act HR 6143, as contained in the December 4 draft
> BAI06B97. We urge the House and the Senate to immediately pass the
> compromise legislation. The compromise guarantees that the nation
> will be able to offer much needed medical and social services to
> persons living with HIV/AIDS regardless of differing profiles of
> medical support.
> We remain concerned about the procedures for approval of non-
> medical services and have every hope that they will not prove an
> obstacle to care offered to local and state jurisdictions. The
> compromise is also good for Puerto Rico in that they will, like
> other jurisdictions, be able to maintain funding levels (minus 5%)
> of those allocated in the current year.
> This compromise is far from ideal but the three year authorization
> provides time to identify and correct any adverse consequences. The
> Commission remains committed to continue advocating for increased
> funding for Ryan White that does not pit one area of the country
> against the other.
> COMUNICADO DE PRENSA
> LA COMISION LATINA SOBRE EL SIDA ANUNCIA SU APOYO PARA EL BORRADOR
> DEL 4 DE DICIEMBRE BAI06B97 DEL ACTA DE MODERNIZACION DE RYAN WHITE
> (HR 6143)
> La Comisión Latina sobre el SIDA anuncia su apoyo para la
> autorización por tres años en sustitución al Acta de Modernización
> de Tratamiento HR 6143 Ryan White que se encontraba pendiente,
> contenida en el borrador BAI06B97 del 4 de Diciembre. Nosotros
> pedimos de manera urgente a las cámaras de Representantes y Senado
> a que aprueben de inmediato el consenso alcanzado para esta
> legislación. El consenso garantiza que la nación podrá seguir
> proveyendo los muy necesarios servicios médicos y sociales para
> persona viviendo con VIH/SIDA sin importar los diferentes perfiles
> de apoyo medico.
> Continuamos preocupados acerca del procedimiento para la aprobación
> de servicio que no son calificados como médicos y tenemos gran
> esperanza en que no sean un gran obstáculo para el cuidado ofrecido
> a las jurisdicciones locales y Estatales. El consenso también
> beneficia a Puerto Rico de manera que, igual que otras
> jurisdicciones, podrá mantener sus niveles de financiamiento (menos
> un 5%) en relación a aquellos proporcionados en el presente año.
> El consenso aun se encuentra lejos de ser ideal, pero la
> autorización de los tres años provee tiempo para identificar y
> corregir cualquier consecuencia adversa con su propósito. La
> Comisión se mantiene comprometida para seguir abogando para que se
> incrementen los fondos para Ryan White los cuales no promuevan a
> que un área del país este en contra de la otra.
> The Latino Commission on AIDS is a nonprofit membership
> organization dedicated to fighting the spread of HIV/AIDS in the
> Latino communities. In response to the critical, unmet need for HIV
> prevention and care for Latinos in New York City, a coalition of
> Latino leaders founded the agency in 1990. The Commission realizes
> its mission by spearheading health advocacy for Latinos, promoting
> HIV education and prevention, developing model programs for high-
> risk communities, and by building capacity in community-based
> organizations. Through its extensive network of member and partner
> organizations and community leaders, the Commission works to
> mobilize an effective Latino community response to the health
> crisis created by HIV/AIDS.
> Remove yourself from this mailing.
> Remove yourself from all mailings from Latino Commission on AIDS.
BOARD OF HEALTH VOTES TO PHASE OUT ARTIFICIAL TRANS FAT FROM NEW YORK CITY'S RESTAURANTS
Health Department Facilitates Restaurant Implementation, Ensures Phased Removal of Artificial Trans Fat from Restaurants by July 1, 2008
NEW YORK CITY (December 5, 2006) Restaurants are a major source of artificial trans fat, but customers currently have no practical way to know whether food they eat contains it. Today, the New York City Board of Health voted unanimously to make New York City even healthier by requiring that all City restaurants remove artificial trans fat over the next 18 months. New York City is the first location in the nation to ensure removal of artificial trans fat from restaurants. Artificial trans fat increases the risk of heart disease, stroke, and death by increasing bad cholesterol and decreasing good cholesterol. The final notice of adoption is online at http://www.nyc.gov/html/doh/downloads/pdf/public/notice-adoption-hc-art81-08.pdf.
Health Commissioner Dr. Thomas R. Frieden said, "The day we introduced this proposal, we emphasized that we would review public comments carefully. The message we heard was clear: New Yorkers overwhelmingly favor action to get artificial trans fat out of their restaurants. We also heard from restaurant operators who voiced real difficulties making the transition, and we've changed implementation plans to help restaurants implement the new regulations."
Background Information about Revisions to Trans Fat Proposal
This proposal allows restaurants six months to switch to oils, margarines and shortening used for frying and spreading that have less than 0.5 grams of trans fat per serving. After 18 months, all other food items - including all margarines and shortenings - must contain less than 0.5 grams of trans fat per serving. In response to comments received, the Department will:
Allow more time (18 months instead of 6) to replace artificial trans fat used in baking and in deep-frying yeast doughs and cake batters
Provide technical support for restaurants and bakeries
Helpline staffed by recognized culinary science experts
Training for restaurant personnel
Resource materials, including brochures, practical tips and information about alternatives
Provide 3 month grace period (July 1, 2007 - Oct. 1, 2007) with no fines for items in the 6 month phase-out category
Provide 3 month grace period (July 1, 2008 - Oct. 1, 2008) with no fines for items in the 18 month phase-out category
Create separate category of violations which will be posted and the web but will not determine pass/fail of routine sanitary inspections
A summary of all comments, including lists of those in support or opposition, is available online at http://www.nyc.gov/html/doh/downloads/pdf/cardio/cardio-transfat-comments-response.pdf. A total of 2,340 written comments were received (including 53 people who spoke at the October 30 public hearing). Overall, 2,266 (95%) comments supported the proposal and 74 were in opposition. Unqualified support for the proposed changes came from numerous leading national and local professional societies, academic institutions, and local hospitals and advocacy groups, including the American Medical Association (AMA), National Hispanic Medical Association (NHMA), American College of Cardiology (ACC), American Cancer Society (ACS), American Diabetes Association (ADA), American Academy of Pediatrics (AAP), New York Academy of Medicine, Columbia University Medical Center, Harvard University, New York University, Institute for Urban Family Health, and Northern Manhattan Perinatal Partnership.
Lawmakers: Final Bill Still Flawed, Millions in Draconian Cuts Eliminated
Washington, DC - U.S. Senators Hillary Rodham Clinton (D-NY), Frank R. Lautenberg (D-NJ), Robert Menendez (D-NJ) and Charles Schumer (D-NY) today released their respective holds on the Ryan White CARE Act, following vigorous negotiations with both Republican and Democratic colleagues that will save New Jersey and New York from millions in proposed cuts. The final version of the Act reauthorization still includes a one-time reduction in overall funding for New York and New Jersey, but eliminates the tens of millions more in proposed cuts that would decimate the ability of New York and New Jersey to serve people living with HIV and AIDS.
The Ryan White Comprehensive AIDS Resources Emergency (CARE) Act is the federal law that addresses the unmet health needs of persons living with HIV disease by funding primary health care and support services that enhance access to care.
Earlier versions of this years reauthorization threatened drastic cuts of over $100 million for both New Jersey and New York a prospect unacceptable to lawmakers from both the Garden State and the Empire State. These cuts would have limited access to critical services for people living with HIV and AIDS, such as primary health care, support services, and medication assistance programs. The four senators placed a hold on the reauthorization bill, using a parliamentary privilege afforded to U.S. Senators that prevented the bills consideration by the full Senate. Their holds were released today.
Over the past year, I have been working with my colleagues to reauthorize this important piece of legislation and have been forced time and time again to oppose reauthorization proposals because of their devastating impact on New York, the epicenter of the HIV/AIDS epidemic. I am proud that we have forged a three-year compromise that contains essential protections for New York and other hard-hit states. We have come a long way from the original proposals to decimate and devastate our systems of care in New York and other parts of the country. However, much work needs to be done going forward. This bill alone cannot make up for years of flat-funding for programs that provide essential care and support services across the nation. I look forward to working with my colleagues over the coming years to improve the ability of this act to meet the needs of all people living with HIV and AIDS, said Senator Clinton.
Every man, woman and child living with HIV/AIDS deserves the best treatment we can give themand thats what our fight over the distribution of funding has been about. Instead of leaving those New Jerseyans without the care and resources they need, weve restored millions in proposed funding cuts, Senator Lautenberg said. I look forward to working closely with Senator Kennedy to make further improvements to the Ryan White law in January.
While this final bill is not everything we would have liked to achieve, it is a far cry from where the original proposals began, Senator Menendez said. This compromise bill preserves New Jerseys Eligible Metropolitan Areas, sets a funding floor for formula grants and holds the Bush administration accountable for how supplemental EMA funds are spent. Moreover, New Jersey lawmakers have elicited commitments from Senator Ted Kennedy that our state will have a seat at the table in ensuring our states interests moving forward.
We are happy to reach a compromise that staves off millions of dollars in cuts, but realize that work remains to be done, said Senator Schumer. We need to continue to fight for additional money for the Ryan White CARE Act so the funding corresponds to need, and so that New Yorkers living with HIV/AIDS receive the care and services they deserve. We also need to re-visit the entire structure of the CARE Act to better serve the needs of people living with HIV/AIDS in the future.
First enacted by Congress in 1990, the Ryan White CARE Act was amended and reauthorized in 1996 and again in 2000. The bill reaches over 500,000 individuals each year, making it the federal government's largest program specifically for people living with HIV and AIDS. The CARE Act was named for Ryan White, an Indiana teenager whose courageous struggle with HIV/AIDS and against AIDS-related discrimination helped educate the nation.
Thanks for the clarification and the full text.
--- In email@example.com, "Michael Kink" <mkink@...> wrote:
> Text attached, passage expected tomorrow morning.
> Michael Kink, Esq.
> Legislative Counsel
> Housing Works, Inc.
> Albany | New York | Washington | Jackson, MS
> mobile 518-527-2787
> www.housingworks.org <http://www.housingworks.org/>
> 247 Lark Street 1st Floor | Albany, NY 12210
> 57 Willoughby Street 2nd Floor | Brooklyn, NY 11201
> 925 15th Street NW 2nd Floor | Washington, DC 20005
> 931 Highway 80 W Suite 2A-5 | Jackson, MS 39204
Subject:HIV testing, counseling and informed consent
New Yorks HIV testing and confidentiality law (Public Health Law Article 27-F) requires written informed consent prior to the administration of an HIV test, as well as pre- and post-test counseling.Since the law was enacted in 1988, HIV testing and treatment modalities have advanced significantly, making knowledge of ones HIV status more important so that individuals can get appropriate treatment.Many people with HIV still do not know their HIV status and many people are still receiving their first HIV diagnosis when they have already advanced to AIDS.
In 2005 the New York State Department of Health (NYSDOH) updated its Guidance for HIV Counseling and Testing and New Laboratory Reporting Requirements with the intention of easing HIV counseling and consent to testing and entry into care.The new guidance streamlined counseling, simplified written informed consent, sought to integrate HIV testing in medical care settings and encourage the adoption and use of rapid test technology.
New York City Commissioner of Health Thomas Frieden has advocated statutory changes to Article 27-F intended to expand testing, improve linkages between patients and the care they need, and make testing more accessible and focus provider efforts on care of those who test HIV-positive.Among Commissioner Friedens proposed statutory changes are: elimination of written informed consent; revisions to pre- and post-test counseling requirements; and authorization for disclosure to public health officers of a persons positive status for purposes of linking to care and case management services.Elements of Commissioner Friedens proposals are contained in A. 11075 (Mayersohn) and A.11958 (Towns) introduced in the Assembly during the 2006 session but not acted upon.
In September 2006, the U.S. Centers for Disease Control and Prevention issued Revised Recommendations for HIV Testing of Adults, Adolescents, and Pregnant Women in Health-Care Settings.The document replaced 1993 recommendations.Key differences include routine testing for patients in all health care settings unless declined (opt-out), elimination of separate written consents, and elimination of prevention counseling in health care settings.
These actions and proposals are intended to promote more testing, assure individuals are aware of their HIV status and provide linkages to care.Proposals for statutory amendments to Article 27-F, however, have raised concerns regarding erosion, in actual practice, of informed consent and understanding of HIV test results.
There is widespread support for expanding individual awareness of ones HIV status and linking persons to appropriate care.The purpose of this public hearing is to determine what are the actual barriers to appropriate HIV testing and the consequences of proposed actions.Specifically, witnesses may direct their testimony (but need not limit it) to the following points:
nHas NYSDOHs 2005 Guidance for HIV Counseling and Testing and New Laboratory Reporting Requirements improved the counseling and testing process and promoted more testing?
nDo the statutory requirements for written informed consent and counseling in Article 27-F create a real barrier to testing?
nAre outreach and education programs appropriately targeted, designed and culturally sensitive so as to promote the importance of knowing ones HIV status?
nAre there models that have successfully expanded testing in accordance with the standards of Article 27-F that can be replicated in other settings?
nAre adequate programs and funding in place to assure that individuals who test HIV-positive have access to necessary health care and case management services?
nAre there particular concerns about the proposed statutory amendments to Article 27-F in A.11075 and A.11958?
Persons wishing to testify or attend should complete the hearing reply form below and return as indicated as soon as possible, but no later than Friday, December 15th.It is important that the form be fully completed and returned so that persons may be notified in the event of emergency postponement or cancellation.
Oral testimony will be limited to ten minutes in length.All testimony is under oath.In preparing the order of witnesses, the Committee will attempt to accommodate individual requests to speak at particular times in view of special circumstances.This request should be made on the reply form or communicated to Committee staff as soon as possible.Ten copies of any written statement should be submitted at the hearing registration table.
In order to meet the needs of those who may have a disability, the New York State Assembly, in accordance with its policy of non-discrimination on the basis of disability, as well as the Americans with Disabilities Act (ADA), has made its facilities and services available to all individuals with disabilities.For individuals with disabilities, accommodations will be provided, upon reasonable request, to afford such individuals access and admission to Assembly facilities and activities.
Questions about this hearing may be directed to Richard Conti of the Assembly Health Committee staff at 518-455-4941 or contir2@....
..... Forwarded Message .......
Date: 6 Dec 2006 12:11:12 -0000
Subj: [nyacnyc] Digest Number 529
Messages In This Digest (1 Message)
1. Press Release - NYAC Supports Passage of Newly Negotiation Version o From:
New York AIDS Coalition
View All Topics | Create New Topic
Press Release - NYAC Supports Passage of Newly Negotiation Version o
Posted by: "New York AIDS Coalition" nyaidsc@... nyaidsc
Tue Dec 5, 2006 7:16 pm (PST)
FOR IMMEDIATE RELEASE: December 5, 2006
CONTACT: Matthew Lesieur, Director of Federal Affairs
(212) 629-3075 Ext. 108 or mlesieur@...
NEW YORK AIDS COALITION URGES PASSAGE OF THE NEWLY
NEGOTIATED THREE-YEAR REAUTHORIZATION OF RYAN WHITE
RELEASED DECEMBER 5, 2006
LEGISLATION MERITS PASSAGE BEFORE CONGRESS RECESSES
New York, NY The New York AIDS Coalition supports
passage of the Ryan White HIV/AIDS Treatment
Modernization Act that was released on Tuesday,
December 5, 2006. This new version of the bill, which
reauthorizes Ryan White for three years, is
significantly better than older versions of the
legislation to-date and merits passage. Outside of
Medicaid, Ryan White is the primary source of funding
for medical care and supportive services for persons
living with HIV/AIDS across New York State and the
While this bill is not perfect for New York, this bill
reflects a nationwide consensus on reauthorization and
carefully balances the needs of New York and the rest
of the nation. At this point, NYAC believes that this
bill adequately attempts to address the majority of
NYAC wishes to thank the hard work of Senator Hillary
Clinton and Senator Chuck Schumer in crafting
legislation that carefully balances the needs and
concerns of New York with those of the rest of the
nation. We urge all the New York Members of Congress
to quickly pass this legislation before the Congress
In the next session of Congress, beginning in January
2007, NYAC looks forward to working with Congress on
improving access to services for persons living with
HIV/AIDS and will work hard for increased
appropriations for this critical piece of legislation.
The incoming Democratic leadership has promised a
wholesale, comprehensive review and re-examination of
Ryan White; NYAC looks forward to working with
Congress in its review of Ryan White.
Stated Matthew Lesieur, Director of Federal Affairs at
NYAC: We have worked long and hard to ensure that
Congress passes a reauthorized Ryan White Act that
adequately addresses the needs of persons living with
HIV/AIDS across New York State and the nation. I
believe that this legislation, while not perfect, has
been transformed into legislation that merits our
approval. I urge Congress to pass this legislation
before they recess.
- End -
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From: Michael Kink [mailto:kink@...]
Sent: Wednesday, December 06, 2006 12:04 AM
To: 'HWAdvocacy@yahoogroups.com'; 'firstname.lastname@example.org'
Subject: AP Story on RW reauthorization, role of Sen. Clinton
Sen. Clinton strikes deal on AIDS bill, preserves most NY funding
By DEVLIN BARRETT
Associated Press Writer
December 5, 2006, 10:45 PM EST
WASHINGTON -- Sen. Hillary Rodham Clinton struck a deal Tuesday with GOP
leaders to free up more money for AIDS funding in rural states, while
softening cuts to larger states such as New York and New Jersey.
The deal ends a months-long standoff that pitted cities where the disease
first made its mark against the rural communities where it is now spreading
fastest. The agreement still has to be voted through Congress and signed by
"We stood our ground, and they gave ground and we came up with a compromise
that we can live with. We're very happy," said Clinton, D-N.Y.
Republican Sen. Mike Enzi, chair of the Senate Health Committee, said the
deal on re-authorization of the $2.1 billion-a-year Ryan White CARE Act came
after "months at the negotiating table trying to find an agreement that will
ensure that Americans have access to life-saving HIV/AIDS treatments
regardless of their race, gender, or where they live."
Clinton and fellow senators from New York and New Jersey had held out,
claiming that the original five-year version of the program's renewal would
cut their state's funding by at least $70 million each, and Clinton said her
state alone stood to lose $100 million. Enzi, the measure's Republican
champion, disputed both figures, saying the cuts would be far less.
Under the shorter, three-year version agreed to Tuesday, and expected to
pass the Senate later this week, New York would lose approximately $8
"Of course the rural people aren't totally happy, and the city people aren't
totally happy, but that is probably what makes it a good compromise," said
Rep. Edolphus Towns, a New York City Democrat.
Southern state officials had been frustrated that opposition from the
northeast was holding up a bill that would send them more money. They
cheered the compromise.
"We're thrilled that we finally have gotten the bill," said Kathie Hiers,
head of AIDS Alabama. "I think overall it's going to help the deep south
states a great deal," she said, estimating Alabama would get $7 million new
dollars in the first year of the deal.
Clinton said 100,000 New Yorkers infected with HIV should not have been
forced to suffer cuts in order to spread money elsewhere.
"I'm very proud of the way that we just basically dug our heels in and stood
our ground against a bipartisan coalition," said Clinton.
Opposition from a single senator is enough to block action in the Senate,
particularly when lame-duck lawmakers are scrambling to leave Washington.
Associated Press Writer Erica Werner contributed to this report.
Copyright 2006 Newsday Inc.
Michael Kink, Esq.
Housing Works, Inc.
Albany | New York | Washington | Jackson, MS
247 Lark Street 1st Floor | Albany, NY 12210
57 Willoughby Street 2nd Floor | Brooklyn, NY 11201
925 15th Street NW 2nd Floor | Washington, DC 20005
931 Highway 80 W Suite 2A-5 | Jackson, MS 39204
From:Sally Friedman Sent: Thursday, December 07, 2006
4:15 PM To: Janet Levoff Cc:Susan
Hallett; Frank Murphy; Katie
O'Neill; Tracie Gardner Subject: HIV mailing
Here it is (attached as well). Please ship it out to
as many people on the AI/mailing list database as you can, focusing now on the
NYC providers. Thanks!!
is ready to help your HIV-positive clients get and clean up their “rap
sheets,” get certificates of relief from disabilities, and learn their
rights. The Center can also provide other free legal services and can
answer your staff’s questions about these issues. Call us if you’d
like one of our staff people to come in and talk to your clients. And,
please circulate the information below to your staff and share it with your
Are you HIV-positive with a criminal
Need a copy of your rap sheet?
Want to know your rights?
FREE LEGAL HELP
may be available
has helped thousands of individuals get and clean up their NYS “rap
sheets,” get “certificates of relief from disabilities,” and
overcome job, housing, and other kinds of discrimination. We can provide free advice to
providers and free help
to clients on the rights of people with criminal records, discrimination due to
a criminal record, HIV status, or alcohol or drug history as well as HIV
privacy and other HIV-related matters, including:
·understanding your “rap
sheet”• certificates of relief
·denial of a job or license
• right to vote
·denial of NYC public housing
• HIV confidentiality
§loss of benefits due to open
To see if you are eligible for help, call 212.243.1313 (or
if you are out of NYC, call 800.223.4044)l. If you say that your call is
“HIV-related,.” you might get services more quickly, as we have
additional funding to serve HIV-positive individuals (and their family members)
and providers. Otherwise, you might need to call back the next
• 225 Varick St.
• New York, New York10014
• 212-243-1313 Fax: 212-675-0286
WASHINGTON, Dec. 9PRNewswire â AIDS Healthcare Foundation (AHF), the largest AIDS healthcare, prevention and education provider in the United States which operates free AIDS treatment clinics in the US, Africa, Latin America/Caribbean and Asia, including 14 healthcare centers in California and Florida, applauded the United States House of Representatives for its passage earlier today of the Ryan White CARE Act (RWCA, or the CARE Act), the federal law that provides the primary source of funding for AIDS care and services nationwide. On Wednesday, the Senate passed a compromise version of the bill by unanimous consent in a voice vote. That compromise version, the bill on which the House concurred today, addressed several key lawmakers' concerns about the equitable distribution of federal AIDS funds across the country, and in particular, the potential loss of millions of dollars in HIV/AIDS funding by urban centers in New York, California, New Jersey and Illinois that have been particularly hard hit by the epidemic.
"Today is great day for people with AIDS in the U.S.," said Michael Weinstein, President of the AIDS Healthcare Foundation. "Opportunities for people living with HIV/AIDS to obtain medical care and get on lifesaving antiretroviral drug treatments should increase significantly with the passage of this bill which prioritizes medical care over bureaucracy. We thank the House of Representatives for concurring with the Senate on the reauthorization of the Ryan White CARE Act, and now urge President Bush to quickly sign this lifesaving bill into law so that the Health Resources and Services Administration can begin to act in accordance with the new law."
Late last year, the Centers for Disease Control (CDC) announced that for the first time, more than one million Americans were living with HIV. Almost half of those infected are not consistently accessing care and treatment, and more than one quarter of the million nationwide are unaware they are infected with HIV. AHF supported the CDC's recent recommendation to move toward routine HIV testing, and was heartened that provisions were made in the reauthorized CARE Act to support the routine offering of HIV testing in an effort to de-stigmatize the disease and bring more people into treatment.
"In the U.S. today, HIV/AIDS is a very treatable illness and if one has access to medical care and anti-retroviral drug therapies, it should be a stable medical condition with the patient in good health," added Charles Farthing, M.D., AHF's Chief of Medicine. "For the first time since its introduction in 1990, the CARE Act will prioritize funding for 'core medical services' and promote a more equitable distribution of federal AIDS funds across the country. Through this updated CARE Act, funding will now be targeted to where the greatest need is â the clinic. We thank the House of Representatives for its favorable action on this bill, legislation which will undoubtedly help bring many more people living with HIV/AIDS into care and treatment and good health."
The bill â which was originally up for reauthorization in September 2005 â languished since this past September  when Congress adjourned without the Senate passing a measure to reauthorize the CARE Act. At that time, several Senators blocked consideration of the House-approved bill over disagreements over the distribution and reapportionment of funds among urban and rural areas affected by the disease.
GMHC Hosts Monthly Seminars on Medicaid, Medicare, ADAP and SNPs
Tuesday December 12, 2006
2:00 pm - 3:30 pm
This event does not repeat.
Room700, 7th floor
119 West 24 Street
City State Zip:
NY NY 10011
Monthly seminar reviewing the changes in Medicaid, Medicare, ADAP and the Special Needs Plans which are the new Medicaid Managed Care Plans for those who are HIV+. This forum is free and open to the public. Contact Alexandra Remmel, 212.367.1143, for more information or contact the Client Advocacy Unit Helpline: 212.367.1125 from 2 pm to 5:30 pm, Wednesdays. Medicare questions on Mondays from 3 pm - 5:30 pm at 212.367.1136.
ECQ Group, Inc. a non-profit technical assistance
provider, has two office spaces and several cubicles
for rent in our midtown office at 8th Ave and 39th
street. We are looking to share space with a smaller
non-profit. If you wish to see the space, please
Thank you and best wishes for a happy healthy new
ECQ Group, Inc.
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Everyone is raving about the all-new Yahoo! Mail beta.
On Thursday, she plans to announce an expanded initiative with President Bush and first lady Laura Bush's summit on fighting malaria, a mosquito-borne disease that kills one million people a year, mostly children under five.
The Gates Foundation plans to award $83 million in new grants for vaccine research, treatment programs and expansion of its model malaria-control program in Zambia to five more countries. The new grants will bring the foundation's spending on malaria to $765.8 million. The foundation also has given $650 million to the Global Fund to Fight AIDS, Tuberculosis and Malaria, which also finances malaria control.