Hi Laira,
My name is Gina, I can understand how you feel. but before do you anything
maybe is would be best to talk to your doc and tell them what is bothering you.
Working together with your doc will really help you. You have to have a good
communication with your health provider and most importantly that you are
comfortable taking to your doc.
You have to be involve of how your health care provider manage you if you feel
that you are not happy with the decision or it affects your quality of life you
have to tell them. You have to understand what is going on with you like
understanding your lab work and side effects of the medication you are taking
and let them know.
Finally there are medication which is more easier to take now like once a day
and less toxic. The HIV treatment had come a long way and it made most of us
stay healthy.
So good luck and God Bless you
Peace
gina
penniedad <penniedad@...> wrote:
--- In hivaidsnetwork@yahoogroups.com, freda189 <no_reply@...> wrote:
>
> Hi Laira, not taking meds is your decision. However, the way your
> numbers are the next OI you get, might make you suffer long and
hard.
> A death from Aids is not a pretty sight. (sigh) Am not going to
talk
> you into taking them, I know we all get tired.
>
>
> --- In hivaidsnetwork@yahoogroups.com, "stefan" <stef26062poz@>
wrote:
> >
> > --- In hivaidsnetwork@yahoogroups.com, "lairalaboy" <lairalaboy@>
> > wrote:
> > >
> > > Please don't think I am a nut. Does anyone know anyone that
refuses
> > > to take meds. I am getting a hard time from everyone because I
do
> > not
> > > wish to be on them again. I am for the most part doing pretty
well,
> > > however my cd4 is 30 and viral load is over 100,000. I know
that I
> > > probably am living on borrowed time right now, but would like
to hear
> > > from anyone else that is refusing or has comments good or bad.
> > >
> > > Thank You,
> > > Laira
> > >
> > ............what,no more meds???...say goodbye to life as you now
know
> > it!
> >
>
hi laira,my name is pennie, and i was just like you are,been positive
since 94,when i started medsi got sick and had to have gall bladder
out messed my liver up also, all from crixivan[not spelled right] i
throw them all away and said no more,well it was fine for a year,
thenall kind of things started happening,rashs, my hair falling out,
oh my i dont even want to tell everything else on here!!!!!!!then i
woke and could not get my breath,that did it, went back to dr. and by
then they had new meds out,now iam doing better,the meds iam on dont
make me sick,they are saving my life, i feel that if i kept up the
way iwas going i would not be here now,
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