Josiah's doctor appointment was today. I just need to know if something is wrong with this or if this sounds right. The doctor looked Jo over, touched him to...
If the doctor tells you something that conflicts with another doctor, confront him on it. Tell him what the other doctor said and ask him to provide more...
Birth control did not affect my MHE. (I used the patch) ... __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. ...
JO is at a growing age. I agree with you. They should monitor him every 6 - 12 months to check for changes. (When I was little I had a tumor removed, not...
Nothing, the doctor hasn't said a thing, just that Jo will be fine. It's like he could care less, sometimes I wonder if he even knows what MHE is. I'm going...
Just thought i would tell everyone to have a safe travel in Houston. Also hope we can learn some more about HME, and hope that everyone makes it home safely...
Hello everyone. My name is Carl, I live in Maine. I am 24 years old, 5'8 thin build, blah blah. I have HME or MHE or whatever. Not a fun thing. I have had some...
Hi Carl - I don't have MHE but my 5 year old son, Josiah does. I have a question - why was the growth below your knee removed? was it because of the pain? my...
well, That one was removed from the pain of hitting it on stuff and also It was something i was really self conscious of at the time. Growing up i tried to...
Hi Carl, Good to have you here. People share lots of personal experiences with questions of when to operate, when not to, where to find a good doctor, what's...
When I was 12 or 14, I had growths removed from below both knees that on one side killed the nerve (stretched to some limit) while on the other side the bone...
Thanks everyone. My dad told me his father had it as well. anyone else have any other issues with their joints? My knees sometimes hurt pretty bad and swell...
Hi Carl, and welcome. I just got through catching up a bit on the postings. I get a bit overwhelmed at times with things I'd like to say...yet, don't have the...
Thanks for your post Carrie, i agree that being active is a very important thing. I do alot of "outdoor" stuff which often involves alot of walking , i also do...
Hi Carl, To answer one of your previous questions, yes some have libs of different lengths. My right arm is definitely shorter than my left, i'd estimate about...
Hi all, It has been a century since my last post and somehow I do feel embaressed about it. Since the last I had a quite few more surgeries and as far as the...
Hi Chris, Don't feel too guilty - I think maybe all of us do that disappearing act eventually. It's good to have you back, for now. Afterall, that's what the...
Hi Chris, How have your surgeries gone, and where where your bone spurs removed from? I hope you are doing well. Carl [Non-text portions of this message have...
I wish you all a very blessed Thanksgiving holiday. I am 50 years old. MHE has been in my family for atleast 4 generations. I have 2 daughters which both...
Glad to hear your cancer is in remission Marlene. Happy thanksgiving and God Bless your family and you. Carl [Non-text portions of this message have been...
Marlene, Blessings to you on this Thanksgiving week, as well - and, all of the HME family here - I extend Marlene's wonderful wishes. I hope there is a chance...
I talked to my brothers wife tonight about HME. My brother & I both have HME. We never talk about it. Both my daughters have it and his son and daughter...
Hello Group, Well my very first MRI is tomorrow, and I am a little nervous. My Mom had one a couple of years ago as they found a tumor in her head ( very rare...
Wow - I haven't heard of that happening yet with someone with MHE - do you mean your leg just grew in a different direction? MRI's aren't that bad - I've had...
Best of luck Alan... and wouldn't be great if they would pay you to be in the medical journal. After all the pain and hardship, that would make a nice...
So I think I finally found a different doctor for my son. I couldn't stand his old one. Anyway, I want to call and ask some questions before I go through the...
I would do some research on him on the internet. Perhaps you can google him or go on pubmed.com and see if he has written any scientific papers about MHE. I...
