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hereditarymultipleextosis · Hereditary Multiple Extosis - A place for friends to gather and talk about HME.
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Messages 508 - 538 of 1094   Oldest  |  < Older  |  Newer >  |  Newest
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508
Olà Hugo, What a wonderful project! I know you will be doing a great service for all portuguese speakers with mhe. Boa sorte and Feliz Ano Novo! Mary ... ...
maryann heimert
marytrary1
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Jan 2, 2005
3:15 am
510
Hello out there !! I was wondering if depression is kind of common with HME fighters. It seems that ever since I can remember I've had my body fighting me. I...
hollys71203
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Jan 29, 2005
3:41 am
511
Holly, Hi! I could not not respond to your e-mail. In my own "plot", we are such similar "characters." Yes, I think the answer is yes. What is the...
carrie small
cns5400
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Jan 29, 2005
12:16 pm
512
Family, It's been a long time since I have updated our foreign language list and I need your help in doing this. Please E-mail me at: CheleZ1@... and tell...
Chele Zelina
chelez1
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Feb 10, 2005
12:05 am
513
Chele, I wish I could say yes.. Although I have taken Spanish in school; I cannot speak the language. I am only able to pick up "bits and pieces." So, English...
carrie small
cns5400
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Feb 10, 2005
12:18 am
514
Sorry, wish I could help but I only speak English. Doreen...
Doreen
boomummy
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Feb 11, 2005
6:10 pm
515
I speak Dutch, Frisian and English written and spoken quite fluently. And yes, if someone nees a translation in Dutch or Frisian I am willing to translate. ...
Luuk van der Duim
kreukelsanti...
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Feb 13, 2005
7:04 pm
516
Alas all I can speak is English, my wife knows French but not enough to translate into writing sorry wish I could help :o( On 14/2/05 10:41 am,...
Brian Gordon
bdg_uk
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Feb 14, 2005
11:05 am
517
I speak french only Marie-Claude...
Cantharide Cantharide
cantharide1966
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Feb 15, 2005
3:17 am
518
After a month of no results i now announce that i put an end at the mhe_palop group. I feel a bit sad but i knew that creating a group for portuguese spoken...
hugao79
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Feb 20, 2005
12:30 am
519
Im sorry to hear that hugo, im sure it will take off soon again I know what you mean about it not being well known or well documented it is a shame there...
bdg_uk
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Feb 20, 2005
8:10 pm
520
Hi Blah6, Would you please send me your e-mail address to CheleZ1@... so I can e-mail you your New Member Letter. Thank You, Chele Zelina MHE Coalition...
Chele Zelina
chelez1
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Mar 3, 2005
10:34 pm
521
Family, Judy Howe, who has TRIPS and runs the TRIPS Support Group and is one of our Members as well e-mailed me about this, it definitely may be worth ...
CheleZ1@...
chelez1
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Mar 27, 2005
12:14 am
522
Hi everyone. A bit of background. I'm 35 yrs old. I have HME. While I had 15 surgical procedures between the ages of 5 and 18, I actually consider my...
william_c_magee
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Mar 31, 2005
4:16 am
523
William, Dr. John Dormans at CHOPS for your Son Dr. Lackman for you Both are Orthopaedic Oncologist and excellent Doctors! Chele Zelina MHE Coalition President...
CheleZ1@...
chelez1
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Mar 31, 2005
10:43 am
524
Thanks so much!...
william_c_magee
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Mar 31, 2005
2:09 pm
525
I go to school in the Philadelphia area (Ursinus in Collegeville) and am a patient of Dr. Dormans (I perviously had a horrible experience with another doctor)....
Helena Libis
shorty_aka_bob
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Mar 31, 2005
10:32 pm
526
Good luck Helena!!! -Carrie Helena Libis <shorty_aka_bob@...> wrote: I go to school in the Philadelphia area (Ursinus in Collegeville) and am a patient...
carrie small
cns5400
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Apr 1, 2005
2:11 pm
527
We live in New York, but travel to Shriner's Hosptial in Philiabelphia to Dr. Kozin for our 3 yr old son Matthew. The medical care is free, so it is worth it ...
L Wasson
wassonmom
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Apr 7, 2005
5:07 pm
528
Is that a drive that you make as travel; how long does it take? I agree that with doctors that you trust, especially for the care of children and in a disease...
carrie small
cns5400
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Apr 8, 2005
12:31 am
529
The drive isn't so bad. We go down the night before. Usually we try to make our appointments on Fridays only. We have relatives that live in NJ that we stay ...
L Wasson
wassonmom
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Apr 13, 2005
6:32 pm
530
hello; my son milind tulachan age 4 has been operated to remove 4 exostosis 2 days ago.he was operated in kathmandu by dr.chakra pandey. now he is dong fine. ...
mtulachan
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Apr 16, 2005
1:53 am
531
Hello M.Tulachan My best wishes on your get over soon. from Spain somebody are thinking about you. Take care you. Jose Manuel mtulachan <mtulachan@...>...
Jose
jm_clua
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Apr 18, 2005
8:38 pm
532
Hi shwnpntt, Welcome to the MHE & HME Yahoo Groups, I'm having problems in getting your New Member getting to you. If you have another e-mail address other...
CheleZ1@...
chelez1
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Apr 23, 2005
12:55 pm
533
In a message dated 4/23/2005 8:55:55 AM Eastern Standard Time, CheleZ1@... writes: Hi shwnpntt, I meant to add the word Letter to New Member, Sorry about...
CheleZ1@...
chelez1
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Apr 23, 2005
1:18 pm
534
Hello, I am new to this group and thought I'll share the Health Listing of hi-fiweb. To get the complete health listing you may go to ...
kathyashia
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Apr 25, 2005
5:24 pm
535
I have a 14yr old son named Josh and HME has affected him badly. He has had to have many proceedure to correct various problems. We went to see our...
debi_roper
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Apr 26, 2005
12:30 pm
536
Hello I would have thought that because of you sons age they can do bone lengthening but 4 might be a little too young. I have had both radial heads removed...
Susan Berthe
susanberthe2003
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Apr 26, 2005
4:25 pm
537
I had a similar condition when I was growing up in the 60's. I've had a growth center taken from my left tibia and grafted into my wrist to growth of the ulna...
Tim Bowren
tbowren2002
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Apr 26, 2005
11:08 pm
538
I am an adult with the same arm as Josh <<<<< to make a long story short. When I was growing up, the options were not in lengthening; therefore, when my...
carrie small
cns5400
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Apr 27, 2005
2:47 am
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