Hi Gale, I have had the same problem, it was identified early in my teens, my right forearm has one bone longer than the other. The doc put a staple in the...
Hi, I'm a 33 yr old with a relatively mild case of HME. I've had it since early childhood, and had two surgeries, one on my left knee and one on my right...
Subject: Immediate Action Needed to Protect Florida's Cats This is an emergency message. On May 30, 2003, the Florida Fish and Wildlife Conservation...
Hi, I have been trying to find a doctor who actually knows about HME, and I am not having much luck.Does anyone know where I could find a list of doctors or...
No wonder they haven't heard of it, the percentage is so low that in Holland, a country of 16 million people there is only 400 people with HME. You cannot...
HI Everyone, I just wanted to remind everyone that the reunion is July 5-6 I cant express how important it is that everyone should try to plan on going. We...
My doctor spent 2 days trying to find a orthopedist to see me in central Florida.They all refused.Finally the insurance company had to step in and tell one to...
To Our MHE Coalition Family, "PLEASE PAY A VISIT TO YOUR MHE COALITION WEB SITE." http://www.geocities.com/mhecoalition the MHE COALITION NEWSLETTER, No. 14,...
Dear Members, I am very pleased to announce that Chele is our new moderator. She is well known in the MHE Community and I know she will be a superb moderator...
Hello. I'm from Barcelona (Spain) male 45 years old and I have HME, good life, and I discover this group and yours objectifs and I must congratulations to...
Welcome Manuel, There is people from the entire world on this list who can make you more informed about all the things with HME. I myself am not as active as i...
Hi, I was wondering if anyone has info on applying for SSI disability for HME.Does it meet the guidlines for a disability.Also are there any web sites that...
Dear fellow.... well what would i call you guys? victims? barers of a disease? naaahhh... start again.. Dear Friends, I know i aint posting a lot. Since i have...
Pascal, Pascal, What am I going to do with you, Pascal, you have to start reading more! Now I am very very happy about you being back in Holland and...
Pascal, the rest of my e-mail: Elizabeth Munroz's Personal Site, <A HREF="http://members.tripod.com/MOONROSE_22/">http://members.tripod.com/MOONROSE_22/</A> ...
Pascal, Sorry about the E-mail being split in two, but I hit the wrong key second part should be posting soon Chele Zelina CheleZ1@... [Non-text portions...
No problem happens to me sometimes too. Well im glad about the 2% but hey this is the first time in 27 years that they mentioned it, i think its quite natural...
Pascal, as soon as I can get to it, I will send e-mails with attachments in Word of bookmarks we have not got up in the MHE Coalition Site yet. Right now...
Hi Family I have had MHE all my life.. I have been pretty lucky, in that I was able to afford the operations to keep the painful bumps removed.. I'm 46 years...
David my thoughts go out to you and your loved ones, for us people who have pain all our lives we can relate what the pain has to be if its that painfull you...
I have just been browsing the last few weeks of messages- I think one of the most depressing things about HMEis that so many people dont know what it is and it...
I have just been browsing the last few weeks of messages- I think one of the most depressing things about HMEis that so many people dont know what it is and it...
... Welcome to the group.. I'm in my mid 40's. I discovered a little late, either I excerise and keep limber, or I become frozen stiff as a board of wood.. I...
Hi: I have had several procedures on my shoulders. Fortunately, I was able to identify the culprit of the pain at that time. I can say that if your surgeon...
First of, welcome to our happy group, its always a good thing to talk about your problems concerning our condition. Painkillers i have found do not help, they...
Hi There, My name is Kylie and my daughter Tegan ( she is 12) suffers with MHE, and is having her 1st surgery on the 8th of August to remove a large bump from...
I have had that surgery about 5 years ago when they got my bone cutaway above the knee aswell. Its always a guess how it will work. Sometimes, which my last...
Hello, I am 41 years old and called a 'medical mystery'. My Oncologist said that he has never encountered someone with this condition (and was pretty excited...
Hi Kylie - I'm a member of a different MHE yahoo group but was just reading the messages on your list when I came across your post. I tried to email you...
Hi JoAnn, I just joined this group. I was amazed to see that you live near the Twin Cities because I live in the Twin Cities. I'm not from this area...
