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Scratches and Cuts............   Message List  
Reply | Forward Message #9 of 23 |
Re: [hemophiliacsofnebraska] Scratches and Cuts............

Jacob,
 
How long has this been going on?   Have you talked to your doctor about it, at least over the phone?
Both of my sons have severe hemophilia with less than 1%, factor eight.  My 12 year old takes Recombinant and my 5 year old takes Advate.
Do you know if there is any difference between the two?

Colleen


-----Original Message-----
From: Jacob Wilke <jacoboctober11@...>
To: hemophiliacsofnebraska@yahoogroups.com; hemophilia@yahoogroups.com; parentspeoplehemophilia@yahoogroups.com
Sent: Sat, 29 Sep 2007 3:00 am
Subject: [hemophiliacsofnebraska] Scratches and Cuts............

Anybody experience problems with small cuts and them not stopping from bleeding? I remember when young a minor scratch or cut would stop but would just take time for it to get better and stop bleeding. Lately small minor cuts would not stop bleeding for me and I end up having to use a box of medicine just to get it to stop. I use one box which only puts me at the 25% factor level. It is enough to do the trick though. Something changing with me or are others experiencing this? I am severe with less than 1% factor eight in me and use Advate as my medicine.
 
Jacob Wilke


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Mon Oct 1, 2007 1:38 pm

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Message #9 of 23 |
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Anybody experience problems with small cuts and them not stopping from bleeding? I remember when young a minor scratch or cut would stop but would just take...
Jacob Wilke
jacoboctober11
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Sep 29, 2007
8:00 am

Jacob, How long has this been going on?   Have you talked to your doctor about it, at least over the phone? Both of my sons have severe hemophilia with less...
Health4usall@...
health4usall
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Oct 1, 2007
1:38 pm

I contacted the HTC and doing medicine is the right thing. I am on Advate for medicine. I had a "fall off" study done in March and my response to Advate was...
Jacob Wilke
jacoboctober11
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Oct 1, 2007
2:16 pm

Jacob, What?is a "fall-off" study?? I have never heard of it. Hope things are better for you. Colleen I had a "fall off" study done in March and my response to...
Health4usall@...
health4usall
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Oct 1, 2007
6:37 pm

A fall off study is when they do tests to see how your body responds and uses factor when it enters your body. They usually check your factor level by drawing...
Jacob Wilke
jacoboctober11
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Oct 1, 2007
7:21 pm

Thanks for letting me know.  We have had 48 hr. level tests but no shorter times than that. Take care, Colleen ... From: Jacob Wilke...
Health4usall@...
health4usall
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Oct 3, 2007
4:53 pm

It kind of nice seeing what my factor levels are after so long of having it in me and seeing how fast it is used up when in me. Of course when having a bleed...
Jacob Wilke
jacoboctober11
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Oct 3, 2007
7:25 pm

Where do you live?  Are going to school? We live southeast of Lincoln. Take care, Colleen ... From: Jacob Wilke <jacoboctober11@...> To:...
Health4usall@...
health4usall
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Oct 5, 2007
6:40 pm
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