I am a 22 yr old male with severe hemophilia A. I back in December started having pain in my pelvis area. I assumed it was a pulled muscle or a bleed. I treated for another bleed a couple times and it didn't get better or worse. I took it as being a pulled muscle and just needed to give it some time to heal. Than at the end of January I started having worse pain in my pelvis and lower back on my right side. So I started treating at 100% and went to the doctor to be sure it wasn't any infections or something else possibly going on. Did a UA and CBC and an exam by doctor. Everything came back fine and nothing was off whack or wrong. So assumed it was just a bleed or pulled muscle just really bad. I started treating 100% the first day and than 50% everyday for a week. Than stopped and between hours 48-72 without having treated, I would start hurting again in same area real bad. So I started up factor again at 100% level and thought this would conquer the problem within a week. So came to being this past Thursday and skipped dosing. Next day than, Friday, between hours 48-72 I started hurting AGAIN. You would think after this much treating, I would be better if it was a bleed. So Friday I did 100% dose AGAIN. I have been in contact with my HTC and they say it pry not a bleed since treating this often. I am now doing prophy which was Sunday at 50% and than now I will be doing 50% on Tuesday Thursday and Saturday for the next few weeks and see how things go.

 

Has anybody had this problem or know what is possibly going on? It wierd how I feel fine if I have factor in me and hurt if I don't after 48-72 hrs of treating. My HTC says it pry not a bleed and it something else. The next thing is to do a MRI or CAT scan and get an exact picture of what is going on.

 

If any ideas or suggestions on what could be going on let me know. Any ideas or advice would be of great help. I hope it gets better soon after time.

 

Thanks

 

Jacob Wilke