I'm confused, did she use the water pik without an Grossan adaptor?  If so, that would be dangerous.  The grossan adaptor is big & fat & you can not shove it up past the opening of the nostril.  A regular water pik would go in much further.  Having said that, I have never felt worse after irrigating my sinuses & I already know that if there is a great deal of swelling in the sinus area, irrigating is not recommended until the swelling goes down enough to have the water go in one nostril & out the other.  If she can't do this safely, she needs to get to a doctor before she irrigates again.

My curious phenom is I can't use regular water in the reservoir.  I must use distilled water with the Neil-Med additive & of course warmed up.  Regular water does to my sinuses what alcohol does to an open  festered wound.

To Mary Judkins,

 

My wife has not used the Grossan device but the water pik and she has had some nose bleeds and it even appeared at times some facial swelling.  Also she said that she it felt like she was getting the Flu at times after a treatment.  My wife had a major sinus infection at the time. I just wanted to know if you had any things similar happen to you durning a major sinus problem.

 

thank you

Evans

Mary Judkins <judkins1@...> wrote:

I haven't used the Neti pot but what I like about the 
is that you get a pint of solution at a time for irrigation, (I think
it's a pint)  I had trou! ble getting my old  adapter to fit a new
water pik machine when it sprung a leak so I had to buy his machine.
I wonder if there is a guarantee that if you buy just the nose
adapter that if it don't fit, you would be able to send it back.
Might be cheaper in the long run to try the just the adapter.  You
could Google price everything to see.

>Hi all,
>
>I'm fellow sinus sufferer, and I have used a Neti pot for the last
>year without experiencing much relief. I'm interested in the Grossan
>Hydro Pulse -- and I'm not sure if I should buy the full system or the
>Water Pik attachment. Does anyone have any thoughts on which protocal
>might be more effective?
>
>Many thanks,
>Nicole
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

               

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Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

Nicole,

It sounds like you finally got a diagnosis.  If I were you I would be
relieved I love figuring out what is wrong and then I can't wait to go about
fixing it......Good luck....

Lauren

-----Original Message-----
From: helpsinuses@yahoogroups.com [mailto:helpsinuses@yahoogroups.com]
Sent: Thursday, March 30, 2006 11:38 AM
To: helpsinuses@yahoogroups.com
Subject: [helpsinuses] Digest Number 715

There are 4 messages in this issue.

Topics in this digest:

       1. Results from Mayo Clinic
            From: "Nicole Crum" <Craftycole77@...>
       2. Re: Results from Mayo Clinic
            From: MM99 <mjudkins@...>
       3. Re: Results from Mayo Clinic
            From: slms <slms34@...>
       4. Re: Results from Mayo Clinic
            From: <KOBEPM@...>


________________________________________________________________________
________________________________________________________________________

Message: 1
    Date: Thu, 30 Mar 2006 03:16:48 -0000
    From: "Nicole Crum" <Craftycole77@...>
Subject: Results from Mayo Clinic

Here's what I found out at Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN





________________________________________________________________________
________________________________________________________________________

Message: 2
    Date: Wed, 29 Mar 2006 21:39:43 -0800 (PST)
    From: MM99 <mjudkins@...>
Subject: Re: Results from Mayo Clinic

Well, it seems you have a good handle on everything.  Why not try one thing
at a time, keeping that, adding another, etc.  Surgery sounds like it would
be easier than uh, draining your sinus through a hole in your head?  that's
a new one on me......

Nicole Crum <Craftycole77@...> wrote:  Here's what I found out at
Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN





Chronic Sinusitis Support Group
Yahoo! Groups Links









Chance favors the prepared mind.

[This message contained attachments]



________________________________________________________________________
________________________________________________________________________

Message: 3
    Date: Wed, 29 Mar 2006 22:04:43 -0800 (Pacific Standard Time)
    From: slms <slms34@...>
Subject: Re: Results from Mayo Clinic


Wow that's a lot of info at least. They have presented you with several
probable reasons for sinus trouble.

  If your frontal sinuses are completely blocked and you have that removed
that sounds promising.

The CPAP machine I would definitely do first. It can be dangerous to have
sleep apnea. Don't mean to scare you, but it can. My brother went exhausted
for years until finally he went and had the sleep test. It was close to the
same as yours. Every few minutes. Anyway, He's got the machine now..which he
calls his energy box. LOL Wish I had one of those. He really is so different
now that he's got the right kind of sleep.

Did they say there's anything they/you can do to increase REM sleep? Or is
it just a matter of stopping the Apnea episodes? I had a sleep test a few
years back. They didn't find any Apnea.. But in the three hours I did sleep,
I had absolutely no REM sleep. They didn't seem to care. Only concerned
about the Apnea. I'd like to have it done again somewhere else. I just have
so much trouble falling asleep in those places.

The allergy stuff. Getting all of those things are said to help with
allergies. Gonna cost you though. What about allergy shots? I've considered
trying that. Don't know how well it works. Pills don't work for me though.

Well good luck with all of this. I think out of all of that you should get
some level of relief.
Sue

Nicole Crum <Craftycole77@...> wrote:
Here's what I found out at Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN





Chronic Sinusitis Support Group
Yahoo! Groups Links










Chance favors the prepared mind.

Chronic Sinusitis Support Group




YAHOO! GROUPS LINKS

  Visit your group "helpsinuses" on the web.

  To unsubscribe from this group, send an email to:
  helpsinuses-unsubscribe@yahoogroups.com

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[This message contained attachments]



________________________________________________________________________
________________________________________________________________________

Message: 4
    Date: Thu, 30 Mar 2006 07:16:43 -0800 (PST)
    From: <KOBEPM@...>
Subject: Re: Results from Mayo Clinic

Nicole...

   Good advice.  Make an appt. with the best in the ENT business....Dr. David
Kennedy at the University of Pennsylvania.

Nicole Crum <Craftycole77@...> wrote:
   Here's what I found out at Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN





Chronic Sinusitis Support Group



---------------------------------
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     Visit your group "helpsinuses" on the web.

     To unsubscribe from this group, send an email to:
  helpsinuses-unsubscribe@yahoogroups.com

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------------------------------------------------------------------------

Hello,
That article is very interesting. In fact, I've just
started using Amphoterecin B afew days ago in
conjuction with an antifungal pill, Flonase and afew
other things. I'll need to use the Amph B twice a day
for at least the next 5 months to clear this fungal
infection up. It takes a while, but I don't care
anymore as long as it works. Thanks for sending that
out.
Monica

--- kanikaj_99 <kanikaj_99@...> wrote:

> I saw an article @ sinusnews.com. I tried to send a
> link but the
> site was available or doesn't exist anymore.
> However, it wstated
> that chronic sinusitis might be an immune disorder.
>
> Here's a copy of what it stated:
>
>
>
> Study: Chronic Sinusitis is an Immune Disorder
> Researchers at the University at Buffalo and the
> Mayo Clinic have
> shown that chronic sinusitis is an immune disorder
> caused by fungus,
> opening up a promising new avenue for treating this
> ubiquitous and
> debilitating condition, for which there is no
> FDA-approved therapy.
>
> Results of their research suggest that common
> airborne fungi lodge
> in the mucus lining of the sinuses in most people,
> but initiate an
> immune response only in individuals prone to chronic
> sinusitis. The
> immune response causes the fungi to be attacked,
> which leads to
> damage of the sinus membranes, resulting in
> full-blown symptoms.
>
> "We hope this study will lead to the first treatment
> aimed at the
> root cause of chronic sinusitis, rather than a
> treatment just to
> mask the symptoms," said David A. Sherris, M.D.,
> interim chair of
> the UB Department of Otolaryngology.
>
> Sherris presented the study findings on March 23,
> 2004, at the
> annual meeting of the American Academy of Allergy,
> Asthma and
> Immunology in San Francisco. The research was
> conducted while
> Sherris was at the Mayo Clinic.
>
> Through a randomized, placebo-controlled,
> double-blind pilot trial
> using the fungicide Amphotericin-B applied
> intranasally, the
> researchers found that the treatment group showed a
> significant
> decrease in the inflammatory thickening of the sinus
> membranes
> compared to the control group.
>
> Inflammation in the mucus also decreased
> significantly in those
> receiving the drug, compared to placebo, and 70
> percent of patients
> on the medication had a decrease in the amount of
> nasal swelling,
> results showed.
>
> "We showed in 1999 that fungal organisms were
> present in the mucus
> of 96 percent of patients who had surgery for
> chronic sinusitis, and
> that inflammatory cells were clumped around the
> fungi, which
> indicated to us that the condition was an immune
> disorder caused by
> fungus, " said Sherris. "But many doctors didn't
> believe us."
>
> "Next, we conducted various immunologic studies and
> an open trial
> using the fungicide treatment and found that 75
> percent of patients
> improved on the new therapy. Now we have similar
> results from a
> randomized, blinded trial with a control group,
> which is the 'gold
> standard' in drug testing. Our next step is to
> conduct a multi-
> center trial using antifungals, which we hope will
> lead to FDA
> approval of antifungal treatment for this chronic
> disease."
>
> Chronic sinusitis, a disease of the nasal passages
> and the
> surrounding sinus cavities, is thought to affect
> 16.8 percent of the
> adult population of the U.S. It causes long-term
> nasal congestion,
> production of thick mucus, loss of sense of smell
> and creates an
> environment for opportunistic bacterial infections
> that exacerbate
> those symptoms. Sherris said studies have shown that
> chronic
> sinusitis exceeds even congestive heart failure in
> its adverse
> effects on quality of life.
>
> Little is known about the causes of sinusitis.
> Without a specific
> target for intervention, physicians often simply
> treated the
> secondary bacterial infections in hopes of providing
> a modicum of
> relief.
>
> The current trial involved 24 patients with chronic
> sinusitis who
> were randomly assigned to receive the treatment or a
> placebo.
> Neither the patients nor the investigators knew who
> received the
> drug or the inactive agent. The final analysis
> involved data from 10
> treatment patients and 14 controls, all of whom were
> in the trial
> for six months.
>
> Researchers took CT scans (special x-rays of the
> sinuses) at
> baseline and at 6 months. They also graded patients'
> inflammation by
> direct exam with an endoscope in the nose at the
> start of the study,
> and at 3 and 6 months.
>
> The CT scans showed that the treatment group had a
> mean 8.8 percent
> decrease in inflammatory mucus thickening, while the
> placebo group
> had an increase of 2.5 percent. Sherris said 70
> percent of patients
> in the treatment group also showed significant
> improvement when
> their nasal passages were viewed through an
> endoscope, while the
> placebo group showed no change. Markers of
> inflammation in the mucus
> also decreased significantly in the treatment group,
> compared to the
> placebo group.
>
> Additional researchers on the study, all from the
> Mayo Clinic, were
> Jens U. Ponikau, M.D., Amy Weaver, Evangelo Frigas,
> M.D., and
> Hirohito Kita, M.D.
>
> The research was supported by grants from the
> National Institutes of
> Health and the Mayo Foundation for Education and
> Research.
>
> The above article first appeared in the May 1, 2004
> edition of Sinus
> News.
>
>
>
>
>
>
>
>
>
>


__________________________________________________
Do You Yahoo!?
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http://mail.yahoo.com

----- Original Message -----

From: kanikaj_99

To: helpsinuses@yahoogroups.com

Sent: Thursday, March 30, 2006 5:26 PM

Subject: [helpsinuses] New cause of Chronic Sinusitis

I saw an article @ sinusnews.com. I tried to send a link but the
site was available or doesn't exist anymore. However, it wstated
that chronic sinusitis might be an immune disorder.

Here's a copy of what it stated:



Study: Chronic Sinusitis is an Immune Disorder
Researchers at the University at Buffalo and the Mayo Clinic have
shown that chronic sinusitis is an immune disorder caused by fungus,
opening up a promising new avenue for treating this ubiquitous and
debilitating condition, for which there is no FDA-approved therapy.

Results of their research suggest that common airborne fungi lodge
in the mucus lining of the sinuses in most people, but initiate an
immune response only in individuals prone to chronic sinusitis. The
immune response causes the fungi to be attacked, which leads to
damage of the sinus membranes, resulting in full-blown symptoms.

"We hope this study will lead to the first treatment aimed at the
root cause of chronic sinusitis, rather than a treatment just to
mask the symptoms," said David A. Sherris, M.D., interim chair of
the UB Department of Otolaryngology.

Sherris presented the study findings on March 23, 2004, at the
annual meeting of the American Academy of Allergy, Asthma and
Immunology in San Francisco. The research was conducted while
Sherris was at the Mayo Clinic.

Through a randomized, placebo-controlled, double-blind pilot trial
using the fungicide Amphotericin-B applied intranasally, the
researchers found that the treatment group showed a significant
decrease in the inflammatory thickening of the sinus membranes
compared to the control group.

Inflammation in the mucus also decreased significantly in those
receiving the drug, compared to placebo, and 70 percent of patients
on the medication had a decrease in the amount of nasal swelling,
results showed.

"We showed in 1999 that fungal organisms were present in the mucus
of 96 percent of patients who had surgery for chronic sinusitis, and
that inflammatory cells were clumped around the fungi, which
indicated to us that the condition was an immune disorder caused by
fungus, " said Sherris. "But many doctors didn't believe us."

"Next, we conducted various immunologic studies and an open trial
using the fungicide treatment and found that 75 percent of patients
improved on the new therapy. Now we have similar results from a
randomized, blinded trial with a control group, which is the 'gold
standard' in drug testing. Our next step is to conduct a multi-
center trial using antifungals, which we hope will lead to FDA
approval of antifungal treatment for this chronic disease."

Chronic sinusitis, a disease of the nasal passages and the
surrounding sinus cavities, is thought to affect 16.8 percent of the
adult population of the U.S. It causes long-term nasal congestion,
production of thick mucus, loss of sense of smell and creates an
environment for opportunistic bacterial infections that exacerbate
those symptoms. Sherris said studies have shown that chronic
sinusitis exceeds even congestive heart failure in its adverse
effects on quality of life.

Little is known about the causes of sinusitis. Without a specific
target for intervention, physicians often simply treated the
secondary bacterial infections in hopes of providing a modicum of
relief.

The current trial involved 24 patients with chronic sinusitis who
were randomly assigned to receive the treatment or a placebo.
Neither the patients nor the investigators knew who received the
drug or the inactive agent. The final analysis involved data from 10
treatment patients and 14 controls, all of whom were in the trial
for six months.

Researchers took CT scans (special x-rays of the sinuses) at
baseline and at 6 months. They also graded patients' inflammation by
direct exam with an endoscope in the nose at the start of the study,
and at 3 and 6 months.

The CT scans showed that the treatment group had a mean 8.8 percent
decrease in inflammatory mucus thickening, while the placebo group
had an increase of 2.5 percent. Sherris said 70 percent of patients
in the treatment group also showed significant improvement when
their nasal passages were viewed through an endoscope, while the
placebo group showed no change. Markers of inflammation in the mucus
also decreased significantly in the treatment group, compared to the
placebo group.

Additional researchers on the study, all from the Mayo Clinic, were
Jens U. Ponikau, M.D., Amy Weaver, Evangelo Frigas, M.D., and
Hirohito Kita, M.D.

The research was supported by grants from the National Institutes of
Health and the Mayo Foundation for Education and Research.

The above article first appeared in the May 1, 2004 edition of Sinus
News.

To Mary Judkins,

My wife has not used the Grossan device but the water pik and she has had some nose bleeds and it even appeared at times some facial swelling.  Also she said that she it felt like she was getting the Flu at times after a treatment.  My wife had a major sinus infection at the time. I just wanted to know if you had any things similar happen to you durning a major sinus problem.

thank you

Evans

Mary Judkins <judkins1@...> wrote:

I haven't used the Neti pot but what I like about the 
is that you get a pint of solution at a time for irrigation, (I think
it's a pint)  I had trou! ble getting my old  adapter to fit a new
water pik machine when it sprung a leak so I had to buy his machine.
I wonder if there is a guarantee that if you buy just the nose
adapter that if it don't fit, you would be able to send it back.
Might be cheaper in the long run to try the just the adapter.  You
could Google price everything to see.

>Hi all,
>
>I'm fellow sinus sufferer, and I have used a Neti pot for the last
>year without experiencing much relief. I'm interested in the Grossan
>Hydro Pulse -- and I'm not sure if I should buy the full system or the
>Water Pik attachment. Does anyone have any thoughts on which protocal
>might be more effective?
>
>Many thanks,
>Nicole
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice.

Chronic Sinusitis Support Group

SPONSORED LINKS

Health and wellness Health wellness product Health and wellness program Diet fitness health nutrition wellness Business health wellness Womens health and wellness

YAHOO! GROUPS LINKS

•  Visit your group "helpsinuses" on the web.
   
•  To unsubscribe from this group, send an email to:
   helpsinuses-unsubscribe@yahoogroups.com
   
•  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

-- 

I haven't used the Neti pot but what I like about the 
is that you get a pint of solution at a time for irrigation, (I think
it's a pint)  I had trouble getting my old  adapter to fit a new
water pik machine when it sprung a leak so I had to buy his machine.
I wonder if there is a guarantee that if you buy just the nose
adapter that if it don't fit, you would be able to send it back.
Might be cheaper in the long run to try the just the adapter.  You
could Google price everything to see.

>Hi all,
>
>I'm fellow sinus sufferer, and I have used a Neti pot for the last
>year without experiencing much relief. I'm interested in the Grossan
>Hydro Pulse -- and I'm not sure if I should buy the full system or the
>Water Pik attachment. Does anyone have any thoughts on which protocal
>might be more effective?
>
>Many thanks,
>Nicole
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

I saw an article @ sinusnews.com. I tried to send a link but the
site was available or doesn't exist anymore. However, it wstated
that chronic sinusitis might be an immune disorder.

Here's a copy of what it stated:



Study: Chronic Sinusitis is an Immune Disorder
Researchers at the University at Buffalo and the Mayo Clinic have
shown that chronic sinusitis is an immune disorder caused by fungus,
opening up a promising new avenue for treating this ubiquitous and
debilitating condition, for which there is no FDA-approved therapy.

Results of their research suggest that common airborne fungi lodge
in the mucus lining of the sinuses in most people, but initiate an
immune response only in individuals prone to chronic sinusitis. The
immune response causes the fungi to be attacked, which leads to
damage of the sinus membranes, resulting in full-blown symptoms.

"We hope this study will lead to the first treatment aimed at the
root cause of chronic sinusitis, rather than a treatment just to
mask the symptoms," said David A. Sherris, M.D., interim chair of
the UB Department of Otolaryngology.

Sherris presented the study findings on March 23, 2004, at the
annual meeting of the American Academy of Allergy, Asthma and
Immunology in San Francisco. The research was conducted while
Sherris was at the Mayo Clinic.

Through a randomized, placebo-controlled, double-blind pilot trial
using the fungicide Amphotericin-B applied intranasally, the
researchers found that the treatment group showed a significant
decrease in the inflammatory thickening of the sinus membranes
compared to the control group.

Inflammation in the mucus also decreased significantly in those
receiving the drug, compared to placebo, and 70 percent of patients
on the medication had a decrease in the amount of nasal swelling,
results showed.

"We showed in 1999 that fungal organisms were present in the mucus
of 96 percent of patients who had surgery for chronic sinusitis, and
that inflammatory cells were clumped around the fungi, which
indicated to us that the condition was an immune disorder caused by
fungus, " said Sherris. "But many doctors didn't believe us."

"Next, we conducted various immunologic studies and an open trial
using the fungicide treatment and found that 75 percent of patients
improved on the new therapy. Now we have similar results from a
randomized, blinded trial with a control group, which is the 'gold
standard' in drug testing. Our next step is to conduct a multi-
center trial using antifungals, which we hope will lead to FDA
approval of antifungal treatment for this chronic disease."

Chronic sinusitis, a disease of the nasal passages and the
surrounding sinus cavities, is thought to affect 16.8 percent of the
adult population of the U.S. It causes long-term nasal congestion,
production of thick mucus, loss of sense of smell and creates an
environment for opportunistic bacterial infections that exacerbate
those symptoms. Sherris said studies have shown that chronic
sinusitis exceeds even congestive heart failure in its adverse
effects on quality of life.

Little is known about the causes of sinusitis. Without a specific
target for intervention, physicians often simply treated the
secondary bacterial infections in hopes of providing a modicum of
relief.

The current trial involved 24 patients with chronic sinusitis who
were randomly assigned to receive the treatment or a placebo.
Neither the patients nor the investigators knew who received the
drug or the inactive agent. The final analysis involved data from 10
treatment patients and 14 controls, all of whom were in the trial
for six months.

Researchers took CT scans (special x-rays of the sinuses) at
baseline and at 6 months. They also graded patients' inflammation by
direct exam with an endoscope in the nose at the start of the study,
and at 3 and 6 months.

The CT scans showed that the treatment group had a mean 8.8 percent
decrease in inflammatory mucus thickening, while the placebo group
had an increase of 2.5 percent. Sherris said 70 percent of patients
in the treatment group also showed significant improvement when
their nasal passages were viewed through an endoscope, while the
placebo group showed no change. Markers of inflammation in the mucus
also decreased significantly in the treatment group, compared to the
placebo group.

Additional researchers on the study, all from the Mayo Clinic, were
Jens U. Ponikau, M.D., Amy Weaver, Evangelo Frigas, M.D., and
Hirohito Kita, M.D.

The research was supported by grants from the National Institutes of
Health and the Mayo Foundation for Education and Research.

The above article first appeared in the May 1, 2004 edition of Sinus
News.

Here's what I found out at Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN

Here's what I found out at Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN





Chronic Sinusitis Support Group
Yahoo! Groups Links

<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/helpsinuses/

<*> To unsubscribe from this group, send an email to:
helpsinuses-unsubscribe@yahoogroups.com

<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/

Here's what I found out at Mayo Monday and Tuesday this week:

Allergist - I'm allergic to cats, dust, dust mite, trees, grass, and
weeds. I have two dogs (my babies), so I was happy about that. He
suggested that I wash my bedding in hot water (to kill dust mites),
put mite-proof coverings on our mattress and pillows, get a whole
house air filtering system, and get an ionic air filter for our
bedroom and my office.

Neurologist - He said that I have constant headaches. He prescribed
a daily preventative migraine medication and a more typical migraine
medication for when my headaches get really bad.

Sleep Specialist - I'm waking myself up every 12 minutes because I'm
not breathing. They said that the back of my throat is narrower than
normal, so that doesn't help things. They also said that I take a
long time to get into REM sleep (really deep sleep) and I don't stay
there very long. Someone my age should have 40-60% of their sleep in
the REM stage, and I'm around 20-30%. I was diagnosed with mild
apnea. They suggested that I use a CPAP machine every night.

ENT - He said that my CT scan showed my right frontal sinus is
completely blocked. He suggested that I have surgery to take out the
boney tissue that is blocking it. Of course, this may be the
problem, or it might not be. If it doesn't drain, they would put a
shunt by my eyebrow that I would manually put saline into for 6
weeks to help it drain. Yes, that would mean I have a hole in my
head! I guess that would be rare that I would have to do that.

So, what does this mean for me? I really don't know as of yet. It
was a long and tiring two days of testing and I'm really just trying
to process everything and see what the best things for me to do
would be. Ideally, I'd do everything, but that would cost a lot of
money and still may not help. So, I'm trying to figure out what I
think is best for me and my life and go from there. Luckily, if
everything stays the same after trying a lot of this, I could go
back and try something else. I wish I would have been given a more
definitive answer, but I guess I have to be happy with what answers
I did get.

Nicole in MN

I use the water-pik and have used it for about 7 years.  I am considering
finding some else to irrigate with.  I have to say that my experience with
the water pik has been great and much better than using my old neti pot.

However, the water pik doesn't have a top on the container that you pour
saline into.  Which means that if you leave it uncovered (which I did for
years) dust, etc. will settle into the container and go right up your nose
with the saline.  That doesn't make much sense so if you decide up on using
the water-pik keep that in mind.  I have started to wash my water pik
container out every time I irrigate.  I am also interested in finding out
more about how to maintain and clean these devices because you wouldn't want
your irrigation device to become a "source" of infection or irritation to
your sinuses.

I believe the Grossan device comes with more explicit instructions on use,
cleaning, maintaining, etc. Although I am not entirely sure about that.



-----Original Message-----
From: helpsinuses@yahoogroups.com [mailto:helpsinuses@yahoogroups.com]
Sent: Tuesday, March 28, 2006 11:37 AM
To: helpsinuses@yahoogroups.com
Subject: [helpsinuses] Digest Number 713

There are 7 messages in this issue.

Topics in this digest:

       1. Smog and sinus
            From: "Christopher Tremelling" <openwindow999@...>
       2. Grossan Hydro Pulse
            From: "nicole" <nicolezajack@...>
       3. Re: Grossan Hydro Pulse
            From: Mary Judkins <judkins1@...>
       4. Re: Smog and sinus
            From: Mary Judkins <judkins1@...>
       5. Re: Grossan Hydro Pulse
            From: "Angela" <justinlouisville@...>
       6. Pseudomonas Sinus Infection- Update - Micoplasma?
            From: "tjpimentel" <tjpimentel@...>
       7. Re: Pseudomonas Sinus Infection- Update - Micoplasma?
            From: Mary Judkins <judkins1@...>


________________________________________________________________________
________________________________________________________________________

Message: 1
    Date: Fri, 24 Mar 2006 14:49:46 -0000
    From: "Christopher Tremelling" <openwindow999@...>
Subject: Smog and sinus




I was reading a book a few years ago that was written by a nose
doctor. He had a theory that a lot of chronic sinusitis was caused by
air pollution from cars and airplanes, his theory was that there is a
chemical that is in the smog form burnt gas that destroys the glands
in the sinuses that produce mucus to keep your nose healthy. His book
had a lot of statistics about how more people that live by airports
and highways had this problem and a lot of his research to go along
with his theory . The book really made me wonder if that is what
happened to me because I was living by an airport and a smoggy highway
at the time I first got my problems. The book was the closest thing I
have study so far that describes my problem. Does anyone else here
ever think that their problem could or evolved from smog?
                                          Christopher









________________________________________________________________________
________________________________________________________________________

Message: 2
    Date: Mon, 27 Mar 2006 05:49:58 -0000
    From: "nicole" <nicolezajack@...>
Subject: Grossan Hydro Pulse

Hi all,

I'm fellow sinus sufferer, and I have used a Neti pot for the last
year without experiencing much relief. I'm interested in the Grossan
Hydro Pulse -- and I'm not sure if I should buy the full system or the
Water Pik attachment. Does anyone have any thoughts on which protocal
might be more effective?

Many thanks,
Nicole







________________________________________________________________________
________________________________________________________________________

Message: 3
    Date: Mon, 27 Mar 2006 14:36:16 -0800
    From: Mary Judkins <judkins1@...>
Subject: Re: Grossan Hydro Pulse

I haven't used the Neti pot but what I like about the Grossan device
is that you get a pint of solution at a time for irrigation, (I think
it's a pint)  I had trouble getting my old  adapter to fit a new
water pik machine when it sprung a leak so I had to buy his machine.
I wonder if there is a guarantee that if you buy just the nose
adapter that if it don't fit, you would be able to send it back.
Might be cheaper in the long run to try the just the adapter.  You
could Google price everything to see.

>Hi all,
>
>I'm fellow sinus sufferer, and I have used a Neti pot for the last
>year without experiencing much relief. I'm interested in the Grossan
>Hydro Pulse -- and I'm not sure if I should buy the full system or the
>Water Pik attachment. Does anyone have any thoughts on which protocal
>might be more effective?
>
>Many thanks,
>Nicole
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339


________________________________________________________________________
________________________________________________________________________

Message: 4
    Date: Mon, 27 Mar 2006 14:38:33 -0800
    From: Mary Judkins <judkins1@...>
Subject: Re: Smog and sinus

Sorry for the late reply but my sinus trouble started in Amarillo,
Texas.  Whereas it boasts of an international airport, it has no
where near the air traffic as SFO, or Chicago, etc.  But, now I live
a couple of hrs. from SFO.


>I was reading a book a few years ago that was written by a nose
>doctor. He had a theory that a lot of chronic sinusitis was caused by
>air pollution from cars and airplanes, his theory was that there is a
>chemical that is in the smog form burnt gas that destroys the glands
>in the sinuses that produce mucus to keep your nose healthy. His book
>had a lot of statistics about how more people that live by airports
>and highways had this problem and a lot of his research to go along
>with his theory . The book really made me wonder if that is what
>happened to me because I was living by an airport and a smoggy highway
>at the time I first got my problems. The book was the closest thing I
>have study so far that describes my problem. Does anyone else here
>ever think that their problem could or evolved from smog?
>                                          Christopher
>
>
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339


________________________________________________________________________
________________________________________________________________________

Message: 5
    Date: Tue, 28 Mar 2006 01:41:02 -0000
    From: "Angela" <justinlouisville@...>
Subject: Re: Grossan Hydro Pulse

Hi Nicole,
Dr. Grossan actually has his own Yahoo group.  I recently asked him
this same questions about using the attachment versus the whole
HydroPulse system.  From what I understand, the HydroPulse's pulse rate
has somehow been optimized to restore cilia function.  Here is the link
to his Yahoo group if you're interested:
http://health.groups.yahoo.com/group/earnosethroat/

With that said, I was pretty sure that I would not be able to irrigate
properly because of my messed up nasal anatomy, so I decided to just
purchase the attachment.  As I suspected, I couldn't use it, but it
seemed to work fine with the Interplak system I have.

Good luck!
Angela







________________________________________________________________________
________________________________________________________________________

Message: 6
    Date: Tue, 28 Mar 2006 08:23:35 -0000
    From: "tjpimentel" <tjpimentel@...>
Subject: Pseudomonas Sinus Infection- Update - Micoplasma?

Hi Everyone,

Just a quick update on where I am:

1) I finished the Cipro and he Pseudomonas culture was negative a few
weeks ago, even though I wasnt feeling at my best and developed many
new symptoms, such as the bad cough, coughing up phelm (yellow/grey)
feeling slight ill but still able to go to work and get stuff done.

3) Other cultures came up negative (however, they could have been
tainted by the CIPRO in my system?

4) I do have one abnormal sinus x ray (front/left), this could be
causing the bad post nasal drip - then the horrible cough bringing up
phelm/sputum - hopefully.

5) All chest x-rays are normal, so that's good news...

6) However, as the weeks progressed, my symptoms became worse,
coughing up yellow/grey mucos (bad post nasal drip), cough - but no
fever, little tired with times of feeling hot with a low, low temp.
at 99.1.  No swollen lymp nodes - everything is fine.

7) The situation could be microplasmic bacteria.  Thereforee, one
more culture, sputum was taken today.  In an effort to get me back on
track - I am taking a new antibotic KETEK - has anyone heard of
this?  I understand this is a new generation, recently approved for
bacterial sinus infections, pheomonia, etc.  Is this good at catching
community accuired bugs?

There are many sick and sneezing people at my work.  We do have our
own private cubes, however, when some is coughing and sneezy next to
you - it must be possible to pick-up there germs, potentially, even
through partition walls?  Then the low lying air vents push the germ
air into others.  Could all these be the source?  or is intimate
contact only needed to get this type of infection?

This whole situation is really wierd as I am a pefectly healthy male
in my 30's - this hasnt persisted ever into a full two months of not
feeling well.   I hope this last round (earlier course of DIocycline,
Bactrim and most recent CIPRO) and NOW the FINAL round of the KETEK
antibiotic will kill this bacteria.

Any advice or suggestions on KETEK and this enless sitiaton would be
most appreciated.

Thanks,

T.



--- In helpsinuses@yahoogroups.com, <KOBEPM@...> wrote:
>
> About six months....mine was seriously imbedded...
>
>   Likely I got it from the hot tub at my "health" club.....not
really sure.
>
> T J <tjpimentel@...> wrote:
>     How long did it take?  They say I have a very light growth
only - so hopefully the CIPRO will get rid of it.
>
>   Do you know where you might have picked it up?
>
> KOBEPM@... wrote:
>     Hi.
>
>   This is a very serious bacteria.....I had to go on IV antibiotics
to rid myself of it.
>
> tjpimentel <tjpimentel@...> wrote:
>   Hi Group,
>
> Currently I am fighting a very bad sinus infection (same symptoms
as
> the H Flu in the sinus) and the sinus culture came back as a "light
> growth of Pseudomonas" in my mucos and septum cultures.
>
> I understand this a very difficult bacteria to catch.  However, I
> work in a very sick building environment.  I am thinking someone
> could have coughed and sneezed and I picked-up the bacteria.  I am
> not too happy about it.
>
> It's been almost three weeks on antibiotics (Doxycycline and
Bactrim)
> and now I am taking CIPRO (just started two days ago) as the
> infection has not cleared.  Note: I did feel significantly better
> after the first round Doxycline and then the symptoms appeared
again
> after two days and another positive culture.
>
> I feel pretty good - outside of a dry (sometimes productive cough,
a
> lot of congestion and stuffy nose - I do lavage and produce light
> yellow/grey colored mucus - this is getting slight better every day.
>
> Normally, is this a tough bacteria to treat in the sinuses?  I am
> surprised the first round of antibiotics couldnt clear the
> infection.  Does it usually take a lot of antibiotics to clear this
> bug?  Any safegaurds to prevent this from re-occuring again?
>
> Any advice and thoughts would be most appreciated.
>
> Thanks,
>
> T.
>
>
>
>
>
>
>
> ---------------------------------
>   Yahoo! Mail
> Bring photos to life! New PhotoMail makes sharing a breeze.
>
>
> ---------------------------------
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> Bring photos to life! New PhotoMail makes sharing a breeze.
>
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>
>
>
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>
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>
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>
>     To unsubscribe from this group, send an email to:
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>
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>






________________________________________________________________________
________________________________________________________________________

Message: 7
    Date: Tue, 28 Mar 2006 08:26:50 -0800
    From: Mary Judkins <judkins1@...>
Subject: Re: Pseudomonas Sinus Infection- Update - Micoplasma?

Wow, I've heard of Ketek before but it sound like if they're doing
another culture, you should know more soon.  Also, although I've had
4 sinus surgeries due to infection trying to eat its way into bones,
other people's stuff never set it off.  I had partners who became
sick on a fairly regular basis, you know normal stuff, got better &
didn't affect me at all.  Perhaps if your immune system is that
weakened, it is possible that other people are your culprits but,
other people will always be culprits so the answer is to strengthen
your immune system & sound like you're on track for that.  Also, it
sound like you have excellent medical insurance, mine would NEVER do
stuff for me that yours has done for you.  Consider yourself very
lucky & continue to be persistent.

>Hi Everyone,
>
>Just a quick update on where I am:
>
>1) I finished the Cipro and he Pseudomonas culture was negative a few
>weeks ago, even though I wasnt feeling at my best and developed many
>new symptoms, such as the bad cough, coughing up phelm (yellow/grey)
>feeling slight ill but still able to go to work and get stuff done.
>
>3) Other cultures came up negative (however, they could have been
>tainted by the CIPRO in my system?
>
>4) I do have one abnormal sinus x ray (front/left), this could be
>causing the bad post nasal drip - then the horrible cough bringing up
>phelm/sputum - hopefully.
>
>5) All chest x-rays are normal, so that's good news...
>
>6) However, as the weeks progressed, my symptoms became worse,
>coughing up yellow/grey mucos (bad post nasal drip), cough - but no
>fever, little tired with times of feeling hot with a low, low temp.
>at 99.1.  No swollen lymp nodes - everything is fine.
>
>7) The situation could be microplasmic bacteria.  Thereforee, one
>more culture, sputum was taken today.  In an effort to get me back on
>track - I am taking a new antibotic KETEK - has anyone heard of
>this?  I understand this is a new generation, recently approved for
>bacterial sinus infections, pheomonia, etc.  Is this good at catching
>community accuired bugs?
>
>There are many sick and sneezing people at my work.  We do have our
>own private cubes, however, when some is coughing and sneezy next to
>you - it must be possible to pick-up there germs, potentially, even
>through partition walls?  Then the low lying air vents push the germ
>air into others.  Could all these be the source?  or is intimate
>contact only needed to get this type of infection?
>
>This whole situation is really wierd as I am a pefectly healthy male
>in my 30's - this hasnt persisted ever into a full two months of not
>feeling well.   I hope this last round (earlier course of DIocycline,
>Bactrim and most recent CIPRO) and NOW the FINAL round of the KETEK
>antibiotic will kill this bacteria.
>
>Any advice or suggestions on KETEK and this enless sitiaton would be
>most appreciated.
>
>Thanks,
>
>T.
>
>
>
>--- In helpsinuses@yahoogroups.com, <KOBEPM@...> wrote:
>>
>>  About six months....mine was seriously imbedded...
>>
>>    Likely I got it from the hot tub at my "health" club.....not
>really sure.
>>
>>  T J <tjpimentel@...> wrote:
>>      How long did it take?  They say I have a very light growth
>only - so hopefully the CIPRO will get rid of it.
>>
>>    Do you know where you might have picked it up?
>>
>>  KOBEPM@... wrote:
>>      Hi.
>>
>>    This is a very serious bacteria.....I had to go on IV antibiotics
>to rid myself of it.
>>
>>  tjpimentel <tjpimentel@...> wrote:
>>    Hi Group,
>>
>>  Currently I am fighting a very bad sinus infection (same symptoms
>as
>>  the H Flu in the sinus) and the sinus culture came back as a "light
>>  growth of Pseudomonas" in my mucos and septum cultures.
>>
>>  I understand this a very difficult bacteria to catch.  However, I
>>  work in a very sick building environment.  I am thinking someone
>>  could have coughed and sneezed and I picked-up the bacteria.  I am
>>  not too happy about it.
>>
>>  It's been almost three weeks on antibiotics (Doxycycline and
>Bactrim)
>>  and now I am taking CIPRO (just started two days ago) as the
>>  infection has not cleared.  Note: I did feel significantly better
>>  after the first round Doxycline and then the symptoms appeared
>again
>>  after two days and another positive culture.
>>
>>  I feel pretty good - outside of a dry (sometimes productive cough,
>a
>>  lot of congestion and stuffy nose - I do lavage and produce light
>>  yellow/grey colored mucus - this is getting slight better every day.
>>
>>  Normally, is this a tough bacteria to treat in the sinuses?  I am
>>  surprised the first round of antibiotics couldnt clear the
>>  infection.  Does it usually take a lot of antibiotics to clear this
>>  bug?  Any safegaurds to prevent this from re-occuring again?
>>
>>  Any advice and thoughts would be most appreciated.
>>
>>  Thanks,
>>
>>  T.
>>
>>
>>
>>
>>
>>
>>
>>  ---------------------------------
>>    Yahoo! Mail
>>  Bring photos to life! New PhotoMail makes sharing a breeze.
>>
>>
>>  ---------------------------------
>>    Yahoo! Mail
>>  Bring photos to life! New PhotoMail makes sharing a breeze.
>>
>>  Chronic Sinusitis Support Group
>>
>>
>>
>>    SPONSORED LINKS
>>          Health and wellness   Health wellness product   Health and
>wellness program     Diet fitness health nutrition wellness
>Business health wellness   Womens health and wellness
>>
>>  ---------------------------------
>>    YAHOO! GROUPS LINKS
>>
>>
>>      Visit your group "helpsinuses" on the web.
>>
>>      To unsubscribe from this group, send an email to:
>>   helpsinuses-unsubscribe@yahoogroups.com
>>
>>      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
>Service.
>>
>>
>>  ---------------------------------
>>
>>
>>
>>
>>
>>  ---------------------------------
>>   Yahoo! Mail
>>   Use Photomail to share photos without annoying attachments.
>>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339


________________________________________________________________________
________________________________________________________________________


Chronic Sinusitis Support Group
------------------------------------------------------------------------
Yahoo! Groups Links




------------------------------------------------------------------------

Wow, I've heard of Ketek before but it sound like if they're doing
another culture, you should know more soon.  Also, although I've had
4 sinus surgeries due to infection trying to eat its way into bones,
other people's stuff never set it off.  I had partners who became
sick on a fairly regular basis, you know normal stuff, got better &
didn't affect me at all.  Perhaps if your immune system is that
weakened, it is possible that other people are your culprits but,
other people will always be culprits so the answer is to strengthen
your immune system & sound like you're on track for that.  Also, it
sound like you have excellent medical insurance, mine would NEVER do
stuff for me that yours has done for you.  Consider yourself very
lucky & continue to be persistent.

>Hi Everyone,
>
>Just a quick update on where I am:
>
>1) I finished the Cipro and he Pseudomonas culture was negative a few
>weeks ago, even though I wasnt feeling at my best and developed many
>new symptoms, such as the bad cough, coughing up phelm (yellow/grey)
>feeling slight ill but still able to go to work and get stuff done.
>
>3) Other cultures came up negative (however, they could have been
>tainted by the CIPRO in my system?
>
>4) I do have one abnormal sinus x ray (front/left), this could be
>causing the bad post nasal drip - then the horrible cough bringing up
>phelm/sputum - hopefully.
>
>5) All chest x-rays are normal, so that's good news...
>
>6) However, as the weeks progressed, my symptoms became worse,
>coughing up yellow/grey mucos (bad post nasal drip), cough - but no
>fever, little tired with times of feeling hot with a low, low temp.
>at 99.1.  No swollen lymp nodes - everything is fine.
>
>7) The situation could be microplasmic bacteria.  Thereforee, one
>more culture, sputum was taken today.  In an effort to get me back on
>track - I am taking a new antibotic KETEK - has anyone heard of
>this?  I understand this is a new generation, recently approved for
>bacterial sinus infections, pheomonia, etc.  Is this good at catching
>community accuired bugs?
>
>There are many sick and sneezing people at my work.  We do have our
>own private cubes, however, when some is coughing and sneezy next to
>you - it must be possible to pick-up there germs, potentially, even
>through partition walls?  Then the low lying air vents push the germ
>air into others.  Could all these be the source?  or is intimate
>contact only needed to get this type of infection?
>
>This whole situation is really wierd as I am a pefectly healthy male
>in my 30's - this hasnt persisted ever into a full two months of not
>feeling well.   I hope this last round (earlier course of DIocycline,
>Bactrim and most recent CIPRO) and NOW the FINAL round of the KETEK
>antibiotic will kill this bacteria.
>
>Any advice or suggestions on KETEK and this enless sitiaton would be
>most appreciated.
>
>Thanks,
>
>T.
>
>
>
>--- In helpsinuses@yahoogroups.com, <KOBEPM@...> wrote:
>>
>>  About six months....mine was seriously imbedded...
>>
>>    Likely I got it from the hot tub at my "health" club.....not
>really sure.
>>
>>  T J <tjpimentel@...> wrote:
>>      How long did it take?  They say I have a very light growth
>only - so hopefully the CIPRO will get rid of it.
>>
>>    Do you know where you might have picked it up?
>>
>>  KOBEPM@... wrote:
>>      Hi.
>>
>>    This is a very serious bacteria.....I had to go on IV antibiotics
>to rid myself of it.
>>
>>  tjpimentel <tjpimentel@...> wrote:
>>    Hi Group,
>>
>>  Currently I am fighting a very bad sinus infection (same symptoms
>as
>>  the H Flu in the sinus) and the sinus culture came back as a "light
>>  growth of Pseudomonas" in my mucos and septum cultures.
>>
>>  I understand this a very difficult bacteria to catch.  However, I
>>  work in a very sick building environment.  I am thinking someone
>>  could have coughed and sneezed and I picked-up the bacteria.  I am
>>  not too happy about it.
>>
>>  It's been almost three weeks on antibiotics (Doxycycline and
>Bactrim)
>>  and now I am taking CIPRO (just started two days ago) as the
>>  infection has not cleared.  Note: I did feel significantly better
>>  after the first round Doxycline and then the symptoms appeared
>again
>>  after two days and another positive culture.
>>
>>  I feel pretty good - outside of a dry (sometimes productive cough,
>a
>>  lot of congestion and stuffy nose - I do lavage and produce light
>>  yellow/grey colored mucus - this is getting slight better every day.
>>
>>  Normally, is this a tough bacteria to treat in the sinuses?  I am
>>  surprised the first round of antibiotics couldnt clear the
>>  infection.  Does it usually take a lot of antibiotics to clear this
>>  bug?  Any safegaurds to prevent this from re-occuring again?
>>
>>  Any advice and thoughts would be most appreciated.
>>
>>  Thanks,
>>
>>  T.
>>
>>
>>
>>
>>
>>
>>
>>  ---------------------------------
>>    Yahoo! Mail
>>  Bring photos to life! New PhotoMail makes sharing a breeze.
>>
>>
>>  ---------------------------------
>>    Yahoo! Mail
>>  Bring photos to life! New PhotoMail makes sharing a breeze.
>>
>>  Chronic Sinusitis Support Group
>>
>>
>>
>>    SPONSORED LINKS
>>          Health and wellness   Health wellness product   Health and
>wellness program     Diet fitness health nutrition wellness
>Business health wellness   Womens health and wellness
>>
>>  ---------------------------------
>>    YAHOO! GROUPS LINKS
>>
>>
>>      Visit your group "helpsinuses" on the web.
>>
>>      To unsubscribe from this group, send an email to:
>>   helpsinuses-unsubscribe@yahoogroups.com
>>
>>      Your use of Yahoo! Groups is subject to the Yahoo! Terms of
>Service.
>>
>>
>>  ---------------------------------
>>
>>
>>
>>
>>
>>  ---------------------------------
>>   Yahoo! Mail
>>   Use Photomail to share photos without annoying attachments.
>>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

Hi Everyone,

Just a quick update on where I am:

1) I finished the Cipro and he Pseudomonas culture was negative a few
weeks ago, even though I wasnt feeling at my best and developed many
new symptoms, such as the bad cough, coughing up phelm (yellow/grey)
feeling slight ill but still able to go to work and get stuff done.

3) Other cultures came up negative (however, they could have been
tainted by the CIPRO in my system?

4) I do have one abnormal sinus x ray (front/left), this could be
causing the bad post nasal drip - then the horrible cough bringing up
phelm/sputum - hopefully.

5) All chest x-rays are normal, so that's good news...

6) However, as the weeks progressed, my symptoms became worse,
coughing up yellow/grey mucos (bad post nasal drip), cough - but no
fever, little tired with times of feeling hot with a low, low temp.
at 99.1.  No swollen lymp nodes - everything is fine.

7) The situation could be microplasmic bacteria.  Thereforee, one
more culture, sputum was taken today.  In an effort to get me back on
track - I am taking a new antibotic KETEK - has anyone heard of
this?  I understand this is a new generation, recently approved for
bacterial sinus infections, pheomonia, etc.  Is this good at catching
community accuired bugs?

There are many sick and sneezing people at my work.  We do have our
own private cubes, however, when some is coughing and sneezy next to
you - it must be possible to pick-up there germs, potentially, even
through partition walls?  Then the low lying air vents push the germ
air into others.  Could all these be the source?  or is intimate
contact only needed to get this type of infection?

This whole situation is really wierd as I am a pefectly healthy male
in my 30's - this hasnt persisted ever into a full two months of not
feeling well.   I hope this last round (earlier course of DIocycline,
Bactrim and most recent CIPRO) and NOW the FINAL round of the KETEK
antibiotic will kill this bacteria.

Any advice or suggestions on KETEK and this enless sitiaton would be
most appreciated.

Thanks,

T.



--- In helpsinuses@yahoogroups.com, <KOBEPM@...> wrote:
>
> About six months....mine was seriously imbedded...
>
>   Likely I got it from the hot tub at my "health" club.....not
really sure.
>
> T J <tjpimentel@...> wrote:
>     How long did it take?  They say I have a very light growth
only - so hopefully the CIPRO will get rid of it.
>
>   Do you know where you might have picked it up?
>
> KOBEPM@... wrote:
>     Hi.
>
>   This is a very serious bacteria.....I had to go on IV antibiotics
to rid myself of it.
>
> tjpimentel <tjpimentel@...> wrote:
>   Hi Group,
>
> Currently I am fighting a very bad sinus infection (same symptoms
as
> the H Flu in the sinus) and the sinus culture came back as a "light
> growth of Pseudomonas" in my mucos and septum cultures.
>
> I understand this a very difficult bacteria to catch.  However, I
> work in a very sick building environment.  I am thinking someone
> could have coughed and sneezed and I picked-up the bacteria.  I am
> not too happy about it.
>
> It's been almost three weeks on antibiotics (Doxycycline and
Bactrim)
> and now I am taking CIPRO (just started two days ago) as the
> infection has not cleared.  Note: I did feel significantly better
> after the first round Doxycline and then the symptoms appeared
again
> after two days and another positive culture.
>
> I feel pretty good - outside of a dry (sometimes productive cough,
a
> lot of congestion and stuffy nose - I do lavage and produce light
> yellow/grey colored mucus - this is getting slight better every day.
>
> Normally, is this a tough bacteria to treat in the sinuses?  I am
> surprised the first round of antibiotics couldnt clear the
> infection.  Does it usually take a lot of antibiotics to clear this
> bug?  Any safegaurds to prevent this from re-occuring again?
>
> Any advice and thoughts would be most appreciated.
>
> Thanks,
>
> T.
>
>
>
>
>
>
>
> ---------------------------------
>   Yahoo! Mail
> Bring photos to life! New PhotoMail makes sharing a breeze.
>
>
> ---------------------------------
>   Yahoo! Mail
> Bring photos to life! New PhotoMail makes sharing a breeze.
>
> Chronic Sinusitis Support Group
>
>
>
>   SPONSORED LINKS
>         Health and wellness   Health wellness product   Health and
wellness program     Diet fitness health nutrition wellness
Business health wellness   Womens health and wellness
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "helpsinuses" on the web.
>
>     To unsubscribe from this group, send an email to:
>  helpsinuses-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
>  Yahoo! Mail
>  Use Photomail to share photos without annoying attachments.
>

Hi Nicole,
Dr. Grossan actually has his own Yahoo group.  I recently asked him
this same questions about using the attachment versus the whole
HydroPulse system.  From what I understand, the HydroPulse's pulse rate
has somehow been optimized to restore cilia function.  Here is the link
to his Yahoo group if you're interested:
http://health.groups.yahoo.com/group/earnosethroat/

With that said, I was pretty sure that I would not be able to irrigate
properly because of my messed up nasal anatomy, so I decided to just
purchase the attachment.  As I suspected, I couldn't use it, but it
seemed to work fine with the Interplak system I have.

Good luck!
Angela

Sorry for the late reply but my sinus trouble started in Amarillo,
Texas.  Whereas it boasts of an international airport, it has no
where near the air traffic as SFO, or Chicago, etc.  But, now I live
a couple of hrs. from SFO.


>I was reading a book a few years ago that was written by a nose
>doctor. He had a theory that a lot of chronic sinusitis was caused by
>air pollution from cars and airplanes, his theory was that there is a
>chemical that is in the smog form burnt gas that destroys the glands
>in the sinuses that produce mucus to keep your nose healthy. His book
>had a lot of statistics about how more people that live by airports
>and highways had this problem and a lot of his research to go along
>with his theory . The book really made me wonder if that is what
>happened to me because I was living by an airport and a smoggy highway
>at the time I first got my problems. The book was the closest thing I
>have study so far that describes my problem. Does anyone else here
>ever think that their problem could or evolved from smog?
>                                          Christopher
>
>
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

I haven't used the Neti pot but what I like about the Grossan device
is that you get a pint of solution at a time for irrigation, (I think
it's a pint)  I had trouble getting my old  adapter to fit a new
water pik machine when it sprung a leak so I had to buy his machine.
I wonder if there is a guarantee that if you buy just the nose
adapter that if it don't fit, you would be able to send it back.
Might be cheaper in the long run to try the just the adapter.  You
could Google price everything to see.

>Hi all,
>
>I'm fellow sinus sufferer, and I have used a Neti pot for the last
>year without experiencing much relief. I'm interested in the Grossan
>Hydro Pulse -- and I'm not sure if I should buy the full system or the
>Water Pik attachment. Does anyone have any thoughts on which protocal
>might be more effective?
>
>Many thanks,
>Nicole
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

Hi all,

I'm fellow sinus sufferer, and I have used a Neti pot for the last
year without experiencing much relief. I'm interested in the Grossan
Hydro Pulse -- and I'm not sure if I should buy the full system or the
Water Pik attachment. Does anyone have any thoughts on which protocal
might be more effective?

Many thanks,
Nicole

Thanks Heather,
Just knowing that you guys are out there sharing
information helps too.
Monica

--- heather <heaven1975@...> wrote:

> what a relief i'm sure to get a diagnosis. the scope
> and procedure doesn't sound fun, but at least, in
> the end, you're on your way to feeling better!!
>
>   keep us updated on your progress!!
>
> heather
>
>
>
>
> --- In helpsinuses@yahoogroups.com, "spsgroup1"
> <spsgroup1@...>
> wrote:
> >
> > Hello everyone,
> >   I've read a number of recent postings on this.
> For anyone who
> > remembers my case, I've had chronic sinusitis 24/7
> for the last 8
> > months which started after I caught a bad case of
> sinusitis from a
> > pool. I was on/off antibiotics, that only
> partially cleared up the
> > problem. I was then told by several dr's that
> there was something
> > wrong with my sinuses prior to that event. I was
> also told I had
> > "concha bullosa", an anatomical variation. None of
> them knew what
> to
> > do with me and were afraid to perform surgery in
> my case. Maybe I
> > should say that none of them were willing to put
> in the time and
> > effort to work with me. It wouldn't surprise me if
> it were because
> of
> > my insurance plan. Also, every month I've had some
> improvement. In
> > other words, I haven't stayed the same or gotton
> worse, but am not
> yet
> > better.
> >  On Wednesday I had a very extensive sinus
> examination by a
> specialist
> > out-of-network in the city. All of my sinuses were
> scoped (and not
> > just the usual 10 seconds the other 6 dr's did). I
> was scoped again
> > and videos were taken. After that cultures were
> taken, After that,
> a
> > suctioning device was used to remove material from
> my sinuses.
> > Needless to say, this wasn't a very pleasant
> experience. I also
> had 3
> > blood vials taken and was given a vacination
> against some type of
> > sinusitis(I don't remember what).
> >   My Dr. said I have a fungal infection. I need to
> be on medication
> > for at least 5 months. I'm very relieved to know
> what is wrong
> with me
> > now. The cost of the 2 visits was over $4,600. My
> insurance should
> pay
> > part of it. Depending on my progress, my Dr. (who
> isn't a surgeon)
> may
> > want the glob in my left cheek removed surgically.
> My best advise
> is
> > that if you're not getting better, you need to
> keep looking for the
> > right Dr. I know it's a real hassle to keep
> switching. Just keep
> good
> > records, write everything down. Good luck and I
> hope I've been
> able to
> > give some insight on what may be the cause your
> chronic sinusitis.
> > Monica
> >
>
>
>
>
>
> "There is a time in every man's education when he
> arrives at the conviction that envy is ignorance;
> that imitation is suicide; that he must take himself
> for better, for worse, as his portion; that though
> the wide universe is full of good, no kernel of
> nourishing corn can come to him but through his toil
> bestowed on that plot of ground which is given to
> him to till."
> -- Ralph Waldo Emerson
>
>
>
>
>
> ---------------------------------
> Yahoo! Messenger with Voice. PC-to-Phone calls for
> ridiculously low rates.


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

--- In helpsinuses@yahoogroups.com, "spsgroup1" <spsgroup1@...>
wrote:
>
> Hello everyone,
>   I've read a number of recent postings on this. For anyone who
> remembers my case, I've had chronic sinusitis 24/7 for the last 8
> months which started after I caught a bad case of sinusitis from a
> pool. I was on/off antibiotics, that only partially cleared up the
> problem. I was then told by several dr's that there was something
> wrong with my sinuses prior to that event. I was also told I had
> "concha bullosa", an anatomical variation. None of them knew what
to
> do with me and were afraid to perform surgery in my case. Maybe I
> should say that none of them were willing to put in the time and
> effort to work with me. It wouldn't surprise me if it were because
of
> my insurance plan. Also, every month I've had some improvement. In
> other words, I haven't stayed the same or gotton worse, but am not
yet
> better.
>  On Wednesday I had a very extensive sinus examination by a
specialist
> out-of-network in the city. All of my sinuses were scoped (and not
> just the usual 10 seconds the other 6 dr's did). I was scoped again
> and videos were taken. After that cultures were taken, After that,
a
> suctioning device was used to remove material from my sinuses.
> Needless to say, this wasn't a very pleasant experience. I also
had 3
> blood vials taken and was given a vacination against some type of
> sinusitis(I don't remember what).
>   My Dr. said I have a fungal infection. I need to be on medication
> for at least 5 months. I'm very relieved to know what is wrong
with me
> now. The cost of the 2 visits was over $4,600. My insurance should
pay
> part of it. Depending on my progress, my Dr. (who isn't a surgeon)
may
> want the glob in my left cheek removed surgically. My best advise
is
> that if you're not getting better, you need to keep looking for the
> right Dr. I know it's a real hassle to keep switching. Just keep
good
> records, write everything down. Good luck and I hope I've been
able to
> give some insight on what may be the cause your chronic sinusitis.
> Monica
>

Monica,

I'm so glad that you found out what was up with your sinus's. Must
have been a relief to finally be able to say "this is what is
causing it".

I agree with you that you have to just persist and it is exhausting
but ultimately what choice are we left with? I'm glad you found a
good doctor. I had a good one over on the Mainland, (Vancouver),
since moving I haven't found a good one. I am going back to the
allergist soon though, so that is good.

Take care,
Carissa

--- In helpsinuses@yahoogroups.com, "spsgroup1" <spsgroup1@...>
wrote:
>
> Hello everyone,
>   I've read a number of recent postings on this. For anyone who
> remembers my case, I've had chronic sinusitis 24/7 for the last 8
> months which started after I caught a bad case of sinusitis from a
> pool. I was on/off antibiotics, that only partially cleared up the
> problem. I was then told by several dr's that there was something
> wrong with my sinuses prior to that event. I was also told I had
> "concha bullosa", an anatomical variation. None of them knew what
to
> do with me and were afraid to perform surgery in my case. Maybe I
> should say that none of them were willing to put in the time and
> effort to work with me. It wouldn't surprise me if it were because
of
> my insurance plan. Also, every month I've had some improvement. In
> other words, I haven't stayed the same or gotton worse, but am not
yet
> better.
>  On Wednesday I had a very extensive sinus examination by a
specialist
> out-of-network in the city. All of my sinuses were scoped (and not
> just the usual 10 seconds the other 6 dr's did). I was scoped again
> and videos were taken. After that cultures were taken, After that,
a
> suctioning device was used to remove material from my sinuses.
> Needless to say, this wasn't a very pleasant experience. I also
had 3
> blood vials taken and was given a vacination against some type of
> sinusitis(I don't remember what).
>   My Dr. said I have a fungal infection. I need to be on medication
> for at least 5 months. I'm very relieved to know what is wrong
with me
> now. The cost of the 2 visits was over $4,600. My insurance should
pay
> part of it. Depending on my progress, my Dr. (who isn't a surgeon)
may
> want the glob in my left cheek removed surgically. My best advise
is
> that if you're not getting better, you need to keep looking for the
> right Dr. I know it's a real hassle to keep switching. Just keep
good
> records, write everything down. Good luck and I hope I've been
able to
> give some insight on what may be the cause your chronic sinusitis.
> Monica
>

Hi Lauren,
I used to drink about 2 cups of coffee a day before I
became ill. Now, I've eliminated most items containing
caffeine (I just have a cup of tea). I noticed that I
anytime I have caffeine, my sinuses feel worse. With
regards to dairy products, I'm strongly against
removing an entire food group from my diet. What I do
is, make sure to eat/drink them at least 4 hours prior
to going to sleep so they completely digest. I've also
cut out alcohol- haven't had a beer in 7 months-
because once again it seemed to make my head and sinus
pressure feel worse.
Monica


--- Lauren Evoy Davis <evoyls@...> wrote:

> Hi All,
>
> I just joined up today. I speak on behalf of my
> husband who is due for
> sinus surgery #4 next week at National Institutes of
> Health (NIH).
> He's in a clinical trial for Job's Syndrome (aka
> Hyper IGE) which
> features sinus infections and pneumonia (among a
> host of other bone
> and skin issues) as the major issues.
>
> What the doctor's do not address is diet. He eats a
> regular
> meat/veggie diet but we're big dairy eaters. Love
> cheese. And salty
> food. I wonder if elimating or cutting back on our
> faves; coffee,
> dairy, salt and the occassional beer or red wine
> would help. We do
> incorporate garlic and onions and "healing" and
> spicy foods into our
> diets too.
>
> His docs say that patients with Job's Syndrome (a
> genetic illness that
> affects the immune system) have a slightly different
> shaped head than
> other people, making sinus drainage difficult.
>
> I hate to think the surgery is a treatment option
> again and again.
>
> Another other Job's Syndrome people on here? It's
> rare so I doubt it.
>
> Good health to all,
> Lauren
>
>
>
>
>
>
>


__________________________________________________
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Hello everyone,
   I've read a number of recent postings on this. For anyone who
remembers my case, I've had chronic sinusitis 24/7 for the last 8
months which started after I caught a bad case of sinusitis from a
pool. I was on/off antibiotics, that only partially cleared up the
problem. I was then told by several dr's that there was something
wrong with my sinuses prior to that event. I was also told I had
"concha bullosa", an anatomical variation. None of them knew what to
do with me and were afraid to perform surgery in my case. Maybe I
should say that none of them were willing to put in the time and
effort to work with me. It wouldn't surprise me if it were because of
my insurance plan. Also, every month I've had some improvement. In
other words, I haven't stayed the same or gotton worse, but am not yet
better.
  On Wednesday I had a very extensive sinus examination by a specialist
out-of-network in the city. All of my sinuses were scoped (and not
just the usual 10 seconds the other 6 dr's did). I was scoped again
and videos were taken. After that cultures were taken, After that, a
suctioning device was used to remove material from my sinuses.
Needless to say, this wasn't a very pleasant experience. I also had 3
blood vials taken and was given a vacination against some type of
sinusitis(I don't remember what).
   My Dr. said I have a fungal infection. I need to be on medication
for at least 5 months. I'm very relieved to know what is wrong with me
now. The cost of the 2 visits was over $4,600. My insurance should pay
part of it. Depending on my progress, my Dr. (who isn't a surgeon) may
want the glob in my left cheek removed surgically. My best advise is
that if you're not getting better, you need to keep looking for the
right Dr. I know it's a real hassle to keep switching. Just keep good
records, write everything down. Good luck and I hope I've been able to
give some insight on what may be the cause your chronic sinusitis.
Monica

Hi Chris,

I also have major probs w/ my ears when my sinus's are acting up. It
hurts alot and I do feel a lot of pressure on them. In fact, when I'm
about to have sinus problems, say, when I"m allergic to something, my
ears are the first thing to plug up and give me pain. So you are not
alone in that.

I find using saline rinses daily has really helped me. Although, when
the tubes are plugged I read to not use the rinse. I do but very very
gently.

Carissa
>
> Also do many people have problems with their Eustachian tubes linked
to
> their sinusitis? Recently ear pain and pressure has been my worst
> symptom.
> >
> Chris
>

Wegener's granulomatosis I have absolutely no knowledge of.  Your
ears could be receiving pressure from your swollen sinuses & residual
drainage from sinuses.  As far as routine for sinus cultures / fungal
infection testing, no they are not routine.  Matter of fact, you have
to fight for them.  The way medical insurance is structured here,
these are liabilities to the HMO's .  I've have 4 surgeries & I've
only had one culture.  Doctors tell me that culturing will produce
one specific one time & another specific the next time, thusly, a
broad spectrum antibiotic is given instead.

>I am wondering if anyone has been screened for other possible causes of
>their chronic sinusitis. My own sinus problems have been getting
>steadily worse despite having had surgery two months ago and wonder
>whether they might not be a symptom of something else. Researching on
>the Internet I notice that Wegener's granulomatosis has upper
>respiratory tract involvement as one of the initial symptoms.
>
>I wonder if anyone has been tested for this condition and, if so, how?
>
>Also do many people have problems with their Eustachian tubes linked to
>their sinusitis? Recently ear pain and pressure has been my worst
>symptom.
>
>Unfortunately here in the UK treatment for sinus problems is 10 years
>behind that of you lucky people in the USA. I have never been screened
>for a fungal infection or indeed had any sinus culture done at all. How
>routine are these in the USA?
>
>Chris

--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339

I am wondering if anyone has been screened for other possible causes of
their chronic sinusitis. My own sinus problems have been getting
steadily worse despite having had surgery two months ago and wonder
whether they might not be a symptom of something else. Researching on
the Internet I notice that Wegener's granulomatosis has upper
respiratory tract involvement as one of the initial symptoms.

I wonder if anyone has been tested for this condition and, if so, how?

Also do many people have problems with their Eustachian tubes linked to
their sinusitis? Recently ear pain and pressure has been my worst
symptom.

Unfortunately here in the UK treatment for sinus problems is 10 years
behind that of you lucky people in the USA. I have never been screened
for a fungal infection or indeed had any sinus culture done at all. How
routine are these in the USA?

Chris

Hi Lauren,
Is your husband in the Xolair trial?  If so, has he seen any
improvement yet?

For what it's worth, cutting dairy from my diet (especially cheese) has
significantly reduced my problems with thick postnasal drip.  I really
miss it though - especially the cheese!

Best wishes on your husband's surgery.

Take care,
Angela

I haven't heard of it, wonder if that's what that Egyptian ruler had
oh so long ago.
Re: diet, who knows.  In order to do it properly, I think you'd have
to eliminate all suspected items for a time, then add back one at a
time.

>Hi All,
>
>I just joined up today. I speak on behalf of my husband who is due for
>sinus surgery #4 next week at National Institutes of Health (NIH).
>He's in a clinical trial for Job's Syndrome (aka Hyper IGE) which
>features sinus infections and pneumonia (among a host of other bone
>and skin issues) as the major issues.
>
>What the doctor's do not address is diet. He eats a regular
>meat/veggie diet but we're big dairy eaters. Love cheese. And salty
>food. I wonder if elimating or cutting back on our faves; coffee,
>dairy, salt and the occassional beer or red wine would help. We do
>incorporate garlic and onions and "healing" and spicy foods into our
>diets too.
>
>His docs say that patients with Job's Syndrome (a genetic illness that
>affects the immune system) have a slightly different shaped head than
>other people, making sinus drainage difficult.
>
>I hate to think the surgery is a treatment option again and again.
>
>Another other Job's Syndrome people on here? It's rare so I doubt it.
>
>Good health to all,
>Lauren
>
>
>
>
>
>
>
>
>Chronic Sinusitis Support Group
>Yahoo! Groups Links
>
>
>
>


--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA  94551-0808
925-424-4639, pager 07339