The next time I go to my allergist, I intend to take this printed
e-mail with me. Sounds like these are good things to do. I recently
found a powdered sinus rinse that wouldn't sting & burn. Heretofore,
all manners of boiled, purified, distilled, etc. inflammed my nose
like alcohol on an open wound. What is this RhinoFlow & what is
hypertonic saline & also where do you obtain both of these things?
And, what is Neurontin? Sounds like a pain med. that dulls nerves?
This is new info to me. Glad you found us. I too have had 4
surgeries. I too have not been believed, by ENT's, can you believe
it? My allergist believes me, his shots don't help me but I'm
"armed" with ammunition for the ENT's because they would say, go see
an allergist 'cause we don't see a problem. That's what they're
currently telling me. When I wake up in pain (every night) I wrap my
head in a heating pad w/ a wet sponge, turn it up on high, & try not
to think how "unsexy" I look! (ha-ha?)

>I have had severe chronic sinusitis for seven years. I needed to have
>four FESS surgeries. I had so much pain and suffering that I
>developed a depression. I am so happy to be able to communicate with
>fellow sufferers as I know you really understand. You need to have
>this terrible disease to really understand what it is like. Others
>have either not believed me (because we don't always look "sick") or
>not understood how much distress it causes. Some people are sick of
>hearing me complain so I try not to and that makes me feel all alone
>and it is harder to cope.
>I still have infections after finishing antibiotics and still have a
>lot of pain while infected and am always tired. Here are some things
>that have made the sinusitis more bearable.
> 1. I take the anti-inflammatory "Mobicox" 15 mg everyday.
> 2. I use the RhinoFlow machine with hypertonic saline twice a day.
> 3. I take "Neurontin" 300mg three times a day for chronic pain.
> 4. I take "Guaifenex LA" 1200 mg twice a day to thin secretions
> 5. I take the corticosteroid "Pulmicort" 1 mg in nebuamps in my
>RhinoFlow machine directly to my sinuses twice a day
> 6. I try to drink lots of water and spray my nose with saline
>spray often.
> 7. I am now starting exercise (riding a stationary bike) to lift
>my spirits and help my immune system.
> 8. When I need antibiotics I take Levaquin 500 mg once a day for
>12 weeks.
> I used to feel that I just couldn't go on living with this horrible
>disease. I still feel it is very hard. Good luck to all of you. I
>hope to e-mail the group regularly.
>
>
>
>Chronic Sinusitis Support Group
>
>Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/

--
Mary Jane Judkins
Plutonium Facility Archivist
Nuclear Materials Technology Program
Lawrence Livermore National Laboratory
L-360,
P.O. Box 808, Livermore, CA 94551-0808
925-424-4639, pager 07339