Search the web
Sign In
New User? Sign Up
helpfor-GWI-CFIDS · Gulf War Syndrome - CFIDS
  • Members Only
  • Files
  • Photos
  • Database
  • Polls
  • Members
  • Promote
  • Groups Labs (Beta)
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Hear how Yahoo! Groups has changed the lives of others. Take me there.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

   Messages Help
Message #
Search:
Advanced
Start Topic
Birth Defects   Topic List   < Prev Topic  |  Next Topic >
Summarize Messages Sort by Date  
#9 From: "Margaret Diann" <mother_margaret@...>
Date: Sat Feb 18, 2006 12:47 pm
Subject: Birth Defects 		mother_margaret
Offline Offline
Send Email Send Email
 

... I would even suspect congenital heart defects ...

with one of the chemicals of lesser harm:

    ETHYLENE GLYCOL MONOMETHYL ETHER

  CAS #:   109-86-4
    MF: C3H8O2

Military Decontaminating agents:

ethylene glycol monomethyl ether! CH3OCH2CH2OH
How similar is this to
ethylene glycol monobutyl ether?

C6H14O2/CH3(CH2)2CH2OCH2CH2OH

and then there's
diethylene glycol monobutyl ether

C8H18O3/CH2(CH2)3OCH2CH2OCH2CH2OH DGME

Bad, Worse, and Worser

R 60     

MAY IMPAIR FERTILITY.     

R 61     

MAY CAUSE HARM TO THE UNBORN CHILD

 

  CHRONIC EFFECTS
    MAY CAUSE CONGENITAL MALFORMATION IN THE FETUS.
    MAY CAUSE REPRODUCTIVE DISORDERS.
   

TARGET ORGAN(S):
    BLOOD
    KIDNEYS
    LIVER
    LUNGS
    CENTRAL NERVOUS SYSTEM
    MALE REPRODUCTIVE SYSTEM
    IMMUNE SYSTEM
    THYMUS
    BONE MARROW

IN LABORATORY STUDIES WITH ETHYLENE GLYCOL MONOMETHYL ETHER, BIRTH DEFECTS, FETOTOXICITY, EMBRYOLETHALITY, ANEMIA, BONE MARROW DAMAGE, HEMOLYSIS, IMMUNO- SUPPRESSION AND DAMAGE TO THE MALE REPRODUCTIVE TISSUES HAVE BEEN OBSERVED

 

Full MSDS at page bottom

 


Reply | Forward
#10 From: "Margaret Diann" <mother_margaret@...>
Date: Sat Feb 18, 2006 2:19 pm
Subject: PDCD - Pyruvate Dehydrogenase Complex Deficiency 		mother_margaret
Offline Offline
Send Email Send Email
 

I was wondering whether or not PDCD was autoimmune and went on a search on the internet ..

It brought up one of my own web pages in which I list it as one of the things that has an autimmune aspect to it

 I strongly suspect 2-butoxyethanol of a parent or someone in the family line ... would cause such.  2-butoxyethanol should be suspect when the pattern of CFIDS is there  ... AND when there is some type of autoimmune metabolic 'syndrome'


Reply | Forward
#12 From: "Margaret Diann" <mother_margaret@...>
Date: Sat Feb 18, 2006 3:07 pm
Subject: Pectus Excavatum 		mother_margaret
Offline Offline
Send Email Send Email
 

I interacted with a young woman who had this condition.  From what she shared about her parents I suspect they had probable posioning of 2-butoxyethanol or similar chemical.  She said her case was worse than this boy ... her breast bone was fused to her back bone.

 Mine was 10 times  worse than his, my center Sternum bone was fused to my back bone.

Some of the things that stand out to me ... in what you share are the following:
  • "My mother had many Nervous Breakdowns when I was young, some when I was only 1 years old, and the others when I was 3 or 4 years old and another in 1971 when I was 11 years old. My mother had Electroshock Therapy"
  • "I am supposed to write a Life Story or a Good-bye letter to my daddy as I Never got to say goodbye to him when he committed suicide February 26th, 2003 due to cancer and Lou Gering's disease."

 

I had not heard of that birth defect before, and I found the web page reference very informative

I'm sorry you have to deal with it; yet it sounds like you are an overcomer.

By any chance does either parent have Chronic Fatigue Syndrome?

I am particularly interested in the types of birth defects, as the chemical I've studied causes birth defects, and a wide variety, too. It is 2-butoxyethanol and it is a teratogen. It is more common (since the 1940s to the present) than people realize.

It seems to be the primary chemical of harm for the Vietnam vet, from the study I did on it. I couldn't believe the 'match' Also I suspect it for the WWII vets, in that it was in use then ... but I don't know what happened to them.

Many times it shows up with an acute exposure as flu-like symptoms

javajane.com/forum/showthread.php?p=719428#post719428

You sure do have a lot to deal with.

And of course, none of this is your fault!

I was wondering if you heard you folks talking about a time when your mom was OK vs when this horrible depression came. What kind of work did she do? Did your dad do?

Now the chemical I've studied (as a lay person who has an interest in it, because it harmed someone in my family) ... is a teratogen. Meaning it does cause birth defects. However, whether or not it caused yours, I can not say. However, it is possible, because it affects so many parts of the body: joints, cartilage, blood, immune system, nervous system, could be any of the glands/organs, a lot of things.

Other things that would most likely show up with it, would be this for fatigue:

Chills
Fatigue
Pale color
Shortness of breath
Rapid heart rate * *
Yellow skin color (jaundice)
Dark urine
Enlarged spleen
Eyes burning & hurting (with initial exposure - flu symptoms, too)
Red blood cells immature
Blood in Urine (part of autoimmune hemolytic anemia)

In addition there are many times, off and on, Horrible Headaches!

The Central Nervous System damage gets the most attention, things like:

Difficulty Concentrating
Short Term Memory Loss
Difficulty Sleeping
Constantly Irritable
Depression
Suicidal Tendencies

You say that your mother was severely depressed. Did she have the rest of 'the pattern?' If not, dismiss this info. If so, and you wanted to check more, there may be enough information in her medical file to say 'yes' or 'no'

This girl saved the medical info on her mother from 1975. She was only 10 when her mother died of acquired autoimmune hemolytic anemia.

Pets can get it, too. Such as these

In general, if someone has been harmed by a chemical, it can be counter productive to take more chemicals ... as your body is maxed out. At least I've heard comments on that by those who are experts in the field of chemical overexposure. So, ask your doctor if there is anything that isn't working for you, so you can take the most minimal medications.

You say you are tired. Would you be tired without the medications?

How well do you sleep?

It took a long time to find this information. But I looked into it because someone in my family was harmed by 2-butoxyethanol (by working on the Exxon Valdez oil spill cleanup) I am not a medical person or a researcher. I'm just an ordinary person who took an interest in what 2-butoxyethanol can do. And thus, I've come to recognize the bigger picture of what this chemical does.

javajane.com/forum/showthread.php?p=719532#post719532

Lou Gehrig's disease?  That is said to be one of the for sure things the govt recognizes for harm that the gulf war vets have come down with. I suspect this chemical has harmed many in our nation since its invention in the 1930s


http://www.valdezlink.com/pages/birthdefect-pectusexcavatum.htm

Reply | Forward
#32 From: "Margaret Diann" <mother_margaret@...>
Date: Tue Feb 21, 2006 8:30 am
Subject: Gulf Vet child dies 		mother_margaret
Offline Offline
Send Email Send Email
 

Author a dead child
Jody D. Crockett
Member		 October 11, 2000  
I am JDC4058. I served in the storm bravely and honorably just like the majority of you out there. I have something tearing my heart out and I would like to know if there is anyone out there who has suffered the same thing as I have.

In November of 1992 my wife gave birth to by all appearances a healthy baby girl. 15 days later my baby girl was dead from an unknown illness. All of her organs began shutting down all of a sudden and there was just nothing that could be done to save her. Her liver was the first organ to fail. After that all of her other organs just shut down one by one. After her funeral I hired a medical malpractice lawyer to find out just what she died of as the resident pathologist in the hospital in which she died could not give me a definitive cause for her death. Her death certificate states that she died of the Herpes Simplex Virus. That is a funny thing as neither my wife or my self suffer from any type of Herpes Simplex Virus.

I don't know what to do. I don't know where to go for help. My heart is broken forever and I would dearly love for one of my comrades in arms to tell me what has happened to my beautiful little girl. Please help!

 


Reply | Forward
#33 From: "Trudy Fielding" <trcharly@...>
Date: Wed Feb 22, 2006 12:02 am
Subject: RE: Gulf Vet child dies 		trcharly1
Offline Offline
Send Email Send Email
 

!st let my say I am so sorry for you for your loss. To loose a precious child is beyond the call of duty.

You have suffered too much.

There are many, many types of herpes viruses not just type I & II. I would need to know more but

I think I have the research here that might give us some answers. I have had NO sleep. My own honey,

got himself out of bed last night and fell.  I got him up but hurt my back in doing so. Please remind me tomorrow and I’ll see what I can send.

Trudy

 

From: helpfor-GWI-CFIDS@yahoogroups.com [mailto:helpfor-GWI-CFIDS@yahoogroups.com] On Behalf Of Margaret Diann
Sent: Tuesday, February 21, 2006 12:30 AM
To: helpfor-GWI-CFIDS@yahoogroups.com
Subject: [helpfor-GWI-CFIDS] Gulf Vet child dies

 

Author

a dead child

Jody D. Crockett
Member

October 11, 2000  

I am JDC4058. I served in the storm bravely and honorably just like the majority of you out there. I have something tearing my heart out and I would like to know if there is anyone out there who has suffered the same thing as I have.

In November of 1992 my wife gave birth to by all appearances a healthy baby girl. 15 days later my baby girl was dead from an unknown illness. All of her organs began shutting down all of a sudden and there was just nothing that could be done to save her. Her liver was the first organ to fail. After that all of her other organs just shut down one by one. After her funeral I hired a medical malpractice lawyer to find out just what she died of as the resident pathologist in the hospital in which she died could not give me a definitive cause for her death. Her death certificate states that she died of the Herpes Simplex Virus. That is a funny thing as neither my wife or my self suffer from any type of Herpes Simplex Virus.

I don't know what to do. I don't know where to go for help. My heart is broken forever and I would dearly love for one of my comrades in arms to tell me what has happened to my beautiful little girl. Please help!

 

 


Reply | Forward
#34 From: "Margaret Diann" <mother_margaret@...>
Date: Wed Feb 22, 2006 3:02 am
Subject: Re: Gulf Vet child dies 		mother_margaret
Offline Offline
Send Email Send Email
 

There are no words to express our sympathy for this family & many like them.

As you can tell this is an archived message & this vet may or may not share more.

I would suspect that if it was from exposure during the gulf war,  that baby would have been born prematurely &/or had birth defects obvious at birth.

I am wondering whether it might be the same chemical I suspect for cause of gulf war syndrome ... but be from 2nd hand solvent exposure:

 Examples of Second Hand Solvent Exposure * * * * *

I suspect SIDS is another

 example of 2nd hand exposure,

 in some cases ... maybe many cases


Reply | Forward
#35 From: "Trudy Fielding" <trcharly@...>
Date: Wed Feb 22, 2006 5:43 am
Subject: RE: Re: Gulf Vet child dies 		trcharly1
Offline Offline
Send Email Send Email
 

You got that right.

Hello Folks!

I am happy to say I have my 1st corporate sponsor, Universal Waste Management – a new firm that

Takes used electronics to be recycled-another worthy cause. Logos are being drawn and the permit is secured for May Day 2006 at Union Square, San Francisco at noon. I’ll be filing trade marks and

all the rest of the nonsense. I didn’t have time to get to Green Peace or Oceana or do my Google group.

I also found that the NIH has some research $ and I am working on getting a chunk for us.

I’ll be contacting the Mayor’s office and few other local big wig’s and local celebrities. The balls starting to roll-I can feel it. I have an event planner & a public relations person on board.

I’m hoping for some local big Democrats to fall in line for the environment-I’m drafting a letter to out local

office holders to invite them to the event. I think I’ll ask Google if they want to sponsor. Never hurts to ask. Any body can do this-all you got to do is get a major outside public area. I took me exactly 3 phone calls to get my project started. I’d really like to see other cities get involved….

BTW bubbles can stand for VOCs in the air too not only the “bubble” we have to put around ourselves to be in public. You can bet, I’ll have lots of bubble machines running. (non-toxic soap)

Trudy

 

 

 

 

From: helpfor-GWI-CFIDS@yahoogroups.com [mailto:helpfor-GWI-CFIDS@yahoogroups.com] On Behalf Of Margaret Diann
Sent: Tuesday, February 21, 2006 7:02 PM
To: helpfor-GWI-CFIDS@yahoogroups.com
Subject: [helpfor-GWI-CFIDS] Re: Gulf Vet child dies

 

There are no words to express our sympathy for this family & many like them.

As you can tell this is an archived message & this vet may or may not share more.

I would suspect that if it was from exposure during the gulf war,  that baby would have been born prematurely &/or had birth defects obvious at birth.

I am wondering whether it might be the same chemical I suspect for cause of gulf war syndrome ... but be from 2nd hand solvent exposure:

 Examples of Second Hand Solvent Exposure * * * * *

I suspect SIDS is another

 example of 2nd hand exposure,

 in some cases ... maybe many cases

 


Reply | Forward
#36 From: "Margaret Diann" <mother_margaret@...>
Date: Wed Feb 22, 2006 2:42 pm
Subject: Re: Gulf Vet child dies 		mother_margaret
Offline Offline
Send Email Send Email
 

My husband was in the Gulf War and we now have a 4 month old daughter that has been diagnosed with a heart defect (Ventricular Septal Defect or VSD) and a brain defect (Lissencephaly). There is no apparent cause for these defects and I was wondering if anyone else that was in the Gulf War has had children with the same or similar problems. If you have any information on this, please feel free to email me. Any help would be appreciated. Thank you.  November, 2002

Dayna Boor

Robin's Daughter - of EVOS - Serious Heart Defect

I am very concerned with getting pregnant because my husband has the gulf war syndrome. He was married to another woman when he got back. His wife was pregnant twice with the first being a miscarriage and the second being severely handicapped. Now we are together and have been for a few years and i have a healthy child from a previous marriage and just experienced my first miscarriage with my husband. Now i am concerned that if i am able to carry a child that it will be severely handicapped. Does anyone have a similar story?
Feel free to email me.  10/2000 Carolyn

I am Mark and i have a similar problem, when i got out of the service i was doing ok i had just gotten divorced.  it wasn't till i got remarried that we had two healthy babies two years apart.  when we tried to have our third baby, this is when my wife had the miscarriage. she was four months pregnant. when the doctor looked at the baby she or he did not have the bones fully developed .so far we have not tried again so i don't really know if it was due to the gwi or it was fate .but what i have read on the internet is that alot of us guys with gwi do have this problem where the baby was born but had problems with their lungs or different things. as for me i am going to try again to have another baby and if in case she or he does come out not normal well i am going to give she or he all my love and leave our gov't responsible for not giving us the answers that we deserve god bless you Carolyn
mark

My daughter was born with Pierre Robin Sequence and we think it's linked to my husband's service in the Gulf War,

but nobody will listen to us.

Judy

Pierre Robin Sequence (PRS) is the name given to a combination of birth defects which usually include a small lower jaw, cleft palate and a tendency for the tongue to "ball up" in the back of the mouth.  Many of these children have breathing and feeding problems early in their lives. 

 

Some helps here?  Please feel free to share my discussion forum 
http://health.groups.yahoo.com/group/helpfor-GWI-CFIDS/

NIOSH studies indicate 2-butoxyethanol has caused reproductive disorders in laboratory animals (rats or mice) and may have the potential for causing similar disorders in humans

2-butoxyethanol Material Safety Data Sheet

2-22-06

Consider the Middle Ages and the "bubonic plaque"  

The bacteria was found to enter through the eyes.

Or, was it a chemical exposure that entered through the eyes?

http://www.valdezlink.com/gwv/babies-gwi.htm

Reply | Forward
#38 From: "Trudy Fielding" <trcharly@...>
Date: Thu Feb 23, 2006 2:34 am
Subject: RE: Re: Gulf Vet child dies 		trcharly1
Offline Offline
Send Email Send Email
 

I believe that there are thousands of children being born with problems because of the DNA damage done in the Gulf War. Anyone serving in the Gulf War should have this test:

go to www.genovations.com

They have these profiles available:

CardioGenomic

OsteoGenomic

ImmunoGenomic

NeuroGenomic

DetoxiGenomic

 

Go to the contact page and they have a Customer service number to find a doctor near someone

lives.

If you can only afford one do the detoxi one. That tells you what chemicals you can handle.

You’ll be able to see if you have acquired porphyria that way.

I personally think the VA should be paying for these tests but sometimes you have to protect yourself.

Trudy

 

From: helpfor-GWI-CFIDS@yahoogroups.com [mailto:helpfor-GWI-CFIDS@yahoogroups.com] On Behalf Of Margaret Diann
Sent: Wednesday, February 22, 2006 6:42 AM
To: helpfor-GWI-CFIDS@yahoogroups.com
Subject: [helpfor-GWI-CFIDS] Re: Gulf Vet child dies

 

My husband was in the Gulf War and we now have a 4 month old daughter that has been diagnosed with a heart defect (Ventricular Septal Defect or VSD) and a brain defect (Lissencephaly). There is no apparent cause for these defects and I was wondering if anyone else that was in the Gulf War has had children with the same or similar problems. If you have any information on this, please feel free to email me. Any help would be appreciated. Thank you.  November, 2002

Dayna Boor

Robin's Daughter - of EVOS - Serious Heart Defect

I am very concerned with getting pregnant because my husband has the gulf war syndrome. He was married to another woman when he got back. His wife was pregnant twice with the first being a miscarriage and the second being severely handicapped. Now we are together and have been for a few years and i have a healthy child from a previous marriage and just experienced my first miscarriage with my husband. Now i am concerned that if i am able to carry a child that it will be severely handicapped. Does anyone have a similar story?
Feel free to email me.  10/2000 Carolyn

I am Mark and i have a similar problem, when i got out of the service i was doing ok i had just gotten divorced.  it wasn't till i got remarried that we had two healthy babies two years apart.  when we tried to have our third baby, this is when my wife had the miscarriage. she was four months pregnant. when the doctor looked at the baby she or he did not have the bones fully developed .so far we have not tried again so i don't really know if it was due to the gwi or it was fate .but what i have read on the internet is that alot of us guys with gwi do have this problem where the baby was born but had problems with their lungs or different things. as for me i am going to try again to have another baby and if in case she or he does come out not normal well i am going to give she or he all my love and leave our gov't responsible for not giving us the answers that we deserve god bless you Carolyn
mark

My daughter was born with Pierre Robin Sequence and we think it's linked to my husband's service in the Gulf War,

but nobody will listen to us.

Judy

Pierre Robin Sequence (PRS) is the name given to a combination of birth defects which usually include a small lower jaw, cleft palate and a tendency for the tongue to "ball up" in the back of the mouth.  Many of these children have breathing and feeding problems early in their lives. 

 

Some helps here?  Please feel free to share my discussion forum 

http://health.groups.yahoo.com/group/helpfor-GWI-CFIDS/

NIOSH studies indicate 2-butoxyethanol has caused reproductive disorders in laboratory animals (rats or mice) and may have the potential for causing similar disorders in humans

2-butoxyethanol Material Safety Data Sheet

2-22-06

 

Consider the Middle Ages and the "bubonic plaque"  

The bacteria was found to enter through the eyes.

Or, was it a chemical exposure that entered through the eyes?

http://www.valdezlink.com/gwv/babies-gwi.htm


Reply | Forward
 
< Prev Topic  |  Next Topic >
Message #
Search:
Advanced
Start Topic
Add to My Yahoo!      XML What's This?
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help