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#8859 From: "donnabeales" <dbeales@...>
Date: Fri May 11, 2012 11:37 am
Subject: Article of Possible Interest
donnabeales
Send Email Send Email
 
#8860 From: "hotmailme" <hotmailme@...>
Date: Fri May 11, 2012 5:47 pm
Subject: Introduction and looking for helminthic therapy providers in India
hotmailme
Send Email Send Email
 
Hi Everyone,

I am Sudarshan and i'm 35 years old. I reside in India.

I was diagnosed with Ulcerative Colitis 7 years back.
A little background on my UC...I do not have most of the common symptoms of UC
but it has made my life hell anyway. I do not suffer from bleeding or from
diarrhea but my UC is predominantly a lack of peristalsis.I have tried
homeopathy and Ayurveda, Yoga and Meditation,
Antidepressants seem to help to a certain extent but I am wary of my continued
dependance on them.

I am currently on Mesacol/Asacol 800 twice a day and it really doesn't seem to
be helping.

From the posts on this forum and other blogs, Helminthic Therapy seems the most
promising management, if not treatment for UC.

I have been unable to find any providers of HT in India so far.
Is anyone on this group from India and if so, have you had any luck finding
providers in India. Please do let me know if you do .

Thanks and regards,

Sudarshan Chari

#8861 From: "john_scott107" <j.scott.164@...>
Date: Fri May 11, 2012 6:51 pm
Subject: Re: Introduction and looking for helminthic therapy providers in India
john_scott107
Send Email Send Email
 
Hi Sudarshan

You're right about there not being any helminth suppliers in India. There are currently only three providers worldwide, and there are details about all of them at the end of the FAQ in our Files section, at: 


You'll be able to have doses of helminths shipped direct to your home.

Best - John

--- In helminthictherapy@yahoogroups.com, "hotmailme" <hotmailme@...> wrote:
>
> Hi Everyone,
>
> I am Sudarshan and i'm 35 years old. I reside in India.
>
> I was diagnosed with Ulcerative Colitis 7 years back.
> A little background on my UC...I do not have most of the common symptoms of UC but it has made my life hell anyway. I do not suffer from bleeding or from diarrhea but my UC is predominantly a lack of peristalsis.I have tried homeopathy and Ayurveda, Yoga and Meditation,
> Antidepressants seem to help to a certain extent but I am wary of my continued dependance on them.
>
> I am currently on Mesacol/Asacol 800 twice a day and it really doesn't seem to be helping.
>
> From the posts on this forum and other blogs, Helminthic Therapy seems the most promising management, if not treatment for UC.
>
> I have been unable to find any providers of HT in India so far.
> Is anyone on this group from India and if so, have you had any luck finding providers in India. Please do let me know if you do .
>
> Thanks and regards,
>
> Sudarshan Chari
>

#8862 From: "donnabeales" <dbeales@...>
Date: Fri May 11, 2012 9:25 pm
Subject: Re: Introduction and looking for helminthic therapy providers in India
donnabeales
Send Email Send Email
 
If you definitely have a diagnosis of UC, there's a group out of New York
University that's going to be conducting a UC clinical trial soon.  They're
recruiting patients now:

http://www.clinicaltrials.gov/ct2/show/NCT01433471?term=helminths+colitis&rank=1

Best of luck.

--- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@...>
wrote:
>
> Hi Sudarshan
> You're right about there not being any helminth suppliers in India.
> There are currently only three providers worldwide, and there are
> details about all of them at the end of the FAQ in our Files section,
> at:
> http://health.groups.yahoo.com/group/helminthictherapy/files/
> <http://health.groups.yahoo.com/group/helminthictherapy/files/>
> You'll be able to have doses of helminths shipped direct to your home.
> Best - John
> --- In helminthictherapy@yahoogroups.com, "hotmailme" <hotmailme@>
> wrote:
> >
> > Hi Everyone,
> >
> > I am Sudarshan and i'm 35 years old. I reside in India.
> >
> > I was diagnosed with Ulcerative Colitis 7 years back.
> > A little background on my UC...I do not have most of the common
> symptoms of UC but it has made my life hell anyway. I do not suffer from
> bleeding or from diarrhea but my UC is predominantly a lack of
> peristalsis.I have tried homeopathy and Ayurveda, Yoga and Meditation,
> > Antidepressants seem to help to a certain extent but I am wary of my
> continued dependance on them.
> >
> > I am currently on Mesacol/Asacol 800 twice a day and it really doesn't
> seem to be helping.
> >
> > From the posts on this forum and other blogs, Helminthic Therapy seems
> the most promising management, if not treatment for UC.
> >
> > I have been unable to find any providers of HT in India so far.
> > Is anyone on this group from India and if so, have you had any luck
> finding providers in India. Please do let me know if you do .
> >
> > Thanks and regards,
> >
> > Sudarshan Chari
> >
>

#8863 From: Samara Lee <samaralee25@...>
Date: Mon May 14, 2012 5:32 am
Subject: Re: Introduction and looking for helminthic therapy providers in India
samaralee25
Send Email Send Email
 
Good luck with the worms :) i am a firm worm believer so far!

--- On Fri, 5/11/12, hotmailme <hotmailme@...> wrote:

From: hotmailme <hotmailme@...>
Subject: [helminthictherapy] Introduction and looking for helminthic therapy providers in India
To: helminthictherapy@yahoogroups.com
Date: Friday, May 11, 2012, 10:47 AM

 
Hi Everyone,

I am Sudarshan and i'm 35 years old. I reside in India.

I was diagnosed with Ulcerative Colitis 7 years back.
A little background on my UC...I do not have most of the common symptoms of UC but it has made my life hell anyway. I do not suffer from bleeding or from diarrhea but my UC is predominantly a lack of peristalsis.I have tried homeopathy and Ayurveda, Yoga and Meditation,
Antidepressants seem to help to a certain extent but I am wary of my continued dependance on them.

I am currently on Mesacol/Asacol 800 twice a day and it really doesn't seem to be helping.

From the posts on this forum and other blogs, Helminthic Therapy seems the most promising management, if not treatment for UC.

I have been unable to find any providers of HT in India so far.
Is anyone on this group from India and if so, have you had any luck finding providers in India. Please do let me know if you do .

Thanks and regards,

Sudarshan Chari


#8864 From: "rks987" <robert.kenneth.smart@...>
Date: Mon May 14, 2012 1:31 am
Subject: Article of possible interest
rks987
Send Email Send Email
 
On fasting and calorific restriction (hit the "show transcript" button):
http://www.abc.net.au/radionational/programs/healthreport/caloric-restrictions-a\
nd-occasional-fasting/3995760

pointers to the academic papers at the end.

How do the helminths like that I wonder.

#8865 From: "gracegoducks" <graciebradford@...>
Date: Tue May 15, 2012 12:02 am
Subject: severe eczema
gracegoducks
Send Email Send Email
 
I am a 22 year old female and I have had severe eczema since I was about ten
years old. I have recently been getting it severely on my face and neck, which
is extremely painful and embarrassing. Has anyone gone through the Helminthic
therapy and had success with eczema? it would be great to hear some stories from
people that have had issues with eczema in the past.

#8866 From: Susan Fund <susan_fund@...>
Date: Tue May 15, 2012 12:16 am
Subject: Re: severe eczema
susan_fund
Send Email Send Email
 
My sons eczema went away with cod liver oil. He like the Nordic Naturals cod liver oil.
 
Susan
From: gracegoducks <graciebradford@...>
To: helminthictherapy@yahoogroups.com
Sent: Monday, May 14, 2012 8:02 PM
Subject: [helminthictherapy] severe eczema

 
I am a 22 year old female and I have had severe eczema since I was about ten years old. I have recently been getting it severely on my face and neck, which is extremely painful and embarrassing. Has anyone gone through the Helminthic therapy and had success with eczema? it would be great to hear some stories from people that have had issues with eczema in the past.




#8867 From: "hans73sl" <ztuned1@...>
Date: Tue May 15, 2012 11:19 am
Subject: Acne
hans73sl
Send Email Send Email
 
Hi Everybody,

I'd be very interested in knowing if there are any people here who's acne
problems have improved after starting Helminthic Therapy.
I am currently contemplating about using this kind of therapy for very
persistent acne, which runs in the family as well as allergies and asthma.

Thanks a lot for your help!

#8868 From: helminthictherapy@yahoogroups.com
Date: Tue May 15, 2012 11:29 am
Subject: New file uploaded to helminthictherapy
helminthictherapy@yahoogroups.com
Send Email Send Email
 
Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the helminthictherapy
group.

   File        : /The Science of HT/Hehenberger.pdf
   Uploaded by : donnabeales <dbeales@...>
   Description : Interview with Karin Hehenberger, MD, PhD

You can access this file at the URL:
http://groups.yahoo.com/group/helminthictherapy/files/The%20Science%20of%20HT/He\
henberger.pdf

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html
Regards,

donnabeales <dbeales@...>

#8869 From: "donnabeales" <dbeales@...>
Date: Tue May 15, 2012 11:36 am
Subject: Launch of a New HT Forum Interview Series
donnabeales
Send Email Send Email
 
I'm pleased to announce the launch of a new venture for the Helminthic Therapy
Forum, what I hope will be a series of interviews entitled "The Science of
Helminthic Therapy."

The series will focus on the top names in helminthic therapy science, and will
appear sporadically as published.  I've created a folder in the Files section
entitled "The Science of HT" and I will load the interviews there as they're
prepared.

Our first guest interviewee is Karin Heheberger, M.D., Ph.D., Executive Vice
President and Chief Medical Officer of Coronado Biosciences.

I triggered a message about the new Dr. Hehenberger file to go out automatically
to all of our members.  A link to the article will appear therein.

Best—
Donna

#8870 From: "donnabeales" <dbeales@...>
Date: Tue May 15, 2012 1:39 pm
Subject: Article of Possible Interest
donnabeales
Send Email Send Email
 
#8871 From: T C <tlc1of3@...>
Date: Tue May 15, 2012 3:58 pm
Subject: Re: New file uploaded to helminthictherapy
tlc1of3
Send Email Send Email
 
Donna Congrats! Well done! What a great article! What a fantastic reporter and writer you are!  Tracy Cu :)

On Tue, May 15, 2012 at 7:29 AM, <helminthictherapy@yahoogroups.com> wrote:
 


Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the helminthictherapy
group.

File : /The Science of HT/Hehenberger.pdf
Uploaded by : donnabeales <dbeales@...>
Description : Interview with Karin Hehenberger, MD, PhD

You can access this file at the URL:
http://groups.yahoo.com/group/helminthictherapy/files/The%20Science%20of%20HT/Hehenberger.pdf

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html
Regards,

donnabeales <dbeales@...>




#8872 From: "john_scott107" <j.scott.164@...>
Date: Tue May 15, 2012 5:31 pm
Subject: Re: severe eczema
john_scott107
Send Email Send Email
 
Hi Gracie

I'm sure you will already have read the eight accounts of success with eczema that are listed in the Success Stories document that you received on joining our forum:


I have also had success with eczema, myself, but, unlike the other conditions I had, the eczema has only improved very slowly. After 3 years with hookworms, it is still showing very gradual improvement. It has never gone away completely - just steadily improved.

My feet were the first area to clear up, and, recently, my right elbow has become almost completely clear. 

The insides of my ears were very badly affected and, previous to getting hookworm, I had to put cream into these many times during both day and night just to stop it itching. Now, I only apply a little cream once, before going to bed each night, and then forget about it for the following 24 hours.  

I still have a small patch on my left elbow and both knees, but even these are gradually getting better. 

It's amazing how improvement is still happening after so long, but it is, and I'm very grateful!

Best - John

--- In helminthictherapy@yahoogroups.com, "gracegoducks" <graciebradford@...> wrote:
>
> I am a 22 year old female and I have had severe eczema since I was about ten years old. I have recently been getting it severely on my face and neck, which is extremely painful and embarrassing. Has anyone gone through the Helminthic therapy and had success with eczema? it would be great to hear some stories from people that have had issues with eczema in the past.
>

#8873 From: "john_scott107" <j.scott.164@...>
Date: Tue May 15, 2012 6:13 pm
Subject: Re: Acne
john_scott107
Send Email Send Email
 
Hi Hans

Here are some reports of success with acne:

"My acne has cleared up."

And it was still much less frequent over 2 years later.

"I've had no negative side effects and strangely my long-term moderate acne (over 20 years) has cleared up almost entirely in the past two weeks."

"I can report that prior to my using hookworm I experienced, into my forties, red zit-like bumps on my back, without heads, that would persist for weeks, and made removing my shirt in public something I dreaded. These disappeared along with my allergies and asthma post hookworm."

Also, going primal and cutting out dairy may help your acne: 




Best - John 

--- In helminthictherapy@yahoogroups.com, "hans73sl" <ztuned1@...> wrote:
>
> Hi Everybody,
>
> I'd be very interested in knowing if there are any people here who's acne problems have improved after starting Helminthic Therapy.
> I am currently contemplating about using this kind of therapy for very persistent acne, which runs in the family as well as allergies and asthma.
>
> Thanks a lot for your help!
>

#8874 From: "James" <jimlock32@...>
Date: Tue May 15, 2012 9:15 pm
Subject: Re: Acne
jimlock32
Send Email Send Email
 
Backing up the idea of going primal, Dr. Loren Cordain has written the book,
"The Dietary Cure for Acne"
http://thepaleodiet.com/dietary-cure-for-acne-book
http://thepaleodiet.com/published-research

BTW since starting a Paleolithic diet about four months ago I now weigh what I
did my senior year in high school and my blood pressure is 109/67.

But best of all my migraine headaches are in almost total remission.
Before hookworms and whipworms I had had a 7.0/10, 12 hour, migraine once a week
for many years.  After getting them I was having a 4.5/10, 12 hour, migraine
about every month. After going on the paleo diet I'm now having a 3.0/10, 12
hour, migraine every 2 months. That's in total about a 95% improvement.


--- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@...>
wrote:
>
> Hi Hans
> Here are some reports of success with acne:
> "My acne has cleared
> up."http://health.groups.yahoo.com/group/helminthictherapy/message/1873
> <http://health.groups.yahoo.com/group/helminthictherapy/message/1873>
> And it was still much less frequent over 2 years
> later.http://health.groups.yahoo.com/group/helminthictherapy/message/674\
> 9 <http://health.groups.yahoo.com/group/helminthictherapy/message/6749>
> "I've had no negative side effects and strangely my long-term
> moderate acne (over 20 years) has cleared up almost entirely in the past
> two
> weeks."http://health.groups.yahoo.com/group/helminthictherapy/messag\
> e/4901
> <http://health.groups.yahoo.com/group/helminthictherapy/message/4901>
> "I can report that prior to my using hookworm I experienced, into my
> forties, red zit-like bumps on my back, without heads, that would
> persist for weeks, and made removing my shirt in public something I
> dreaded. These disappeared along with my allergies and asthma post
> hookworm."http://health.groups.yahoo.com/group/helminthictherapy/mes\
> sage/8383
> <http://health.groups.yahoo.com/group/helminthictherapy/message/8383>
> Also, going primal and cutting out dairy may help your acne:
> http://health.groups.yahoo.com/group/helminthictherapy/message/2433
> <http://health.groups.yahoo.com/group/helminthictherapy/message/2433>
> http://health.groups.yahoo.com/group/helminthictherapy/message/8490
> <http://health.groups.yahoo.com/group/helminthictherapy/message/8490>
> http://www.drbriffa.com/2012/03/20/got-acne-go-primal/
> <http://www.drbriffa.com/2012/03/20/got-acne-go-primal/>
> Best - John
> --- In helminthictherapy@yahoogroups.com, "hans73sl" <ztuned1@>
> wrote:
> >
> > Hi Everybody,
> >
> > I'd be very interested in knowing if there are any people here who's
> acne problems have improved after starting Helminthic Therapy.
> > I am currently contemplating about using this kind of therapy for very
> persistent acne, which runs in the family as well as allergies and
> asthma.
> >
> > Thanks a lot for your help!
> >
>

#8875 From: "James" <jimlock32@...>
Date: Tue May 15, 2012 10:35 pm
Subject: The Blog Sabotage Continues
jimlock32
Send Email Send Email
 
If I'm searching for this page in Google - lost wanderer hookworms - the link
that yesterday came up would open very slowly to a white page with no text, but
if I then copied that exact same url, deleted the address I just copied, and
then pasted it back into the url window (or another window) - then it opened!
The page's opening seemed to be search path dependent, even if the address was
the exact same url.
This is the url
http://blog.autoimmunetherapies.com/lost_wanderer/2009/07/09/hookworms-are-our-l\
ittle-friends/
If you simply clicked on it, or copied and pasted it then it would open, but if
you searched it, and then tried to get to it without that extra step through
Google, it would open as blank.

Today I looked up "lost wanderer" in Google to see where my first results were,
and my first page - on diabetes - was 5 pages in.  This was the same as
yesterday when it then opened normally.  Today it opens to a page involving
slimming capsules.  As with the white page result for "Hookworms are our Little
Friends," if I search it in Google it does this, but if I then copy my address
and paste it into the url window it comes up normally.
http://blog.autoimmunetherapies.com/lost_wanderer/2009/09/12/diabetes/

Since this has changed since yesterday the problems seem to be actively
spreading within my blog.

Of course, I suspect that all the other blogs run through AIT might have similar
problems, so people might want to check on this. I have notified AIT of all
this.

#8876 From: "Alberto" <albertorivas100@...>
Date: Wed May 16, 2012 8:39 am
Subject: Re: Launch of a New HT Forum Interview Series
albertorivas100
Send Email Send Email
 
Thank you, Donna, for the original idea and this first interesting interview.   
It is very true that so many health profesionals end up studying new techniques
or trying new aproaches to cure their own  conditions when traditional well
tested Medicine can offer only paliative solutions. I wish there would be more
like her. Very impressed as well by the quality   of the Coronado team . Good
luck to them

--- In helminthictherapy@yahoogroups.com, "donnabeales" <dbeales@...> wrote:
>
> I'm pleased to announce the launch of a new venture for the Helminthic Therapy
Forum, what I hope will be a series of interviews entitled "The Science of
Helminthic Therapy."
>
> The series will focus on the top names in helminthic therapy science, and will
appear sporadically as published.  I've created a folder in the Files section
entitled "The Science of HT" and I will load the interviews there as they're
prepared.
>
> Our first guest interviewee is Karin Heheberger, M.D., Ph.D., Executive Vice
President and Chief Medical Officer of Coronado Biosciences.
>
> I triggered a message about the new Dr. Hehenberger file to go out
automatically to all of our members.  A link to the article will appear therein.
>
> Best—
> Donna
>

#8877 From: Eve Gerome <e_gerome@...>
Date: Wed May 16, 2012 10:59 am
Subject: Re: severe eczema
e_gerome
Send Email Send Email
 
While I am new at this, so far I have had tremendous results. I am a 56 year old woman who has had eczema mostly on my hands and arms, and sometimes on my neck for about 20 years. Have been through several dermatologists and allergists. For the last 10 years or so I used prednisolone as needed. My first dose was 2 months ago. I have had no eczema, and haven't been on pred for a few weeks. My associates at work are always commenting about how good my hands look.
Although technically, it is a little early  for results, I can't argue with the fact that my skin hasn't looked this good in 10  years, and especially without any drugs. I am sure not all eczema is the same, but it has made a believer out of me.
Eve
 

From: gracegoducks <graciebradford@...>
To: helminthictherapy@yahoogroups.com
Sent: Monday, May 14, 2012 7:02 PM
Subject: [helminthictherapy] severe eczema

 
I am a 22 year old female and I have had severe eczema since I was about ten years old. I have recently been getting it severely on my face and neck, which is extremely painful and embarrassing. Has anyone gone through the Helminthic therapy and had success with eczema? it would be great to hear some stories from people that have had issues with eczema in the past.




#8878 From: "donnabeales" <dbeales@...>
Date: Wed May 16, 2012 3:43 pm
Subject: Your Top Five Autoimmune Diets
donnabeales
Send Email Send Email
 
There are lots of conficting thoughts around diets for autoimmune diseases.

I would be curious to hear from those who have tried, or are trying, a
paleo-style or other diet, as follows:

1. What diet have you followed?

2. How long did you (have you) maintained it?

3.  What medical condition did you try it for?

4.  Did it have any positive impact on your condition, and if so, please
describe.

I am happy to summarize for the list.

TY!

#8879 From: T C <tlc1of3@...>
Date: Wed May 16, 2012 5:15 pm
Subject: Re: Your Top Five Autoimmune Diets
tlc1of3
Send Email Send Email
 
Hi Donna,

1. What diet have you followed? Specific Carbohydrate Diet

2. How long did you (have you) maintained it? religiously for 2.5 years

3. What medical condition did you try it for? Crohn's Disease

4. Did it have any positive impact on your condition, and if so, please describe.
Yes, it helped reduce bowel movements per day, reduced gas and all symptoms improved but I could not maintain complete remission but definitely their was an improvement. I also only ate steamed or cooked foods and soft foods, nothing that would be difficult to digest and low in fibre.  Analogy; When the gut is inflamed, food should not act like sandpaper against a wound. 

I am happy to summarize for the list.

TY!


On Wed, May 16, 2012 at 11:43 AM, donnabeales <dbeales@...> wrote:
 

There are lots of conficting thoughts around diets for autoimmune diseases.

I would be curious to hear from those who have tried, or are trying, a paleo-style or other diet, as follows:

1. What diet have you followed?

2. How long did you (have you) maintained it?

3. What medical condition did you try it for?

4. Did it have any positive impact on your condition, and if so, please describe.

I am happy to summarize for the list.

TY!



#8880 From: Samara Lee <samaralee25@...>
Date: Wed May 16, 2012 11:21 pm
Subject: Re: Your Top Five Autoimmune Diets
samaralee25
Send Email Send Email
 
There are lots of conficting thoughts around diets for autoimmune diseases.

I would be curious to hear from those who have tried, or are trying, a paleo-style or other diet, as follows:

Hi Donna, i'm annoyed that doctors say U.Collitis is totally not diet related (as they just don't have time nor $$ benefit helping work out what does or doesn't work for the individual) the only thing you can do is try for yourself...
 
1. What diet have you followed? Gluten free 90% (not right down to sauces) for about 4 years, (although not dignosed celiac, definitly found a benefit, and believe much better no to eat it for general health, since worms, i'm finding i can eat it though, so have wheat here and there.
 
Also i did the S.C.D diet, totally strict, found it the hardest thing i've ever done. eating TRUCK loads of meat, some vege, no sugar, and being an ellimation type diet only introduced new foods as tested.

2. How long did you (have you) maintained it? bout 4 years for Gluten Free. S.C.D i didn't quite make the 100 day (decider if it's worked) i was off drugs, taking heaps of EXPENSIVE S.C.D safe vitamins and probiotics i ordered from the states.... ended up losing 7kg (i'm only 50 normally) so went to 43, it was really scary, the guys who run the S.C.D club on the net were really good, we emailed almost every day, but oneday my body went into a meltdown, it was too much, no matter how much avocado and meat fats i ate, i wasn't putting on weight, i really wanted to stick i out and make it work, but it obviously wasn't for me, i had to leave work a month and moved back with my parents for (re-hab) reluctantly taking Prendnizone and starting being on the loo less than 20 times a night and day........
 
Needless to say T.S.O was my last resort! and a TOTAL life saveR!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I'm nearly totally off my medication, could do that before, even prendnizone (in the past totally effective for a un-natural quick fix) didn't take effect the last time i tried. that's  when i was really freaking out as to the future eith any quality of life.

3. What medical condition did you try it for?
Ulcerative collitis (proctitis)

4. Did it have any positive impact on your condition, and if so, please describe.
 
As above have had no blood lately, i have one or 2 solid BM's a day, can keep up my totally busy working and active lifestyle, (really wanted to get better to maybe try for a baby oneday soon) never dreamed i could fdo that if my own life was a roller coaster.
 
I would really like to find out from anyone who's had success with T.S.O as to how many "top up" doses they have and how often in years following,
My brother who cured his collitis (just before having a colostomy) didn't take a top up dose as it isn't cheap, and now 5 years later has found himself taking teh human version of the worms to give his body a boost, though these still give him gut pains, just no blood or urgency.....so i really would like to invest in T.S.O sensible top ups if this could save me having to lose the benfit i've just got from the 6k investment in my health (best 6k) ever spent if it keeps me well!!!!
 
Sorry for the essay, hope some of this helps you, I'm just so passionate about helping others and talking to like minded individuals in the same boat as me.
 
Samara
 



 

#8881 From: "john_scott107" <j.scott.164@...>
Date: Thu May 17, 2012 12:55 am
Subject: UK nutritionist recommends helminthic therapy
john_scott107
Send Email Send Email
 

A UK nutritionist has started recommending helminthic therapy to those of her patients with food allergies and food intolerance who have only a very limited range of foods they can tolerate. And she says that many of her nutritionist colleagues are also showing a keen interest in the therapy. The worm is spreading!


http://allergyandintolerance.com/helminthic-therapy-a-possible-solution/?utm_source=Barrier+Planners&utm_medium=email&utm_campaign=a66faf478d-Barrier+Planners+Newsletter  


#8882 From: "jascallaw" <jascallaw@...>
Date: Thu May 17, 2012 3:01 pm
Subject: Recommended blog
jascallaw
Send Email Send Email
 
For a good read about helminthic therapy and in particular issues affecting
those with food allergies or intolerances I would like to recommend the
moderator of this site's blog, since he is probably too modest to do so himself.

http://blog.autoimmunetherapies.com/gut_buddies/

#8883 From: Adriano Facioli <facioli@...>
Date: Thu May 17, 2012 5:38 pm
Subject: Re: Recommended blog
facioli
Send Email Send Email
 
He is a very important person for all of us here!

2012/5/17 jascallaw <jascallaw@...>
 

For a good read about helminthic therapy and in particular issues affecting those with food allergies or intolerances I would like to recommend the moderator of this site's blog, since he is probably too modest to do so himself.

http://blog.autoimmunetherapies.com/gut_buddies/





#8884 From: "simon5030a" <simon5030@...>
Date: Sat May 19, 2012 12:51 pm
Subject: Re: Starting Therapy
simon5030a
Send Email Send Email
 
--- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@...> wrote:
>
>
>
>
>
> --- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@> wrote:
> >
> > Hi
> > First post of what i hope to be many over the coming year, I am posting on
behalf of my partner (Lianne) who has been diagnosed with Ulcerative Collitus
(UC) in the colon, this does not seem to be aggressive but there may be other
things going on that we have not dicovered yet!
> > I will apologise in advance if this seems a little long winded but felt i
needed to share alot of the detail in order to shed some light for others that
may be suffering similiar fates!
> >
> > History
> > Most forms of medication tried over the years have made Lianne feel very
unwell as if the body is unable to process the chemicals.
> > This all stated about 10 years ago when she hit forty, starting with
abdominal pains and fatigue that could only be relieved with morphine when bad
(many a trip to A&E), the rest of the time it would be like stomache cramps, the
doctors diagnosed various things including peptic ulcers but after many a camera
there was no conclusive evidence, after consulting various specialists privately
she was diagnosed with endometriosis, although not excessive we were informed
that the amount visible had no reflection on the pain this can cause, this let
to a partial historectomy. The pain continued and seemed to be cyclic this then
led to the ovaries being removed as the cause (although healthy!). The pain
continued but then the fatigue started to become worse, more colonascopies and a
diagnosis of UC, various medications, Predfoam, Asacol etc although this
controlled the symptoms (mucus and blood in the stool)the side effects of the
medication were continual nausia, feeling sick and now chronic fatigue (although
the doctors will not identify this now as it cannot be quantified therefore no
measurement no diagnosis) after returning to the doctors too many times with the
same symptoms, you tell them its getting you down when you have to drag yourself
through each day, managing the pain, so they label you depressed!!!!
> >
> > All conventional medication has failed to return any quality of life (and i
know there are alot worse off than Lianne), the doctors have drawn a blank and
have no other suggestions other than trying alternative chemicals( just another
mix of the same stuff) and going on antidepressants (not an option). After
reading some of the long term affects of the reccomended medication it led us to
the Helminthic Therapy and the Hygiene Hypothisis, after much research we have
decided to give it a try. We have spoken to both our private and local GPs and
they have no objections and will monitor the progress. Lianne has recently had
blood tests and a colonoscopy to benchmark before starting the therapy, we have
contacted a provider of the therapy (i was told we cannot mention the provider?)
and they have been very open and helpful, everything is now in place and we are
awaiting the final reccomendation form them regarding the best course.
> > Hope to have the course available to start early next week! fingers crossed
as its not cheap! rather be broke and have tried and failed than not tried at
all!
> >
> > Simon
> >
> Update 9/5/12
> Been to see doctor who performed colonoscopy today and he says the UC is
localised and a mild proctitus, having said that after abstaining from
medication the blood and mucus are both now apparent! We had frustrating
discussion regarding the chronic fatigue and its links with  the UC, the doctor
does not seem to think that the mild UC could be the cause of the chronic
fatigue and having run all the other tests for causes of fatigue we seem to have
hit a dead end again. So now i suppose that the worm therapy may put the UC into
remission (as does the medication only with bad side effects)but there are other
undefined issues that we are also seeking to resolve. After reading some of the
positive posts on a whole rande of disorders i cannot ignore this treatment and
now its the only option open to us.
>
> John, thanks for the reply, i must comment on the degree of what we are
calling chronic fatigue and perhaps others who have their own relative
definition, Lianne is currently struggling to hold 6hrs a day at work, when she
gets home sometimes she can be shaking she is so exhausted (not to be confused
with tired although the two do sometimes roll into one). The thing i find
strange from an outsider is that it makes no relative difference to the
exhaustion if she rests for a full week or works for a full week, the doctor
tried to explain that this is a psychological condition as apposed to a physical
state hence the inability to measure it, he also suggested that the condition is
quite paradoxical in that the more you rest the more you will feel like you need
the rest.
>
> Will pass on information to provider now and see what is reccomended by them!
>

Update 19/5/12
Had more consultations with our provider to ensure best therapy option is being
taken, this has mainly been done on Skype, nice to see a human on the other end!
Liannes case seems to be a bit out of the mainstream being delt with as her UC
symptoms are only very mild but there are other 'unexlained' problems that we
have no idea how to tackle, as there is no down side to the therapy we consider
it another bridge to cross and we may just get lucky as the exhaustion is
gradually getting worse and the impact is escalating.
This therapy is not cheap but then what price do you put on quality of life?
We are hoping to take delivery and start next week, Our provider has suggested
that because Lianne is quite small 5'1" 7.5st then to help alleviate symptoms on
day 13 they advise taking a course of prednisolone.

#8885 From: "rks987" <robert.kenneth.smart@...>
Date: Sat May 19, 2012 7:20 pm
Subject: Re: Starting Therapy
rks987
Send Email Send Email
 
If the body is not good at handling chemicals then sunshine can help.

>the more you rest the more you will feel like you need the rest.

When I'm inexplicably tired I do exercise and it almost always works.

#8886 From: "Alberto" <albertorivas100@...>
Date: Sun May 20, 2012 8:45 am
Subject: Re: Starting Therapy
albertorivas100
Send Email Send Email
 
Simon : My wife suffered from allergies , food intolerances and chemical
sensitivity for about 13 years and, the same than you, we tried many therapies .
22 months  ago, she started helminthic therapy and this is by far the best
remedy we have found. My advice would be : keep a diary, watch closely the
changes produced by the treatment  and try to understand as much as possible
about the therapy and its effects . We are all different and, even if your
provider has access to the experiences of all his "patients", you want  to
understand how the therapy affect your particular case . Of course, it is good
to know that the provider is there to help you when in doubt. In our case , it
worked and I hope it will work for you too.

--- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@...> wrote:
>
>
> --- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@> wrote:
> >
> >
> >
> >
> >
> > --- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@> wrote:
> > >
> > > Hi
> > > First post of what i hope to be many over the coming year, I am posting on
behalf of my partner (Lianne) who has been diagnosed with Ulcerative Collitus
(UC) in the colon, this does not seem to be aggressive but there may be other
things going on that we have not dicovered yet!
> > > I will apologise in advance if this seems a little long winded but felt i
needed to share alot of the detail in order to shed some light for others that
may be suffering similiar fates!
> > >
> > > History
> > > Most forms of medication tried over the years have made Lianne feel very
unwell as if the body is unable to process the chemicals.
> > > This all stated about 10 years ago when she hit forty, starting with
abdominal pains and fatigue that could only be relieved with morphine when bad
(many a trip to A&E), the rest of the time it would be like stomache cramps, the
doctors diagnosed various things including peptic ulcers but after many a camera
there was no conclusive evidence, after consulting various specialists privately
she was diagnosed with endometriosis, although not excessive we were informed
that the amount visible had no reflection on the pain this can cause, this let
to a partial historectomy. The pain continued and seemed to be cyclic this then
led to the ovaries being removed as the cause (although healthy!). The pain
continued but then the fatigue started to become worse, more colonascopies and a
diagnosis of UC, various medications, Predfoam, Asacol etc although this
controlled the symptoms (mucus and blood in the stool)the side effects of the
medication were continual nausia, feeling sick and now chronic fatigue (although
the doctors will not identify this now as it cannot be quantified therefore no
measurement no diagnosis) after returning to the doctors too many times with the
same symptoms, you tell them its getting you down when you have to drag yourself
through each day, managing the pain, so they label you depressed!!!!
> > >
> > > All conventional medication has failed to return any quality of life (and
i know there are alot worse off than Lianne), the doctors have drawn a blank and
have no other suggestions other than trying alternative chemicals( just another
mix of the same stuff) and going on antidepressants (not an option). After
reading some of the long term affects of the reccomended medication it led us to
the Helminthic Therapy and the Hygiene Hypothisis, after much research we have
decided to give it a try. We have spoken to both our private and local GPs and
they have no objections and will monitor the progress. Lianne has recently had
blood tests and a colonoscopy to benchmark before starting the therapy, we have
contacted a provider of the therapy (i was told we cannot mention the provider?)
and they have been very open and helpful, everything is now in place and we are
awaiting the final reccomendation form them regarding the best course.
> > > Hope to have the course available to start early next week! fingers
crossed as its not cheap! rather be broke and have tried and failed than not
tried at all!
> > >
> > > Simon
> > >
> > Update 9/5/12
> > Been to see doctor who performed colonoscopy today and he says the UC is
localised and a mild proctitus, having said that after abstaining from
medication the blood and mucus are both now apparent! We had frustrating
discussion regarding the chronic fatigue and its links with  the UC, the doctor
does not seem to think that the mild UC could be the cause of the chronic
fatigue and having run all the other tests for causes of fatigue we seem to have
hit a dead end again. So now i suppose that the worm therapy may put the UC into
remission (as does the medication only with bad side effects)but there are other
undefined issues that we are also seeking to resolve. After reading some of the
positive posts on a whole rande of disorders i cannot ignore this treatment and
now its the only option open to us.
> >
> > John, thanks for the reply, i must comment on the degree of what we are
calling chronic fatigue and perhaps others who have their own relative
definition, Lianne is currently struggling to hold 6hrs a day at work, when she
gets home sometimes she can be shaking she is so exhausted (not to be confused
with tired although the two do sometimes roll into one). The thing i find
strange from an outsider is that it makes no relative difference to the
exhaustion if she rests for a full week or works for a full week, the doctor
tried to explain that this is a psychological condition as apposed to a physical
state hence the inability to measure it, he also suggested that the condition is
quite paradoxical in that the more you rest the more you will feel like you need
the rest.
> >
> > Will pass on information to provider now and see what is reccomended by
them!
> >
>
> Update 19/5/12
> Had more consultations with our provider to ensure best therapy option is
being taken, this has mainly been done on Skype, nice to see a human on the
other end! Liannes case seems to be a bit out of the mainstream being delt with
as her UC symptoms are only very mild but there are other 'unexlained' problems
that we have no idea how to tackle, as there is no down side to the therapy we
consider it another bridge to cross and we may just get lucky as the exhaustion
is gradually getting worse and the impact is escalating.
> This therapy is not cheap but then what price do you put on quality of life?
> We are hoping to take delivery and start next week, Our provider has suggested
that because Lianne is quite small 5'1" 7.5st then to help alleviate symptoms on
day 13 they advise taking a course of prednisolone.
>

#8887 From: "simon5030a" <simon5030@...>
Date: Sun May 20, 2012 9:44 am
Subject: Re: Starting Therapy
simon5030a
Send Email Send Email
 
Totally agree but when you live in the UK you dont see much of it!!!!

--- In helminthictherapy@yahoogroups.com, "rks987" <robert.kenneth.smart@...>
wrote:
>
> If the body is not good at handling chemicals then sunshine can help.
>
> >the more you rest the more you will feel like you need the rest.
>
> When I'm inexplicably tired I do exercise and it almost always works.
>

#8888 From: "john_scott107" <j.scott.164@...>
Date: Sun May 20, 2012 2:07 pm
Subject: The ecological theory of disease
john_scott107
Send Email Send Email
 
Banishing germs (and worms) from your life can make you seriously ill!

"We have been propounding the germ theory of disease," says Rob Dunn, a biologist at the North Carolina State University, "but we should really be talking about the ecological theory of disease." 


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