No idea if you are around still, but I'd be curious to know how you're doing 2
years in. I'm an RRMSer looking at switching from Tysabri to HT because T just
isn't cutting it.

Thanks!

-Jen

--- In helminthictherapy@yahoogroups.com, "airon_airs" <airon_airs@...> wrote:
>
> Hi, my name is Airon. This will be my first posting here. Starting January 1,
2009 (9 months ago) I received my first dose of 30 hookworms.
>
> In summary I will say that without a doubt it has been a success for me.
>
> Below I will try to succinctly list out how the treatment has affected me so
that if you are suffering with Multiple Sclerosis you might gain a little
insight into the side affects and how you might benefit.
>
>
> - Male
>
> - 37 year old Caucasian
>
> - Diagnosed in 2001 with Relapsing Remitting Multiple Sclerosis
>
> - Most of my lesions are located in my spinal cord. Several lesions in the
brain.
>
> - Medications in use at the time of the hookworm treatment, Copaxone (started
in 2003)
>
> - Frequency of attacks prior to hookworm -  1 every three months
>
> - Severity and type of disability/attacks - Muscle pain, muscle spasms, blurry
vision, trouble regulating body temperature, numbness, tremors.
>
> - NOTE: Food Allergies - ever since I was diagnosed with MS I have contracted
strange allergies to certain common foods that would exacerbate my symptoms
terribly. This forced me to avoid many common foods. No doctors could explain
this other than to say to avoid the foods.
>
> - I first heard about Jasper and his story from the kuro5in threads and
contacted him Feb 2007 to get more information.
>
> - Received hookworms Jan 1, 2009 after debating myself for many months.
>
> - Applied the hookworms to my forearm resulting in a vigorous itch and rash on
the arm which lasted a week.
>
> - Week 1 and 2 - I call this the honeymoon phase. I felt fantastic. I felt
better than I had in years. Rash/Itching on forearm.
>
> - Week 3 to Month 2 - The positive affects wore off and my MS symptoms started
to return - like a slow burn. A general malaise took over. During this time I
experienced fatigue, mild stomach pain, mild gas and lower libido which might be
attributed to the fatigue.
>
> - Month 3 - A noticeable improvement in my symptoms again. Fatigue reduced.
Blood tests revealed that my esoinophils were elevated. Yea my friends are still
alive!
>
> - Month 4 - Because I was feeling stronger and more like my old self I decided
to go off of Copaxone. So tired of the daily shots. Still some fatigue. All
other symptoms have disappeared.
>
> - Month 5 - Stronger still. Still some fatigue.
>
> - Month 6 - Constant improvement. Realized that I hadn't had any serious
attacks since starting the hookworm treatment although from month 1 to month 3 I
still felt the slow 'burn' of old symptoms especially when under stress.
>
> - Month 7 - I CAN eat foods that I couldn't eat before. These foods would
normally exacerbate my symptoms. Started a daily dose of Low Dose Naltrexone of
4.0 Milligrams nightly. I had experimented with LDN before and remembered how
much energy it gave me. I crush up a 50 milligram pill and use a syringe to take
the correct dose every night. This seems to be working with my hookworm
fantastically. My fatigue is almost completely gone.
>
> - Month 8 - great.
>
> - Month 9 - almost feel like I did during my pre-MS days. I have had no
serious attacks since starting the treatment and constant improvement since
month 4. The LDN seems to have solved my fatigue problem. I have been
associating the fatigue with the hookworm since it started at week 3 of my
hookworm treatment. But maybe part of the problem I think is that because I
couldn't eat certain foods I was malnourished. I have gained 15 pounds in 9
months. When I started I only weighed 135lbs. Today I weigh 150lbs. I am back in
the gym trying to build strength back into my MS weakened legs.
>
> I still have residual damage from the many years of MS attacks but the damage
is healing. The more time that passes the better I am feeling.
>
> Number of worms question - One area of concern is that I am unsure of how many
hookworms I have in my gut. All of the tests out simply tell you if you have
them or not, Yes or No. They can't quantify how many you currently have residing
in you. My last blood test showed that my esoinophils were elevated which was
good. I am planning on arranging for another 10 - 30 hookworms to give me a
margin of error.
>

Hello, this individual posted something more recent than the message you found,
at:

http://health.groups.yahoo.com/group/helminthictherapy/message/4865

If you want to learn how to search the HT Forum by author, I recently uploaded a
file called "Searching the Archives" which explains how to do this.  Click
"Files" in the left sidebar to access this.

Hope you find this helpful.

Best-- Donna

--- In helminthictherapy@yahoogroups.com, "jay_lynne2002" <jay_lynne2002@...>
wrote:
>
> No idea if you are around still, but I'd be curious to know how you're doing 2
years in. I'm an RRMSer looking at switching from Tysabri to HT because T just
isn't cutting it.
>
> Thanks!
>
> -Jen
>
> --- In helminthictherapy@yahoogroups.com, "airon_airs" <airon_airs@> wrote:
> >
> > Hi, my name is Airon. This will be my first posting here. Starting January
1, 2009 (9 months ago) I received my first dose of 30 hookworms.
> >
> > In summary I will say that without a doubt it has been a success for me.
> >
> > Below I will try to succinctly list out how the treatment has affected me so
that if you are suffering with Multiple Sclerosis you might gain a little
insight into the side affects and how you might benefit.
> >
> >
> > - Male
> >
> > - 37 year old Caucasian
> >
> > - Diagnosed in 2001 with Relapsing Remitting Multiple Sclerosis
> >
> > - Most of my lesions are located in my spinal cord. Several lesions in the
brain.
> >
> > - Medications in use at the time of the hookworm treatment, Copaxone
(started in 2003)
> >
> > - Frequency of attacks prior to hookworm -  1 every three months
> >
> > - Severity and type of disability/attacks - Muscle pain, muscle spasms,
blurry vision, trouble regulating body temperature, numbness, tremors.
> >
> > - NOTE: Food Allergies - ever since I was diagnosed with MS I have
contracted strange allergies to certain common foods that would exacerbate my
symptoms terribly. This forced me to avoid many common foods. No doctors could
explain this other than to say to avoid the foods.
> >
> > - I first heard about Jasper and his story from the kuro5in threads and
contacted him Feb 2007 to get more information.
> >
> > - Received hookworms Jan 1, 2009 after debating myself for many months.
> >
> > - Applied the hookworms to my forearm resulting in a vigorous itch and rash
on the arm which lasted a week.
> >
> > - Week 1 and 2 - I call this the honeymoon phase. I felt fantastic. I felt
better than I had in years. Rash/Itching on forearm.
> >
> > - Week 3 to Month 2 - The positive affects wore off and my MS symptoms
started to return - like a slow burn. A general malaise took over. During this
time I experienced fatigue, mild stomach pain, mild gas and lower libido which
might be attributed to the fatigue.
> >
> > - Month 3 - A noticeable improvement in my symptoms again. Fatigue reduced.
Blood tests revealed that my esoinophils were elevated. Yea my friends are still
alive!
> >
> > - Month 4 - Because I was feeling stronger and more like my old self I
decided to go off of Copaxone. So tired of the daily shots. Still some fatigue.
All other symptoms have disappeared.
> >
> > - Month 5 - Stronger still. Still some fatigue.
> >
> > - Month 6 - Constant improvement. Realized that I hadn't had any serious
attacks since starting the hookworm treatment although from month 1 to month 3 I
still felt the slow 'burn' of old symptoms especially when under stress.
> >
> > - Month 7 - I CAN eat foods that I couldn't eat before. These foods would
normally exacerbate my symptoms. Started a daily dose of Low Dose Naltrexone of
4.0 Milligrams nightly. I had experimented with LDN before and remembered how
much energy it gave me. I crush up a 50 milligram pill and use a syringe to take
the correct dose every night. This seems to be working with my hookworm
fantastically. My fatigue is almost completely gone.
> >
> > - Month 8 - great.
> >
> > - Month 9 - almost feel like I did during my pre-MS days. I have had no
serious attacks since starting the treatment and constant improvement since
month 4. The LDN seems to have solved my fatigue problem. I have been
associating the fatigue with the hookworm since it started at week 3 of my
hookworm treatment. But maybe part of the problem I think is that because I
couldn't eat certain foods I was malnourished. I have gained 15 pounds in 9
months. When I started I only weighed 135lbs. Today I weigh 150lbs. I am back in
the gym trying to build strength back into my MS weakened legs.
> >
> > I still have residual damage from the many years of MS attacks but the
damage is healing. The more time that passes the better I am feeling.
> >
> > Number of worms question - One area of concern is that I am unsure of how
many hookworms I have in my gut. All of the tests out simply tell you if you
have them or not, Yes or No. They can't quantify how many you currently have
residing in you. My last blood test showed that my esoinophils were elevated
which was good. I am planning on arranging for another 10 - 30 hookworms to give
me a margin of error.
> >
>

I don't have any idea if this could be a problem with a similar source, but I
recently noticed that when I Googled my "Lost Wanderer" blog the first match
came up with my diabetes entry, many pages deep. But the real problem was that
it listed "a 404 Not Found error" when I clicked on any of my results. I did
find that if I simply put in the URL of
"http://blog.autoimmunetherapies.com/lost_wanderer/" my pages came up, and I
could navigate between them.  I let the people at AIT know of the issue, and
they said several of their web pages had this problem so they were working on
it. Perhaps the hackers were going after a broader range of targets, including
going after AIT associated blogs?

Today, although my pages still load very slowly, some of them, but not all, do
open up without the 404 error. So it seems AIT has been making progress with
this.

Best,
Jim


--- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@...>
wrote:
>
> My personal blog, Gut Buddies (http://tiny.cc/2nwqdw
> <http://tiny.cc/2nwqdw> ) was recently hacked by someone who installed a
> malicious script designed to produce server errors when people click on
> search engine links to the site, with the result - no doubt intended -
> that traffic to the blog has fallen through the floor and its Google
> ranking has dropped out of sight.
> I'm therefore looking for someone who has expertise in internet
> security, who can do forensics on hacks, so, if you know of such an
> individual, please private message me.
> What concerns me is that there may be people who might have learned
> about helminthic therapy as a result of reading my blog, but who are now
> denied this opportunity. This is why I am keen to fix the problem and,
> if possible, to identify the perpetrator.
> Best - John
>

This really doesn't sound like a hacking attempt - it appears to be a
misconfigured web server which is running the blog. Google drops
rankings of websites when it encounters server errors on the website.
Try maybe migrating to something like wordpress?

On 5/4/12, James <jimlock32@...> wrote:
> I don't have any idea if this could be a problem with a similar source, but
> I recently noticed that when I Googled my "Lost Wanderer" blog the first
> match came up with my diabetes entry, many pages deep. But the real problem
> was that it listed "a 404 Not Found error" when I clicked on any of my
> results. I did find that if I simply put in the URL of
> "http://blog.autoimmunetherapies.com/lost_wanderer/" my pages came up, and I
> could navigate between them.  I let the people at AIT know of the issue, and
> they said several of their web pages had this problem so they were working
> on it. Perhaps the hackers were going after a broader range of targets,
> including going after AIT associated blogs?
>
> Today, although my pages still load very slowly, some of them, but not all,
> do open up without the 404 error. So it seems AIT has been making progress
> with this.
>
> Best,
> Jim
>
>
> --- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@...>
> wrote:
>>
>> My personal blog, Gut Buddies (http://tiny.cc/2nwqdw
>> <http://tiny.cc/2nwqdw> ) was recently hacked by someone who installed a
>> malicious script designed to produce server errors when people click on
>> search engine links to the site, with the result - no doubt intended -
>> that traffic to the blog has fallen through the floor and its Google
>> ranking has dropped out of sight.
>> I'm therefore looking for someone who has expertise in internet
>> security, who can do forensics on hacks, so, if you know of such an
>> individual, please private message me.
>> What concerns me is that there may be people who might have learned
>> about helminthic therapy as a result of reading my blog, but who are now
>> denied this opportunity. This is why I am keen to fix the problem and,
>> if possible, to identify the perpetrator.
>> Best - John
>>
>
>
>

I'm new to this list.    John Scott sent me a link 04/27/2012 and it was
dead so I searched the server and found the correct link.   It had two
spaces prefixed to the file extention.     Sounds like a resolving problem
at the server , not a hack.

----- Original Message -----
From: "James" <jimlock32@...>
To: <helminthictherapy@yahoogroups.com>
Sent: Friday, May 04, 2012 3:27 PM
Subject: [helminthictherapy] Re: Anyone have experience in internet
security?


>I don't have any idea if this could be a problem with a similar source, but
>I recently noticed that when I Googled my "Lost Wanderer" blog the first
>match came up with my diabetes entry, many pages deep. But the real problem
>was that it listed "a 404 Not Found error" when I clicked on any of my
>results. I did find that if I simply put in the URL of
>"http://blog.autoimmunetherapies.com/lost_wanderer/" my pages came up, and
>I could navigate between them.  I let the people at AIT know of the issue,
>and they said several of their web pages had this problem so they were
>working on it. Perhaps the hackers were going after a broader range of
>targets, including going after AIT associated blogs?
>
> Today, although my pages still load very slowly, some of them, but not
> all, do open up without the 404 error. So it seems AIT has been making
> progress with this.
>
> Best,
> Jim
>
>
> --- In helminthictherapy@yahoogroups.com, "john_scott107"
> <j.scott.164@...> wrote:
>>
>> My personal blog, Gut Buddies (http://tiny.cc/2nwqdw
>> <http://tiny.cc/2nwqdw> ) was recently hacked by someone who installed a
>> malicious script designed to produce server errors when people click on
>> search engine links to the site, with the result - no doubt intended -
>> that traffic to the blog has fallen through the floor and its Google
>> ranking has dropped out of sight.
>> I'm therefore looking for someone who has expertise in internet
>> security, who can do forensics on hacks, so, if you know of such an
>> individual, please private message me.
>> What concerns me is that there may be people who might have learned
>> about helminthic therapy as a result of reading my blog, but who are now
>> denied this opportunity. This is why I am keen to fix the problem and,
>> if possible, to identify the perpetrator.
>> Best - John
>>
>
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>

Hi Jim - Yes, this was exactly the problem I was having, plus the fact that
traffic to the blog had hit the floor, but, thankfully the problem has now been
fixed.

Herbert - the blog was definitely hacked, and scripts have been removed by a
security expert that had been injected maliciously with the obvious intention of
killing the site's search engine ranking by causing server errors to be returned
when potential visitors used search engines.

And Jim's suggestion that the hackers were going after a broader target appears
to be spot-on, with AIT clearly being the hacker's intended victim. Those of us
who have blogs linked to AIT's sites just got caught in the net.

Best - John

--- In helminthictherapy@yahoogroups.com, "James" <jimlock32@...> wrote:
>
> I don't have any idea if this could be a problem with a similar source, but I
recently noticed that when I Googled my "Lost Wanderer" blog the first match
came up with my diabetes entry, many pages deep. But the real problem was that
it listed "a 404 Not Found error" when I clicked on any of my results. I did
find that if I simply put in the URL of
"http://blog.autoimmunetherapies.com/lost_wanderer/" my pages came up, and I
could navigate between them.  I let the people at AIT know of the issue, and
they said several of their web pages had this problem so they were working on
it. Perhaps the hackers were going after a broader range of targets, including
going after AIT associated blogs?
>
> Today, although my pages still load very slowly, some of them, but not all, do
open up without the 404 error. So it seems AIT has been making progress with
this.
>
> Best,
> Jim
>
>
> --- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@>
wrote:
> >
> > My personal blog, Gut Buddies (http://tiny.cc/2nwqdw
> > <http://tiny.cc/2nwqdw> ) was recently hacked by someone who installed a
> > malicious script designed to produce server errors when people click on
> > search engine links to the site, with the result - no doubt intended -
> > that traffic to the blog has fallen through the floor and its Google
> > ranking has dropped out of sight.
> > I'm therefore looking for someone who has expertise in internet
> > security, who can do forensics on hacks, so, if you know of such an
> > individual, please private message me.
> > What concerns me is that there may be people who might have learned
> > about helminthic therapy as a result of reading my blog, but who are now
> > denied this opportunity. This is why I am keen to fix the problem and,
> > if possible, to identify the perpetrator.
> > Best - John
> >
>

I'm not totally confident they've found all the bugs the hackers put in.  I
searched in Google - lost wanderer hookworms - and the first link was correctly
my page.  But this page loaded very slowly, taking about 20 seconds.
http://blog.autoimmunetherapies.com/lost_wanderer/2009/07/09/hookworms-are-our-l\
ittle-friends/
and then this page showed pure white with no text. At AIT they can read it, so I
don't know why the difference.

The second hit on that Google search was my diabetes entry.  It opened quickly
and normally.  Without trying all my pages in the above fashion individually I
don't know if other pages might have the same problem. Perhaps the hackers were
clever about this and other hidden problems still remain?

Best,
Jim

--- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@...>
wrote:
>
>
>
> Hi Jim - Yes, this was exactly the problem I was having, plus the fact that
traffic to the blog had hit the floor, but, thankfully the problem has now been
fixed.
>
> Herbert - the blog was definitely hacked, and scripts have been removed by a
security expert that had been injected maliciously with the obvious intention of
killing the site's search engine ranking by causing server errors to be returned
when potential visitors used search engines.
>
> And Jim's suggestion that the hackers were going after a broader target
appears to be spot-on, with AIT clearly being the hacker's intended victim.
Those of us who have blogs linked to AIT's sites just got caught in the net.
>
> Best - John
>
> --- In helminthictherapy@yahoogroups.com, "James" <jimlock32@> wrote:
> >
> > I don't have any idea if this could be a problem with a similar source, but
I recently noticed that when I Googled my "Lost Wanderer" blog the first match
came up with my diabetes entry, many pages deep. But the real problem was that
it listed "a 404 Not Found error" when I clicked on any of my results. I did
find that if I simply put in the URL of
"http://blog.autoimmunetherapies.com/lost_wanderer/" my pages came up, and I
could navigate between them.  I let the people at AIT know of the issue, and
they said several of their web pages had this problem so they were working on
it. Perhaps the hackers were going after a broader range of targets, including
going after AIT associated blogs?
> >
> > Today, although my pages still load very slowly, some of them, but not all,
do open up without the 404 error. So it seems AIT has been making progress with
this.
> >
> > Best,
> > Jim
> >
> >
> > --- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@>
wrote:
> > >
> > > My personal blog, Gut Buddies (http://tiny.cc/2nwqdw
> > > <http://tiny.cc/2nwqdw> ) was recently hacked by someone who installed a
> > > malicious script designed to produce server errors when people click on
> > > search engine links to the site, with the result - no doubt intended -
> > > that traffic to the blog has fallen through the floor and its Google
> > > ranking has dropped out of sight.
> > > I'm therefore looking for someone who has expertise in internet
> > > security, who can do forensics on hacks, so, if you know of such an
> > > individual, please private message me.
> > > What concerns me is that there may be people who might have learned
> > > about helminthic therapy as a result of reading my blog, but who are now
> > > denied this opportunity. This is why I am keen to fix the problem and,
> > > if possible, to identify the perpetrator.
> > > Best - John
> > >
> >
>

Hi All,
I am wondering if there is anyone out there currently doing TSO that I might
have a conversation with about how/where to get this...
I am happy to call at the convenience of the other person.
Thanks so much,
Nancy

A suggestion I would like to offer might be to check for clinical trials.

There is one recruiting currently for adults with autism (over age 18).

www.clinicaltrials.gov

--- In helminthictherapy@yahoogroups.com, "sethman04222" <dwyer.whynot@...>
wrote:
>
> Hi All,
> I am wondering if there is anyone out there currently doing TSO that I might
have a conversation with about how/where to get this...
> I am happy to call at the convenience of the other person.
> Thanks so much,
> Nancy
>

So far as I understand the workings of HT, eight weeks is a very short timeframe
for seeing any measurable results.  But I am less versed with TSO than other
species.

--- In helminthictherapy@yahoogroups.com, Susan Fund <susan_fund@...> wrote:
>
> Nancy,
>  
> My son is 15 yrs old and has autism (no real known gut issues). He has been on
TSO for 8 weeks. We have not noticed any changes in my son. Not sure if I can
help you. The exchange rate is pretty good now so we are going to order more
TSO. If you google TSO biomonde you will find their website to order. If you
order 10 bottles or more you do not pay any shipping.
>
> Susan
>
>
> ________________________________
>  From: sethman04222 <dwyer.whynot@...>
> To: helminthictherapy@yahoogroups.com
> Sent: Monday, May 7, 2012 4:58 PM
> Subject: [helminthictherapy] someone doing TSO?
>
>
>
>  
>
> Hi All,
> I am wondering if there is anyone out there currently doing TSO that I might
have a conversation with about how/where to get this...
> I am happy to call at the convenience of the other person.
> Thanks so much,
> Nancy
>

"How We Do Harm: A Doctor Breaks Ranks About Being Sick In America'' (St.
Martin's Press).

NY Times article:

http://well.blogs.nytimes.com/2012/04/20/how-doctors-and-patients-do-harm/?ref=h\
ealth

Interestingly, Seth was selected to be among the 10 young adults but I live in
Maine and would have to travel to NYC every 2 weeks. Not doable. I thought we
were going to be able to work around that, but it's not possible. From a
financial standpoint, it makes more sense to simply buy it and have the
administration supervised by a doc here.
Nancy
--- In helminthictherapy@yahoogroups.com, "donnabeales" <dbeales@...> wrote:
>
> A suggestion I would like to offer might be to check for clinical trials.
>
> There is one recruiting currently for adults with autism (over age 18).
>
> www.clinicaltrials.gov
>
> --- In helminthictherapy@yahoogroups.com, "sethman04222" <dwyer.whynot@>
wrote:
> >
> > Hi All,
> > I am wondering if there is anyone out there currently doing TSO that I might
have a conversation with about how/where to get this...
> > I am happy to call at the convenience of the other person.
> > Thanks so much,
> > Nancy
> >
>

Amish farm children allergy resistant:
http://www.nlm.nih.gov/medlineplus/news/fullstory_124872.html

Weight gain precedes RA:
http://www.nlm.nih.gov/medlineplus/news/fullstory_124853.html

I would be interested from a scientific standpoint to hear how your child (an
assumpton on my part, but if inacurate, please correct me was selected for the
trial, who is running it, and any other details you might be able to provide.  I
believe the contact is one Alexander Kolevzon, MD, who is listed on Clinical
Trials as the responsible party.

The trial information is at:
http://www.clinicaltrials.gov/ct2/show/NCT01040221?term=helminths+autism&rank=1

There is an interesting thread running on this trial on another site:
http://www.science20.com/countering_tackling_woo/selling_worms_treatment_autism_\
wormy_woo-68193

This thread purports that the study is flawed if not bogus, and that it may lack
affiliation with Mount Sinai School of Medicine.

I have reliable information that the trial itself is extant, and here is
testimony on the HT Forum from a person who claims that their child has been
selected but must decline to participate.

I would like to hear more "from the horse's mouth" so-to-speak.

--- In helminthictherapy@yahoogroups.com, "sethman04222" <dwyer.whynot@...>
wrote:
>
>
> Interestingly, Seth was selected to be among the 10 young adults but I live in
Maine and would have to travel to NYC every 2 weeks. Not doable. I thought we
were going to be able to work around that, but it's not possible. From a
financial standpoint, it makes more sense to simply buy it and have the
administration supervised by a doc here.
> Nancy
> --- In helminthictherapy@yahoogroups.com, "donnabeales" <dbeales@> wrote:
> >
> > A suggestion I would like to offer might be to check for clinical trials.
> >
> > There is one recruiting currently for adults with autism (over age 18).
> >
> > www.clinicaltrials.gov
> >
> > --- In helminthictherapy@yahoogroups.com, "sethman04222" <dwyer.whynot@>
wrote:
> > >
> > > Hi All,
> > > I am wondering if there is anyone out there currently doing TSO that I
might have a conversation with about how/where to get this...
> > > I am happy to call at the convenience of the other person.
> > > Thanks so much,
> > > Nancy
> > >
> >
>

Hi
First post of what i hope to be many over the coming year, I am posting on
behalf of my partner (Lianne) who has been diagnosed with Ulcerative Collitus
(UC) in the colon, this does not seem to be aggressive but there may be other
things going on that we have not dicovered yet!
I will apologise in advance if this seems a little long winded but felt i needed
to share alot of the detail in order to shed some light for others that may be
suffering similiar fates!

History
Most forms of medication tried over the years have made Lianne feel very unwell
as if the body is unable to process the chemicals.
This all stated about 10 years ago when she hit forty, starting with abdominal
pains and fatigue that could only be relieved with morphine when bad (many a
trip to A&E), the rest of the time it would be like stomache cramps, the doctors
diagnosed various things including peptic ulcers but after many a camera there
was no conclusive evidence, after consulting various specialists privately she
was diagnosed with endometriosis, although not excessive we were informed that
the amount visible had no reflection on the pain this can cause, this let to a
partial historectomy. The pain continued and seemed to be cyclic this then led
to the ovaries being removed as the cause (although healthy!). The pain
continued but then the fatigue started to become worse, more colonascopies and a
diagnosis of UC, various medications, Predfoam, Asacol etc although this
controlled the symptoms (mucus and blood in the stool)the side effects of the
medication were continual nausia, feeling sick and now chronic fatigue (although
the doctors will not identify this now as it cannot be quantified therefore no
measurement no diagnosis) after returning to the doctors too many times with the
same symptoms, you tell them its getting you down when you have to drag yourself
through each day, managing the pain, so they label you depressed!!!!

All conventional medication has failed to return any quality of life (and i know
there are alot worse off than Lianne), the doctors have drawn a blank and have
no other suggestions other than trying alternative chemicals( just another mix
of the same stuff) and going on antidepressants (not an option). After reading
some of the long term affects of the reccomended medication it led us to the
Helminthic Therapy and the Hygiene Hypothisis, after much research we have
decided to give it a try. We have spoken to both our private and local GPs and
they have no objections and will monitor the progress. Lianne has recently had
blood tests and a colonoscopy to benchmark before starting the therapy, we have
contacted a provider of the therapy (i was told we cannot mention the provider?)
and they have been very open and helpful, everything is now in place and we are
awaiting the final reccomendation form them regarding the best course.
Hope to have the course available to start early next week! fingers crossed as
its not cheap! rather be broke and have tried and failed than not tried at all!

Simon

I know what you're saying. Somehow it never happened. And I think it changed
doctors. This one is recruiting now and I can't find it on clincialtrial.gov.
But it is happening now. Dr Hollander told me last week he expects it may start
in July. They are still awaiting approval from the IRB. He plans to run another
one for younger kids next.

--- In helminthictherapy@yahoogroups.com, Susan Fund <susan_fund@...> wrote:
>
> What bothers me about this study is it was begun in December 2009 and was
supposed to last 16 weeks........it is now 2012.....what happened? Is it over?
unfinished? not enough participants? I have tried to check on it but can't find
out anything.......frustrating!
>
>
> Susan
>
>
> ________________________________
>  From: donnabeales <dbeales@...>
> To: helminthictherapy@yahoogroups.com
> Sent: Tuesday, May 8, 2012 1:57 PM
> Subject: [helminthictherapy] Re: someone doing TSO?
>
>
>
>  
>
> I would be interested from a scientific standpoint to hear how your child (an
assumpton on my part, but if inacurate, please correct me was selected for the
trial, who is running it, and any other details you might be able to provide.  I
believe the contact is one Alexander Kolevzon, MD, who is listed on Clinical
Trials as the responsible party.
>
> The trial information is at:
>
http://www.clinicaltrials.gov/ct2/show/NCT01040221?term=helminths+autism&rank=1
>
> There is an interesting thread running on this trial on another site:
>
http://www.science20.com/countering_tackling_woo/selling_worms_treatment_autism_\
wormy_woo-68193
>
> This thread purports that the study is flawed if not bogus, and that it may
lack affiliation with Mount Sinai School of Medicine.
>
> I have reliable information that the trial itself is extant, and here is
testimony on the HT Forum from a person who claims that their child has been
selected but must decline to participate.
>
> I would like to hear more "from the horse's mouth" so-to-speak.
>
> --- In helminthictherapy@yahoogroups.com, "sethman04222" <dwyer.whynot@>
wrote:
> >
> >
> > Interestingly, Seth was selected to be among the 10 young adults but I live
in Maine and would have to travel to NYC every 2 weeks. Not doable. I thought we
were going to be able to work around that, but it's not possible. From a
financial standpoint, it makes more sense to simply buy it and have the
administration supervised by a doc here.
> > Nancy
> > --- In helminthictherapy@yahoogroups.com, "donnabeales" <dbeales@> wrote:
> > >
> > > A suggestion I would like to offer might be to check for clinical trials.
> > >
> > > There is one recruiting currently for adults with autism (over age 18).
> > >
> > > www.clinicaltrials.gov
> > >
> > > --- In helminthictherapy@yahoogroups.com, "sethman04222" <dwyer.whynot@>
wrote:
> > > >
> > > > Hi All,
> > > > I am wondering if there is anyone out there currently doing TSO that I
might have a conversation with about how/where to get this...
> > > > I am happy to call at the convenience of the other person.
> > > > Thanks so much,
> > > > Nancy
> > > >
> > >
> >
>

Hi Simon

Thank you for taking the time to write this post and provide so much detail.
This information will be most helpful to many other members, so please do keep
us posted about Lianne's progress.

I personally relate very strongly with your experience of the medical response
to chronic fatigue! I got this response for many years and, even after
self-referring to a psychiatrist who declared that there was "absolutely nothing
wrong" with my mind, the medics still insisted that my fatigue - and severe food
intolerance - were psychosomatic!

At my worst, I was virtually chair/bed-bound and could only get upstairs with
the help of an electric stair lift. But, now, after 3 years with hookworm, I do
over 10 km on my exercise bike most days!

Best - John

--- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@...> wrote:
>
> Hi
> First post of what i hope to be many over the coming year, I am posting on
behalf of my partner (Lianne) who has been diagnosed with Ulcerative Collitus
(UC) in the colon, this does not seem to be aggressive but there may be other
things going on that we have not dicovered yet!
> I will apologise in advance if this seems a little long winded but felt i
needed to share alot of the detail in order to shed some light for others that
may be suffering similiar fates!
>
> History
> Most forms of medication tried over the years have made Lianne feel very
unwell as if the body is unable to process the chemicals.
> This all stated about 10 years ago when she hit forty, starting with abdominal
pains and fatigue that could only be relieved with morphine when bad (many a
trip to A&E), the rest of the time it would be like stomache cramps, the doctors
diagnosed various things including peptic ulcers but after many a camera there
was no conclusive evidence, after consulting various specialists privately she
was diagnosed with endometriosis, although not excessive we were informed that
the amount visible had no reflection on the pain this can cause, this let to a
partial historectomy. The pain continued and seemed to be cyclic this then led
to the ovaries being removed as the cause (although healthy!). The pain
continued but then the fatigue started to become worse, more colonascopies and a
diagnosis of UC, various medications, Predfoam, Asacol etc although this
controlled the symptoms (mucus and blood in the stool)the side effects of the
medication were continual nausia, feeling sick and now chronic fatigue (although
the doctors will not identify this now as it cannot be quantified therefore no
measurement no diagnosis) after returning to the doctors too many times with the
same symptoms, you tell them its getting you down when you have to drag yourself
through each day, managing the pain, so they label you depressed!!!!
>
> All conventional medication has failed to return any quality of life (and i
know there are alot worse off than Lianne), the doctors have drawn a blank and
have no other suggestions other than trying alternative chemicals( just another
mix of the same stuff) and going on antidepressants (not an option). After
reading some of the long term affects of the reccomended medication it led us to
the Helminthic Therapy and the Hygiene Hypothisis, after much research we have
decided to give it a try. We have spoken to both our private and local GPs and
they have no objections and will monitor the progress. Lianne has recently had
blood tests and a colonoscopy to benchmark before starting the therapy, we have
contacted a provider of the therapy (i was told we cannot mention the provider?)
and they have been very open and helpful, everything is now in place and we are
awaiting the final reccomendation form them regarding the best course.
> Hope to have the course available to start early next week! fingers crossed as
its not cheap! rather be broke and have tried and failed than not tried at all!
>
> Simon
>

--- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@...> wrote:
>
> Hi
> First post of what i hope to be many over the coming year, I am posting on
behalf of my partner (Lianne) who has been diagnosed with Ulcerative Collitus
(UC) in the colon, this does not seem to be aggressive but there may be other
things going on that we have not dicovered yet!
> I will apologise in advance if this seems a little long winded but felt i
needed to share alot of the detail in order to shed some light for others that
may be suffering similiar fates!
>
> History
> Most forms of medication tried over the years have made Lianne feel very
unwell as if the body is unable to process the chemicals.
> This all stated about 10 years ago when she hit forty, starting with abdominal
pains and fatigue that could only be relieved with morphine when bad (many a
trip to A&E), the rest of the time it would be like stomache cramps, the doctors
diagnosed various things including peptic ulcers but after many a camera there
was no conclusive evidence, after consulting various specialists privately she
was diagnosed with endometriosis, although not excessive we were informed that
the amount visible had no reflection on the pain this can cause, this let to a
partial historectomy. The pain continued and seemed to be cyclic this then led
to the ovaries being removed as the cause (although healthy!). The pain
continued but then the fatigue started to become worse, more colonascopies and a
diagnosis of UC, various medications, Predfoam, Asacol etc although this
controlled the symptoms (mucus and blood in the stool)the side effects of the
medication were continual nausia, feeling sick and now chronic fatigue (although
the doctors will not identify this now as it cannot be quantified therefore no
measurement no diagnosis) after returning to the doctors too many times with the
same symptoms, you tell them its getting you down when you have to drag yourself
through each day, managing the pain, so they label you depressed!!!!
>
> All conventional medication has failed to return any quality of life (and i
know there are alot worse off than Lianne), the doctors have drawn a blank and
have no other suggestions other than trying alternative chemicals( just another
mix of the same stuff) and going on antidepressants (not an option). After
reading some of the long term affects of the reccomended medication it led us to
the Helminthic Therapy and the Hygiene Hypothisis, after much research we have
decided to give it a try. We have spoken to both our private and local GPs and
they have no objections and will monitor the progress. Lianne has recently had
blood tests and a colonoscopy to benchmark before starting the therapy, we have
contacted a provider of the therapy (i was told we cannot mention the provider?)
and they have been very open and helpful, everything is now in place and we are
awaiting the final reccomendation form them regarding the best course.
> Hope to have the course available to start early next week! fingers crossed as
its not cheap! rather be broke and have tried and failed than not tried at all!
>
> Simon
>
Update 9/5/12
Been to see doctor who performed colonoscopy today and he says the UC is
localised and a mild proctitus, having said that after abstaining from
medication the blood and mucus are both now apparent! We had frustrating
discussion regarding the chronic fatigue and its links with  the UC, the doctor
does not seem to think that the mild UC could be the cause of the chronic
fatigue and having run all the other tests for causes of fatigue we seem to have
hit a dead end again. So now i suppose that the worm therapy may put the UC into
remission (as does the medication only with bad side effects)but there are other
undefined issues that we are also seeking to resolve. After reading some of the
positive posts on a whole rande of disorders i cannot ignore this treatment and
now its the only option open to us.

John, thanks for the reply, i must comment on the degree of what we are calling
chronic fatigue and perhaps others who have their own relative definition,
Lianne is currently struggling to hold 6hrs a day at work, when she gets home
sometimes she can be shaking she is so exhausted (not to be confused with tired
although the two do sometimes roll into one). The thing i find strange from an
outsider is that it makes no relative difference to the exhaustion if she rests
for a full week or works for a full week, the doctor tried to explain that this
is a psychological condition as apposed to a physical state hence the inability
to measure it, he also suggested that the condition is quite paradoxical in that
the more you rest the more you will feel like you need the rest.

Will pass on information to provider now and see what is reccomended by them!

Here is an article of possible interest.  A brief account:

   http://the-scientist.com/2012/05/08/rural-teens-have-fewer-allergies/

The paper itself:

   Environmental biodiversity, human microbiota, and allergy are
   interrelated
   http://www.pnas.org/content/early/2012/05/01/1205624109

     Rapidly declining biodiversity may be a contributing factor to
     another global megatrend—the rapidly increasing prevalence of
     allergies and other chronic inflammatory diseases among urban
     populations worldwide. According to the "biodiversity hypothesis,"
     reduced contact of people with natural environmental features and
     biodiversity may adversely affect the human commensal microbiota
     and its immunomodulatory capacity. Analyzing atopic sensitization
     (i.e., allergic disposition) in a random sample of adolescents
     living in a heterogeneous region of 100 x 150 km, we show that
     environmental biodiversity in the surroundings of the study
     subjects' homes influenced the composition of the bacterial classes
     on their skin. Compared with healthy individuals, atopic
     individuals had lower environmental biodiversity in the
     surroundings of their homes and significantly lower generic
     diversity of gammaproteobacteria on their skin. The functional role
     of the Gram-negative gammaproteobacteria is supported by in vitro
     measurements of expression of IL-10, a key anti-inflammatory
     cytokine in immunologic tolerance, in peripheral blood mononuclear
     cells. In healthy, but not in atopic, individuals, IL-10 expression
     was positively correlated with the abundance of the
     gammaproteobacterial genus Acinetobacter on the skin. These results
     raise fundamental questions about the consequences of biodiversity
     loss for both allergic conditions and public health in general.


   - Robin              http://aminotheory.com

Glad to see you're reaching out for assistance.  Here are my two cents, or quid,
depending on which side of the pond, if you will.

1.  Make sure she is seeing a compassionate and qualified mental health
professional.  This oft overlooked aspect is vital to sound mind and body
relationship.  I cannot overstate the importance of talking to a professional.

2.  Investigate a food sensitivity test called MRT from www.nowleap.com  I have
taken the test twice, with outstanding results each time.  The information and
reintroduction diet has greatly decreased my colitis and associated symptoms for
months on end.

These, in addition to the heminthic therapy, have made a great difference in my
ulcerative colitis, that I've been struggling with for 12 years.

Best,
illya

--- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@...> wrote:
>
>
>
>
>
> --- In helminthictherapy@yahoogroups.com, "simon5030a" <simon5030@> wrote:
> >
> > Hi
> > First post of what i hope to be many over the coming year, I am posting on
behalf of my partner (Lianne) who has been diagnosed with Ulcerative Collitus
(UC) in the colon, this does not seem to be aggressive but there may be other
things going on that we have not dicovered yet!
> > I will apologise in advance if this seems a little long winded but felt i
needed to share alot of the detail in order to shed some light for others that
may be suffering similiar fates!
> >
> > History
> > Most forms of medication tried over the years have made Lianne feel very
unwell as if the body is unable to process the chemicals.
> > This all stated about 10 years ago when she hit forty, starting with
abdominal pains and fatigue that could only be relieved with morphine when bad
(many a trip to A&E), the rest of the time it would be like stomache cramps, the
doctors diagnosed various things including peptic ulcers but after many a camera
there was no conclusive evidence, after consulting various specialists privately
she was diagnosed with endometriosis, although not excessive we were informed
that the amount visible had no reflection on the pain this can cause, this let
to a partial historectomy. The pain continued and seemed to be cyclic this then
led to the ovaries being removed as the cause (although healthy!). The pain
continued but then the fatigue started to become worse, more colonascopies and a
diagnosis of UC, various medications, Predfoam, Asacol etc although this
controlled the symptoms (mucus and blood in the stool)the side effects of the
medication were continual nausia, feeling sick and now chronic fatigue (although
the doctors will not identify this now as it cannot be quantified therefore no
measurement no diagnosis) after returning to the doctors too many times with the
same symptoms, you tell them its getting you down when you have to drag yourself
through each day, managing the pain, so they label you depressed!!!!
> >
> > All conventional medication has failed to return any quality of life (and i
know there are alot worse off than Lianne), the doctors have drawn a blank and
have no other suggestions other than trying alternative chemicals( just another
mix of the same stuff) and going on antidepressants (not an option). After
reading some of the long term affects of the reccomended medication it led us to
the Helminthic Therapy and the Hygiene Hypothisis, after much research we have
decided to give it a try. We have spoken to both our private and local GPs and
they have no objections and will monitor the progress. Lianne has recently had
blood tests and a colonoscopy to benchmark before starting the therapy, we have
contacted a provider of the therapy (i was told we cannot mention the provider?)
and they have been very open and helpful, everything is now in place and we are
awaiting the final reccomendation form them regarding the best course.
> > Hope to have the course available to start early next week! fingers crossed
as its not cheap! rather be broke and have tried and failed than not tried at
all!
> >
> > Simon
> >
> Update 9/5/12
> Been to see doctor who performed colonoscopy today and he says the UC is
localised and a mild proctitus, having said that after abstaining from
medication the blood and mucus are both now apparent! We had frustrating
discussion regarding the chronic fatigue and its links with  the UC, the doctor
does not seem to think that the mild UC could be the cause of the chronic
fatigue and having run all the other tests for causes of fatigue we seem to have
hit a dead end again. So now i suppose that the worm therapy may put the UC into
remission (as does the medication only with bad side effects)but there are other
undefined issues that we are also seeking to resolve. After reading some of the
positive posts on a whole rande of disorders i cannot ignore this treatment and
now its the only option open to us.
>
> John, thanks for the reply, i must comment on the degree of what we are
calling chronic fatigue and perhaps others who have their own relative
definition, Lianne is currently struggling to hold 6hrs a day at work, when she
gets home sometimes she can be shaking she is so exhausted (not to be confused
with tired although the two do sometimes roll into one). The thing i find
strange from an outsider is that it makes no relative difference to the
exhaustion if she rests for a full week or works for a full week, the doctor
tried to explain that this is a psychological condition as apposed to a physical
state hence the inability to measure it, he also suggested that the condition is
quite paradoxical in that the more you rest the more you will feel like you need
the rest.
>
> Will pass on information to provider now and see what is reccomended by them!
>

Probiotics and sexual attractiveness in mice:
http://www.wcvb.com/Study-Yogurt-Diet-Key-To-Mouse-Sexiness/-/9849586/13024146/-\
/dfidk3/-/index.html

Hi Everyone,

I am Sudarshan and i'm 35 years old. I reside in India.

I was diagnosed with Ulcerative Colitis 7 years back.
A little background on my UC...I do not have most of the common symptoms of UC
but it has made my life hell anyway. I do not suffer from bleeding or from
diarrhea but my UC is predominantly a lack of peristalsis.I have tried
homeopathy and Ayurveda, Yoga and Meditation,
Antidepressants seem to help to a certain extent but I am wary of my continued
dependance on them.

I am currently on Mesacol/Asacol 800 twice a day and it really doesn't seem to
be helping.

From the posts on this forum and other blogs, Helminthic Therapy seems the most
promising management, if not treatment for UC.

I have been unable to find any providers of HT in India so far.
Is anyone on this group from India and if so, have you had any luck finding
providers in India. Please do let me know if you do .

Thanks and regards,

Sudarshan Chari

If you definitely have a diagnosis of UC, there's a group out of New York
University that's going to be conducting a UC clinical trial soon.  They're
recruiting patients now:

http://www.clinicaltrials.gov/ct2/show/NCT01433471?term=helminths+colitis&rank=1

Best of luck.

--- In helminthictherapy@yahoogroups.com, "john_scott107" <j.scott.164@...>
wrote:
>
> Hi Sudarshan
> You're right about there not being any helminth suppliers in India.
> There are currently only three providers worldwide, and there are
> details about all of them at the end of the FAQ in our Files section,
> at:
> http://health.groups.yahoo.com/group/helminthictherapy/files/
> <http://health.groups.yahoo.com/group/helminthictherapy/files/>
> You'll be able to have doses of helminths shipped direct to your home.
> Best - John
> --- In helminthictherapy@yahoogroups.com, "hotmailme" <hotmailme@>
> wrote:
> >
> > Hi Everyone,
> >
> > I am Sudarshan and i'm 35 years old. I reside in India.
> >
> > I was diagnosed with Ulcerative Colitis 7 years back.
> > A little background on my UC...I do not have most of the common
> symptoms of UC but it has made my life hell anyway. I do not suffer from
> bleeding or from diarrhea but my UC is predominantly a lack of
> peristalsis.I have tried homeopathy and Ayurveda, Yoga and Meditation,
> > Antidepressants seem to help to a certain extent but I am wary of my
> continued dependance on them.
> >
> > I am currently on Mesacol/Asacol 800 twice a day and it really doesn't
> seem to be helping.
> >
> > From the posts on this forum and other blogs, Helminthic Therapy seems
> the most promising management, if not treatment for UC.
> >
> > I have been unable to find any providers of HT in India so far.
> > Is anyone on this group from India and if so, have you had any luck
> finding providers in India. Please do let me know if you do .
> >
> > Thanks and regards,
> >
> > Sudarshan Chari
> >
>