>
> Hi Leslie
> This new article on the WebMD site looks like it might possibly be
> useful to you.
> http://www.webmd.com/fibromyalgia/guide/fibromyalgia-the-diet-connection\
> ?src
> <http://www.webmd.com/fibromyalgia/guide/fibromyalgia-the-diet-connectio\
> n?src>
> F.

Thanks for the article.  Most of the information I have heard before, but I was
really intrigued by the section mentioning "night shade" fruits and vegetables.
Leslie

I am very sorry to hear this. That really is a really awful combination of
disorders.
The only helminth you can obtain in the USA is TSO from Ovamed. AIT can not
supply Hookworm or Whipworm directly to the USA, but can ship to any other
country.

Good luck
Marc

--- In helminthictherapy@yahoogroups.com, "rebeccamcmahon99" <rebecca45@...>
wrote:
>
> I have a fairly rare autoimmune condition called Bullose Pemphigoid.  My
immuune system attacks my skin and causes blisters to erupt, burst and become
sores.  I also have a very bad case of late onset Asthma along with
pulmonary-hypertension.
>
> I would really like to try helminthic therapy.  Is it possible to obtain it in
the USA?  My quality of life has gone steadily downhill. Thanks for any info you
can supply!
>

Hi guys,

I'm fairly new to this, but I have already read through much of this groups
threads going back a few years.

I have a few reservations that I wanted to get your opinions on first before I
purchase some helminths.

The first is to get your views on the safety of introducing hookworms whilst
also undergoing intensive allergen immunotherapy shots, which I am at the
moment.

The second is about dosage. My top priority is to cure my severe nasal
congestion, and I was wondering what the ideal dosage amount would be for this.
I also suffer from severe asthma, but have found that it is largely caused by my
mouth-breathing, so the rhinitis is what I want to tackle most. I would love to
hear any reports you can pass on about people who have had positive or negative
effects for their nasal congestion / rhinitis.

I live in Australia and am not at all surprised to hear that a disproportionate
percentage of Jasper's clients come from Down-Under. If there are any people
(from Australia especially) that would be willing to communicate with me about
their experience, I would really appreciate it.

Thanks guys!

(I have also messaged Jasper with these questions to get his opinion.)

This message and any included attachments are intended only for the use 
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sender and delete the related message.  Thank you.

In my recent research I've found that to obtain the hookworms from AIT I will
have to travel to Mexico or Canada. I have also not seen much information on
whipworm from AIT but I hear they offer it.

I'm confused because it seems that through the OVAmed website, one can obtain
whipworm through the mail in the United States, but is this same thing true with
whipworm through AIT?

The FDA is really on my bad side at the moment, and I'm trying to figure out
their illogical logic.

Basically it is to remake your life to as closely as possible resemble that of a
hunter-gatherer.

Simpler than it may sound.

Full story here:

http://blog.autoimmunetherapies.com/blog/2010/06/01/if-i-was-really-sick-still-t\
his-is-what-i-would-do/

Our whipworm is Trichuris trichiura, or "human" whipworm, that is humans are its
definitive host. Ovamed offers Trichuris suis, or "pig" whipworm, with pigs as
the definitive host.

Consequently it is necessary to dose with Ovamed's whipworm once ever two to
three weeks, at an estimated annual cost, ex shipping of $11,000 USD at the
highest dosing level.

Comparatively human whipworm from us costs about $1,500 annually, ex shipping
and travel, and dosing is required approximately once every two years.

We could probably "legally" ship our products to the US, but our lawyer advised
me not to antagonise the FDA, so we don't and have not shipped there since they
directed us not to.

Jasper

--- In helminthictherapy@yahoogroups.com, "lhowes58" <buckleyneko@...> wrote:
>
> In my recent research I've found that to obtain the hookworms from AIT I will
have to travel to Mexico or Canada. I have also not seen much information on
whipworm from AIT but I hear they offer it.
>
> I'm confused because it seems that through the OVAmed website, one can obtain
whipworm through the mail in the United States, but is this same thing true with
whipworm through AIT?
>
> The FDA is really on my bad side at the moment, and I'm trying to figure out
their illogical logic.
>

Has anyone here have any experience taking this therapy while suffering from
Sjogren's Syndrome or Sjogren's related symptoms: dry mouth, dry eyes, dry skin
etc. or Celiac disease?

I'm pretty curious.

While you are waiting, Google "neti pot".  You basically rinse your nose  /
sinuses with roughly normal saline.  It will not cure the cause but it can make
a huge difference in the side effects.

--- On Mon, 5/31/10, wking444 <wking444@...> wrote:

> From: wking444 <wking444@...>
> Subject: [helminthictherapy] Allergies, allergen immunotherapy and rhinitis
> To: helminthictherapy@yahoogroups.com
> Date: Monday, May 31, 2010, 11:52 PM
> Hi guys,
>
> I'm fairly new to this, but I have already read through
> much of this groups threads going back a few years.
>
> I have a few reservations that I wanted to get your
> opinions on first before I purchase some helminths.
>
> The first is to get your views on the safety of introducing
> hookworms whilst also undergoing intensive allergen
> immunotherapy shots, which I am at the moment.
>
> The second is about dosage. My top priority is to cure my
> severe nasal congestion, and I was wondering what the ideal
> dosage amount would be for this. I also suffer from severe
> asthma, but have found that it is largely caused by my
> mouth-breathing, so the rhinitis is what I want to tackle
> most. I would love to hear any reports you can pass on about
> people who have had positive or negative effects for their
> nasal congestion / rhinitis.
>
> I live in Australia and am not at all surprised to hear
> that a disproportionate percentage of Jasper's clients come
> from Down-Under. If there are any people (from Australia
> especially) that would be willing to communicate with me
> about their experience, I would really appreciate it.
>
> Thanks guys!
>
> (I have also messaged Jasper with these questions to get
> his opinion.)
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>     helminthictherapy-fullfeatured@yahoogroups.com
>
>
>

Hey mate, there's a few people here who've tried it with great results.  I'm
sure ul get a few replies.

On Tue, 01 Jun 2010 21:01 BST woolygimp wrote:

>Has anyone here have any experience taking this therapy while suffering from
Sjogren's Syndrome or Sjogren's related symptoms: dry mouth, dry eyes, dry skin
etc. or Celiac disease?
>
>I'm pretty curious.
>

would you consider reishi (Ganoderma lucidum)as problematic for the hookworms?

i d like to try something called "Phytocort" which contains about 400mg reishi
as one ingredients. i have ordered it, but now i am not sure if it could
threaten my hookworms. hmmm...

any opinion would be appreciated.

thanks noah:)

ps.: jasper, i like your hunter and gatherer pamphlet a lot. ;)

Hey mate, there's a few people here who've tried it with great results.  I'm
sure ul get a few replies.

On Tue, 01 Jun 2010 21:01 BST woolygimp wrote:

>Has anyone here have any experience taking this therapy while suffering from
Sjogren's Syndrome or Sjogren's related symptoms: dry mouth, dry eyes, dry skin
etc. or Celiac disease?
>
>I'm pretty curious.
>

FWIW For those people who read my blog posts, I have resumed blogging again.
Here is my most recent post: http://blog.autoimmunetherapies.com/lost_wanderer/

Best,
Jim

The gliadin antibodies behind Celiac Disease, Gluten Intolerance and Gluten
Ataxia do respond.  We have experience with the latter and there is a clinical
trial going on in Australia for Celiac Disease.  Will they reduce the
oversensitivity to accidental exposure that people who have been on a long term
gluten free diet?  Too soon to know.

--- On Tue, 6/1/10, woolygimp <woolygimp@...> wrote:

> From: woolygimp <woolygimp@...>
> Subject: [helminthictherapy] Any benefit to Sjogren's Syndrome or Celiac
Disease?
> To: helminthictherapy@yahoogroups.com
> Date: Tuesday, June 1, 2010, 1:01 PM
> Has anyone here have any experience
> taking this therapy while suffering from Sjogren's Syndrome
> or Sjogren's related symptoms: dry mouth, dry eyes, dry skin
> etc. or Celiac disease?
>
> I'm pretty curious.
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>     helminthictherapy-fullfeatured@yahoogroups.com
>
>
>

I am pleased to say that we have managed to develop a new method for isolating
and incubating whipworm ova. The method is much more reliable with a
significantly shorter incubation time.

I am starting to contact everyone who has expressed an interest in obtaining
whipworm over the last six months but please feel free to send me an email if
you are still interested and have not heard from me by the end of the week.

Marc

One of our first clients posts regularly here, CAL1700 I think is his screen
name, about his results for Sjogren's. he also posts his phone number and
invites calls.

Celiac responds very well to hookworm alone, but we have not had enough clients
to produce reliable stats on that one really, yet.

If you use the board search facility for Sjogren's you will no doubt find Cal's
posts and can contact him directly. I am not aware that any of our Celiac
clients participates on any forums.

Jasper

--- In helminthictherapy@yahoogroups.com, gary harpur <gary_harpur@...> wrote:
>
> Hey mate, there's a few people here who've tried it with great results.  I'm
sure ul get a few replies.
>
> On Tue, 01 Jun 2010 21:01 BST woolygimp wrote:
>
> >Has anyone here have any experience taking this therapy while suffering from
Sjogren's Syndrome or Sjogren's related symptoms: dry mouth, dry eyes, dry skin
etc. or Celiac disease?
> >
> >I'm pretty curious.
> >
>

I seriously doubt they would harm the worms from what little I have read of
them.

How do they taste? Have you ever eaten them other than compounded?

I like dried mushrooms, they have a musty smell I enjoy, I got a bag in Central
America and cooked them in a sauce and they had the texture of meat and an
interesting flavour.

Let me know if I am wrong ;-), or right.

Jasper

--- In helminthictherapy@yahoogroups.com, "noah20007" <noah20007@...> wrote:
>
> would you consider reishi (Ganoderma lucidum)as problematic for the hookworms?
>
> i d like to try something called "Phytocort" which contains about 400mg reishi
as one ingredients. i have ordered it, but now i am not sure if it could
threaten my hookworms. hmmm...
>
> any opinion would be appreciated.
>
> thanks noah:)
>
> ps.: jasper, i like your hunter and gatherer pamphlet a lot. ;)
>

Thank you for the explanation!

I sent a questionnaire towards the end of last week and I look forward to AIT's
response. This is continually getting me excited to try these guys.

jasper, thank you for your reishi feedback.
so far i have never eaten reishi consciously, so i cannot tell at all what they
taste like.
we will never know if you were right or wrong ;)
noah;);)


--- In helminthictherapy@yahoogroups.com, "jascallaw" <jascallaw@...> wrote:
>
> I seriously doubt they would harm the worms from what little I have read of
them.
>
> How do they taste? Have you ever eaten them other than compounded?
>
> I like dried mushrooms, they have a musty smell I enjoy, I got a bag in
Central America and cooked them in a sauce and they had the texture of meat and
an interesting flavour.
>
> Let me know if I am wrong ;-), or right.
>
> Jasper
>
> --- In helminthictherapy@yahoogroups.com, "noah20007" <noah20007@> wrote:
> >
> > would you consider reishi (Ganoderma lucidum)as problematic for the
hookworms?
> >
> > i d like to try something called "Phytocort" which contains about 400mg
reishi as one ingredients. i have ordered it, but now i am not sure if it could
threaten my hookworms. hmmm...
> >
> > any opinion would be appreciated.
> >
> > thanks noah:)
> >
> > ps.: jasper, i like your hunter and gatherer pamphlet a lot. ;)
> >
>

This message board which is one of the only outlets that I've found for
discussion on this topic seems to be moderated, but one of my concerns is that
posts have to be approved by the moderator, who I'm assuming is Jasper, who also
happens to be the one running the show.

What I mean, is that any therapy no matter how great will have varying degrees
of efficacy in different people, and there have to be people out there who have
tried for which it did not work.  Will those people with negative reviews, or
for which this therapy did not work, have an outlet to voice their opinion or
results or is their voice squelched if it's not approved?

I'm not saying the moderator will delete threads with criticism, but it is a
concern of mine that it's a possibility.  I just wish the forums were a bit more
open - because negative results are just as intriguing as positive ones as far
as how much it sways my decision whether or not to follow through.

Have there been people for whom this hasn't worked?  Are they allowed to post
criticism here?

A huge congratulations on success with the new method Marc, after all the
trials.

I'm eager for my new friends to arrive soon :)


--- In helminthictherapy@yahoogroups.com, "marc_dellerba" <marc@...> wrote:
>
> I am pleased to say that we have managed to develop a new method for isolating
and incubating whipworm ova. The method is much more reliable with a
significantly shorter incubation time.
>
> I am starting to contact everyone who has expressed an interest in obtaining
whipworm over the last six months but please feel free to send me an email if
you are still interested and have not heard from me by the end of the week.
>
> Marc
>

Can anyone here provide the document/links regarding how the FDA currently views
hookworm therapy and hookworm larvae?

I have been poking around the FDA website for a bit with no success.

Paul Badger
opensourcehelminththerapy.org

I know that people intested in Helminth Therapy have written to the
BioTherapeutics, Education and Research Foundation run by Dr. Ronald A Sherman,
and asked them to become a provider for Helminths. I also wrote recently and
asked him if BioTherapeutics would be interested in providing helminths.

The BioTherapeutics, Education and Research Foundation is a provider of both
maggots and leeches for medical use that are certified by the FDA as medical
devices. (Everyone admits it's a little weird to have an organism classified as
a medical device.)

In any case it turns out that the BioTherapeutics, Education and Research
Foundation is indeed interested in Helminth therapy and Dr. Sherman provided
this link to a nascent helminth page.

http://www.bterfoundation.org/helmintherapy

Dr. Sherman also informed me that he was working on a fall conference on
bio-therapeutics with several papers on helminth therapy, and was happy to have
the information publicized. Excerpts from the email are below.



Dear Mr. Badger -

Thank you for your letter and your interest in biotherapy.
Yes, we are an advocate of helmintherapy and helminthic therapy research.

Our web page on helmintherapy ( www.bterfoundation.org/helmintherapy) is not yet
finished, but I will do my best to update it as soon as possible. I have been
preoccupied with our upcoming International Conference on Biotherapy, scheduled
for November 11-14, 2010 in Los Angeles. Several prominent clinicians and
researchers in helminthic therapy will be lecturing at the conference. If you
are interested, it may be a good way to update yourself and meet the shakers and
movers of helminthic therapy. More information can be found at:  
www.bterfoundation.org/icb/icb2010.htm

While helminthic therapy is not readily available in the US at this time,
several clinical studies are being prepared for the near future. I am working
with one lab to put together one such clinical trial; and I know of at least one
other group that is preparing to launch their own study shortly. This would
allow Americans to access helmintherapy, under the umbrella of a clinical study.
We will announce updates in this in our newsletter. Feel free to subscribe, if
you wish, at www.bterfoundation.org/register

With best wishes,

/Ronald Sherman

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Ronald A. Sherman, MD, MSc, DTM&H
Retired, July, 2008; University of California, Irvine

Director, BioTherapeutics, Education and Research Foundation - a non-profit
Public Charity (501[c]3) advancing health care through education and research in
maggot therapy, leech therapy, and other biotherapies.    
www.BTERFoundation.org

I am 61 and recently diagnosed with progressive MS. Recent steroid drip was
useless. I have been helped a little psychologically by something called The
Lightening Approach but I am still looking for something more specific and
medics don't seem able to offer anything.

Could helminth therapy help this condition?
If so how do I go about getting infected?

Annie

hello,
I have a bunch of food allergies plus food intolerances, (that lead to
migraines) & my allergist is offering an immuno-therapy that even if successful,
still requires careful food rotation, so I am back to considering helminthic
therapy.  I am trying to look through older posts to learn what I can, (which I
was able to do a 6 months ago) but now that feature isn't working. is this a
temporary problem?  is there another way to search?  any insight on yahoo &/or
allegries/intolerance will be most appreciated!
-Abby