helminthictherapy : Messages : 3249-3278 of 9827

I think that American television & radio producers do not have much confidence in the intelligence of their audience. That assessment may be perfectly correct, considering the state of the American education system; the average American simply does not know much science. Ask one to name three things that are inside a cell, or what a prime number is and see what kind of response you get.

The "Alien" thing was probably, in the mind of the producer, a "way in" to the report for a population who would otherwise dismiss it as beyond their ken. As creepy an image the movie provided, it was a much loved and respected film, it worked on both the high and low brow levels and would have caused a large swathe of the population to perk up their ears.

Marya

Apropos of nothing, I called the doctors office this morning and left a message with the answering service saying " Alright, I give up, admit me (not through the ED)."
So my next contact with you all may be from the hermetically sealed hallways of OSUMC.
MD

--- On Wed, 9/9/09, marc_dellerba <marc@...> wrote:

From: marc_dellerba <marc@...>
Subject: [helminthictherapy] Re: NPR and RadioLab interview
To: helminthictherapy@yahoogroups.com
Date: Wednesday, September 9, 2009, 3:31 AM

Overall I thought it was OK, still trying to not get too irritated by the jokey, flippant American style of presenting serious material (those of you more familiar with BBC radio 4 will know there are better ways of presenting good science), the "Alien" start was errr... interesting.

Marc

Reply | Messages in this Topic (3)

#3251

From: Marya DeBlasi <marya_deblasi@...>
Date: Wed Sep 9, 2009 5:40 pm
Subject: Re: Re: To the Emergency Dept er, I mean Hospital

marya_deblasi

Deb, the woman who died on "Infectious Diseases" was pregnant, I think that is considered a big problem for H1N1.

I did not go into the ER yesterday evening for my CT scan appointment, because my temperature went up abruptly and I was busy throwing up my dinner. That is about when I capitulated. I was looking for a way to come to a mutual understanding, find the point of 'yes' between myself and the GI department, well my body pointed it out to me.

I am in the Hospital so often for flair ups that I know more about how to run the place than they do, I make sure nothing goes into my IV or into my mouth before I know what it is.
I dread the possibility that they may want a colonoscopy. The prep will be murderous on my shredded intestines, the thing is, unlike yourself, because I am completely empty afterwards, for a few days I feel great, lighter than air, with nothing to digest.

As for my Superfriends, I will guard these little buggers like a hawk, and if something happens and they shuffle off this mortal coil, I'll get in touch w/ Jasper and tell him I need a little help.
Yours,
Marya

Marya

--- On Wed, 9/9/09, deborawade37 <deborawade37@...> wrote:

From: deborawade37 <deborawade37@...>
Subject: [helminthictherapy] Re: To the Emergency Dept
To: helminthictherapy@yahoogroups.com
Date: Wednesday, September 9, 2009, 10:21 AM

Marya,

I would just be firm in your resolution of how you want your health to be managed. If you're committed to keeping the hookworms, just calmly explain that they are trialing this in U. of Nottingham, have already done tests at U. of Iowa with TSO, and you thought you'd give it a try too, since it seemed safer than your available medical choices. That you are most likely in the period of time where one reacts with inflammation, so you need that managed while you wait to see if the hookworms are going to help.

I'd question every medication, double check it before being administered. Perhaps ask for treatment but early release, since you don't feel comfortable with the risks of your hospital stay. Maybe you could find out more about the person who died; were they immunocompromised or otherwise unhealthy before contracting H1N1?

I've rarely been hospitalized for Crohn's, but when I have been in there, I am the inquisitive patient to the point of staff annoyance. And I have caught mistakes; drugs that were meant for another patient, food that I cannot eat, etc. You must have an advocate if you are too weak to advocate for yourself, and the constant shift changes mean you have to explain everything 4X a day.

The tough part is not having a GI. If no one gives you a recommendation, you can start asking around and phone interviewing some of them, stating that you are looking for someone to manage your difficult case, and explain what you are experimenting with. For your hospital stay, you will probably get whoever you get, but you could use your hours of bedtime to start phoning practices?

Good luck! I don't know what is done for fistulas and abscesses, most likely antibiotics and steroids are in your future? I hope the hookworms start working soon.

--- In helminthictherapy@ yahoogroups. com, Marya DeBlasi <marya_deblasi@ ...> wrote:
>
> I don't know if I've mentioned that I somehow lost my GI doctor in an academic shuffle. Just months after telling me she'd be my doctor until she died, a follow up appointment was canceled w/o my knowledge, and I was given several different vague stories by herself and others. She said something about how we'd hit a roadblock and she just didn't know what to do so she wanted a different set of eyes on me, Someone else said that she was to be spending more time teaching and less time in the clinic. The doctor she passed me off to said he didn't know.
>
> I can not ignore the fact that in the meeting we had before the canceled appointment I told her of my decision to go forward with helimnthic therapy.
>
> The Doctor that Dr Pfeil left me to, who she spoke highly of, summarily passed me off to one of the "fellows" in his practice, who doesn't know me and is rather lacking in interpersonal communication skills. So here's my question. Does anyone know a good Crohn's specialist in the Columbus Ohio Area. I'd be willing to go to Riverside (Ohio Health) or Mt Carmel (maybe less so, unless the doctor was really stellar.)
> If no one has a clue, perhaps someone has an idea of how to start a search.
>
> This evening I will be be reluctantly going to OSU Emergency Dept, because Dr no.3 said that having had multiple abcessess, I will need a CT scan. I was not really interested in having more radiation, I've had at least 10 CT scans so far. But I don't want to be admitted.
>
> For reasons of space the GI & Hepetology wards were combined with the Infectious Diseases ward last year. Someone just died of H1N1 on that ward last week. The idea that I could die of a secondary infection, while in the Hospital, set off alll my self preservation mechanisims. Will they let me have my scan, write me a 'script for some steroids and let me go until my next appointment? I doubt it, but it's worth negotiating. Right now, the discussion having not even started yet, we are stalled at no. I will not be admitted, they will not write the Steroids. We need a way to get beyond no, we need room to manuver (they could offer to put me on another floor, but I'd miss my GI nurces.)
> If any one had any ideas about this tactical negotiation, please feel free to speak up. I need all the advice I can get.
>
> In the meantime, I do probably have abcesses. In the morning, before I pass stool, great quantities of blood drain from me. My temperature in on a rollercoaster, only partially mitigated by Asprin, Tylenol and Motrin, alternately. And I haven't done anything for 3 days but sit in bed, sleep, surf the web, and force myself on occasion to eat (whose the fool here?)
>
> If you've gotten through all that, thanks for your time and energy, now all I need is your advice.
>
> Marya
>

Reply | Messages in this Topic (27)

#3252

From: "marc_dellerba" <marc@...>
Date: Wed Sep 9, 2009 6:22 pm
Subject: Peppermint oil

marc_dellerba

Hi everyone.

Peppermint oil is a common treatment for IBS in the UK. Could anyone who is
hosting worms and also taking this please let me know, I am just interested in
the dose people are taking.

Thanks for your help

Marc

#3253

From: "helminth.host" <helminth.host@...>
Date: Wed Sep 9, 2009 8:04 pm
Subject: Re: Price mechanism vs. bureaucracy to allocate scarce resources?

helminth.host

While the current system has some woeful deficiencies- the two biggest being
barriers to coverage for a sizable minority of the population, and sheer lack of
bang for the buck (costing twice as much per head as a Western European system
for worse outcomes, by and large), I am very unimpressed with what I have seen
of the plan to date.

I am terrified that this plan is going to just continue the exponential increase
in health care costs and other out of control entitlements spending that will
eventually eat up 100% of our GDP in just a few decades at current rates.  This
is the fear of many who are worried about this plan even though they are not
"death panel" nutjobs.  The plan will expand health care but not necessarily
health.  Ironically in almost every other field of advanced technology one keeps
getting more bang for the buck, because the consumer makes the decisions that
drive costs down.

There is an excellent article in the latest Atlantic magazine titled
"How American Health Care Killed My Father":

http://www.theatlantic.com/doc/200909/health-care

One quote from the article:
"Accidentally, but relentlessly, America has built a health-care system with
incentives that inexorably generate terrible and perverse results. Incentives
that emphasize health care over any other aspect of health and well-being. That
emphasize treatment over prevention. That disguise true costs. That favor
complexity, and discourage transparent competition based on price or quality.
That result in a generational pyramid scheme rather than sustainable financing.
And that�most important�remove consumers from our irreplaceable role as the
ultimate ensurer of value."

--- In helminthictherapy@yahoogroups.com, "jascallaw" <jascallaw@...> wrote:
>
> I find this interesting, on the home page of a major news site, CNN:
>
http://money.cnn.com/2009/09/08/news/economy/health_care_vaccinations/index.htm
>
> So the price mechanism in America is sending a clear signal in the middle of
the healthcare debate, that vaccines are not worth the hassle to the medical
services delivery industry to actually continue to deliver.
>
> And while we spend 16+% of our GDP on health care, and Europe spends 8+%, our
infant mortality rate is close to El Salvador's and our life expectancy is
almost three years less than Europe's we stand around agonizing because someone
attached the word Socialism to one side of the debate.
>
> While almost 50 million of our citizens don't have any choice we debate the
loss of choice one side says we will experience by introducing a scheme like
Medicare for all citizens.
>
> Surreal.
>
> Jasper
>

Reply | Messages in this Topic (2)

#3254

From: "l. c." <Cal1700@...>
Date: Thu Sep 10, 2009 12:49 pm
Subject: Re: Re: To the Emergency Dept er, I mean Hospital

cal1700

Marya,

I am finding that just printing off a couple medical journal articles showing the benefits of parasitic infections, and saying that I am trying this for my Sjogren's makes the MD's very accommodating.� By handing them the report to keep, they get new information, and cover their hind ends... so to speak.�

Basically, this is a simple strategy for me to follow, and makes the appointment much easier on me and the MD.

Also, in my case at least, there seems to be an increasing advantages to the longer at a time that I am able to keep my infection going- that is I think that steady long periods of time with the helmiths are needed in order to maximize results.� We have to be direct and firm that we do not want treatments that will harm our new "old friends" (the helmiths) if good alternatives exist, and the medical journal article for their file seems to help me in that regard.

BTW- The ONE Md who knew about this was very interested in my side effects, perceived benefits, etc.

Best wishes,

Cal

On Wed, Sep 9, 2009 at 10:40 AM, Marya DeBlasi <marya_deblasi@...> wrote:

�

Deb, the woman who died on "Infectious Diseases" was pregnant,� I think that is considered a big problem for H1N1.�

I did not go into the ER yesterday evening for my CT scan appointment, because my temperature went up abruptly and I was busy throwing up my dinner.� That is about when I capitulated.� I was looking for a way to come to a mutual understanding, find the point of 'yes' between myself and the GI department, well my body pointed it out to me.

I am in the Hospital so often for flair ups that I know more about how to run the place than they do,� I make sure nothing goes into my IV or into my mouth before I know what it is.�
I dread the possibility that they may want a colonoscopy. The prep will be murderous on my shredded intestines, the thing is, unlike yourself, because I am completely empty afterwards, for a few days I feel great, lighter than air, with nothing to digest.�

As for my Superfriends, I will guard these little buggers like a hawk, and if something happens and they shuffle off this mortal coil, I'll get in touch w/ Jasper and tell him I need a little help.
Yours,
Marya

Marya

--- On Wed, 9/9/09, deborawade37 <deborawade37@...> wrote:

From: deborawade37 <deborawade37@...>
Subject: [helminthictherapy] Re: To the Emergency Dept
To: helminthictherapy@yahoogroups.com
Date: Wednesday, September 9, 2009, 10:21 AM

�

Marya,

I would just be firm in your resolution of how you want your health to be managed. If you're committed to keeping the hookworms, just calmly explain that they are trialing this in U. of Nottingham, have already done tests at U. of Iowa with TSO, and you thought you'd give it a try too, since it seemed safer than your available medical choices. That you are most likely in the period of time where one reacts with inflammation, so you need that managed while you wait to see if the hookworms are going to help.

I'd question every medication, double check it before being administered. Perhaps ask for treatment but early release, since you don't feel comfortable with the risks of your hospital stay. Maybe you could find out more about the person who died; were they immunocompromised or otherwise unhealthy before contracting H1N1?

I've rarely been hospitalized for Crohn's, but when I have been in there, I am the inquisitive patient to the point of staff annoyance. And I have caught mistakes; drugs that were meant for another patient, food that I cannot eat, etc. You must have an advocate if you are too weak to advocate for yourself, and the constant shift changes mean you have to explain everything 4X a day.

The tough part is not having a GI. If no one gives you a recommendation, you can start asking around and phone interviewing some of them, stating that you are looking for someone to manage your difficult case, and explain what you are experimenting with. For your hospital stay, you will probably get whoever you get, but you could use your hours of bedtime to start phoning practices?

Good luck! I don't know what is done for fistulas and abscesses, most likely antibiotics and steroids are in your future? I hope the hookworms start working soon.

--- In helminthictherapy@ yahoogroups. com, Marya DeBlasi <marya_deblasi@ ...> wrote:
>
> I don't know if I've mentioned that I somehow lost my GI doctor in an academic shuffle. Just months after telling me she'd be my doctor until she died, a follow up appointment was canceled w/o my knowledge, and I was given several different vague stories by herself and others. She said something about how we'd hit a roadblock and she just didn't know what to do so she wanted a different set of eyes on me, Someone else said that she was to be spending more time teaching and less time in the clinic. The doctor she passed me off to said he didn't know.
>
> I can not ignore the fact that in the meeting we had before the canceled appointment I told her of my decision to go forward with helimnthic therapy.
>
> The Doctor that Dr Pfeil left me to, who she spoke highly of, summarily passed me off to one of the "fellows" in his practice, who doesn't know me and is rather lacking in interpersonal communication skills. So here's my question. Does anyone know a good Crohn's specialist in the Columbus Ohio Area. I'd be willing to go to Riverside (Ohio Health) or Mt Carmel (maybe less so, unless the doctor was really stellar.)
> If no one has a clue, perhaps someone has an idea of how to start a search.
>
> This evening I will be be reluctantly going to OSU Emergency Dept, because Dr no.3 said that having had multiple abcessess, I will need a CT scan. I was not really interested in having more radiation, I've had at least 10 CT scans so far. But I don't want to be admitted.
>
> For reasons of space the GI & Hepetology wards were combined with the Infectious Diseases ward last year. Someone just died of H1N1 on that ward last week. The idea that I could die of a secondary infection, while in the Hospital, set off alll my self preservation mechanisims. Will they let me have my scan, write me a 'script for some steroids and let me go until my next appointment? I doubt it, but it's worth negotiating. Right now, the discussion having not even started yet, we are stalled at no. I will not be admitted, they will not write the Steroids. We need a way to get beyond no, we need room to manuver (they could offer to put me on another floor, but I'd miss my GI nurces.)
> If any one had any ideas about this tactical negotiation, please feel free to speak up. I need all the advice I can get.
>
> In the meantime, I do probably have abcesses. In the morning, before I pass stool, great quantities of blood drain from me. My temperature in on a rollercoaster, only partially mitigated by Asprin, Tylenol and Motrin, alternately. And I haven't done anything for 3 days but sit in bed, sleep, surf the web, and force myself on occasion to eat (whose the fool here?)
>
> If you've gotten through all that, thanks for your time and energy, now all I need is your advice.
>
> Marya
>

Reply | Messages in this Topic (27)

#3255

From: Marya DeBlasi <marya_deblasi@...>
Date: Fri Sep 11, 2009 8:32 pm
Subject: wholesale slaughter

marya_deblasi

Finally, after eight hours in the ER and a long afternoon of sleeping in a sunless room, it was decided that I should have a growing abscess lanced by the surgeon. The anesthesiologist was perfectly amenable to an alternative to general anesthesia, no matter what the reason. The IV concoction used for colonoscopy was not used for surgery, she said, but a spinal would work; until she learned in the course of the cross examination, that I'd been having fevers for three weeks.

She brought up the specter of meningitis. worse than worm death, I'd wager. If someone was going to have to die on this trip it was going to be Superfriend, not me.

I don't feel any differently today than I did yesterday, soreness where the stitches are is similar to the soreness where the abscess was, no fevers, but this room is so hot is might as well be a sauna. But my worms are dead. I have to assume, as the anesthetic tube left a raw spot in the back of my throat.

I am comforted by the fact that my fellow travelers tell me that the reaction to the worms is less with each reinfection. The doctors from Infectious Diseases were comforted by nothing. You never saw such a collection of astonished, aghast, incredulous expressions in your life. I may as well have said that I was going to have myself intentionally infected by some pernicious third world parasite that was the bane of the 'WHO's existence. . . Oh, wait, I did. Never the less, I did my best to strongly suggest that they put their prejudices aside, look at the AIT web site and when in doubt, consider how the Small-Pox disease was discovered.

All of you who have been chastised by me for Irrational Exuberance, would have been astonished to seem me, dander up, wagging my finger at medical professionals. Doctors who were trying to contain their revulsion as I explained that one does not swallow N. americanus, it crawls its way up ones trachea on its way to the stomach. I might have been amused, myself, had I not been so angry. Judge me, goddamnit? Like hell you will, as I sit here bleeding while you can go home and eat anything you want!

There's a rumor by one of the surgery interns, clearly not in the loop, that I might be released tomorrow. I'm grabbing on to that and hanging like a pit bull. I'm going to shake it in the face of every comer. I'll be leaving tomorrow if I can only just make them sick of hearing me ask. But you'll know, what ever happens, because I'll write chapter two of this saga, and tell you what's happened to bearer of the dead worms.

#3256

From: "marc_dellerba" <marc@...>
Date: Fri Sep 11, 2009 11:01 pm
Subject: Re: wholesale slaughter

marc_dellerba

Marya

Its just good to hear you are well enough to be arguing with your doctors. If
you grab your anesthetist by the throat and squeeze hard enough you may be able
to find out what he used... Even if you have lost your worms this will be a
simple matter to put this right.

Marc

--- In helminthictherapy@yahoogroups.com, Marya DeBlasi <marya_deblasi@...>
wrote:
>
> Finally,� after eight hours in the ER and a long afternoon of sleeping in a
sunless room, it was decided that I should have a growing abscess lanced by the
surgeon.� The anesthesiologist was perfectly amenable to an alternative to
general anesthesia, no matter what the reason.� The IV concoction used for
colonoscopy was not used for surgery, she said, but a spinal would work; until
she learned in the course of the cross examination, that I'd been having fevers
for three weeks.
>
> She brought up the specter of meningitis.� worse than worm death, I'd wager.�
If someone was going to have to die on this trip it was going to be Superfriend,
not me.�
>
> I don't feel any differently today than I did yesterday, soreness where the
stitches are is similar to the soreness where the abscess was,� no fevers, but
this room is so hot is might as well be a sauna.� But my worms are dead.� I have
to assume, as the anesthetic tube left a raw spot in the back of my throat.
>
> I am comforted by the fact that my fellow travelers tell me that the reaction
to the worms is less with each reinfection.� The doctors from Infectious
Diseases were comforted by nothing.� You never saw such a collection of
astonished, aghast, incredulous expressions in your life.� I may as well have
said that I was going to have myself intentionally infected by some pernicious
third world parasite that was the bane of the 'WHO's existence. . . Oh, wait, I
did.� Never the less, I did my best to strongly suggest that they put their
prejudices aside, look at the AIT web site and when in doubt, consider how the
Small-Pox disease was discovered.
>
> All of you who have been chastised by me for Irrational Exuberance, would have
been astonished to seem me, dander up, wagging my finger at medical
professionals.� Doctors who were trying to contain their revulsion as I
explained that one does not swallow N. americanus, it crawls its way up ones
trachea on its way to the stomach.� I might have been amused, myself, had I not
been so angry.� Judge me, goddamnit?� Like hell you will, as I sit here bleeding
while you can go home and eat anything you want!
>
> There's a rumor by one of the surgery interns, clearly not in the loop, that I
might be released tomorrow.� I'm grabbing on to that and hanging like a pit
bull.� I'm going to shake it in the face of every comer.� I'll be leaving
tomorrow if I can only just make them sick of hearing me ask.� But you'll know,
what ever happens, because I'll write chapter two of this saga, and tell you
what's happened to bearer of the dead worms.
>

#3257

From: "marc_dellerba" <marc@...>
Date: Fri Sep 11, 2009 5:07 pm
Subject: Second questionnaire

marc_dellerba

To all those people who have been kind enough to fill in the second
questionnaire, thank you.

I am now trying to organise the data and tie this in with the way people
received their doses. I will post a summary of the results as soon as possible.

If the few people who have not had time to return the questionnaire could do
this, this would be greatly appreciated.

Thanks
Marc

#3258

From: "croma_clear1" <jlcandrb@...>
Date: Sat Sep 12, 2009 3:52 am
Subject: Re: wholesale slaughter

croma_clear1

Hi Mary

Hope you are outta there sooner.

All my best with your recovery

#3259

From: "jascallaw" <jascallaw@...>
Date: Sat Sep 12, 2009 4:02 am
Subject: Re: wholesale slaughter

jascallaw

Hi Marya,
I am very sorry to read about your ordeal, and am sorry to hear you have likely
lost your worms.

So we need to discuss your reinfection, as soon as you are ready. You are right
that reinfection does not result in side effects and that the benefit returns
much faster, typically within a few weeks. Now that the abscess has been drained
and you are on antibiotics I hope that will mean the end of your suffering. So
it is a matter of deciding what is best for you with the redosing.

Antibiotics do interfere with embryo production by helminths, so they must
sicken them at least, although they do not kill them. But, if you are able and
we feel it is appropriate I think reinfection while still on antibiotics would
be the best course. Antibiotics may interfere with efficacy for up to eight
weeks, so an early start is important if you are comfortable about it. If you
have not lost your worms a supplemental dose will restore efficacy much faster.

We probably want to wait until the abscess is clearly on the way to being
resolved, but obviously we need to discuss all the issues for you surrounding
reinfection/reinfestation.

I will call you tomorrow, Saturday to see how you are doing, assuming you may be
out of the hospital if that doctor is correct. Or, I will leave a message for
you to call when you are up to it.

I hope you get better soon Marya, its a pity we were not doing this five or ten
years ago so you could have avoided all this misery and all the tissue damage
you have experienced.

Jasper

#3260

From: "croma_clear1" <jlcandrb@...>
Date: Sat Sep 12, 2009 4:06 am
Subject: Isaac's Syndrome

croma_clear1

I have recently been diagnosed with having Isaac's Syndrome this is an
Autoimmune Condition

I have many Autoimmune Conditions and am trying the worms as we speak.

If anyone is interested in learning about Isaac's Syndrome you are welcome to
learn more at a new Isaac's Syndrome Forum I have created.

Or if you have cramps stiffness continual muscles twitches you would likely want
to look further at the site.

http://isaacsyndrome.proboards.com/

All my best

#3261

From: Marya DeBlasi <marya_deblasi@...>
Date: Sat Sep 12, 2009 4:47 am
Subject: Re: Re: wholesale slaughter

marya_deblasi

I expect the doctors will round in the morning. I will have them check the records for what it was they shoved down my throat.
M

--- On Fri, 9/11/09, marc_dellerba <marc@...> wrote:

From: marc_dellerba <marc@...>
Subject: [helminthictherapy] Re: wholesale slaughter
To: helminthictherapy@yahoogroups.com
Date: Friday, September 11, 2009, 7:01 PM

Marya

Its just good to hear you are well enough to be arguing with your doctors. If you grab your anesthetist by the throat and squeeze hard enough you may be able to find out what he used... Even if you have lost your worms this will be a simple matter to put this right.

Marc

--- In helminthictherapy@ yahoogroups. com, Marya DeBlasi <marya_deblasi@ ...> wrote:
>
> Finally, after eight hours in the ER and a long afternoon of sleeping in a sunless room, it was decided that I should have a growing abscess lanced by the surgeon. The anesthesiologist was perfectly amenable to an alternative to general anesthesia, no matter what the reason. The IV concoction used for colonoscopy was not used for surgery, she said, but a spinal would work; until she learned in the course of the cross examination, that I'd been having fevers for three weeks.
>
> She brought up the specter of meningitis. worse than worm death, I'd wager. If someone was going to have to die on this trip it was going to be Superfriend, not me.
>
> I don't feel any differently today than I did yesterday, soreness where the stitches are is similar to the soreness where the abscess was, no fevers, but this room is so hot is might as well be a sauna. But my worms are dead. I have to assume, as the anesthetic tube left a raw spot in the back of my throat.
>
> I am comforted by the fact that my fellow travelers tell me that the reaction to the worms is less with each reinfection. The doctors from Infectious Diseases were comforted by nothing. You never saw such a collection of astonished, aghast, incredulous expressions in your life. I may as well have said that I was going to have myself intentionally infected by some pernicious third world parasite that was the bane of the 'WHO's existence. . . Oh, wait, I did. Never the less, I did my best to strongly suggest that they put their prejudices aside, look at the AIT web site and when in doubt, consider how the Small-Pox disease was discovered.
>
> All of you who have been chastised by me for Irrational Exuberance, would have been astonished to seem me, dander up, wagging my finger at medical professionals. Doctors who were trying to contain their revulsion as I explained that one does not swallow N. americanus, it crawls its way up ones trachea on its way to the stomach. I might have been amused, myself, had I not been so angry. Judge me, goddamnit? Like hell you will, as I sit here bleeding while you can go home and eat anything you want!
>
> There's a rumor by one of the surgery interns, clearly not in the loop, that I might be released tomorrow. I'm grabbing on to that and hanging like a pit bull. I'm going to shake it in the face of every comer. I'll be leaving tomorrow if I can only just make them sick of hearing me ask. But you'll know, what ever happens, because I'll write chapter two of this saga, and tell you what's happened to bearer of the dead worms.
>

#3262

From: "marc_dellerba" <marc@...>
Date: Sat Sep 12, 2009 11:05 am
Subject: Re: Isaac's Syndrome

marc_dellerba

Hi Croma

The board looks interesting, I am in the process of joining now.

How sure of the diagnosis are your doctors and if you are being treated how
effective is the medications they use or is it too early to tell???

Marc

--- In helminthictherapy@yahoogroups.com, "croma_clear1" <jlcandrb@...> wrote:
>
> I have recently been diagnosed with having Isaac's Syndrome this is an
Autoimmune Condition
>
> I have many Autoimmune Conditions and am trying the worms as we speak.
>
> If anyone is interested in learning about Isaac's Syndrome you are welcome to
learn more at a new Isaac's Syndrome Forum I have created.
>
> Or if you have cramps stiffness continual muscles twitches you would likely
want to look further at the site.
>
> http://isaacsyndrome.proboards.com/
>
> All my best
>

#3263

From: "jascallaw" <jascallaw@...>
Date: Sat Sep 12, 2009 12:06 pm
Subject: Interesting link between lymphoma and TNF-alpha

jascallaw

From a paper on PubMed:

Monoclonal antibody-associated progressive multifocal leucoencephalopathy in
patients treated with rituximab, natalizumab, and efalizumab: a Review from the
Research on Adverse Drug Events and Reports (RADAR) Project.

Carson KR, Focosi D, Major EO, Petrini M, Richey EA, West DP, Bennett CL.
Department of Internal Medicine, Division of Medical Oncology, Siteman Cancer
Center, Washington University School of Medicine, St Louis, MO, USA.
Progressive multifocal leucoencephalopathy (PML) is a serious and usually fatal
CNS infection caused by JC polyoma virus. CD4+ and CD8+ T lymphopenia, resulting
from HIV infection, chemotherapy, or immunosuppressive therapy, are the primary
risk factors. The immune modulatory monoclonal antibodies rituximab,
natalizumab, and efalizumab have received regulatory approval in the USA and
Europe for treatment of non-Hodgkin lymphoma, rheumatoid arthritis, and chronic
lymphocytic leukaemia (Europe only); multiple sclerosis and Crohn's disease; and
psoriasis, respectively. Efalizumab and natalizumab administration is associated
with CD4+ T lymphopenia and altered trafficking of T lymphocytes into the CNS,
and rituximab leads to prolonged B-lymphocyte depletion. Unexpected cases of PML
developing in people who receive these drugs have been reported, with many of
the affected individuals dying from this disease. Herein, we review clinical
findings, pathology, epidemiology, basic science, and risk-management issues
associated with PML infection developing after treatment with these monoclonal
antibodies.
PMID: 19647202 [PubMed - indexed for MEDLINE]

URL: http://www.ncbi.nlm.nih.gov/pubmed/19647202

Inflammation is a common mechanism by which some cancers spread, recruiting the
immune system to do their work. Interesting that some of the anti-tnf-a drugs
should be used to treat it, it suggests therefore that helminths might protect
against the development of some cancers.

Does anyone know the epidemiology, the incidence of Non Hodgkins Lymphoma in the
industrialized world over the last sixty years?

Take this as wild speculation, not a claim that helminths might be a therapy for
this or any other cancer.

Jasper

#3264

From: "croma_clear1" <jlcandrb@...>
Date: Sat Sep 12, 2009 1:43 pm
Subject: Re: Isaac's Syndrome

croma_clear1

Hi marc

Hey thanks for joining and checking the forum out !

Well the Doc saw a video I recorded of the spasms and twitches and from that and
the symptoms I described he was 99% sure.

The anti-body tests only show positive in 40% of cases.
Im still awaiting results..but whatever the result..the diagnosis will remain...

The treatments... You have the usual Immunosuppressing range of meds which work
with this as well as with all Autoimmune conditions.
And then you have the Anti-epileptic/seizure meds which can help. It could be a
combo or trial and error to find somethin hopefully that works.

Are they worm friendly though ?!

Progression is unknown as its a rare one..some seem to progress rapidly ..some
have had it for many years..mines kicked up since January this year so pretty
quickly gone bad.

Currently investigating foods that may make the symptoms worse..and hopefully
find some that make it better (blocking / unblocking of potassium channels)

Cheers

--- In helminthictherapy@yahoogroups.com, "marc_dellerba" <marc@...> wrote:
>
> Hi Croma
>
> The board looks interesting, I am in the process of joining now.
>
> How sure of the diagnosis are your doctors and if you are being treated how
effective is the medications they use or is it too early to tell???
>
> Marc
>
> --- In helminthictherapy@yahoogroups.com, "croma_clear1" <jlcandrb@> wrote:
> >
> > I have recently been diagnosed with having Isaac's Syndrome this is an
Autoimmune Condition
> >
> > I have many Autoimmune Conditions and am trying the worms as we speak.
> >
> > If anyone is interested in learning about Isaac's Syndrome you are welcome
to learn more at a new Isaac's Syndrome Forum I have created.
> >
> > Or if you have cramps stiffness continual muscles twitches you would likely
want to look further at the site.
> >
> > http://isaacsyndrome.proboards.com/
> >
> > All my best
> >
>

#3265

From: Marya DeBlasi <marya_deblasi@...>
Date: Sat Sep 12, 2009 5:08 pm
Subject: going home

marya_deblasi

Yes, they're liberating me today. It must be the recession because I don't think I've ever been sent home so soon. I'm on Medicare and they probably can't affoard me.

They have me following up closely with the infectious disease guy, now that they know about my Superfriends. There is one guy over there, rather highly placed in the department, I believe, and an incredibly caring and attentive doctor, who I am sure I can work with, whether he thinks I am nuts or not.

We got the question of who my GI physician is somewhat squared away. Dr Pfeil is moving to administration, Dr Meice is my doctor, apparently, whether he knows it or not. I will be following up with him. I will miss doctor Pfeil, she is an exceptional clinician, I do not know what kind of administrator she will make, but it is the state of the universe that the best people are always promoted out the the positions they excell at.

I am now waiting only for my ride home, but I thought it only polite of me to post, since I told you I would. I will be intouch with Jasper today or tomorrow to discuss reinnoculation. In the mean while, my best to each and every one of you Fellow Travelers.
Marya

#3266

From: "marc_dellerba" <marc@...>
Date: Sat Sep 12, 2009 5:16 pm
Subject: Re: Isaac's Syndrome

marc_dellerba

Hi Croma

It was the anti-epileptics I was interested in. No they should not cause any
problems with the worms, but I sincerely hope they help with your symptoms. let
us know how you get on.

good luck

Marc


--- In helminthictherapy@yahoogroups.com, "croma_clear1" <jlcandrb@...> wrote:
>
> Hi marc
>
> Hey thanks for joining and checking the forum out !
>
>
> Well the Doc saw a video I recorded of the spasms and twitches and from that
and the symptoms I described he was 99% sure.
>
> The anti-body tests only show positive in 40% of cases.
> Im still awaiting results..but whatever the result..the diagnosis will
remain...
>
> The treatments... You have the usual Immunosuppressing range of meds which
work with this as well as with all Autoimmune conditions.
> And then you have the Anti-epileptic/seizure meds which can help. It could be
a combo or trial and error to find somethin hopefully that works.
>
> Are they worm friendly though ?!
>
> Progression is unknown as its a rare one..some seem to progress rapidly ..some
have had it for many years..mines kicked up since January this year so pretty
quickly gone bad.
>
> Currently investigating foods that may make the symptoms worse..and hopefully
find some that make it better (blocking / unblocking of potassium channels)
>
>
> Cheers
>
>
>
>
> --- In helminthictherapy@yahoogroups.com, "marc_dellerba" <marc@> wrote:
> >
> > Hi Croma
> >
> > The board looks interesting, I am in the process of joining now.
> >
> > How sure of the diagnosis are your doctors and if you are being treated how
effective is the medications they use or is it too early to tell???
> >
> > Marc
> >
> > --- In helminthictherapy@yahoogroups.com, "croma_clear1" <jlcandrb@> wrote:
> > >
> > > I have recently been diagnosed with having Isaac's Syndrome this is an
Autoimmune Condition
> > >
> > > I have many Autoimmune Conditions and am trying the worms as we speak.
> > >
> > > If anyone is interested in learning about Isaac's Syndrome you are welcome
to learn more at a new Isaac's Syndrome Forum I have created.
> > >
> > > Or if you have cramps stiffness continual muscles twitches you would
likely want to look further at the site.
> > >
> > > http://isaacsyndrome.proboards.com/
> > >
> > > All my best
> > >
> >
>

#3267

From: "l. c." <Cal1700@...>
Date: Sat Sep 12, 2009 9:19 pm
Subject: Re: Second questionnaire

cal1700

Hi Marc,

�

I can't find that I completed your email.� I think I did, but just let me know if I have not, and I will look it up.

�

Also, my eosiniphills are still 3X the high normal levels, I feel great!

�

Karl

On Fri, Sep 11, 2009 at 10:07 AM, marc_dellerba <marc@...> wrote:

�

To all those people who have been kind enough to fill in the second questionnaire, thank you.

I am now trying to organise the data and tie this in with the way people received their doses. I will post a summary of the results as soon as possible.

If the few people who have not had time to return the questionnaire could do this, this would be greatly appreciated.

Thanks
Marc

#3268

From: "marc_dellerba" <marc@...>
Date: Sun Sep 13, 2009 12:14 pm
Subject: Re: Second questionnaire

marc_dellerba

Hi Karl, yes you did and thank you for finding the time to complete the
questionnaire. Great news you are still feeling well.

Interesting about the eosinophils,If people were getting more regular blood
tests and willing to share their results we may be able to make some sense of
the levels. The few results I have seen suggest the existing medical literature
is not particularly representative.

Take care and I hope continue to feel great!

Marc

--- In helminthictherapy@yahoogroups.com, "l. c." <Cal1700@...> wrote:
>
> Hi Marc,
>
> I can't find that I completed your email.  I think I did, but just let me
> know if I have not, and I will look it up.
>
> Also, my eosiniphills are still 3X the high normal levels, I feel great!
>
> Karl
>
> On Fri, Sep 11, 2009 at 10:07 AM, marc_dellerba <
> marc@...> wrote:
>
> >
> >
> > To all those people who have been kind enough to fill in the second
> > questionnaire, thank you.
> >
> > I am now trying to organise the data and tie this in with the way people
> > received their doses. I will post a summary of the results as soon as
> > possible.
> >
> > If the few people who have not had time to return the questionnaire could
> > do this, this would be greatly appreciated.
> >
> > Thanks
> > Marc
> >
> >
> >
>

#3269

From: "jascallaw" <jascallaw@...>
Date: Mon Sep 14, 2009 5:59 am
Subject: Interesting

jascallaw

this may be a duplicate to another member's post but it is promising for those
with children with Crohn's, although with limits:

http://www.sciencedaily.com/releases/2009/06/090616122119.htm

Although I think the long term health effects of this approach may turn out to
be less than ideal, (just look at TPN and the idea that a synthetic food could
be complete is absurd), for getting IBD under control in a sick child it sounds
very effective.

And any approach that relies on nutrition over dangerous drugs has to be better.

""In adults, studies have shown that steroids are more effective in the battle
against IBD than nutrition-based therapies. I think it is easier to get
compliance from children, especially when it involves their growth. For adults,
growth is not a concern � they just want to feel better," explains Dr. Shamir."

Jasper

#3270

From: "gary_harpur" <gary_harpur@...>
Date: Mon Sep 14, 2009 8:51 am
Subject: Helminthic Therapy and Dementia

gary_harpur

Any word out there on helminths and dementia?

Reply | Messages in this Topic (13)

#3271

From: "kimberly_studio" <kimberly_studio@...>
Date: Mon Sep 14, 2009 2:55 pm
Subject: Hello, I am new to this forum...

kimberly_studio

Hi I am considering on getting the therpy, Has anyone on here been hurt or had
awful side effects...??

#3272

From: "deborawade37" <deborawade37@...>
Date: Mon Sep 14, 2009 4:12 pm
Subject: Re: Second questionnaire

deborawade37

My eosiniphils have never risen higher than 192 (normal being <500.)  Two months
ago, I got a reading of 0.  Then the next month it was 126.  I was 0 before
hookworms, but not always. Hasn't proven to be a very useful tool to assess
whether or not I'm infected. Now I do my own egg counts to try to keep track of
things.

--- In helminthictherapy@yahoogroups.com, "marc_dellerba" <marc@...> wrote:
>
> Interesting about the eosinophils,If people were getting more regular blood
tests and willing to share their results we may be able to make some sense of
the levels. The few results I have seen suggest the existing medical literature
is not particularly representative.
>
>
>
> --- In helminthictherapy@yahoogroups.com, "l. c." <Cal1700@> wrote:
> >
> > Hi Marc,
> >
> > Also, my eosiniphills are still 3X the high normal levels, I feel great!
> >
> > Karl
> >

#3273

From: "deborawade37" <deborawade37@...>
Date: Mon Sep 14, 2009 4:06 pm
Subject: Did another egg count: 7 months in after reinfection with 10 hookworms

deborawade37

Just did another egg count, since I've had more pain and loose stools. Wanted to
make sure my hookworms were still in there. I used the McMaster method described
here:

http://www.docstoc.com/docs/599020/Macmaster-counting-Technique-ppt

I'm 7 months in after reinfection with 10 hookworms for Crohn's disease.
Quantitative egg count = 1050 epg, which was roughly the same as 6 months, and 4
months, so, good steady egg production. It will be interesting to see when this
declines, and whether or not it is connected to a decline in efficacy?

I'm just glad my hookworms are still fecund.  It's very reassuring to have a
microscope on hand, when symptoms return temporarily.  Now I know it's not due
to loss of worms.

#3274

From: Marya DeBlasi <marya_deblasi@...>
Date: Mon Sep 14, 2009 8:42 pm
Subject: Re: Hello, I am new to this forum...

marya_deblasi

Hi, Kimberly,
Many people should probably reply to your query, but just in case, as s a client, Id like to say that I've not been hurt by my hook worms, but in the first phases, as your body tries to make sense of the fact that it has helminths suddenly living in it, the side effects can be disconcerting.

I just lost my worms, because I had general anesthesia. AIT will kindly reinoculate me for the cost of shipping, and I am told by people who know more than myself, that every time you reinnoculate, things are a little easier.
Good luck
Marya

PS: you can check out my very brief blog to have some idea of the daily life of a person w/ Crohn's and on worms, is like.

--- On Mon, 9/14/09, kimberly_studio <kimberly_studio@...> wrote:

From: kimberly_studio <kimberly_studio@...>
Subject: [helminthictherapy] Hello, I am new to this forum...
To: helminthictherapy@yahoogroups.com
Date: Monday, September 14, 2009, 10:55 AM

Hi I am considering on getting the therpy, Has anyone on here been hurt or had awful side effects...??

#3275

From: Hazel Kennedy <hazelkennedy@...>
Date: Tue Sep 15, 2009 7:22 am
Subject: Re: Hello, I am new to this forum...

hazelkennedy...

I took part in a trial(allergy) & had 10 worms. I had gas for a few days & that was it. I even kept then for 18 months. Unfortunately they did not work for me. Interestingly from the trial, it appears that people who were more symptomatic from the infestation went on to get the greatest improvements.

My instincts were, I was happier to take part in the trial, than take many conventional drugs prescribed for my condition.

I would love to try the therapy to have a greater number of worms, but I do not have the funds.

It is wise of you to ask as many questions as possible.

Best wishes

Judy

--- On Mon, 14/9/09, Marya DeBlasi <marya_deblasi@...> wrote:

From: Marya DeBlasi <marya_deblasi@...>
Subject: Re: [helminthictherapy] Hello, I am new to this forum...
To: helminthictherapy@yahoogroups.com
Date: Monday, 14 September, 2009, 8:42 PM

Hi, Kimberly,
Many people should probably reply to your query, but just in case, as s a client, Id like to say that I've not been hurt by my hook worms, but in the first phases, as your body tries to make sense of the fact that it has helminths suddenly living in it, the side effects can be disconcerting.

I just lost my worms, because I had general anesthesia. AIT will kindly reinoculate me for the cost of shipping, and I am told by people who know more than myself, that every time you reinnoculate, things are a little easier.
Good luck
Marya

PS: you can check out my very brief blog to have some idea of the daily life of a person w/ Crohn's and on worms, is like.

--- On Mon, 9/14/09, kimberly_studio <kimberly_studio@ yahoo.com> wrote:

From: kimberly_studio <kimberly_studio@ yahoo.com>
Subject: [helminthictherapy] Hello, I am new to this forum...
To: helminthictherapy@ yahoogroups. com
Date: Monday, September 14, 2009, 10:55 AM

Hi I am considering on getting the therpy, Has anyone on here been hurt or had awful side effects...??

#3276

From: "croma_clear1" <jlcandrb@...>
Date: Tue Sep 15, 2009 1:54 pm
Subject: AutoimmuneTherapies - Great Service - Thankyou for you efforts !

croma_clear1

Ive missed the questionnaire but I just wanted to thank the team at
Autoimmunetherapies.

If this were ebay Id give Autoimmunetherapies 5Stars*****

Any people thinking about this therapy....go with Autoimmunetherapies...I can
say easily that they are trustworthy and trusting.

Thats Service !
Im on the other side of the planet and yet for me they have gone out of their
way to assist time and again with therapy for my conditions.

They are polite well informed and understanding.

You couldnt ask for a better team looking out for your welfare.

Thanks to Jasper, Marc, and Michelle for their continued efforts on behalf of
the sick and needy.....one of those being me  : )

And no I wasnt prompted to say this..nor did I get paid for it.

Im just another patient, ...so good luck with your treatment

All my best

Cheers

Reply | Messages in this Topic (3)

#3277

From: "jimlock32" <jimlock32@...>
Date: Tue Sep 15, 2009 4:39 pm
Subject: Re: Helminthic Therapy and Dementia

jimlock32

Here is everything I found about Alzheimer's.
http://blog.autoimmunetherapies.com/lost_wanderer/2009/08/15/alzheimers/

and, given its connection to diabetes, here is what I found regarding that
disease.
http://blog.autoimmunetherapies.com/lost_wanderer/2009/09/12/diabetes/

Best,
Jim

-- In helminthictherapy@yahoogroups.com, "gary_harpur" <gary_harpur@...> wrote:
>
> Any word out there on helminths and dementia?
>

Reply | Messages in this Topic (13)

#3278

From: "kimberly_studio" <kimberly_studio@...>
Date: Tue Sep 15, 2009 5:29 pm
Subject: Hello

kimberly_studio