Someone accused me of sarcasm when my thanks for Marya's beautifully worded and
reasoned post was approved.

I don't say thank you enough for the wonderfully reasoned and worded things that
get posted to this forum often, Marya is by no means alone in having posted
articulate and well-written things here.

Please do not feel neglected, I enjoy everyone that fits that category, I just
do not acknowledge it enough.

I was, and am, sincere, in my appreciation of well-written posts. And I feel
fortunate to have met so many thoughtful, intelligent and kind people through
doing this.

Thanks to each and everyone of you that I regard as friends, even if I do not
express that to you. You are a gift.

Jasper

--- In helminthictherapy@yahoogroups.com, "Jasper Lawrence" <jascallaw@...>
wrote:
>
> I just wanted say what a beautifully written and articulate post this was.
>
> Thanks,
>
> Jasper
>
> --- In helminthictherapy@yahoogroups.com, Marya DeBlasi <marya_deblasi@>
wrote:
> >
> > Judy:
> > In re. your comment: To dismiss something as life changing as a diet simply
because you
> > perceive there are fanatics surrounding it seems to me simply an excuse
> > to not have to give up favorite foods.
> > Sure, I'll cop to that.  No problem there.  That was the seed of my SCD
rejection.  The reason I was bereft when I tried the diet is because I felt that
I'd lost my cultural identity, and through that, some point of attachment to my
essence.   How's that for quasi magical thinking.
> >
> > Rachel:
> > I'm going to try the vinegar in Pea Soup suggestion.  I love pea soup so
much I can not tell you.  Sometimes I'll go out and buy a small ham & freeze it
portions, just so I can have the bone for pea soup.  (FYI to anyone who cooks,
ham stock is also miraculous in seafood Chowders.)
> >
> > Ugh, the demons of random chance and heritability chose the wrong primate to
give this disease to.  Food is what I love; cooking it, eating it, sharing it,
learning about it.  Now I sit here with this sore in my mouth, wondering if it
is Crohn's or just stress, down to 113 pounds, from not eating.
> >
> >
> >
> >
> >
> >
> >
> >
> > --- On Fri, 5/29/09, Jasper Lawrence <jascallaw@> wrote:
> >
> > From: Jasper Lawrence <jascallaw@>
> > Subject: [helminthictherapy] Re: Diet and Crohn's
> > To: helminthictherapy@yahoogroups.com
> > Date: Friday, May 29, 2009, 4:12 PM
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > I have heard similar stories from others, both with autism and Crohn's
and UC.
> >
> >
> >
> > It varies from person to person, just as the ideal dosage for hookworm and
whipworm varies.
> >
> >
> >
> > --- In helminthictherapy@ yahoogroups. com, "judyhope2004" <judyhope@ .>
wrote:
> >
> > >
> >
> > > The Specific Carbohydrate Diet saved my son's life. He went from having
15-20 mucus diarrheas a day, vomiting continually, being drastically underweight
and facing a feeding tube to being off all 6 of his gut meds, having one to two
formed BMs per day, gaining 15 pounds in the first year alone, etc. I work as a
nutritionist with many, many families with phenominally sick children and no
treatment I have ever seen (or tried) can compare to SCD. To dismiss something
as life changing as a diet simply because you perceive there are fanatics
surrounding it seems to me simply an excuse to not have to give up favorite
foods.
> >
> > >
> >
> > > The diet, when done properly, can bring about miracles. The foods are
delicious, nutritious and weight can be increased, maintained or decreased as
needed.
> >
> > >
> >
> > > Parasites are, by the way, the only other really effective treatment I've
seen in my own son and in the other people I work with. Certainly, the
combination of the two seems ideal.
> >
> > >
> >
> > > There are no studies done on SCD because there's no money to do such a
study. There's plenty though in the medical literature supporting the idea that
complex carbs are involved in the creation of IBD and high fructose (simple
sugar) consumption is negatively correlated with IBD. See below.
> >
> > > Judy
> >
> > > ____________ ____
> >
> > > Gut. 1997 Jun;40(6):754- 60. Links
> >
> > > Pre-illness dietary factors in inflammatory bowel disease.Reif S, Klein I,
Lubin F, Farbstein M, Hallak A, Gilat T.
> >
> > > Department of Gastroenterology, Tel Aviv Sourasky Medical Center, Israel.
> >
> > >
> >
> > > BACKGROUND: The effect of environmental factors has been demonstrated in
the pathogenesis of inflammatory bowel disease (IBD). Nutrition may be one of
them. AIM: To investigate the pre-illness diet in patients with recent IBD in
comparison with matched population and clinic controls. METHODS: Quantified
dietary histories were obtained from 87 patients with recent IBD (54 ulcerative
colitis (UC) and 33 Crohn's disease (CD)) and 144 controls. Odds ratios (OR) for
IBD were derived for intake levels of various foods. RESULTS: A high sucrose
consumption was associated with an increased risk for IBD (OR 2.85 (p = 0.03)
against population controls and 5.3 (p = 0.00) against clinic controls). Lactose
consumption showed no effect while fructose intake was negatively associated
with risk for IBD (NS). Similar trends were noted in UC and CD. A high fat
intake was associated with an increased risk for UC; this was particularly
marked for animal fat (OR 4.09, p =
> > 0.02) and cholesterol (OR 4.57, p = 0.02). A high intake of fluids (p =
0.04), magnesium (p = 0.04), vitamin C, and fruits (NS) was negatively
associated with the risk for IBD, while a positive association was found for
retinol (p = 0.01). Most of the findings were similar in UC and CD except for
potassium and vegetable consumption which showed a negative association only
with risk for CD. CONCLUSIONS: An association was found between pre-illness diet
and subsequent development of UC and CD. The effect of dietary components may be
primary or modulatory.
> >
> > >
> >
> > >
> >
> > >
> >
> > > --- In helminthictherapy@ yahoogroups. com, Marya DeBlasi <marya_deblasi@
> wrote:
> >
> > > >
> >
> > > > With regard to the Specific Carbohydrate Diet. The people who talk
about it seem more like the religiously converted than the scientifically
persuaded; that's a bunch I prefer to avoid, like the plague. There are those
who look at we worm swallowers as though we were snake handlers, but we've got
science to show for our convictions. Has anyone done a study on the SCD?
> >
> > > >
> >
> > > > Relatedly, in re. fiber. I find that if I do not have a lettuce salad
with dinner, it becomes awfully difficult to pass what I have eaten later. That
would seem to contradict the SCD, but considering that Percasette was making me
feel better in the short term and tearing up my colo-rectal lining in the long
term, I can not be convinced that greens are the best thing for me in the long
run. I adore green vegetables and it would distress me to have to give them up
for years, nevertheless, I will look at the website Debora provided, try to put
my preducies aside and see what it says, not what I read into it.
> >
> > > > Marya.
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > > ____________ _________ _________ __
> >
> > > > From: deborawade37 <deborawade37@ >
> >
> > > > To: helminthictherapy@ yahoogroups. com
> >
> > > > Sent: Thursday, May 28, 2009 9:49:55 AM
> >
> > > > Subject: [helminthictherapy] Re: boing boing - the word is getting out
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > > I found the Specific Carbohydrate Diet to be a comforting guide. They
have a website that lists easiest to digest foods to harder ones: (scroll down)
> >
> > > >
> >
> > > > http://www.pecanbre ad.com/new/ scdfoods1. html#beyond
> >
> > > >
> >
> > > > The premise is you start out with a mostly fiber-free diet for a few
days (chicken soup with the vegis removed, if necessary, plain boiled or steamed
meats, jello, and cheesecake made with either dry curd cottage cheese, or
homemade yogurt (fermented for 30 hours so as much as the lactose is converted
as possible - it's also an excellent, cheap probiotic source). Then after a few
days, you add one food at a time to test your tolerance. Usually things like
peeled and deseeded zucchini, applesauce with the skins removed, etc. It's
geared for IBD and diarrhea, though now used in autism (the above website is for
autism). You cook with blanched almond flour, remove all grains and sugars
except for honey, and eat all cooked fruits and vegetables until you slowly
tolerate raw.
> >
> > > >
> >
> > > > Beans and lentils are saved for when you are symptom free. I never was
able to tolerate them. This diet made a huge difference for me, and I stayed on
it for 7 years. But I must say, the worms have allowed me to stray off of it
considerably, although I would probably be better off with mostly fruits, cooked
vegis, meats, and almond flour goods. It is a very healthy diet.
> >
> > > >
> >
> > > > There are many people who put their IBD in remission with SCD. I was on
their yahoo group for years, and met the author Elaine Gottschall. You read
about the success stories all over the place on IBD sites. It kept me in
remission until an antibiotic shot, and then it helped me from getting worse,
but I was never 100% after that.
> >
> > > >
> >
> > > > http://www.breaking theviciouscycle. info/
> >
> > > >
> >
> > > > --- In helminthictherapy@ yahoogroups. com, Marya DeBlasi
<marya_deblasi@ ...> wrote:
> >
> > > > >
> >
> > > > > Maybe that is my problem, why I suffer so sometimes.
> >
> > > > > I haven't the slightest idea what to eat or not eat. Dr Pfeil has
always said to go with what works for my body?!?!
> >
> > > > >
> >
> > > > > I find that the idea of beer or wine will often turn my stomach, and I
can no longer take coffee black, even w/ cream and sugar I have only a small cup
in the morning and don't touch it again until the next day.
> >
> > > > > Tea, however, I can drink by the gallons full.
> >
> > > > >
> >
> > > > > As for solid food, insoluble fiber, such as found in bean skins and
some vegetable peelings, is murderous to pass; so I pass, so to speak.
> >
> > > > >
> >
> > > > > Has any one accumulated more clear guidelines on what should and
should not be eaten and why? What do you others who have Crohn's do?
> >
> > > > >
> >
> > > > > Marya
> >
> > > > >
> >
> > > > > --- On Wed, 5/27/09, deborawade37 <deborawade37@ ...> wrote:
> >
> > > > >
> >
> > > > > From: deborawade37 <deborawade37@ ...>
> >
> > > > > Subject: [helminthictherapy] Re: boing boing - the word is getting out
> >
> > > > > To: helminthictherapy@ yahoogroups. com
> >
> > > > > Date: Wednesday, May 27, 2009, 3:45 PM
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > > Well, I pushed the envelope on Memorial Day and BBQ, bourbon,
and beer + a glass of wine resulted in the flu. I thought my headache was a
hangover, which I haven't experienced since college days, but when I started
getting a fever, I realized that even those with hookworms can weaken their
immune system by overindulgence.
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > > And beer gives me gas, alas. Perhaps upping my worm count will allow
me to become an alcoholic?
> >
> > > > >
> >
> > > > >
> >
> > > > >
> >
> > > > > --- In helminthictherapy@ yahoogroups. com, "michelledellerba"
<michelledellerba@ ...> wrote:
> >
> > > > >
> >
> > > > > >
> >
> > > > >
> >
> > > > > > I read the posts on Boingboing aswell, and was equally impressed.
Debora eating pizza and drinking beer! She really must be feeling alot better,
I'm so pleased that her health seems to be returning. This is great news for all
CD's people, very encouraging.
> >
> > > > >
> >
> > > > > > Michelle
> >
> > > > >
> >
> > > > > >
> >
> > > > >
> >
> > > > > >
> >
> > > > >
> >
> > > > > >
> >
> > > > >
> >
> > > > > > --- In helminthictherapy@ yahoogroups. com, Marya DeBlasi
<marya_deblasi@ > wrote:
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > > I have been reading boingboing.net a couple of times a week for
years. The people who run that site are
> >
> > > > >
> >
> > > > > > > well informed curious individual. The fact that their interests
brought them directly to the salient fact of my life,
> >
> > > > >
> >
> > > > > > > Crohn's disease, made me smile.
> >
> > > > >
> >
> > > > > > > I was pleased to see Debora Wade's comments, they were cogent and
sharp. As soon as I can remember my Boingboing
> >
> > > > >
> >
> > > > > > > password, I'll comment too. There are too many people out there
who do not understand the unmitigated misery
> >
> > > > >
> >
> > > > > > > an auto-immune disease can inflict upon one. they become
frightened and judgmental and say nasty things. But they can
> >
> > > > >
> >
> > > > > > > be educated. Often it seems that those who are the first to say
not never, not me; will respond when they understand
> >
> > > > >
> >
> > > > > > > how much a loved one might be helped.
> >
> > > > >
> >
> > > > > > > Good luck to us all
> >
> > > > >
> >
> > > > > > > Marya
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > > ____________ _________ _________ __
> >
> > > > >
> >
> > > > > > > From: jimlock32 <jimlock32@>
> >
> > > > >
> >
> > > > > > > To: helminthictherapy@ yahoogroups. com
> >
> > > > >
> >
> > > > > > > Sent: Tuesday, May 26, 2009 7:04:19 PM
> >
> > > > >
> >
> > > > > > > Subject: [helminthictherapy] boing boing - the word is getting out
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > > Boing boing is a very popular site, which has just discovered
helminthic therapy. As a good sign, the comments by readers on the story aren't
overwhelmingly smart-ass, as it seems is usually the case. They tend towards a
bright techno-geek readership, as far as I can tell.
> >
> > > > >
> >
> > > > > > > http://www.boingboi ng.net/2009/ 05/26/is- crohns-disease- on.html
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > > > and the story links to:
> >
> > > > >
> >
> > > > > > > http://cbs5. com/health/ hookworm. treatment. therapy.2.
1016319.html
> >
> > > > >
> >
> > > > > > >
> >
> > > > >
> >
> > > > > >
> >
> > > > >
> >
> > > >
> >
> > >
> >
>