Last night I thought I heard people breaking in. I swore I heard them. Today I volunteered at the Gleaners. I was there for three hours. We get everything done...
Added more pictures today. Mostly of us with animals. My family loves animals. They are our babies. Lucky is ours. Trevor's parents love their dog too. All of...
Last night we went to the emergency ward. I was out of my Zyprexa. We had no new prescriptions. We had to get some somewhere. I have had pain when I urinate...
This a Dementia breakthrough. It is supposed to help all people with dementia. We are getting all of these breakthroughs like crazy. We will be cured shortly....
We got my blood taken. I always get so scared. We had that huge meeting at 12 o clock. It was put together by a social worker in Cranbrook. He spent all of the...
The Dimebon study will release their study. Let us know if the med works. Hope it does. So much hope. In so little time. Every two days there is something else...
I had such a busy day today. We had a family BBQ here. Trevor's cousin Laura was graduating. My step sister Becky also graduated this year too. A lot of grads...
I had no HD symptoms yesterday. I love my meds. They are working great for me. Yesterday we had a great hike. It was so much fun. We went down by the river....
This is so close to an actual cure. All of the dimebon studies are passing with flying colors. It is safe for us. We can have a good treatment here. This will...
We went out for dinner with one of Trevor's friends. He has not seen him in years. Got to meet his wife. I had total brain fog the past two days. I had trouble...
This is a Canadian HD Society online survey. They are curios about our care and quality of life. I was given a paper one last visit to Calgary to fill out....
I am having an HD free day. My bladder infection antibiotics are over. We will see if it is gone. I am still loving home care. My main Nurse Shirley is going...
I have been falling like crazy lately. My bladder infection might still be here. We are going to the hospital to see. At the Gleaner's I felt the pain again....
I went to see my Doctor today. They took a urine sample and sent it away to get tested. I am back on my antibiotics now. It is still around. They need to see...
These breakthroughs are coming so quickly. So much hope for us. So much real unfathomable research that has been coming lately. Keep the breakthroughs coming...
I am having another bad HD day today. I have been fighting a depression. Fighting everyday for some kind of happiness. We do struggle with HD. It is a constant...
Every day there is more and more research.This is another. So many breakthroughs is so little time. never stop believing in our cures. Never stop believing in...
I have been very, very sick with my HD. I have been falling into everything. Total brain fog. I was so sick I could not help prepare dinner today. Also my...
Today we rearranged our apartment. We had to make room. I was tripping all over the place. We rearranged the computer room and the bedroom. Now we have no...
Today I won award number 60. I have won more awards in a short period of time than a healthy person. This is another international award. I won all of these in...
The HD UK society cam out with a new published Huntington's Disease Standards of Care document. It has everything that we deal with. How to care for the...
I have been drooling a bit.I feel my meds are working good. I am not that angry now. Today I volunteered at the Gleaners. It is fun. They are trying to do...
Hey everyone. I just won my 60th award. That is 60 awards in eight months. I have won more awards than any healthy person. I am in home care and still winning...
My urine result came back negative. My bladder infection is over. I am so happy. I can swim now. No more pain. No kidney infection or anything either. I showed...
I am having an HD free day. Everyone won't believe what happened here today. A major druggie moved in here. Today at eight thrity someone knocked and woke me...
More on the Dimebon breakthrough. This is so good. This is huge. This actually works. A hundred percent to help us. What a huge breakthrough. Countdown for the...
These are coming like crazy. Countdown for our cure. This is another huge immune system breakthrough. There is so much going on now. It is hard not to get...
I was so sick yesterday. My eyes could not focus. I have been having that problem lately. I will try and focus, my eyes will go the other way. To the opposite...
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