I got a sad and happy blogs today. I will start with the unhappy one. When I went to see Molly on last Sat, she was happy, healthy. On last Thursday she passed...
Our condo is so nice. We have had Trevor's family down here they loved it. Trevor says he grieves for me everyday, for all of the things I can't do.They are...
Thank you to the energetic and passionate Canadians who have shared their hopes and dreams for 2009 in our One for Me, One for HD campaign. And a tremendous...
Today, sadly Molly passed on. We have no idea when the funeral is. We planned to go to Cranbrook. We thought she would not want us to be down. I will always...
Weight loss in Huntington disease increases with higher CAG repeat number N. Ahmad Aziz et al., Neurology (2008), 71:1506-1513This study shows that the rate of...
A comparison of Huntington disease and Huntington diseaselike 2 neuropathologyDobrila D. Rudnicki et al., J. Neuropathol. Exp. Neurol. (2008), 67:366-374In...
Predict-HD studyJane S. Paulsen et al., J. Neurol. Neurosurg. Psychiatry (2008), 79:874-880This study shows that small changes in clinical and neuroimaging...
The rate of enrolment into REGISTRY over the past year has increased by one third, with a total of 4,282 participants registered on the web portal. As the...
There is a Huntington's Disease Study actively recruiting participants in your area. It is called Mito HD. The following is a brief description of the study,...
We are making lots of friends here. The neighbors are all nice. Lucky loves this place. More room to run around. It is a nice condo. We still can't believe we...
We are making lots of friends here. The neighbors are all nice. Lucky loves this place. More room to run around. It is a nice condo. We still can't believe we...
Run for HD 6/28/2009 6/28/2009 8:30AM Sunnybrook Park, Toronto, ON 5k fun run and 1k/5k walk When: Sunday, June 14th, 2009. Where: Sunnybrook Park, Toronto...
Today has been a great day. I did amazing at bowling. I got my first strike, three spares. I got over a hundred on every game. On Thursday I got Gerry set up...
It hardly seems possible, but it's time to announce our long distance bicycle ride for HD - this year's title will be "Canyons to Cactus 2009." Once again,...
My Occupational therapist. Amy is coming tomorrow at 11:00 for an assessment. Molly's Memorial is this Saturday. I miss her. We drive pass Swan Valley and cry....
My Dad gave me a WII. He also gave me a WIIFIT. I get bowling too. He gave me games too. I am so excited. I have wanted one for awhile. I know they use them in...
Molly had a nice funeral. A lot of people came to see her. She had a lot of friends here. All week we had family dinners. Last night we had a Pot Luck dinner...
Hi Mary Lou: My son Gary and my daughter Heather Dugdale have been waiting for info on the start of the Creatine Trials, as they both want to participate in...
Someone else died today. One of my Special buddies Glen. He got Pneumonia and he could not fight. He was one of my team mates. I am finding out when his...
I can't believe our landlord do this. He is in Mexico getting dentures; he thought of me and checked out an excellent stem cell research center in Uma, Mex. He...
I've read with great interest the recent passionate pleas from members of our HD community for everyone to get involved with clinical trials. Seemsl ike lists...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
