Contact the Obama-Biden Transition Team for HD Earlier this month, Barbara Boyle, with a delegation of HDSA advocates, met with the staff of key Senate leaders...
The past two days I have had good HD days. No symptoms. I am dancing a bit though. Trevor will dance with me. We joke about it. That is the only way to handle...
Trevor got me an airplane ride over the Creston Valley. It is an hour flight. We go over the mountains. See some of the animals. Trevor thought it would be...
This study explored the needs of patients with Huntington's disease and family carers and their views on support services provided by a community-based unit. ...
On Sunday I was too sick to go and work. I had stomach flu. I did not want to give it to everyone. Alice knows I have no immune system. It is good. This week...
I am finally getting my lifeline. It attaches to my phone. I also attaches to my shirt. If I fall or something is wrong it will help. It will also remind me to...
I had a bad fall and hit my head. I am okay though. My meds are having issues. I am angry, irrational, and paranoid. I am having mood swings. I am going to...
Eating difficulties, which affect the ability to bite, chew or swallow food, can lead to dehydration and malnutrition. Helen Crawley looks at symptoms,...
Vitamin B12 is an essential water-soluble vitamin which helps maintain healthy nerve cells, red blood cells and is also needed to help make DNA, the genetic...
Last night I thought aliens were going to get me. Today I had not a lot of HD symptoms. I have been anxious. I had fun at Rythimtic Gymnastics. They want...
I tried to warn people about this drug. I though the advocates were just pushing to get anything out there. They did not care about the side effects. I felt...
We filled out the papers for our disabled housing. I am not surprised that Tertrabenzine has severe side effects. They were just amped to push it. I wish it...
We got our first disability check today. I had my life line set up up Saturday. It has a button that I wear 24/7. If I fall I can hit the button and a call...
I got two spares today at bowling. I always have fun there. I do not feel my med change yet. Mood swings, anxiety, fear, and paranoia. Having hallucinations....
CVC Launches Program to Help Patients with Huntington's Disease http://caringvoice.org/november2008.htm Mechanicsville, VA, November 2008 Caring Voice...
Trevor has a laptop to fix tonight. One of our friends needs help. Today I called the SPCA on our neighbors. They had four dogs squished in one seat. They were...
This is a huge breaktrough. It can cure HD. Countdown for the cure. It is here. Everyday we get closer. Huge news. Clioquinol Inhibits Action Of The CLK1 Aging...
Today I have been emotionally fine. I have little symptoms. Just a bit of dancing. We might move into the disabled house on April. We meet with the owner on...
KIDS with Huntington disease (HD) The Society proposes to launch this program over the next two years by contracting with experts in the fields ofchild...
New Research Project The Huntington Society of Canada is working with the Ontario Cancer Biomarker Network and Dr. Mark Guttman to conduct research on the...
This is a great opportunity to join a great study. Countdown for the cure. http://www.huntington-study- group.org/Portals/0/HARTPressReleaseFINALDec22008.pdf...
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