I have been falling really bad lately. I have hurt myself. I have almost fell backwards down the stairs. I fell out of bed. It hurts. I have been getting bad...
This is a good article on stem cells in California. This is huge. This is our cure. My Dad wants us to get stem cell transplants. This our cure. this is our...
The 2008 Celebration of Hope Gala presents Don't Undress Until You Die The Wit & Wisdom of Al McGuirea one-man play written by Dick Enberg and starring Cotter...
I have the flu today. I have a fever, upset stomach, and pain. Yesterday I almost fell outside. Trevor caught me. Today has been a bit better. I had to get...
I am so sick today. My eyes can't focus. I am having Amy my Occupational therapist over, cause I am falling a lot. The meeting went good. All of my Doctors and...
I am having a better HD day. I am healthier. Today we had breakfast with Trevor's Mom. I remembered her usual dinner. I went there once. That's how sharp I...
There will be stem cells testing now he is in power. There will be gay marriage. He will get rid of US genetic discrimination. He will get you health care. I...
HD Free With PGD! Trevor and I want to do this. Planning an HD-free family with IVF/PGD Yes, you can stop Huntington's Disease in the future generations of ...
On December 5, 2007 I lost my mother to a horrible disease called Huntington's disease. My mother was not only the strongest person I knew but she was also my...
Today I am doing better. I had an almost HD free day. I went to volunteer today. One of my co workers and Special Olympics instructor Gerri, got me some ensure...
I find the extra Epival in the afternoon is making me less irrational and less angry. I had no idea it depletes in the afternoon. At least we know now. My...
Today my Occupational Therapist Amy came over. She took a look at me going up and down my stairs. I walk on my tiptoes and lean forward. I forget to use my...
Today we have a day of Remembrance. The soldiers that laid their lives in the line so we can have a better life. Today has been a bad HD day. I got caught in a...
Yesterday my site went down for five hours. Something happened to my webhost. Shirley my main Nurse's Mom and Dad both fought in world war two. I thought that...
I had a fun day. Volunteering and gymnastics. I am going to volunteer at the Christmas sale. It is in Saturday. I will be volunteering from 11 to3. Trevor will...
My eyes have a hard time focusing. I have been having a good HD days these past three days. I get a feeling that I need my body to freak out. It is weird I get...
Trevor noticed that when I sleep, my arms getting very twitchy, HD twitchy. I also have a hard time holding my spoon. My hand gets really twitchy. The past...
Today on my Special Olympics team members died. His name was Don. He has been sick for a while and had to go to the hospital. He was good. He was one of my...
I was Lucky to have Shirley this morning. She knows how to cheer a person up. I need to go to Don's funeral. I was grieving bad today. Today I was twitching in...
There is a merge between the stem cells and HD organization, CHDI Foundation, Inc. they are going to commercialise them. This is a huge breakthrough. Countdown...
My rash is an allergic reaction. They think I might be allergic to my Epival. Soon as it was upped it that is when it happened. I am allergic to a hundred...
HD Video My best friend Miranda and I are going to make an HD music video. She made a song. A good song. We are going to come and get ideas for the video. We...
All of home support loves Lucky. He is a very passive dog. Trevor is going to try and give him a haircut. He defiantly is my little boy. He loves his Mommy. My...
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