We are talking about getting a living will. I want one that will help me get saved. The opposite of the DNR order. I want to be recesited. In the nursing home...
I am moving my blog over to another blog provider. My page is staying here. I do not experience problems with it. Just the blog. It has gone down so many...
I have gone through half of my blog. I am so sick today. I have a bad fever. Upset stomach. Yesterday I was healthy again. No chorea. We found the volunteer...
Spent yesterday cleaning with my Nurse Shirley. Made a yummy slow cooker meal. I won another award today. It is a Visionary Award. Every one means so much to...
Once again my husband is worried about me. He does not want to lose me. He wants to take me on a trip before I get too sick. We are going to the Queen...
The past two days have been HD free. Nothing. Just tripping. I have been tripping badly lately. I have been irrational. We are going to reevaluate my meds. We...
I have been hallucinating a lot lately. I was scared last night. Very, very scared. Yesterday I was confused. Could not remember what I was saying to Shirley,...
Yesterday I was sick with a flu. I was also having a bad HD day. Really bad. Confused. I put my meal in the cupboard. Got a laugh out of that. I was so sick....
A lot of huge breakthroughs this month. We are getting closer and closer to a breakthoughs. This is still our year of breakthroughs. Take our life back. Demand...
Still sick with this flu. It makes me feel so week. I need sleeping pills so bad. Tomorrow we have a Docter's appointment. He will review my meds and...
We had quite the day today. I have been beyond sick. I tripped all over the place. Hard time walking and balancing. I was so sick. I worried Trevor again. I...
My home support worker should be here soon. Elsyissa, my best friend here will take political scince. She has to graduate first. That is what I wanted to take...
Hope everyone had good father's day I am still feeling irrational. Something needs to happen, when it comes to my meds. I am off my welbrutin. Need to adjust...
I had to go to the hospital yesterday. I broke a glass. Shirley and I thought we had every piece. We did not. I stepped on a big sharp piece. Trevor tried to...
This is exciting. A new possible vaccine. This is our year.We will get everything we need to cure HD. HD is real. The treatments and cures are real too. They...
I don't feel like these meds are doing good. They are making me feeling not good. They make me feel really angry and irrational. They are supposed to stop...
I won another site fight. They gave me another award. I had fun volunteering. It was so fun. Made my day. It made me feel normal. It is good. I don't have to...
Today, I feel so healthy. I hope today will be a good day. My Occupational Therapist dropped by today. She wants to see what happens when my home care worker...
I have had such a bad day. I have felt really defeated. I cried for hours. Some one negative wants me to stop. To give up. To lose focus. They don't want the...
No matter what task we take up, to help people. There will always be someone standing there trying to slow you from your goals. The more we hang on to changing...
It has been hard to fight HD without working meds. I am getting worse. I am up and down all day. Anxious, scared, angry. I feel unmediated. My Dad and Trevor...
There is a brave man who is doing something amazing for HD. He will run across America coast to coast. He is running for a cure for HD. He is half way through....
We have a government advocate again. We are hoping that now we can get benefits. I added something in my family history. My Mom was a secretary before she got...
This amazing person is going to cycle for us to have a cure. Sponsor him. He is going all of across the UK. He is doing it all for us. Amazing. A lot of people...
I volunteered today at the gleaners. It was fun. I love playing with toys. I have felt a lot more normal now I am volunteering. Yesterday I was with Lucky, I...
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