Finally back. What a holiday. I helped my Dad and his girlfriend Karen move. They moved to Leduc. It is an oil town near Edmonton Alberta. Dad was kind enough...
This was sent to me from a friend. Scott's HD family is at a high risk of suicide. That is why I go to HD support groups and help anyone in distress there. I...
My HD symptoms are still less today. For the past week I have been healthy. There is hardly anything going on. At my Dad's I thought I saw aliens. On the drive...
Added stem cells to my new research page. Still healthy. Last night I was a lot sicker than I had been. My dementia was bad. My chorea too. We ran onto Adele...
This is one of the few HD fundrasier we will be having in the Torrance/Southbay Area. So this means GET A BABY SITTER and show your support.Eternally...
More than 5 long years into President Bush's short-sighted, cruel policy restricting stem cell research, America once again has the chance to reverse it -- and...
I start Special Olympics on Tuesday. On Tuesday we have a meeting to get some disability. I have looking at stem cells now like crazy. I need to still here...
I have been feeling really unmediated for the past four days. Really irrational, really paranoid, moody, depressed. It is horrible. Trevor is hurting. He does...
"Dysphagia, or difficulty swallowing, is a sorely neglected medical condition that affects 15 million Americans," says Sara Oxton of Empi Recovery Sciences (a...
I have been still having problems with my meds. I am yelling and snapping. Something needs to happen. I have been noticing my HD is getting worse. I have not...
Looking at China I have done my stem cell research. I found one of the world's best stem cells companies in the world. They are called Beike Biotechnology....
We are going to get disability finally this month. I talked to Shirley I want to be resuscitated. I do not give up. I want to live as long as possible. I had a...
Today the Gleaners had a 25th anniversary breakfast. I showed up with my Nurse and had breakfast. It was so busy there. There was tons of people. It was...
I am having another HD free day. Yesterday I was so anxious. I had so many anxiety attacks It was insane. The past two days I have been very confused....
I have a meeting with Adele on Wednesday. She will give me the info on how I can do stem cells for free. Airplane info and all of that too. I still believe I...
Nancy Fiore, Mark Smrtnik's Mom, asked me to share this with everyone, writing: This just shows what a wonderful community we live in! My son touches so many...
I had a great day at the Special Olympics bowling. It was so much fun. I love it. I love going. We registered last night for Gymnastics. I made some good...
This is just so amazing. I didn't think this med came out so quickly. I think I am going to wait and take this. This should be out in a couple of years....
I am not sure if I am going to do stem cells or wait for Dimbon. I did not realize that Dimbon would come out so quickly. They both sound good. Don't know what...
I have been real, real confused. I forgot to how to use the VCR. Today at the Gleaner's I forgot how to use the washer and dryer. I am getting that sick. I was...
I am having a healthy morning. Feel good today. I m having huge mood swings now. Adele is going to advocate for me. I have a meeting on Monday. We are just are...
My meds are working less. I am irrational, angry, and having huge mood swings. Being driven insane. Scared and having hallucinations. We are thinking of upping...
We upped my Epival today. I am hoping it works. I get to bowl. Learn to accept and love your life. This is all we have. This is our life. This is HD. We have...
I am really improving in Special Olympics bowling. My scores have upped 56 percent. Today I had a score of 91. I had a spare. The Gleaners, I will be...
Live and Silent Auctions Benifiting Huntington's Disease - Orginazed by one of our own NYA members, Jenny Rogers! Date: Saturday, September 27, 2008 Time: 6:00...
I am very confused today. I was running outside, forgot where I was going. I am so glad Jenny raised all of that money. It is good that something good can come...
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