I miss Shirley my main Nurse. She should be back soon. She is on holidays right now. We have to contact the ministry here to get us some money to go to Calgary...
This is a phase three trial to find if this cure works for us. It does seem promising if it made it this far. So much hope for a cure. We can let the...
Today my Trevor has a surprise for me. The last one was Lucky. I wonder what he has for me. He has been saying this for a while now. I can't believe it has...
Hey…I am back…What a surprise!!!! I had no idea they were planning a trip to Ainsworth BC. Ainsworth has the hot springs caves there. We stayed in a resort...
I miss my main Nurse Shirley. Hope she will be back soon. We have such a great team here. The last two days had been really bad HD. My chorea is so bad. I am...
I just got back from volunteering at the Gleaner's. It was so much fun. I am now going to volunteer just on Thursdays. I had so much fun today. Tons of toys to...
By STEPHANIE NANO (Associated Press Writer)From Associated PressAugust 08, 2008 8:26 AM EDT NEW YORK - Harvard scientists say they have created stems cells for...
I made a memorial page for my Mom. I wanted to do one for a while now. There is one now. I will try and be as brave as my Mom was when she was sick with HD. My...
That lazy Nurse might lose her job. Today I had one in here who cleaned with me. Not lazy at all. We have a good team here. All of them are so nice. They try...
My favorite Nurse Shirley is back. She was on vacation. I missed her so much. She is so nice. She filled a complaint against the lazy Nurse Katherine. There...
Wheel running from a juvenile age delays onset of specific motor deficits but does not alter protein aggregate density in a mouse model of Huntington's...
'Intrabody' can mop up mutant protein in Huntington's disease model . Huge breakthrough. http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=573...
This article is about the JHD kids. Info and studies that you should join. This kids pull at my heartstrings. I think we need more research to stop this one. ...
This article is about the JHD kids. Info and studies that you should join. This kids pull at my heartstrings. I think we need more research to stop this one. ...
Today is Trevor's Birthday party. He is turning 37. He is 11 years my elder. Age does not matter for us. I wanted someone older who wanted a relationship. That...
The NYA is having a national Advocacy Day on Aug 15. Everyone spread the word about HD. I know everyone here knows I have HD. I have HD pride. This is a...
My best friend and Lucky's Godmother is moving. They are moving to a different town. It is close to Creston. Want to know what HD is like? I put down my...
Today I had a fever and an upset stomach. The pain is back when I pee. We thought it was a bladder infection. It was not. The Doctor thinks that it be...
I am hoping I don't have a Kidney Infection. Yesterday I was peeing every ten minutes. Severe pain. If I do we got it before it got serious. Get on everything...
On-line Petition for H.R. 6259 - HD Parity Act of 2008 Sat Aug 16, 2008 5:48 am (PDT) H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition As of...
As of this morning, August 16, 2008, there are only 22 signatures to help move this bill for Huntington's Disease. Please let the House Ways and Means...
We ended up going to Kimberly BC. It was so fun. We got to go to see a waterfall. It was gorgeous. It was a couple hot days camping. The heat streak is back....
I updated the HD information page. About the sleeping pills I am on. Rhythmic Gymnastics start on the third Tuesday in September. We are getting a way to get...
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