Once again my husband is worried about me. He does not want to lose
me. He wants to take me on a trip before I get too sick. We are going
to the Queen Charlotte Islands this summer. He has to work ten hour
days to try and afford everything. We miss each all of the time. He
has gotten his routers and networking parts from his school SAIT. He
is going to try and challenge the test here. He needs multiple
computers to hook up. I have been depressed for the past three days.
Fighting it. I also have a sick stomach. Yesterday night I took the
wrong meds. That is why I was up all night. I was so sick. I went to
Trevor's work, into the store. My chorea was so bad. I had to walk
really fast to meet him. I pushed it. I looked drunk. I went in
there. Every cashier was giving me glare. Did not address me. I went
and found one of Trevor's friends. Trevor told him that I have
HD.They weren't nice at all. Trevor was guessing that they thought I
was an alcoholic and would steal something. Otherwise they hate
disabled people. I am not either. I just wish that one person I know
there knows I have HD. She could of told people.I came home. Somehow
again Elissya knew I was upset and came upstairs. That was hard. We
have to build up thick skins to deal with this perception. We are all
people too. We deserve respect. As we get sicker there will be days
like these again. We have to prepare ourselves for the pain. We are
going to get it again. We will have days when we are judged, that is
life. It is not our fault that we have HD. We did not choose to get
this. That is their issues. Not ours. Just remember we are important.
Tough skin and strength to fight all ways.