Today I found out that I must go into the hospital. Not sure when I will be back home again, current thinking is about 2 weeks. Will come back to the lists...
I got this message from E. Marsha Elixson, RNc, MS, CCRN, FAHA Development Coordinator for Cardiac Services Sibley Heart Center Children's Healthcare of...
Prayers are needed everywhere!!!! The past week has been crazy! Who should I start with first??? Let's see work oldest to youngest I guess... Tom's work...
Finally things are turning around. The lump turned out to be benign, thank the Lord for listening to all of our prayers. Andrew will be coming home on...
Just wanted to let everyone know that I have been busy on my webshots site today adding new folders and pictures and deleting some of the old folders. Stop by...
FYI there is now a group on yahoo for those who have children with pacemakers. The home page is: http://groups.yahoo.com/group/KidsWithPacemakers Elizabeth...
Hello all, not sure if I have mentioned this and I thought it worth repeating. If you haven't done so yet, please take a few moments to visit and sign the ...
7 Award Winning Children's Classics with a retail value of $85.00 can be yours for $40 donation to the <A HREF="http://www.angelzachary.homestead.com/">The...
Thought is was about time to send out an update to everyone. Tom got his orders to Kuwait about a week and a half ago. He will be leaving sometime around the...
February 14th has been designated Congenital Heart Defect Awareness Day. Help raise awareness, funds for research and honor those touched by Congenital Heart...
Yesterday we told you about the CHD Awareness Ribbon Pin and what a great way purchasing and wearing the pin is to help raise awareness and funding and to ...
It is with tears in my eyes that I write this morning. We just said our goodbyes to Tom. He will be leaving later today for the gulf. Please keep him and us...
Hello heart friends, I will be hosting Quilt #16 in March and am working on a showing for local heart families. If you know the parents of any of the heart...
Just wanted to let everyone know what we did for CHD awareness day. Andrew participated in the Jump for Heart at his school and raised over $1,200. He was...
EXTRA! EXTRA! READ ALL ABOUT IT!! The first issue of the United Hearts Newsletter is hot off the presses and ready to be mailed. If you would like a copy,...
I was interviewed last week for the CS Monitor National newspaper and the article is now out online. It is a good read and was interesting to do. Would love...
Well, a lot has been going on this past week... Andrew was admitted in UNC Chapel Hill hospital on Sunday night. I took him to the ER on Sunday on the advise...
Well, I know it has been a long time. Andrew is home now and has been for about a week. He was in hospital for 11 days and I think they sent him home too...
Well, things are going ok. Andrew is being started on a new medication today that will hopefully help us out with the hyperness and impulsiveness that we see...
Well, today has been difficult and fear it will be getting worse. Today I had to do a time line of Andrew's cardiac life for his therapist. We are going to...
I am going no mail for a bit. I leave tomorrow to head up to DC to pick up my baby sister (well she is now 20) and take her to college in St. Louis. Then I...
Finally got a hold of Tom. Andrew's appt. went good. The only thing they found wrong was that his left side was leaking a bit. Now what that means, I am not...
Finally got a hold of Tom. Andrew's appt. went good. The only thing they found wrong was that his left side was leaking a bit. Now what that means, I am not...
Well, lots of news...Nicole was admitted into the hospital on Tuesday per her request. She isn't sure what happened, but she felt extreme rage towards her...
Just wanted to send out a quick e-mail to let everyone know that Nicole came out of the hospital on Tuesday. She was very excited to be coming home! She will...
That is great news. My daughter is now 5 weeks old with tricuspid atresia. She is doing very well. Please visit her site at www.briannalynn.org and please pass...
Well, guess it has been awhile since my last update, so here goes... I have been away from a computer for about a month, so sorry to those who may have tried...
Hi Everyone. Just wanted to let you all know that Brianna is doing very well right now. For those of you who didn't know, she was life flighted for emergency...
Hi Everyone. I just got an email from someone who wanted my HLHS Handbooks to put in gift baskets for parents on CHD Day. I thought I would post about the...
Despite receiving close to 10 thousand signatures, faxes and letters from families and health professionals, the White House has denied our request for a...
