Hi everyone. Thank you for all your continuing support.I just thought I'd let you know my latest news.Having fallen ill again 2 weeks ago, in the end I did...
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Bev
beverleyhill82
Jun 3, 2010 8:41 pm
Hi Jenny, Sorry its taken so long to respond to your E mail, its been one of those weeks. It sounds like you've been through quite a lot recently and no wonder...
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Bev
beverleyhill82
Jun 3, 2010 8:43 pm
Hi, are there any other Cardiac Physiologists or Cardiology Specialists out there with a Pacemaker or ICD. I would be really interested in knowing how you deal...
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Kathy
kathy0196
Jun 11, 2010 11:09 pm
Hi Jane , when i tried to carry on as normal i was taken to hospital on numerous occations .. i did have SVT any way before i got IST , the svt was...
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Chris S
chrisstreet99
Jul 14, 2010 12:01 pm
Having recently been fitted with an ICD at the age of 36,due to a condition called Sarcoidosis which has left me with a slow heart rate,I am having trouble...
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Kathy
kathy0196
Jul 17, 2010 12:21 pm
Hi Chris and hello ... i do not know what it is like to have an ICD, but i have an unusual rhythm problem that is chronic , and so i do understand how hard it...
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Dave
evadseliab
Jul 18, 2010 2:57 am
Having read several tales of experiences with ICDs I wonder if anyone has parallels to my experience. I had the ICD installed May 2008. After the initial small...
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Bev
beverleyhill82
Jul 18, 2010 3:04 am
-Hi Chris I am 37 and had my ICD implanted in March for ventricular tachycardia, although I had a pacemaker implanted 3 years ago for bradycardia. I completely...
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Chris S
chrisstreet99
Jul 21, 2010 12:09 pm
Hello Kathy Thank you for your message, I am feeling better and have started to do things again. Putting how I felt into words and hearing other peoples...
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Chris S
chrisstreet99
Jul 21, 2010 12:10 pm
Hello Dave Thank you for your message, I have my ICD as a pacemaker so I`m not sure how the shock feel`s but I can imagine it`s pretty awful. I`ve begun to...
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Lawrence
donohuelawrence
Aug 2, 2010 5:31 pm
Hi There Three weeks ago fitted with Medtronic D354DRG ICD after experiencing 5-6 bouts of what I have since been informed to have been VT's since May 2010....
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Dave
evadseliab
Aug 2, 2010 7:34 pm
Hi Lawrence, I do not have the same make ICD as yourself, but would guess there is not a lot of difference between various models in their susceptibility to EM...
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Sarah
bty847229
Aug 2, 2010 7:35 pm
Hi Lawrence, Â I don't have an ICD but before my successful ablation for SVT I obviously had thoughts about how I could operate as an engineer in microwave...
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Sam
sam.shunmoogum
Aug 3, 2010 6:40 am
Hi Lawrence, Good to hear from you and so far this is the first time I came across someone as an engineer with an ICD implant.The advice given to you by Sarah...
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Bev
beverleyhill82
Aug 3, 2010 6:40 am
Hi Lawrence, I have an ICD for VT and also work in Cardiology. The advice we give to patients has pretty much been covered by Dave, the only other thing we...
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heartrhythmcharity@ya...
Aug 3, 2010 10:42 am
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the heartrhythmcharity group. File :...
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Ian
konkorde_2000
Aug 3, 2010 11:53 am
Hi Lawrence I have a medtronic ICD for vasovagel syncope fitted in 2007. All the others' views are correct and one more to look out for too: don't let your...
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Esther
esther_ander...
Aug 5, 2010 10:11 pm
My mum was fitted with an ICD at Cheltenham hospital on 30.7.10, she was operated on over 4 hours and had a real rough time, she was admitted to critical care...
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Ian
konkorde_2000
Aug 6, 2010 10:42 am
Dear Esther, You dont say how old your mum is nor what was the original problem. It takes a while for the unit to settle in and the specialist will tune it to...
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Beverley
beverleyhill82
Aug 6, 2010 10:42 am
Hi Ester, Sorry to hear you and your mum are going through so much. Having an ICD is a lot for patients and there families to come to terms with, it's good...
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Dave
evadseliab
Aug 6, 2010 7:34 pm
Esther, I am sorry to hear that your mum is having a bad experience. I have suffered anxiety attacks (not unusual and may be due to medicine side effects) but...
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Jayne
ponyclubmum
Aug 7, 2010 8:04 am
Hi I have been lurking and reading for many months, I had Bivent fitted on 29th January, I can understand how your mum is feeling as I felt the same, infact I...
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Sam
sam.shunmoogum
Aug 7, 2010 8:11 am
Hi Esther, You are very brave to ask for help.So far the responses from Ian,Bev and Dave are so relevant as they have experience these psychological feeling...
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Dave
evadseliab
Aug 7, 2010 4:03 pm
Morning folks, where partners and family trying to cope with cardiac and ICD problems there is an excellent article from the American Heart Association journal...
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Dave
evadseliab
Aug 7, 2010 4:05 pm
Ooops, sorry, the second link should be: http://circ.ahajournals.org/cgi/content/full/111/23/e380 Dave ... -- Welcome the new! (But don't discard the old just...
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Bev
beverleyhill82
Aug 7, 2010 8:25 pm
Hi Jayne, I think it's hard for families and friends to understand what a big impact this has on our lives and confidence. I never expected to feel the way I...
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Bev
beverleyhill82
Aug 7, 2010 8:28 pm
Thanks Dave, thats really useful!! Bev...
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Dave
evadseliab
Aug 8, 2010 8:09 am
Bev (and anyone else interested), this is my experience I think that I must either be fairly lucky (or lacking something) but I had no "emotional" problems...
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Bev
beverleyhill82
Aug 8, 2010 7:13 pm
Hi Dave, Wow you've certainly been through a lot, I'm surprised you've managed to keep sane! I'm glad the sotalol seems to be working for you. Fortunately I...
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Jane
janelarman
Aug 8, 2010 8:42 pm
Hi Bev. I've just read your post to Dave & noticed you said you are a Senior Cardiac Physiologist. Please can I ask you a question? I am 12 days post ablation...
