Hello everyone, I see there isnt a great deal of info on here yet, so I will get the ball rolling. I have had AF for about 12 years. During this time I have...
4
Heather
heatherpeebl...
Jan 14, 2010 10:29 am
Hello Dan Thank you for joining the message board however you may be interested to know that A-A has an affiliate member - Atrial Fibrillation Association...
5
Mick R
paslode10...
Jan 14, 2010 6:26 pm
I would like to say a big hi 5 to all newcomers of this site i am sure that we will all exchange our stories and experiance's of living with AF i am so looking...
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Mick R
paslode10...
Jan 14, 2010 6:27 pm
Thanks for the invite trudie and i am looking forward to asking and answering questions to members of this wonderfull new site. Mick R...
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Mike C
get.me...
Jan 14, 2010 6:28 pm
Many thanks to Dan for getting things moving. I have been an AF sufferer for 5 years now and if anyone's interested in my history I am happy to provide more...
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Kev
kevthedent
Jan 14, 2010 6:29 pm
Hi Dan,It takes a post like yours to realise that my problems are hardly worth a mention.I get regular ectopic beats sometimes one or two sometimes they last...
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Mike
paslode10...
Jan 14, 2010 8:45 pm
Hi my name is mike and i was diagnosed with Atrial Fibrilation in feb 2009 after a home visit from my doctor who sent me straight to hospital with a very high...
10
Bristol
steve.denny...
Jan 15, 2010 7:15 pm
Hello to all at heartrhythmcharity and arrhythmia alliance. Just wondering if anyone else is caught in the catch 22. Briefly I have been told that an ablation...
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Heather
heatherpeebl...
Jan 15, 2010 7:45 pm
Hello Mike I have just tried accessing the forum on the AFA website and you can click the blue tab to the right called, Join This Group!, only then after being...
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Heather
heatherpeebl...
Jan 15, 2010 7:46 pm
Hi Mick Thank you for making everyone on the board aware of our current fight to overturn NICE and their refusal of the anti-arrhythmic drug, Dronedarone. If...
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Mick R
paslode10...
Jan 15, 2010 9:33 pm
Steve sorry to hear of your plight i am in the same boat in the respect i have permenant AF. Have you heard about the new treatment for AF Dronedarone this...
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Bristol
steve.denny...
Jan 16, 2010 10:12 am
Amazed at speed of response.Thanks. My consultation took less than five minutes and at the time I was having a hypo after rushing from my wife's consultation...
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Dave
evadseliab
Jan 16, 2010 2:13 pm
I know what you mean Steve! I, luckily, do not seem to be suffering emotionally from my cardiac problems or having suffered a VT storm (controlled by my little...
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Francesca
francesca_stars
Jan 16, 2010 2:48 pm
This morning Jo Jerrome from the Atrial Fibrillation Association was on BBC Radio Bristol/Somerset talking about AF on their Saturday Surgery. For those who...
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Harry
rusoft2002
Jan 17, 2010 8:07 pm
Hi Mick and Steve In recent times permanent AF has become known as long standing persistent AF. This is to signify that it doesn't have to be permanent in all...
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Mike C
get.me...
Jan 19, 2010 8:48 am
Hi everyone Firstly, thanks to Francesca for alerting us to the Radio Bristol item. I found this very interesting although pretty familiar with most of what...
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Dan
tixxys
Jan 19, 2010 8:52 am
Hello Harry, I have had AF for 12 years. I was told that the ablation procedure was very successful .................... but I have now had 5! At attempt 4 the...
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Russell
russelldagli...
Jan 20, 2010 5:29 pm
Hi to all, Well I really dont know how to start this!! I am 63 years old and had my 1st heart attack, classed as Mycardio infarction on the 20th August 1983,I...
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Steve
steve.denny...
Jan 20, 2010 8:33 pm
Hello Russell, You have been through the mill over the years.My experience has run through most of the emotions and some that have no words. A.F. is often...
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David
davidplatts...
Jan 20, 2010 8:42 pm
Dear Russel  Hi I'm David and until recently have been the sufferer of normal heart ventricular tachycardia which seems to have been dealt with by ablation...
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Steve
steve.denny...
Jan 21, 2010 9:35 am
Hello all who use warfarin all the time. Apart from the regular blood tests and effect on other medication,warfarin can take away libido ( or whatever that...
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Alan
editorphsg
Jan 21, 2010 1:25 pm
Thanks for the article below, Steve. I am interested but cannot get through to the web page using your link. Is the link correct, please ? @l@n ... From: Steve...
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Inga
inga.drossart
Jan 21, 2010 6:24 pm
Dear Russell, I'm probably not a big help here as I'm suffering from supraventricular tachycardia "only". The only advice I have is firstly, to keep in touch ...
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Steve
steve.denny...
Jan 21, 2010 7:32 pm
Hi Alan, The link is http://blogs.mirror.co.uk/dear-miriam/2010/01/smart-ops-great-news-for-heart.html without the full stop at the end.This link works. ...
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Mike C
get.me...
Jan 21, 2010 10:06 pm
Hi Russell, Steve and everyone else. Russell, what can I say that would re-assure you with all that you've been through and are going through. My own...
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Mick R
paslode10...
Jan 21, 2010 10:07 pm
Please read this article is very interesting. http://blogs.mirror.co.uk/dear-miriam/2010/01/smart-ops-great-news-for-heart.html...
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Robin
hrvyrbn
Jan 22, 2010 11:40 am
Hi Russell I believe what you are experiencing in the emotional sense is quite common amongst ICD recipients (I'm a carer). I don't know what part of the...
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Alan
editorphsg
Jan 22, 2010 11:43 am
Hi Steve Thanks for clarifying the link. I do not know anybody who has had a Watchman fitted (not surprisingly as few have been fitted) but wonder how safe it...
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Harry
rusoft2002
Jan 22, 2010 4:26 pm
Hi Dan Thanks for the good wishes. Have heard today that my ablation is now being re-scheduled for next four/six weeks. Have been warned it may take up to...
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Robin
hrvyrbn
Jan 24, 2010 7:41 pm
Dear Russell and others. Within our ICD support group, we have always been concerned about the emotional side of coping with an ICD with many of our members ...
