<http://www.nhs.uk/> Wednesday 19 March 2008 12:34 Department of Health (National) Greater choice gives even more power to patients From 1 April 2008, patients...
Hello all been away for bit was on yahoo long qt site to get more help /info...very good site from people all over the world learned a lot.MY daughter has...
Hello Alan, my name is suzanne and I have LOng QT also...i live in the U.S. though and i dont know about the system...im sorry..i am on disability here and get...
Hi All It has been a while since I have posted, it has all gone a bit quiet. Just to remind you all I have syncope and I have a pacemaker, I have also...
Hello JF I hope you get some answers to the questions. Google is good but we can end up scaring our selves. I also have syncope and a pacemaker, but fingers...
Hi All Has anyone started to organise anything for Arrhythmia Awareness week yet. I have downloaded the letter for my MP and I will have a stand in my work...
Hello JF What are the best things to do to make Arrhythmia Awareness Week a success. Have you any advice for things we could be doing? Last year I took...
Hi Carole There is a lot of information and letters to download on the awareness week dedicated web site - www.aaaw.org.uk Or Laura at A-A can e mail copies if...
Thank you for the reply. I'll take a look on the web site and download some information ready to start spreading the word about Arrhythmia Alliance Awareness...
Hi Carole I will target my GP's again, I will go armed with leaflets and posters. I am also going to one of the regional meetings on the 12th June, we have...
Hello Julie What are the regional meeting? What happens in them and how can I find out if there is a local one to me? Sorry but I won't be able to attend the...
Hi I've been looking at the list of regional meetings for the Arrhythmia Alliance : The first is on 16th April in Harrogate and then on the 17th April at...
Thank you for posting where the meetings are. I may be able to attend the Stratford one. I'll wait to see about who can attend, cost etc. Thanks again Carole x...
What is remote monitoring? The term remote monitoring means exactly what it implies: monitoring your heart and implanted device while you are at home, and...
Can remote monitoring be used with any ICD or pacemaker? Pacemakers and ICDs are very complex medical devices and are subject to continual evaluation and...
Frequently asked questions (FAQ) Is remote monitoring safe? Yes remote monitoring/follow up technology has been in use since 2000 and has been proven to be...
The potential benefits of remote technology Whether you are using remote monitoring or remote follow-up technology, your doctor and physiologist can be kept up...
Can I ask if any one else off this message board is planning to do anything for the Arrhythmia Awareness Week? Also has anyone any suggestions on what things...
Hi Carole I am hoping to target my GP surgeries and I am going to be writing to my MP. I am not sure where the balloon thing is happening, I haven't heard...
Hi All Has anyone had problems on their resting ECG which states they have flat T waves on V1-V6, if so could you explain what it means. Many thanks Yahoo! for...
I have answered this twice already, not realizing that I had to be a member of the group to reply, so those messages are forever lost in cyberspace. Those...
Thank you for the information Pam. I do have other issues, ventricular tachycardia, atrial fibrillation, and periods of asystole with syncope, for which I have...
Hi Julie, Yours sounds like a pretty unusual case. I know what Sick Sinus Syndrome is, but nothing as specific as SCN5A sinus node disease and mutation for...
Hello Julie Can I ask how often you have to have a ECG taken.? I find the medical staff don't seem to discuss with me what they are finding--is it worth me...
hi carole, i know the question wasnt directed toward me but i just thought you might want another persons perspective too?? whenever i go to the cardiologist...
Hi Pam Thank you for trying to help, it does seem complicated but I am sure I will get to the bottom of it. I don't have an ICD, I have a pacemaker but it is...
Hi Carole I only have an ECG done when they pick up a problem from my pacemaker readings, I don't have regular ECG done, may be if I was a little older or had...
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