Hi Matt I've had 3 different arrhythmias ablated: IST/Atrial Tachycardia, Atrial Flutter and AVNRT. I now have a pacemaker due to sick sinus syndrome too. I...
Hi Melanie I appreciate that you have probably had your ablation by now, but wanted to let you know that you are not alone; I have had a number of arrhythmias...
hi Julie I also went to the Heart Rhythm Congress and found it excellent, both as a patient myself (& patient group representative) and as a Cardiac health...
hi Melanie I have some information on Cryoablation, if you need more info, please let me know. in the mean time, you may wish to check out the Cryocath website...
hello everyone, my name is Fran, I have had arrhythmias for well over 15 years. I'm 30 and live in the UK with my husband. I have had ablations for IST / Focal...
Fran, Thanks very much for your reply. My last ablation was exactly one year ago now. I have been on flecainide (2x50mg) plus a low doseage of antenolol for...
hi Matt I have been on flecainide in the past, it was the very first med ever tried for my SVT and worked very well for me for 2 years. For one of my EP...
Hi The Arrhythmia Alliance is working to provide guidelines on how to establish support groups and we will be identifying and training volunteers on how to...
Well done to all the AA workers for their hard work on getting the site up and running - hopefully more people will feel able to post and share their...
Hi Trudie and all Yes we have such a lot to learn from each other ! When you've to have procedures done like electro physiology study and ablation you can read...
Welcome to all who have registered as members in the last day or so Please post a message ontroducing yourself and sharing your diagnosis etc. Look forward to...
Hi my name is Julie I am 43 and a mother of 3 grown up daughters. I have suffered with blackouts for many years and eventually I was diagnosed with temporal...
hello, my name is suzanne and i am 45 yrs old. i had sick sinus syndrome before 2002 but then we got into a terrible auto accident in aug 2002. i got hurt bad...
Hi everyone, My name is Jane and I have SVT and Angina, my daughter Jennifer has NCS. I am on medication which controls things most of the time, and Jennifer...
Hello to all and it's nice to see a new group in the making. My name is Murray and I am a 51 year old father with 4 children living in the Channel Islands. I...
Hello Murray I was diagnosed with lone atrial fibrillation in 1995. I had a cardio version which did not work, reverting back to the irregular heart beat very...
This month I celebrated the 5th anniversary of having a sudden cardiac resuscitated death. After the arrest I found out I have CPVT or catecholaminergic...
hi all, i have a pacemaker since feb 2003. It says i use it 50 % of the time and the dr said i would be dead without it. I had sick sinus syndrome first then a...
I've had SVT since a teenager (over 15 years now) and have always thought it would be really helpful to have access to a group such as this. I just wanted to...
... before 2002 but then we got into a terrible auto accident in aug 2002. i got hurt bad and had some heart trauma and a head injury. i got something called...
hello, i dont know your name or who you are but thank you for responding to my email for the AA group...im sorry that you also have so many heart probleams.....
Hello, My name is Lesley and I have just joined the group. I would like to ask if there is anyone out there with Long QT. I had never heard of it until 2...
Hi Lesley Welcome to the AA message board. I don't have Long OT but I have other arrhythmia problems which might need an ICD in the future. At the moment I...
Hi Lesley I'm still at the looking for a diagnosis stage !! I had a nasty collapse on the metro train last Friday luckily other passengers came to help me and...
Dear Lesley Lovely to hear from you and hope that you soon start to hear from others with LQT. You're proof positive of how effective an ICD can be, even if...
Hi I'm Sarah I'm 30 have had arrythmias since being a teenager. 4 ablations later and I'm not really any further forward. I currently have SVT and AF, going...
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