--- In heartrhythm-AA@yahoogroups.com, Suzanne wrote:
>
> Hi Lesley, this is Suzanne and I live in Michigan , USA. I have
long QT,
> though mine is mild, the Dr still has it documented. I have had it
for many
> years. But I started passing out when i was pregnant with my oldest
daughter (21)
> and just once a year or so. They dx me with "sick sinus syndrome" ,
gave me
> some meds, told me I had a mitral valve and tricuspid valve
prolapse and the
> mild Long QT and i was on my way. Then we were in a terrible auto
accident in
> 2002 and i had heart trauma and a closed head injury (in rehab for
2 1/2 yrs
> ) I started off in a wheelchair and ended up now with a
walker/cane...scooter
> too for long distances...Anywasy...I saw Dr. Blair Grubb here in
the USA
> /Ohio and hes a great Dr. for Neurocardiology. Hes told me that i
had a small
> problem and the accident bumped it to a larger problem and so he
then told me I
> had "dysautonamia" and NCS and then i passd out at physical
therapy and
> ended up in ER and then the ICCU and then i got a pacemaker for
the SSS and then
> in 2005 ihad a mild heart attack and ended ;up with atrial fib and
am on
> coumadin (blood thinner) for rest of my life...then in 2006 i had
a stroke even
> though i was on coumadin (lucky i was already on it they say!!) my
residuals
> is language problems when i m sleepy and i get confused sometimes
and i have
> ashort term memory problems ,also from the head injury AND the
> stroke...ughgggghh , i know its alot...but i deal with it and i do
some things and i try to
> be happy....but i really just wanted you to know that I also have
Long QT and
> its a bit scary but i deal with that too..i wouild love to be
friends with
> you ...please write any time...hugs, suzanne
>
>
>
> **************************************Check out AOL's list of
2007's hottest
> products.
> (http://money.aol.com/special/hot-products-2007?
NCID=aoltop00030000000001)
>