Hi I'm Sarah I'm 30 have had arrythmias since being a teenager. 4
ablations later and I'm not really any further forward. I currently
have SVT and AF, going between both with eptopics in between not pleasant.
The problems really started when I was 21 and collapsed, prior to
this I had been misdiagnosed with asthma, ventolin and arrythmias are
a terrible combination :(

The first admission to hospital the doctors were convinced I had taken
drugs (NOT true) only believed me once my blood results came back.
It was then discovered I had been in SVT for most of my life, it
wasn't until they converted me for the first time I realised that
'normal' people don't hear their heart pounding around their ears. I
had gone from SVT to VT which caused the collapse. A few days in CCU
showed SVT, VT, AF with one episode of AV block.
So it was off for ablation number 1. This was a disaster lots of nerve
damage horrible bruising massive haematomas with no improvement in my
arrhythmia. This was in Edinburgh.

Then off to Newcastle Freeman where I met Dr Furness, 2nd ablation
partially successful mapped 6 pathways destroyed most, kept me out of
CCU since after being admitted every 4-6 weeks for 5-10 days, still
had SVT with much less VT.

3rd ablation my heart stopped so procedure was abandoned, drugs kept
me reasonably well for a while but I kept getting used to the
medication and the arrhythmias broke through. The week prior to the
last ablation the event monitor showed 12 episodes of VT, off for the
last ablation which took place 7 weeks ago.

I was 'normal' for 6 days then back it came again only now I have SVT
and AF which is nice for a change at least in AF I don't fall over
been started on bisoprolol 5 mg while one of my consultants tries to
find out if anyone in the medical scene has any ideas.

At least now I know why one pathway is lying adjacent to my pulmonary
vein and for obvious reasons they have to be careful when albating in
that region.

My consultants are wonderful, Dr Francis in Fife and Dr Furness in
Newcastle. I am hopeful that at some point they will fix me enough to
have a family. In the meantime I'm a nurse in the private sector have
a wonderful husband whom puts up with a lot.
Its fab to have this here cause I read everyone elses stories and
think I'm not that odd really.

Sorry this is so long,

Sarah