Hi Chris ...

Yes i know it sounds a little confusing doesn't it ! ... i live in North
Wales and you don't get the luxury of this choose and book scheme that
you have in England ... i can only be guided by what i am being told ...
as far as i am aware it has been a difficult case and a rare one ....
the name being given to my type of rhythm problem is "inappropriate
sinus tachycardia" i have had two 24 hour tapes and two three week self
activating monitors for which i am told show fast rates not equal to my
activity and i have been monitored in the hospital and the same
information has been gathered ...... here you have to wait to be
referred to Liverpool to see a Electrophysiologist ... I was sent to see
one and there they did a ecg and i was reffered back ...... i was never
offered any further tests .... as far as accepting the diagnoses i have
no alternatives i'm afriad .........

In heartrhythm-AA@yahoogroups.com, Chris H wrote:
>
> Dear Kate,
>
> Don't worry about "going on" a bit: this group is one place where you
are welcome to "go on" as much as you like!!
>
> Well, I am not a cardiologist or an electrophysiologist.
> But I would not accept the diagnosis you have had thus far.
> Don't accept the comment that an ablation of the AV node "usually
results in permanent pacing" i.e. a pacemaker. Frankly, that is absolute
... no, I won't print the word ...
> When I was offered an ablation of the AV node last year by the John
Radcliffe, the likelihood of ending on a pacemaker was given as 1 in
200, 0.5%, which is a worldwide average and is the same figure that
Sandra was given.
> You really need another opinion: somewhere on the AA website is a list
of prefered hospitals, but I can' find it!
> Where do you live? Examples are the BRI, Bristol, the John Radcliffe,
Oxford, St. Marys Paddington, Papworth near Cambridge. People on this
site can recommend somewhere where we've had a good experience if we
know roughly where you are. And you should then PUSH your GP for an
appointment under choose-and-book. Sounds like you've not even got a
proper diagnosis yet ...
>
> Regards, Chris H
>
> --- In heartrhythm-AA@yahoogroups.com, Kate wrote:
> >
> > Chris H..
> >
> > And thanks for joining in with the hormone debate Ha! ...... a brief
> > outline of my story is this ... two years ago i woke up with a
severe
> > chest cramp, silly me did nothing about it and got ready for work,
and
> > then became ill during the day, tired and just wanted to sleep felt
ill
> > ... went to the gp he said he thinks i had angina ... go home and
rest
> > .... next day i was sent into hospital with a heart rate of 170 that
> > would not stop they thought it was a lung/clot, did CT all clear,
they
> > did a 24 hour urine test all clear this was for something called
> > peocromocytoma .... through out i had an inccessant sinus
tachycardia
> > that seemed to baffle ..... tried me on two beta bockers they did
not
> > work .... (something happened to change the way my heart is
bahaving)
> > ... my heart now gives huge exagerated burst of tachycardia every
time
> > i move, it goes 130 -160 just having a wash and getting dressed and
is
> > up and down all day at high figures .... the cardiologist is not
> > concerned about it because they say it is in sinus rhythm he say's
what
> > is happening is rare ...... he has just sent me to see a
> > electrophysiologist who did an ecg and says he won't recommend me
for
> > an ablation because it is the SA node and is difficult to treat and
> > ablation normally results in permantly paceing the heart .... and
now
> > wants to try me on another medication ....
> >
> > sorry if i have gone on abit .....
> > kate
> >
>