Dear Kate,
Don't worry about "going on" a bit: this group is one place where you are welcome to "go on" as much as you like!!
Well, I am not a cardiologist or an electrophysiologist .
But I would not accept the diagnosis you have had thus far.
Don't accept the comment that an ablation of the AV node "usually results in permanent pacing" i.e. a pacemaker. Frankly, that is absolute ... no, I won't print the word ...
When I was offered an ablation of the AV node last year by the John Radcliffe, the likelihood of ending on a pacemaker was given as 1 in 200, 0.5%, which is a worldwide average and is the same figure that Sandra was given.
You really need another opinion: somewhere on the AA website is a list of prefered hospitals, but I can' find it!
Where do you live? Examples are the BRI, Bristol, the John Radcliffe, Oxford, St. Marys Paddington, Papworth near Cambridge. People on this site can recommend somewhere where
we've had a good experience if we know roughly where you are. And you should then PUSH your GP for an appointment under choose-and-book. Sounds like you've not even got a proper diagnosis yet ...
Regards, Chris H
--- In
heartrhythm- AA@yahoogroups. com, Kate wrote:
>
> Chris H..
>
> And thanks for joining in with the hormone debate Ha! ...... a brief
> outline of my story is this ... two years ago i woke up with a severe
> chest cramp, silly me did nothing about it and got ready for work, and
> then became ill during the day, tired and just wanted to sleep felt ill
> ... went to the gp he said he thinks i had angina ... go home and rest
> .... next day i was sent into hospital with a heart rate of 170 that
> would
not stop they thought it was a lung/clot, did CT all clear, they
> did a 24 hour urine test all clear this was for something called
> peocromocytoma .... through out i had an inccessant sinus tachycardia
> that seemed to baffle ..... tried me on two beta bockers they did not
> work .... (something happened to change the way my heart is bahaving)
> ... my heart now gives huge exagerated burst of tachycardia every time
> i move, it goes 130 -160 just having a wash and getting dressed and is
> up and down all day at high figures .... the cardiologist is not
> concerned about it because they say it is in sinus rhythm he say's what
> is happening is rare ...... he has just sent me to see a
> electrophysiologist who did an ecg and says he won't recommend me for
> an ablation because it is the SA node and is difficult to treat and
> ablation normally results in permantly paceing the heart
.... and now
> wants to try me on another medication ....
>
> sorry if i have gone on abit .....
> kate
>
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