Hi everyone
I've read on the forum with interest people's experiences of CA. However we have
a slightly different question to ask as I'm asking not for myself but on behalf
of my 4 year old son. He has had SVT since birth, and has had very regular
episodes (between Dec-Feb he was having episodes on average every week,
currently it's around monthly). He is maxed out on the Flecainide dose he can
have, and recently has been started on a betablocker atenolol twice a day in
addition to the flecainide twice a day. At our recent consultation with the
doctor from Alder Hey, the consultant expressed concern at the number of
episodes and amount of drugs our son is on, and said he would consider an
ablation procedure. We had always been led to believe that they wouldn't attempt
an ablation until the heart is fully-grown. He's consulting the surgeon at Alder
hey to see if he would consider operating on someone so young. Our son's extra
pathway is also quite near the AV node, which increases the complications
slightly we understand.

Has anyone had experience of catheter ablation on small children? We would
welcome any information - positive or negative, to help us make an informed
decision about how to proceed. It's so difficult!
Thanks for reading
Ellie