Fran,

Thanks very much for your reply.

My last ablation was exactly one year ago now. I have been on
flecainide (2x50mg) plus a low doseage of antenolol for this
period and have for the most part been fine. I still get the
occasional flutter of which there seem to be different types - they
feel different - some are palpatations and others more like "pops". I
have managed to ignore these.

Because I had 3 ablations last year, the first two of which were
clearly unsucessful, I have not had the nerve to come off the
medication. I am told I have simple SVT but the pathway is in a very
tricky place.

I have not had the sickness and fainting you have had but the few
occasions last year when the tacycardia didn't stop really freaked me
out. I really do not want to be in A&E again!!

I am hoping the SVT will be sorted one day and know I will have to
pick a time to come off the medication.

I hope your EPS and ablation go well.

And thanks again for your postings to this group. I agree that it
will become really useful.

Do you know of any patient support groups out there that organise
meetings? I still feel
quite isolated in this respect.

Matt
>
> Hi Matt
>
> I've had 3 different arrhythmias ablated: IST/Atrial Tachycardia,
> Atrial Flutter and AVNRT. I now have a pacemaker due to sick sinus
> syndrome too. I get some occasional AF as well, also hundreds of
> ectopic beats each day (although fortunately I dont feel them all!)
>
> I'm waiting for another EP Study at the moment, I seemed to do well
> for about 18 months, but I have had a significant recurrence of
> palpitations, dizziness, fainting and chest pain, so I am back on
> verapamil and a beta blocker, which is controlling things so far
until
> my study. Some of my arrhythmia episodes have caused heart rates
over
> 270bpm and I have been worried that that has returned, but hopefully
> it is not that arrhythmia this time.
>
> are you due for another EP Study / ablation at all?
>
> I am waiting to have my 4th, I hope it will be my last one!
>
> take care,
> Fran
>
> --- In heartrhythm-AA@yahoogroups.com, aUser wrote:
> >
> > hi - my name is Matt and am new to the group. I have suffered
from
> > tachycardia for 15 years since college. Initially the trigger was
> > strenous exercise which I subsequently avoided and had no major
> > problems up until a year ago when I started getting episodes at
rest
> > (probably stress induced). Last year I had 3 ablations. After the
> > initial unsucessful one, I intermittently went onto flecainide. I
> > lasted 5 weeks after the second ablation before I had another
episode
> > that didn't stop and ended up at A&E. Before the third operation
and
> > coming off the flecainide I was back in A&E twice. Since the
third
> > operation I have been on flecainide and have not had the nerve to
> > come off!
> >
> > A relatively low dose of flecainide (supplemented by antenolol
when
> > needed) is keeping things under control with no obvious side
effects.
> > I still have occasional flutters and other bumps and thumps....
> >
> > I'm interested to hear from other SVT sufferers particularly
those
> > who have been through ablations both sucessful and unsucessful!
(all
> > of my ablations were termed "sucessful" post operation).
> >
>